Analgesic medications are among the most-used drugs for many forms of arthritis. Unlike nonsteroidal anti-inflammatory drugs (NSAIDs), which target both, pain and inflammation, analgesics are designed purely for pain relief. For that reason, they may be safe for people who are unable to take NSAIDs due to allergies or stomach problems, for example. They’re also an appropriate, and possibly safer, choice for people whose arthritis causes pain but not inflammation.
The most commonly used analgesic, acetaminophen, is also the most widely available. Because of its low cost, effectiveness and safety, rheumatologists recommend acetaminophen as a first-line option against osteoarthritis (OA) pain. Some people use acetaminophen in addition to an NSAID for added pain relief (but always speak to your doctor before combining any medications, even those available without a prescription).
For severe pain that isn’t eased by acetaminophen, doctors sometimes prescribe analgesics containing an opioid, such as codeine or hydrocodone. Sometimes these products also contain acetaminophen, such as oxycodone with acetaminophen (Percocet) or propoxyphene with acetaminophen (Darvocet – so if your doctor prescribes one for you, make sure you don't get a double dose of acetaminophen, which can be toxic. Longer-acting opioid analgesics are available, too. Some of these come in pill forms, such as oxycodone (OxyContin); another option is transdermal fentanyl (Duragesic), a patch that delivers opioid medication through the skin.
Drug Guide: Analgesics
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Sylvia
17 Aug 2010, 13:56
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| What a comfort, please keep this site going, I don't feel so alone with my
arthritis pain, and feel good to know there is a site to talk it out, and
give advice, as well as get arthritis information I am 64, at age 57 had 4&5 lumbar surgery, the following year left total hip replacment, and a year after a total right hip replacement all from OA the pain I have now is not as bad a the bad I had befor the surgeries, but I now have other issues, severe narrowing of my spine, still in pain every day all day, from my spine, since the nerves are out of wack my feet stay numb, tingling, hardly any feeling, I must move carefully, or a wrong move will set off cramping burning pain on my right side at times I get weak, wobbley and can bearly walk, I feel like Humpdy dumpty all broke up my cain helps me somewhat I am trying to learn how to control my pain so that I can go back to enjoying my life, with-out so much pain and numbness I pray every day for us all, thanks for this site every-one take care |
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mike
03 Aug 2010, 12:35
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| i'm a disabled veteran in 1984 i was in a head on car accident. i fx my r hip and r femur and dilocated my r hip. my right leg was 3/8" shorter after the accident. i've had some degree of back pain which has gotten worse the last ten years. i tried lifts in my shoes only to make the pain worse as well as inflame my si joint. last year i started getting severe low back, legs and foot pain while walking, standing, climbing stairs etc. my right leg is now 5/8" shorter. steroid injections in the back provided no relief. 10mg hydrocodone 4xday helped alleviate some of the back pain but not the pain when walking/standing etc. my va doc switched me to methadone 2.5mg 2xday. still no relief when walking/standing. is there a surgical option available? |
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Mark Lee
20 Jul 2010, 13:09
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| Hello Folks, I thought I had developed severe arthritis from a severely
crushed ankle in 1981. After a 6 week hospitalization on Demerol shots I
was released on Metformin and a short term, mild narcotic. For 5-6 years I
was fine with the potent NSAID, then my stomach bled out (blood both ends)
I almost lost my life. Only to be followed by severe pancreatitisI I denied
being a drinker (I wasn't)and I almost lost my life to this too, but no one
would listen. They hounded my wife, my mother, and my 4 Y/O daughter. I was
being treated with Darvocet until in 2001 they discovered I had adult onset
Cystic Fibrosis. This causes many of the same symptoms as Rheumatoid and
Osteoarthritis, not to mention fibromyalgia. Since the discovery I have
been treated with long acting narcotics with wonderful success (CF patients
do not make natural painkillers). So check out every option, do not allow
yourself to be railroaded! Do not allow nerves to be cut or blocked. Your
body has so many nerves of so many types that the body has a sickening
awareness that something is wrong. My mother died very suddenly of a
catastrophic heart attack and she had no predisposing factors (other than
taking NSAIDS for 17 years). I have unexplained hypertension due to NSAIDS!
These drugs were put on the market far too quickly. Whatever God you may or
may not believe in, placed the poppy on Earth to stop the suffering of
persons like us! You can't improve upon the master (or nature according to
your beliefs)! Mark |
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missvicki
06 Jul 2010, 14:37
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| Hi-I have RA and have been on enbrel for 15 years, I was one of the first on it. It worked good until 2 years ago. I couldn't figure out why I was getting bladder infections. I went to a specialist and he just put me on antibotics over and over. Does anyone else get bladder infections??? anyway my GP finally figured it out in April and so I went to my RA Doctor and he took me off of Enbrel. So for the last couple of months things have gone down hill and I feel like a cripple again, I had forgotten how bad the pain could be. People don't understand when there is nothing they can see. I am lucky my husband is very thoughtful and supportive. I take vicodan, soma, prednisone and methotrexate. I just started Orencia treatments but am worried about the bladder infections again. I still work and my boss is supportive. I wan tot work as long as possible. |
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JoAnne
06 Jul 2010, 14:04
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| I have been diagnosed with arthritis (by my rheumatologist) because of paid in the back of my legs just to the knees. No pain in my knees. He has done three back blocks which help for about 6 weeks and will only give them every 4 months. I am on Mobic and Lyrica...but they don't help very much. Is there anyone out there who has these same symptons.....pain only in the back of your upper legs. If I am standing, I am hurting...when I sit or lay down the pain disappears. Please let me know if you have or know someone who has these same symptons. I know this is rambling, but I am so affraid he is going to want to do surger and I want that to be the last resort. Thanks and I'll be praying for all of you. |
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caliguy57
06 Jul 2010, 10:01
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| I feel very sorry for many of you. Apparently, I'm luckier than most. I've got Kyphoscoliosis, numerous defects in my spine, bursitis and other problems with my shoulders and knees, pain in my toes that may be caused by diabetes (waiting for test results), etc. My first PCP started me on MS Contin and MSIR for my chronic pain. He also tried Oxycontin and Fentanyl, but the Morphine preparations proved to be the best. My second PCP continued me on MS Contin (160 mg 3 X per day), but has changed me from MSIR to Oxycodone HCL Oral Concentrate Solution (20 mg as needed) for Breakthrough Pain. With these medications, my pain is well controlled. And, contrary to popular belief, I can function fairly well in daily life (my quality of life is certainly much better than it was at the beginning) and I'm not an addict as I use my pain medications only for the conditions for which they are prescribed. I know I'm physically dependent on the medications, but so what. There's a big difference between physical dependency and addiction. Any honest physician will tell you so. |
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Monica Rodriguez
19 May 2010, 21:59
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| Joanna M Florida, I also was diagnosed with JRA at the age of 17, now I'm
43. I agree with everything you said. But back then there weren't many
good medications to help RA. I was also put on Gold injections but soon
was pregnant with my daughter so I had to be taken off. I was only able to
use prednisone and in my last trimester was on a dosage of 100 mg per day.
It was horrible. After 20 years I was finally able to get off the steroids
with the help of 2 drugs, methotrexate and remicaid. It took 18 months to
do this. I have had multiple surgeries, both knees replaced, a hip
replacement, hands and feet worked on and recently ended up with a staph
infection in my ankle that I didn't know I had until it was so far gone I
nearly lost my foot. The prior steroid use didn't allow me to show signs
of fever and still don't. I have had 3 surgeries in my ankle to save it
and if I stay infection free they will replace my ankle in August. I know
your a nurse or former nurse, what do you think about going back on the
Remicaid at a later time? Or do you think the Remicaid played an intricate
part in the infection? If so, what medication do you think would work well
with my methotrexate? Thank you for your help. Monica R, San Jose CA |
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Graz
18 May 2010, 13:43
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| I really, really feel for ALL of you and what you are going through. I got RA after my teeth implants didn't take. They prescribed me wrong antibiotics, got staph infection to top it off, lost lots of weight and walked like a zombie for few months. I got better, went to see a rhumatologist but I didn't get from her what I was seeking. You see I do not believe in taking drugs unless there is nothing else. So I researched the disease on line. Lots of good information. And YES- NO PERSON IS THE SAME AND NOT ALL WORKS FOR ALL. But I go to Curves 5 times a week, I changed my diet, and I go for massages on the MIGUN bed 5 times a week. I lost weight, I got stronger, I sleep better. I also have a MIGUN mat on which I sleep everyday, so that in the morning I can get up without too much of a difficulty. I try not to take pain pills unless I have to. Michigan weather doesn't help my condition, but I hoping to move to some Dry and warm place soon. Also, Taking more vitamin D3, fish oil, and coconut oil help tremendosely . I have other ideas that may help so I'll be seeing a doctor that's willing to hear me out and give it a try. Good luck to all of you. Do not give up trying different things and START WITH A DIET- LOTS OF FISH - NO FARM RAISED FISH EITHER. LESS RED MEAT, LESS SALT, LESS SUGAR, NO CARBONATED DRINKS ETC. GRAZ |
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Paul L
11 May 2010, 11:49
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| I have OA. I live in FL and I applied for SSD in Nov. 2009. I was approved in Feb 2010. Very fast, was very surprised. I am now on United Healthcare through Medicaid and it's horrible as few doctors will take it. I called over 20 that UHC had listed and was told they didn't accept it. Finally found one 25 miles away and he will NOT write me a referral to an orthopedist. I've two other written referrals from two non UHC dr's but without his referral I can't go. This is ridiculous. I've been totally on a cane for over a year and am always in some degree of pain. Ibuprofen seems to help more than anything else but I'm to the point of taking 3-5 every 2-3 hours. The doc wrote for Voltaren but that really upsets my stomach. Just thought I'd share. |
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KS
10 May 2010, 20:12
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| In deperate need of a good dr. in the Buffalo arear who will do more than tell me to take motrin. I was in an accident 10 years ago and the older I get the worse my back pain gets. I can no longer sit at my desk at work for the whole day and just dont know what to do. If anyone can help recommend someone PLEASE help me! |
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KS
10 May 2010, 20:08
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| MAUREEN! If you read this please post..I am in the buffalo area and am in deperate need of a doctor who will tell me more than take motrin. I was in an accident 10 years ago and the older I get the worse my back pain gets. I cant sit at my desk at work all day anymore. At one point I had 5 bulged disks at once. I need a good dr. recommendation PLEASE! |
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annie
04 May 2010, 09:25
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| i have fibro dx'd about 7 years ago...bad arthritis...2 bad discs in my
back..and top that off with crohns disease...i am so lucky my docs are
helpful....i take percocet for the bad back pain and the fibro...only 1-2 a
day...ultram(tramadol) for the fibro and darvon for the crohns pain...i
also have epilepsy and take phenobarb for that(and have for over 30 years
now)...only a new doctor would question me(actually an np did..she called
me a drug addict..i complained about her and she isnt there anymore)...i am
very careful and only take things when its really necessary..i have also
discovered..at least for myself..to take a small amount of med right
away..like say..one darvon...if i wait too long hoping the pain will go..i
will end up needing more meds....i need the percocet when i get up in the
am...the afternoon..sometimes ..sometimes not..cold damp weather..the
worst...very hot humid weather..also not good...spring and fall in boston?
usually pretty good for me..i am on the least amount of pain meds then and
the strongest... i cant drive because of the epilepsy...i am walking with a cane or walker depending on how bad the pain is..and i walk 25 minutes every morning now and hope to add on another 10 minutes or so in the late afternoon... i go to bed at 9 because my husband has to (he gets up at 5 for work..long commute)..i wake up between 6-7..and do all my housework and cooking etc before 9...everything thats tiring is done..then i go for a walk til around 930..come back and have a break..and finish up laundry etc til noon..have lunch and take a 1 hour nap ..doesnt matter if i sleep..just to lie down with no stimuli for an hour helps especially the crohns...i am also diabetic(i know..what else could be wrong..well lots of things..and they arent..yet)..so am learning to address that issue too...i wish luck to allof you i got on ssd with the crohns and epilepsy years ago...most people get turned down the first and second time...the third is a hearing..get an ss lawyer...who will prepare u for the hearing...i needed all of my medical records..and for crohns(and i bet this would be good for fibro) a "journal" of each day..what i did or didnt do and how i felt..just a sentence or two..i was totally honest..there might be a whole week when the crohns didnt act up at all..then wham... the judge looked at some medical things..especially the scope and biopsies and he read part of my journal..because i cant drive..waiting for buses and trains made the crohns worse...i got ssd...6 weeks after the hearing...the lawyer gets either 1/4 of your "back pay"(ssd payment goes back to when u first filed)..or some other minimum amount..she was wonderful and i was well prepared..since i had worked in the private school system a long time i didnt have a lot of social security time..so all i get is 400 something a month..plus medicare...which i started using this year...the medicare alone is worth it and the 400 pays for my med co pays and my advantage plan as well... good luck to all on here.. annie ps feel free to email me at annieluvrose@yahoo.com...i am willing to "chat" via email with anyone who needs some support...(i am also a trained counseling psychologist) annie |
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Sheri
02 May 2010, 20:41
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| It is comforting to hear other stories. I agree with so many of you. What is wrong with these docs???? I have oa, fibro, and severe disc prob in my neck due to arthritis. I was referred to a Rheumatologist. What a joke that was...this doc prescribed a new drug(savell) and said my only other option was lyrica which I have taken before with severe side effects. I asked him if there were other options because I don't like trying 'newer drugs'..too many probs seem to crop up later. I am not asking for narcotics just relief and a little understanding. I was actually told that those were the only possible drugs available. I got online and did my own research-I was told a lie but don't know where to go from here. I can hardly function due to severe pain....any suggestions??? |
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Judy
24 Apr 2010, 13:10
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| to Joanna M Florida, my doctors also recommended total disability last April (2009) and I applied, I have had one denial and am now in appeal - I contacted Binder & Binder (attorney's) and they have helped me from the very beginning. It is very wise to have legal assistance from the start. I don't believe you can work at all once you apply for disability. You may be able to collect public assistance/SSI during the wait for disability and most likely afterwards as well. Good luck and if you need someone to talk to you can email me at any time. I was diagnosed with Fibromyalgia and Osteoarthritis 7 yrs ago and now also RA. |
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Joanna M Florida
22 Apr 2010, 21:30
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| Help please..All of my doctors have told me to file for disability (SSI) Any info on what I should do.What do you do while waiting for benefits for income.I have heard it can take up to two years with 2-3 denials. I am a single mom.Can you try to work while you wait for approval? Should I get a lawyer? Are there some diagnosis that help get approval faster than others.I have worked for many years but it is getting very painful and everyone has noticed my decline at work. Thanks. |
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donna
20 Apr 2010, 14:51
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| Hi everybody my name is donna, I'm so glad to have found this website. After reading everyones comments, I feel that I'm not alone. I feel for all of you that suffer pain. As for myself, I suffer from chronic pain everyday, every minute. I have arthritis, osteoporsis, neurophy and fibromyalgia. I take morphine, vicodin and neurontin for my pain. I have to watch what I take because of liver disease. I only get help from my primary doctor, which I'm thankful for. The pain management dr. said there was nothing he could do for me. He doesn't know what he to do for me. There is days I don't want to get out of bed I hurt so bad. My feet and legs hurt so bad when I walk or just stand. I walk with the help of a cane. I was bedridden for 2 yrs, I went from a wheelchair to a walker then cane. Alot of therapy for over 4yrs. Family members and friends just don't understand. They look at you and think there's nothing wrong you can't be in that much pain. I'm so glad to find websites with people that help each other out to make it through the day. Thanks for listening. donna |
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Marilyn
20 Apr 2010, 10:21
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| you know, my doctor of 30 yrs. never gave me a hard time for darvocet or if I needed something stronger for a short time, it was the insurance co.-they sent letters to all my other doctors that only saw mw once a yr. about my over-use of narcotics-the only thing prescribed by the gyno was estrogen!.Then my doctor had to have only a scope done on his knee-when it came time for my next appt. he said to me, that I never denied you were having pain, just never knew how severe it could be and over take your life--only a scope?? I laughed and said wait, that's only the beginning. |
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Joanna M in Florida
08 Apr 2010, 14:54
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| Wow.. this could be long.My first time on this site. Dx in 1973 JRA working as a nurse(hard labor) for 37 years. My comments may be some what disorganized but they come from my point of view as a nurse and patient.First there is and old saying at the hospital..can't cure it put a little cortisone on it. In other words there is no cure for RA only treatment of the symptoms. My first RA MD Jon Whelton was great in that he had insight to the disease. Told me that I was going to have to fight for a normal life. Put me on Percoet in 1975 and tried various RA drugs Gold injections worked the best for me but I do not think they use it anymore ...very toxic. You have to find what works for you. Know the drugs they give you and the side effects.(biggest one is on some of these drugs including Predisone you can be sick and not know it). Athletes use it to become super human push themselves to the limit. Your best defense is to get to know your disease and start reading everything you can find and weigh the options. Pain and swelling is an indicator that the RA is active. If you do not feel better consider another. I was lucky..My first doctor was great. The ones I have had in the past 10 years are not that great. I am always looking and asking other local people about their doctors.Be careful of doctor shopping.The DEA list it as a characteristic of an addict. The biggest problem we all face right now is our health care status. We will lose options.Find that good MD as soon as possible and ask if he intends to stay in business during the near future.Many professionals are planning to go into something else. And last but not least:Pain is not good for anyone. Ask your doctor if he has an opinion about dependency vs addition. Doctors who are educated in pain management know the difference. Pain is our first symptom. Older the drug the more proven as being effective. New drugs have many side effects but still should be considered to manage the joint destruction. |
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Ann
06 Apr 2010, 21:36
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| I have OA of the cervical spine, lumbar spine, and in both knees. My lumbar
has been the most debilitating. I was referred to the Pain Clinic by my
orthopedist after I told him my reluctance in having any back surgery since
it was not guaranteed to be a successful remedy for me. At the clinic, it
was trial and error in finding the right combo of pain management for me
since I am very sensitive to opioids (they make me severely nauseous and
dizzy). My pain med regimen now is Relafen 750 mg twice daily, tramadol
50mg twice daily, amitriptyline 25 mg at night. This keeps my pain at
minimal level. I can tolerate the opioid tramadol (Ultram) only twice a day
although it is prescribed to be taken up to 4 times daily. I can now sleep
at night with little back pain, thanks to the amitriptyline. I have just
had another injection of Synvisc in my knee. My last treatment lasted 1 1/2
years, although it took 2 months to start working. I have written all this so that maybe it can help another person who has the same problems as myself. |
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Carolyn
06 Apr 2010, 15:12
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| I have 3 bulging discs in my lower back and OA. Standing and walking is not so bad for me but sitting and laying in bed is so painful. I just started on hydro which makes me sit to my stomach even when I eat something. I am also taking soma for muscle spasms. I have to take celebrex for knees which helps. I am concern about taking so much medication but what can I do? I take other medication for other problems also. I am glad I found this site. It sure has been helpful to me today because sometimes I get very depressed and try to hide it from my family. I don't want them to worry about me. |
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Tammy G. Indiana
02 Apr 2010, 03:25
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| I know that cancer kills ~ but arthritis takes your life ! I'm not saying one is better or worse then the other ~ nor do I want to offend any one ! what I'm trying to say is they are always raising money and having walks and, etc. for cancer ~ more needs to be done for Arthritis !!! we need a cure also !!! It's so hard to gone on ~ day to day simple dailey tasks are slipping away~sometimes I feel like giving up and dying , it is so painful...please pray for a cure ! I hope and pray that everyone has a Happy and Blessed Easter... |
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Jim 3times the charm
01 Apr 2010, 23:57
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| Sorry for writing so much. Obviously, I just found this site, and I am
excited to finally see a group of people (misery loves company) that are
going through the same stories I have. What I have learned from the similar
stories is the reluctance of doctors to give medication that actually works
for those of use with different form of Arthritis. It doesn't matter if its
AS or RA, it is still crippling and painful. There are people that abuse
drugs and for that we have to pay? Where is the justice in that? There are
medications available that will help me live a normal or close to normal
life (I will never be upright again) and to be pain free to play with my
children. I don't bring my children into the conversation to get sympathy.
This is what it is really like for us. We just want a painless day and
especially a painless night. The medication is there, but for some junky, I
can not get proper care. What do I do. I can't go to those web sites. If
anyone knows of a legitimate doctor or pain specialist in NC, please
forward their information. I only want to take what is needed, and if I go
into remission (which has happened on a couple of occasions) I will stop
the medication or however they want me to do it. They say your tolerance
goes up as you take heavy medication and you need more just to get the same
relief. And, your point? I would trade a vile of morphine to be able to
play baseball with my children. This is not living. A doctor is going to
worry that I am going to be an addict? An addict of what, getting out of
bed and going to work, playing with my children, sleeping through the
night? Is that the addiction I am facing. Oh, I get it. You have to stay on
the medication or you become addicted to it. So what. I can taper off of
whatever they give me, just give me the chance to experience life again. If
I did not have children, there is no way I would endure this pain and
uselessness. I apologize for taking up so much writing time. I just had a
lot to get off my chest. I do wish all of you the very best and pray that
you may find relief and that somehow things get better. Does anyone know of a support group? I gotta get some help. Thank you. |
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Jim
01 Apr 2010, 22:26
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| Maureen, Please do not feel bad for having to take pain medication. It has a bad stigmatization out there. Why, because it works better than anything else we have. Do not let it get you down. I know the pain. It is constant. I pray for relief, but it doesn't come. Occasionally, I have a brief remission, and although I have a bamboo like structure now after being a body builder, I enjoy being able to walk without pain. Then it return as quickly as it left, usually with the sternum and then the rest follows. I won't bore you with the details. Just know, you have a friend and someone that understands. No pity parties here, just some camaraderie to know we are not alone. I can not get any medication to help. I know I could probably find a doctor, but it is hard enough without insurance. I have an 11 and 7 year old. I tried playing catch with my 11 year old. I lasted about 15 minutes. After that, I told her I had to take an important phone call. I sat in the bathroom crying, not from pain, but because I could not continue playing catch. What a life. This is no way to live. |
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Jim
01 Apr 2010, 22:17
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| Well, I can see there are many sufferers like myself. I will try and make this brief. I was incredible physical shape. I played every competitive sport available at a young age. When I got older, 16 to 18 I boxed and wrestled rather well. After 18, I trained as a body builder and one a trophy at 19. Here come the part you are all probably familiar with. When I was almost 30, still very fit, I developed a staph infection in my knee while in the hospital (big surprise). I lost over 100 pounds of muscle. I could not lift my head without pain. My ankles swelled for no reason. I finger here a sternum there. My left eye swelled so badly I started to go blind. The eye doctor finally told me what I had. After heavy doses of steroids, I went into remission. After that, I went on Asulphadines to know us. NSAIDS are a joke. Now my back and neck are almost fused together. The once athletic boy was a cripple at age 30. What I want to know if why will the doctors no prescribe drugs that will kill the pain. Hydrocodone etc...I am not afraid of addiction. I can live with that if it mean I can tie my own shoes. It is ridiculous to suffer like this when they can (doctors) help me. Aspirin tears up my stomach and doesn't help the pain. All the other drugs do not help either. The only thing that helped was a combination of Hydrocdone without aspirin. And, small doses of xanax and a muscle relaxant. I was able to obtain this combination once. It was like a miracle. I was still stiff, but I could dress, drive, walk, turn my neck. Why the reluctance to prescribe what works. Addiction is not something I am afraid of if I can live a somewhat normal life. If you agree, let me know. |
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Mike Jones
16 Mar 2010, 19:11
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| I read in the comments where some are taking large doses of Tylenol. Be
Careful!! Excessive doses of acetaminophen can destroy your liver, I read a recent headline where it is know the leading cause of terminal liver disease. I also speak from personal experience. I had a liver transplant in 2004 after downing arthritic strength Tylenol like candy for several years. |
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Gary
04 Mar 2010, 22:56
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| My daughter Kylee was diagnosed with Polyarticular Juvenile Idiopathic Arthritis in December 2009. She is currently on 25 mgs of Methotrexate by injection once a week. Also, 740 mgs of Naproxen (slow release) and 2000 MGs of Tylenol(rappid release) and 2 mgs of Folic Acid each day. She is experiencing a lot of joint pain, and cannot sleep at night. Her Rhuematoligist has just prescribed 20 mgs. of Prednisone daily to help with the pain, but so far we see little or no relief. This is very discouraging. Does anyone out there have any suggestions, and does anyone else have any experience personally or working with family members with JRA??? Any other information would be helpful and useful for use and with her schooling. Thanks. |
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Joy
25 Feb 2010, 10:40
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| I have had RA for 15 years. Some years were great where I went into remission and some not so good. Right now it is bad, but I am fighting with every breath I have. I do Yoga, which keeps my mind off the pain, and meditation. I have also started water aerobics. I know it isn't easy. I can't say it will get better, but I so hope and pray for a cure. I am 54 years old and they want to do hip replacement surgery. I am on Enbrel and Methotrexate. I just started the Metho but have been on Enbrel for quite a few years. It is not an easy life but you get grab little moment of joy whenever you can. Best of luck to you all. I also get help to sleep at night. Soma and Clonzapen. Wish I had hydrocodone but learning to deal with the pain. The cotizone shots in my hips helps but nothing they can do for my back, knees, wrists, etc. etc. Just take it one day at a time and find small ways to get some happiness. |
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Maureen
04 Feb 2010, 11:32
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| Just reading some of these posts makes me want to cry ! I have very bad OA and my wrist bones have started flaking away and touch the nerves. I had to shop around for a good Doc for years. This is my advice to all of U wasting your time with bad Docs who wont give U pain meds....In the phone book or computer look up Pain Management Doctors. I am on 125mg of time released Morphine called Kadian and No. 10 Hydrocodine for breakthru pain. I can take 4 a day. I also have 10 Fentanl succers a month that I use when the pain is extremly bad due to a coming storm or the cold or high humidity. I live in Buffalo NY. After going to the Pain specialist for a year my regular Doc writes me my pain meds once a month. I thank God for these 2 Docs who have helped me. I will be on Opiates for the rest of my life but they are the only thing that works. I send U all the luck in the world that U all find good Docs like mine. |
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Rashmi Saxena
02 Feb 2010, 15:23
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| I am 49 have had RA for 7years and have been suffering with pain since then. I am finally taking 8 methotrexate once aweek and a Celebrex(200mg) every other day. It has worked well for me so far, but now it seems that I may have to take the celebrex every day. I tried Enbrel but too many side effects. so now the doctor wants me try some other Biologics from Feb. Let's see what happens. It's hard and painful, simple tasks seem hard to do all the time,but what to do. THe pain in the fingers and toes stay. People don't understand what I am going through.It's frustrating and depressing. I sympathize with all who are going through this. |
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Tammy G.
26 Jan 2010, 05:17
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| Jodi- Thank you ! you are so right on ! |
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Jodi
25 Jan 2010, 14:40
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| Shannon D, I would dearly love to be able to say something positive about having this disease but to date I haven't found anything. We are all struggling to accept what has been dished out to us and maintain whatever sort of normalcy you can individually keep but it isn't easy. And saying it is doesn't make it so. I think most people that read this site are looking for a sense of not being alone in how they are feeling, the struggles they face daily, both in pain control and in finding physicians who are willing to help as much as they can and trying to make it sound less than what it is in reality doesn't help much. It actually makes you feel the same way you do every time someone watches you struggle out of a chair and then says " How are you feeling today" Kind of obvious to me. I know when you first find out you have RA or OA or Fibro or whatever, you want someone to tell you it will be OK. And it will. You'll learn to deal with it in your own way, not by laying down and giving up, but by letting yourself be supported by those that know what you are going through and maybe can help you steer clear of some of the things they have gone through by sharing their thoughts, feelings and struggles with you. RA isn't a death sentence like some are dealt and I'm thankful that I will be around to be with my family but that doesn't mean I like what is going on in my body. Maybe you will be one that finds a tremendous doctor, a new treatment or way of dealing with this that you can share with all of us. That would be great. I hope you find answers and help to deal with this diagnosis and keep right on hunting , fishing, ect. The more you keep your joints used, the less stiffness and pain you usually have. Good Luck! |
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stormy giddens
12 Jan 2010, 14:54
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| hello everyone i was so glad to hear i wasent the only one getting treated like a pill addict.although i will pray for you all tonight.i feel your pain. i was dignosed with ra 6 months ago and had been taking hydrocodone all this time i had to move to virgina where they frown on narcotics.and have put me on tramadol and ultram which neither work i cannot get off the couch and i cry all the time begging the lord above to take me....from this pain.the pain specialist put me on cymbalta yesterday i have been experencing major side effect my teeth cant stop chattering hands are shaking i am having severe adominal pain and my whole body aches. i dont understand why he would take me off something that was working fine for me. this state sucks!!!!!i dont want to die i dont want to cry iam not depressed just give me my hydrocodone or SOMETHING THAT WILL WORK !!! iam so tired of fighting with doctors and this pain does feel like a slow death.please pray for me......... |
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Shannon D
07 Jan 2010, 16:03
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| Well this all sounds great!Im 45 and was diagnosed RA 2 months ago. I have yet to see a rheumatoligist and I have severe pain in every joint in my body.My hobbies are golf, hunting and fishing with my children. After reading all the comments it seems to me that i had might as well not even go to another Dr.I should just lay around and give up everything in life! Does anyone have anything positive to say about this bad dream that is turning in to reality |
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Tammy G
06 Jan 2010, 19:05
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| Debbie- go back to the doctor and tell them it still hurts ! Arthritis pain sucks ! It's hard to find out what works for each person- what works on one person - may not work on another person...You usually go by trial of elimination, and there are alot of meds to go through ! if your doctor is no help go see a pain management doctor.. good luck ! |
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Debbie
19 Dec 2009, 00:38
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| I've never done this before but I need some info, I have so much pain on my
ankel bone from arthritis, I don't know what or how to treat is. I have so much pain that I can't sleep at night and when I step on the foot I limp cause the pain is severe, the dr put me on ibrouphin but it's not helping does anyone have any advice on how to releive the pain. |
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Jeff S
15 Dec 2009, 10:19
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| Thank you Tammy G. I am going to consider my options. It would be hard to leave family and freinds but sometimes you have to do whats best for health.People dont understand the pain on a daily baisis unless you have a form of arthritis or several.Take care |
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Tammy G
14 Dec 2009, 15:02
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| Dear Jeff S. My name is Tammy I live in Indiana- the severe cold temps. don't hurt as much as the rain and hummid weather...But I did live in Arizonia and my arthritis was much better the climate really did make a difference- we had to move to Indiana for my husbands job... My pain is very bad also nothing has helped my back except for a spinal nerve stimulator... If your RA doctor doesn't help with the pain - try going to see a Pain Management Doctor -they have helped me with the pain but my Psoriatic Arthritis is getting worse by the day ,it takes alot to use my hands and my toes and back and neck are very bad and becoming more and more deformed...Arthritis to me is a slow painful death- it sucks ! |
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Jeff S
13 Dec 2009, 23:24
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| Hi im new here, i have Psoriatic Arthritis Osteoarthritis,and Emphysema. I have been on enbrel for 3 years and it helps pa but my oa has gotten worse.Some night i dont want to go to bed because i know when i wake up the pain will be there.I am on disability, thank god! that i dont have to work. Living by Chicago the winters are terrible on the joints.Does it really help to live in a warm climate? Going to call RA dr to see if there is something else to try for pain.I have been put through the ringer on different meds but eather they dont work or bad side effects. |
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julie
01 Dec 2009, 13:06
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| i believe i have ra i have constant pain in my shoulders neck and arms my arms feel heavy if i try to do stuff i just have more pain i am type i diabetic developed frozen shoulder 1yr ago which lead to my arhtrtis i am fatiogued all the time nauseated i can barely dress myself i have filled fro disability its hard to go to work if you cant get dressed i got to the free clinic now its hard to get them to run test any suggestions to help me get dx so i can get trweatment take naporeson on bad days took ultram but tylenol arhtritis i take x2 daily seems too work better for me any suggestions would be appreciated thanks julie |
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Robie C
11 Nov 2009, 12:03
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| Hi...I'm new here....Just found this site....I suffer from OA and have for several yrs. now...I am 54 almost 55....I can't seem to get any dr. to do anything for me...I recently went to a Bone and Joint Dr. and he gave me a cortizone shot in each knee which does help somewhat....My fingers and toes hurt all the time...At this time I take Meloxicam...Works somewhat....He told me on a scale of 1-10 I am at 7....And in time I will have to have knee replacement in both knees...I also have arthritis in my lower back to which prevents me from doing alot of things....Like sweeping and mopping the floors....I don't work...Thank goodness....Don't think I could make it everyday...It is hard enough on me now and I get no help from anyone.....I am glad to have found this site....I think I finally found a place I can go to and talk to people that understand what I am going through.... |
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Abby
08 Nov 2009, 08:57
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| I can relate to most of all your comments I am dealing with the same thing back and leg pain., I have been to my primary doctor over and over and each time he has told me try this take over the counter pain meds but they dont work. I feel sometime I dont have the engery to do my job or play with my 4yr daugther I do know that dr alan brown in Bellevue is a bone and joint doctor and he works really hard to get the help you need without making you feel like you have a problem just in yur head I just would like any help on how to deal with this pain in my back and leags and sometimes i get types of headaches that last 3 days or more I live in the Renton Wa area If anyone can help please email |
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Barb G
05 Nov 2009, 05:04
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| Wow I just read a few of these comments and my heart goes out to all of you. I was diagnosed with RA in 1998. The Rheumatoligist put me on 6 methtrexate 2.5 mg a week plus Daypro anti-inflamatory 600mg 2 a day plus folic acid, not to be taken the day of or the day after I take methatrex. So I take the 6 methtrex on mon with Daypro only one a day sometimes Tylenol if I hurt more. Ideally I would like to have methtrex by a shot but I have no health insurance. I am 64 yrs old Still rolling. I WILL NOT TAKE NARCOTICS I AM A RECOVERING ALCOHLIC 23 YRS SOBER. I BELIEVE I SWITCHED THIS BABY ON BACK IN 98 WITH THE DEATH OF MY MOM, BROKEN RELATIONSHIP AND BANKRUPTCY. YOU CAN'T UNBREAK A LEG. I TREAT IT PHYSICALLY AS WELL AS SPIRITUALLY I HONOR ME AND I PACE MYSELF I REFUSE TO TREAT MYSELF AS AN INVALID OR I WILL BECOME ONE. WE ARE SPIRITUAL BEINGS IN A HUMAN EXPERIENCE. CARRY ON. love to all. Barb |
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Cheryl
04 Nov 2009, 15:16
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| I am new here, and to arthritis in general. I've had pain problems for what seems like forever. I'm 40 years old, and have had Migraines and just bad headaches since I was 7, and have been on every pain medicine just about known to man. I'v been treated like a druggie over and over, and it just gets old. I have developed a high tolerence and nobody seems to understand that. Now, I find out after having jaw surgery for TMJ in 97, I now have arthritis and joint issues again. Which just makes my headaches THAT much worse! My face hurts all the time, and I don't know what to do. I was only diagnosed like 2 weeks ago, and so I use moist heat/cold and Motrin, don't u know that helps?! My headache doc gives me the smallest lortabs and I just want to scream!! I hurt all the time!!! Anyone with any advice?? I just moved to Florida, and they are really tough on people getting narcotics. Which I wish I didn't need them, because honestly I have issues with taking too many. But, I also hurt all the time. What's a person to do?? |
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Tammy G
29 Oct 2009, 10:48
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| This is in ref: to Patricia Graci- Patricia my name is Tammy G. and I too was diagnosed with Psoriatic Arthritis 1 year after my Hysterectomy...I alway's wondered if it had something to do with the amount of blood I lost during the surgery- I was given alot of donor blood and back in 1993 it was not screened for certain things.I asked my Rheumatologist and she said she didn't think that was the reason."I still do" she said it was because of all the trauma my body went through. When was your surgery ? Did you recieve in donor blood ? Did you ever ask your Doctor why or if it was because of what your body went through because of the hysterectomy ? Just wondering and I have never talked to anyone that had a hysterectomy and then diagnosed with arthritis before. I'm just curious- I felt like I was alone ! Look forward to hearing from you ! |
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algranny
20 Oct 2009, 13:28
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| this is to mary sue.you were talking about the pain management clinic they do think you are an addict i belive that why drs.send us there not to manage pain but manage the drugs we take.it's crazy to me.hope you find a good dr. that don't believe in pain clinic.have a blessed day mary sue |
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Patricia Graci
20 Oct 2009, 12:57
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| I was first diagnosed with RA 2 years ago after i had a hysterctomy.It was
terrible i had just returned to work and atthe time i was a bank
teller.Every time i felt pain in my hands i thought it was carbel
tunnel.Well that day my body was not right everything was hurting me about
4:00 when the bank closed i couldnt take the pain and i was swelling in my
ankle hands and knee..They rushed me to the Hosiptal where i was given
morphine for the pain and stood on for 4 days for tests.I was then told i
had RA.Depressed and not understanding where and why i got this disease i
saw a great doctor . Today after trying enbrel which didnt help me i am on Orcenca infusion once a month Methotrexate 8 pills ix week,mobic and folic acid,percocet for pain.I take antidepressitants and i know its not getting better its just in remission but know 2 yrs later i am a branch manager of a bank and still fighting this illness.I will continue on striving to fight this with all my meds and yes you need your pain meds to help you through the day.I do know someone that is getting full disability from social security for her illness but i like to get up and go to work.Even if it tkes alittle mor time i do it for my sanity |
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brooke
10 Oct 2009, 16:03
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| wow!im 32 with rheumatoid! iv'e had had it 4 about 5 yrs now. yeah ican so relate u guys i started out on ultram & lortab. moved up 2 percocet & the fentenyl patch.but u know what i am addicted 2 my pain meds and always will be. thats the price im paying for taking these strong narcotics.what happens is your body builds up a tolerance to the strenghth & amount u take it's inevitable.it's not our faults as chronic pain patients, it's a medical fact. i know iv'e been battling this demon with my R.A. as well !! so these idiot drs that put us on these strong ass drugs in the 1st place dont inform us that maybe just maybe we will build a slight tolererance& they might have to start to do some med adjusting, so we dont look like dr shoppers!!!!! i had 1 of the best R.A. DOCS IN MEMPHIS T.N.& BECEAUSE of her nurse had a problem with my lortab refill, i lost my doc. i had an awsome pain dr for 3yrs. until 1day he fired me because he thought i may b addicted 2 my meds!! anyway my new pain doc well im not goin there he's got me on some kind of new contrlled released morphine pill. i do take enbrel shots 1nce week & metho. i also have a tens unit helps 2! HOPE U GUYS GET A GOOD DOC!!!!!! & GOODLUCK |
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Danielle
22 Sep 2009, 08:35
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| I am 37 and have suffered from a genetic form of OA since my early teens. I also have fibromyalgia. I take Cymbalta for the fibromyalgia which actually does help. I take piroxicam for the OA, which is systemic, so it has attacked several different areas. The most severe is in my right knee. I recently got an unloader brace which also helps and will prolong the need for a knee replacement (hopefully). I tried the Hyalgan injections, but they did not work for me. Currently I get a cortisone shot every three months. Has anyone heard of the inflammation diet? It is supposed to work well. |
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Tammy G.
09 Sep 2009, 15:27
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| Spinal nerve stimulator- it really work's !It really work's to take the pain away - it's better than pain meds- it takes away the pain without many of the side effect's caused by pain meds. |
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Faith in Chicago Dr!
04 Sep 2009, 00:04
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| TO: HELPLESS MOM ABOUT TO LOOSE IT: I do know a Dr in the Chicago area that is AMAZING. He is a rheumotologist by the name of Dr. Robert Hozman. He works in Buffalo Grove, IL, Lake Forest Hospital and Skokie, IL in the building across from Rush Northshore Hospital. You can look him up on google.com. He is the best dr that i have ever seen. I have Ankylosing Spondylitis which is extremely rare and difficult to treat but he has been amazingly helpful and he is not afraid to Rx pain meds. I am 26 yrs old and he DOES believe in the pain that I have and will listen and cares. He takes all insurance except Humara Select this includes medicare and medicaid. I wish you the best of luck. |
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LUCY HERRING
01 Sep 2009, 10:08
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| I just awhole page and it disappeared. |
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Lucy Herring
01 Sep 2009, 10:05
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| I'm 75 years old. I've had RA. since age 10, also have the
osteoarthriris. In 96 i had my right thumb joint re-built in Walter Reed,
in 97 had the left thumb joint re-built...in Walter Reed. I don't have
a strong pinch grip.......but the intense..screaming pain is gone!!!!!! I have spinal stenosis..entire spine...and have sclerosis in my right hip..and have a bulge n my cervical spine area. I take epidural shots there and in my lower back q 4 months.....also use Lidoderm pain patches, take Flexeril for muscle spasms,....800mg. motrin 2x daily. I work out at our ymca....walk the treadmill, use the recumbebt bike, go into the sauna and bak for 10--14 minutes these ALL HELP. IHAVE SOME WONDERFULLY GOOD DAYS...THEN SOME BAD ONES. CAN STILL DRIVE...DON'T USE A WALKER OR CANE. i TALK TO OTHER PEOPLE WHO ARE DISEASED..BUT SOCIALIZING IS GOOD MED...CAUSE YOU CAN MAKE EACH OTHER LAUGH...AND WE CELEBRATE BIRTHDAYS AS A GROUP. |
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peter v
25 Aug 2009, 03:54
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| To Mary Sue04 Aug 2009; I am also 62 and was hit with severe OA 3 years ago. I had to try 3 different pain mgt specialists but I did find one that believes in NO PAIN - they go to any length to help you get there. Find another one. Mine are 5 Neurologists/Anesthelogists who specialize in chronic pain management. It's not a complete solution; but their motto and attitude sure do help. p |
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Barb
23 Aug 2009, 19:17
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| I have learned that to prevent crippling effect of RA the drugs to use are
metheltrexate and Humera. Would anyone know what drugs will do the same for OA? |
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johnny v
19 Aug 2009, 14:21
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| i have r.a. and im 45 yrs. had it for two yrs now. my rheum prescribs me leflunomide,placnil, prednisome,celebrex and percocets for pain. my problem is that im always tired & have chronic pain syndrome.got laid off in feb. and im using unemployment to get by. they keep telling me that getting disability is going to be impossible.to tell the truth, i really want to keep working but im so tired in the mornings and days. any ideas to help me out? here in Az. i feel for the rest of the people in the u.s. that cant get proper pain management from the doctors who are too scared to issue them..... |
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Dorothy
18 Aug 2009, 19:38
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| I was diagnosed with severe RA 2 years ago and with fibro.....about 3 months ago. I take weekly shots of enbrel, mobic every day, 8 pills of methotrexate 1 day a week, 5 mgs of predisone daily for maintenance. I take percoset for pain and also take methadone (10 mgs three times a day). People think that methadone is just for drug addicts and is very misconceived. It is not a get high drug and works for me as a long lasting pain medication. If it was not for the methadone, I would not be able to even get out of bed some days. Look it up on the internet under Methadone and an article written by James Babicky. I also take Cymbalta for my fiber....and it helps. These combination of drugs work for me and I hope it helps all that is lestening....Thanks |
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shirley ditmars
04 Aug 2009, 22:03
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| Ihave mixed arthritis and gout.. in 2005 i had complete knee replacwement (both knees at the same time) and i am happy that i did.. pain one time is enough.. i went to rehab 7 days the surgeon ordered the machine for both legs , so i was moving my legs all night , and god bless him- i think that helped my recovery so much. went home had therapy 1 week and my ins co. ordered the machines for me at home so my legs were moving all nightand i was walking fine, no walker , no cane and i'm doing fine.. but now i have arthritis in my spine and am seeing a pain treatment specialist and have had 2 shots in my spine going in tomorrow for the 3rd one..i still have pain inlower back if i am busy all day long... i take arthritic75 1 tab bid and take one arthritic tylenol, if i still have alot of pain.. i will not take alot of medicines.i take allopurinol for gout 1 tab bid ..i take glucosamine sulfate with chondrotin?? but wonder if i should take that with the articles that i have read about lately about the med..i can not take a lot of different pain med .. and don't want to if i can do without them.my mom had arthritis too., i had rotar cuff operation few yrs agoand should have in the other shoulder but trying to get along without it.. i can not lift heavy objects or raise my arms up high anymore or pick up things that are heavy and lift above my head.. its very aggravating ...i turn on music and try to think positive and i think i could be a lot worse off so deal with it... |
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Mary Sue
04 Aug 2009, 18:43
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| I am 62, have chronic pain daily. My doctor sent me to pain management clinic. They are treating my pain as neurological associated and giving me meds that can cause seizures. I cannot function on these meds. They want to do a Lidocaine Drip, which I have researched and it scares me. They prescribed a Tens machine without results. The clinic say's thats all they can do for me. I know what your're talking about when you say they don't want to hear that you have PAIN. I have never taken pain pills. They treat you like you're some king of addict and thats what you're there for. If that was true I would continue on what they're prescribing and be a walking zombie waiting for seizures to happen. If only they could walk a mile in my shoes. |
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mary Falls
01 Aug 2009, 19:23
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| I have dig disc disease and getting worse, I've taken Vicodin, percoset,
meloxicam, flector patch opana morphine, gapbatin and nothhing gives
relief, trying volataren gel maybe 10 percent relief,Pain spec may try
something else, being in water is relaxing, but when you get out same pain
go to the gym, do my walking, try some exercise , nothing works, and no one really wants to hear it hurts, Pray for something. |
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cindy shackleton
01 Aug 2009, 01:46
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| I have chronic migrains daily, and I have RA, and neuropathy in my feet and
in my hands. I have been seeing my Dr. for about 3 1/2 yrs and ahve hd all
the same problems. My Dr. has tried all of the older and the newer meds and
they didn't seem to work so she put me on oxycodine 5 mg immediate release
tablets every 6 hrs. that helped a little and so she sent me to a pain
clinic her in oregon and they put me on methadone for my chronic pain and I
am still in pain but it does a good job most of the time. I still have my
rough days but I am doing better than I was b4 I started these meds. oregon |
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wayne
30 Jul 2009, 15:46
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| how do u get doctors to understand ur not druggie just in pain heck my doctor doent even talk to me back mirs or xrays just says talk to pain spec? where r we in health care its worse than ever before sometimes death seems to be answer where is our help none here for sure and if no ins? you will be lost =( |
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brenda
21 Jul 2009, 20:35
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| I was diagnosed in 2002 , I tried Enbrel and it affected my lungs, I was put on methotrexate and put my liver count up, then I had a spell with my heart. I am now on plaquenal 200 mg, prednisone now only 2mg.,vitamin D 1000mg., fosamax weekly. and for the pain I take morphine, at night I take time released pills and for the day I take regular morphine. My Doctor is great. It was my heart doctor that got the ball rolling for me to go on a disability pension , I worked at a hospital in the cleaning for 27 years.I'm now on Canada Disability, hospital pension and a top of insurance. Everyday is a challenge, between depression, fatique stiffness and the pain . There is no support system around here but now I can read about other ones who share my illness and I can relate to them. It's a terrible disease, and one that not many people understand. People don't understand what they can't see. and if you look fine then you can't be in pain or sick.It helps to know I'm not alone . |
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Helpless Mom about to lose it!!
16 Jul 2009, 22:54
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| I am really starting to lose faith in doctors. I have been diagnosed with RA. I am on constant pain. Some days it's mild. . and I can deal somewhat ( still on edge all day) . Other days it is excruciating .. and you know what my doctor told me? Take 4000mg of tylenol a day plus aleve twice a day. It do this, as she suggests, and I am still in pain. . even on the easier days. I feel like the Aleve makes it even worse. Is this possible?? I have pain but do not have inflammation, so I dont know why she told me TAKE IT IN THE FIRST PLACE. I am 23 and a mom of 2, and work 8-12 hours a day. . and have a 1 hour commute. I cry just trying to press the gas pedal. I cry every day on my way home. Why wont a doctor help me??? I got better medicine when I had an infected tooth. . but now that I have CHRONIC PAIN . .that NEVER EVER goes away. . they tell me to take tylenol?? I cry just thinking about it. . if I was an opiate addict, i would just go buy some heroin. It is right down the street and it's cheap. But I am NOT a drug addict. . I just dont understand why they will not help me. If anyone knows a good doc around Chicago, that will listen to me, and help me, please let me know. All this tylenol is doing is damaging my liver .. but does not help with pain. at all |
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Angel
16 Jul 2009, 12:09
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| Right on, Linda! We have a chronic illness that causes chronic pain yet its
hard to get prescription pain medication. The whole damn medical community
is afraid to pass them out due to FDA laws and regulations. It disgusts me!
I have RA, Fibromyalgia, and bursitis in my hips! I have real pain.... Addicts are going to continue to get their drugs off the streets like they always have. I believe if you are dx with a "chronic illness that causes pain" you should have a choice of getting prescription meds for pain. I BELIEVE ANOTHER REASON WE ARE NOT GIVING THE OLDER MEDS IS BECAUSE THE DR'S RECEIVE "NO" KICKBACKS OR BENEFITS FOR PRESCRIBING THEM. HAVE YOU EVER SEEN A PEN, CLOCK OR NOTEPAD THAT HAS HYDROCODEIN WRITTEN ON IT IN YOUR DR'S OFFICE? I SURE HAVE SEEN PLENTY OF LYRICA BANNERS AT MY RHEUMY'S OFFICE...AND IT SEEMS HE IS MORE THAN WILLING TO PRESCRIBE THAT TO EVERYONE!!! HMMMM???? WE HAVE TO STAND UP PEOPLE...THE GOVT AND DRUG COMPANY'S ARE SLOWLY TAKING AWAY MEDS THEY DONT WANT US TO HAVE AND GIVING US NEW ONES WITHOUT KNOWING THE LONG-TERM AFFECTS!! TAKE TIME TO WRITE THE FDA AND YOUR LOCAL GOVT BEFORE ITS TOO LATE! |
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judy s
13 Jul 2009, 02:08
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| Vivica: Is Methotrexate the only med you are using? I have been on Metho for several months, very low dose (5mg once per week) which was increased about 3 weeks ago to 7.5mg per week. It doesn't seem to be helping. In fact it seems as if my pain actually increases after taking the Methotrexate. I am also on Plaquenil, 200mg twice a day with a daily Prednisone 5mg. For pain I have an gel called Voltaren as needed. My question is; how long have you been on Methotrexate? When you take the Metho, do you notice any increase in pain for the next few days? Are you on anything else in addition to the Metho? Does your Doctor also have you on Leucovorin Calcium the day after taking the Metho to combat hair loss? How long since you have been diagnosed with RA? I was diagnosed last Sept. Right now I am rather discouraged. Seems like it is escalating even though I am taking more drugs and higher doses. I hope this isn't to many questions. This is my first time I have used a chat board. Comments from anyone are welcome. |
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Judy
08 Jul 2009, 23:57
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| Sabrina, You need to check with the rhemys in your area for some that are working with drug companies testing new bionics that are not out on the market yet. It's free. I take hydrocodone (not codeine so no allergy)for pain '75s' for $5 for 60 pills which is a month supply for me, 1 am and 1 pm. That's cheaper and easier on the stomach than ibuprofen. Gary mentions taking Ultramm for pain. Ultramm you take one a day but it is expensive. My dr gave me Trammadol which cost much less than Ultramm but you take 3 a day. When the pain is bad and the hydrocodone doesn't stop it, he has me stack the Trammadol on the top. I hope this helps you a little. |
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Margaret
07 Jul 2009, 18:10
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| Jodi...It is NOBODY'S BUSINESS that you are on medication for pain. Believe
me, if they had to struggle with pain like you do, they'd be first in line
for help!! I always say "I'm doing great" when anyone asks (and you'd be
surprised that hardly anyone asks, even when I've had to "unfold" myself to
stand up. Marlene...as for the Lyrica, I've never heard of it being used as an antidepressant. You were on it for quite a long while, so your response must have been just your system responding to the sudden loss. It's a great med (the doc prescribed it when I had the shingles...really stopped the pain) Hope you are doing ok now. |
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vivica lanier
07 Jul 2009, 11:39
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| i am on methetrexate and it doesn't seem to be working i also take ibuforpen 800mg it seems like nothing helps with the pain |
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Tammy G.
06 Jul 2009, 18:33
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| Tim go back to your Doctor and talk with him or her and get on some form of treatment!Exercise always makes me feel worse even swimming but my arthritis is so progressed nothing seems to releave the pain anymore-sorry to say but this disease takes alot out of a person, and changes ones life forever! |
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tim
26 Jun 2009, 22:53
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| yah,I hear you all..This is first time on this site ..about a month ago my hips and back are killing me..sometimes i cant get out of bed..havent been to a doc..but once a long ago he put me on celebrx..but the heart scare keeps me away from that even though that helped..ive tried riding bikes but when i get done i ache all over..so so much for some peoples advice to excercise..i need advice thanks |
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Gregory Clem
16 Jun 2009, 19:49
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| I found that the best medicine that help me with my Chronic Pain is Medical
Marijuana. I thought I understand what my friends where going through with their pain till I was in pain myself. Till you walk a mile in someones shoes that are in Pain YOU do NOT know what they are going through. |
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Tammy G
12 Jun 2009, 02:16
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| Thank-you Jodi, it's so nice to be able to talk with each other, so many people do not realize what we go through each day just to get by.Thanks again for you insight it is calming... |
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Jodi
11 Jun 2009, 11:00
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| This is for Tammy G I started Rituxan 6 months ago. I have been on methotrexate for several years and tried Remicade for 1.5 years without success. I received my first Rotuxin infusion and the process is a little different than what I experienced with the Remicade. They give you Tylenol and Benadryl by mouth before the infusion and prednisone IV then start the Rotuxin IV. They do everything they can to prevent a reaction prior to the infusion even starting. The only side effect I had was in the middle of the first infusion, I started to itch a little. They gave me more Benadryl and I was fine. You get another one 2 weeks later and I had no problems with that. I am going for the second round the end of this month. I don't read side effects any more and I'm a nurse! I found that it works better for me to trust my doctor, I know she's good so I just try what she thinks is best and go from there. I haven't had any side effects from it at all. I look at it this way, the diseases themselves ( I have RA, OA and fibromyalgia) are so bad that the side effects can't be much worse. I also look at the fact that in clinical trials, if one person in a million gets something while on the medication, they have to report it as a side effect, even if the person may have gotten it anyway without the medication. That's another reason I don't look at side effects too seriously. I've been on a lot of meds and never had a life threatening reaction to any of them. Just the way I look at things but I wanted to let you know I've had no problems with it. I think it helped a little but it takes awhile to know for sure. I hope this helps you. Good luck with your decision and I hope whatever you decide will work well for you. |
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Tammy G
10 Jun 2009, 08:43
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| I have Psoriatic Arthritis and i have been on all the medications for Arthritis so far nothing has helped! My doctor now wants me to try "RITUXAN" i'm scared it has soooo many side effects, has or is anyone using this medication-doe's it work - i know that each person is dfferent but what about the side effects, please help ease my mind if possible! |
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Cheryl
02 Jun 2009, 17:11
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| For some reason, the thing I find that works the best for me, for the arthritis in my knees, wrist and back of the neck is Excederin for migrains. Works quite well and I can tell you, I live in pain, just like the rest of you. |
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Kim
02 Jun 2009, 14:05
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| This email is for Glenn. Psoriatic arthritis is associated with Psoriasis. My husband is a dermatologist and specializes in Psoriasis and Psoriatic Arthritis. Biologics work fantastic for this disease. I have just been diagnosed myself with anklyosing spondylitis. I am in the process of finding the right medication for me. I know that Enbrel works very well for Psoriatic Arthritis and the AS that I have. |
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Gary
02 Jun 2009, 09:20
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| I have been taking Ultramm for severe arthritus in my hips for about 3 months now. It seems to be working well as I can tolerate the pain much better than before. |
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Sabrina
30 May 2009, 20:31
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| I can't get any relief because I have no helath insurance. All I can get is
800 mg ibufrofen for my RA. I have been walking with crutches since Jan. 09, I need help. I am unemployed and I cannot arrive at an interview with crutches. South Carolina is no place to be sick. |
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Mlee
21 May 2009, 22:02
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| Just blow out me left knee this week. Have had foot pain for two years and now back pain and hand pain. I am a mess. My md's suck and have done nothing. UNtil today I got told I have RA,OA and fibromyalgia. Good God I can barely walk some days. Spen crazy money on Doctors, diets, shoes to get me though. Nothing helped. When I blwo out my knee I lost it to my doctor. She tried to tell me it was in my head. I got smart and get a second adn third opion and now got her back to do her job... I am scared and upset. I get wipped out fast, have stress in my job, Type A person. I know I have to chill out more now. She got me on Meds and they are helping. Boy 3 yrs of pain some medical system this county has for people like us. The Pain is Real and we hurt.. thanks for letting me shout out. M in VA |
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Connie
21 May 2009, 14:06
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| I have rheumatoid and osteoarthritis and am in constant pain. I was on Darvocet but read an article where they are trying to ban it as it can cause heart problems. I am allergic to Codeine and Demerol. The nurse at my doctor's office acts as if I am bothering her when I call. I have been in bed for over a week after stopping the Darvocet. Does anyone know of a pain medication that does not contain Codeine or Demerol? |
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teresa beard
19 May 2009, 13:25
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| I was going too a doctor up north from where i live here in washinton state
and she gave me pain med's well then i came too where i am living now and
they are all against the pain med's they took me straight off and didnt
give me no more i hurt so bad i had too lay down on the curb for my friend
too come and pick me up... I went back too him and told him how i felt when
i was feeling better... he tell's me well i cant give you what the other
doctor was giving you intil you go too a pain management which i already
did up north and they should of taken me and then continued what my other
doctor did and then lessen my dose if he needed too not just take me off
them that hurt big time.... i think he just thought i was addictied too the drug's and i was not.... so i am still tryin too find someone too take me and my insurance.... hopefully i can find someone soon i hurt all of the time and sometimes i cant do anything but lay down and put heat on it so i know what you mean they think that we are addicted but we are not i wish there were some more people too complain about that |
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Linda
19 May 2009, 11:00
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| Dear Jodi, I was reading your message, and I understand where you are coming from, I to have RA and am on some pain meds. If it wasn't for them I could not get out of bed. My doctor also prescribes me pain meds, if it wasn't for that I don't know what I would do. People did not wait over a hundred years for something that can keep them from not having any pain, just the opposite. People should back off of the issue of pain meds, this is what works for us, and we are not abusing them. Just ignore them, apparently they don't understand your pain. Linda |
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Jodi Schell
19 May 2009, 10:41
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| I have RA, OA and fibromyalgia. I work a 40+ hour a week job in the medical field and my situation demands that I continue to work for as many years as I can accomplish. I have been on Lyrica, methotrexate, Rituxan infusions and pain meds for a while now. I am fortunate that I have a physician who understands the amount of pain I'm in on a daily basis and a rheumatologist that works very hard to keep me mobile. One of the things that I have a very hard time dealing with is the stigma you live under from those who don't understand that you must take pain meds to function. When is that kind of prejudice going to be addressed and stopped? I'm just trying to keep food on the table and a roof over my family's head, not get high on pain pills. I would love it if I didn't have to take them but I can't even walk if I don't. Does anyone else feel the same way? Do you get treated differently if people know you take pain meds? Because you don't "look" as though something is wrong with you? I truly don't know how to handle this and would love some input from others. Thanks. |
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glenn
14 May 2009, 17:34
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| i have psoriais is this linked to any form of arthritis |
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Marlene yeager
06 May 2009, 19:31
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| I have been on LYRICA for over a year now. My insurance company stopped it for almost a week and I went out of my mind. they say that it's not a anti-depressant. But when it was stopped I cried, I grabbed my hair on my head and said i can't think ( to my husband ) he wanted a phone number and I was looking at the address book and told him I can't think, I don't know. I hurt all over. Every step sent a shock to the bottom of my feet. Is it a anti-depressant? or does it work different ways on ddifferent people? I'm on it for nerve pain and arthritis. |
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david hermary
23 Apr 2009, 19:00
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| Hi, I have ankylosing spondylitis, I'm 42 have pain everyday.I had bin given dilaudid in the emergence room about two years ago, had to go there because the Demerol i was taken for pain didn't work. In November of 2008 my doctor lost his licence to proscribe what i needed for pain, I'm allergic to Tylenol and codeine so am limited to what i can take i cant find a doctor who can help with my pain. I'm takin 300 mg of zytram, helps some what but feel ill most of the time because of this i no the most important thing to do with my condition is to stay active its hard when your ill and in pain. apparently zytram is going to be hard to get from a doctor. So then what do i do. Right now i feel that these doctors don't want to help me because of the laws governing these drug that so many of us need. what now?. |
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Cherel Michelle
22 Apr 2009, 01:27
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| I have three types of arthritis, which includes RA and I have been on the
Duragesic Patches for about a year now and I love them, even when I have a
serious flare up I can handle it with these patches, which is only the 50
mcg/h, since I am not looking to get high. When I have breakthrough pain I
only need a mild pain pill and I can still function and enjoy the day. Only
on rare occassion do I need to rest in bed and then that isn't anymore than
30 minutes. I can drive a car now, not be afraid of road rage, my personality isn't always on edge because of the pain and I have more energy and find more enjoyment in life. Even my family likes me better. |
There is a condition called interstitial cystitis. It mimics bladder infections, but its really a bladder inflammation. The pain is the same, only a quick infection test can tell. What I have is a chronic condition that can be treated. First of all, find a dr. who recognizes the condition and is willing to give treatments. This is usually a urologist, but my newest one is an ob-gyn that specializes in uniary issues. The treatment is DMSO instilled into the bladder, and retaining it for half hour. Some drs. put other meds into the DMSO--I had a dr. that would put marcaine in to deaden the bladder for awhile. It tends to hurt more after a treatment. A really bad flare can take more than one treatment. My longest was 4 weeks of treatments. The sooner you take action, the shorter the recovery time. There is no information or studies that say auto-immune diseases are more apt to develop the condition; but it seems to affect alot of reheumatology patients. I had a new dr. once that refused to acknowledge it as a disease. I have lupus and fibromyalgia, and now osteoarthritis, so I am used to "flares". Its a real issue to deal with, and you have no clue its coming on until its there. A list of foods to avoid helps alot.
Good luck to you.