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Matching Conditions to Medications

More than one chart may contain the information you need about all your treatments. You may need more than one type of medication, or you may have several conditions. Below are some of the many forms of arthritis along with the types of drugs most often used to treat them.

ANKYLOSING SPONDYLITIS
analgesics, biologics, corticosteroids, DMARDs, NSAIDs

FIBROMYALGIA
analgesics, also see Fibromyalgia chart

GIANT CELL ARTERITIS
corticosteroids

GOUT
analgesics, corticosteroids, NSAIDs also see Gout chart

JUVENILE RHEUMATOID ARTHRITIS (JRA)
analgesics, biologics, corticosteroids, DMARDs, NSAIDs

LUPUS
analgesics, corticosteroids, DMARDs, NSAIDs

OSTEOPOROSIS
See Osteoporosis chart

OSTEOARTHRITIS (OA)
analgesics, corticosteroids (joint injections only), NSAIDs

POLYMYALGIA RHEUMATICA
corticosteroids

PSORIATIC ARTHRITIS
biologics, corticosteroids, DMARDs, NSAIDs

REACTIVE ARTHRITIS
biologics, corticosteroids, DMARDs, NSAIDs

RHEUMATOID ARTHRITIS (RA)
analgesics, biologics, corticosteroids, DMARDs, NSAIDs

SCLERODERMA
analgesics, corticosteroids, DMARDs, NSAIDs

SJÖGREN'S SYNDROME
corticosteroids, DMARDs, NSAIDs, also see Sjögren’s Syndrome chart

WEGENER'S GRANULOMATOSIS
corticosteroids, DMARDs

Mary
19 Jan 2012, 10:28
I just turned 59 in December. Both of my knees were replaced in 2007 (Feb/Sept). 1st one is perfect! Never gives me any problems. Have had ongoing problems with the 2nd one since day one! Still trying to find a Dr than can/will tell my what's wrong. The original surgeon clearly wants nothing to do with investigating further. Last Feb (2011) had a bone fused in my foot due to OA... worst decision of my life! Again.. in more pain now than before surgery! And, if all this isn't enough, I have a blood disorder that requires me to take blood thinners, so... all the drugs that are normally used for OA.. I can't take!
Norco and Tramadol are the only things so far that I can take.. and while they don't get rid of the pain, they at least numb it enough for me to function in what is now my "normal"! I'd love to know what an alternative is to the narcotics that won't effect my INR levels!!! This is not the life I wanted after I retired!!!
linda
17 Jan 2012, 16:57
Catherine

i suffer with pain all the time also from arthritis, i get my meds from the walmart 4 dollar prescriptions, i take vicoden, 4 times a day, and is only 10 dollars a month for that. and another one called gabapentin, which is also 10 dollars a month, when i go to my doctor i take the walmart drug list with me and tell them to work from that as much as they can, these 2 drugs work very well for me.
Linda
Catherine
30 Dec 2011, 22:31
I've recently been diagnosed with RA. I've lived with joint pain for many years. Unfortunately, I don't have insurance and cannot afford it at this time. I'm a full time student, studying Elementary Education and know eventually I will have great benefits, but for now I desperately need help. All I can afford to do is to see a doctor at a medial mission and pay cash. So far, I've been doing high doses of ibuprofen, which is only minimal help. My doctor prescribed Tramadol for pain, but I really need more help for inflammation. I usually cannot walk in the morning, but by the afternoon, I feel slightly better. I never have pain-free days and miss being able to exercise. I'm only 42 years old. I'm looking for some sort of temporary assistance. If anyone has good information on how to petition drug companies or other organizations for assistance, please advise. Your help is much appreciated.

I'm so tired of hurting all the time. Ick!!

Thank you!
Cindy
06 Dec 2011, 12:57
For the people who's doctors say your too young for a knee replacement find another doc til you find one who will do it, maybe lie about your age....lol...add 10 years. They told my husband that & now he is old enough but in too bad of health to do it. They said he would not make it off the operating table if they tried. For those of you who may live in medical marijuana state you can try smoking or eating it in food. I just recently ran across JUICING it & you do not get the psychoactive properties so no "high" feeling. We are in a MMJ state & are currently looking for some fresh leaves to give this a shot. Here is a link to look for yourselves. http://www.cannabisinternational.org/index.php
Jean
06 Dec 2011, 11:41
To all of you out there with osteoarthritis, you have to do whatever you need to do to keep moving. If it means finding a good neurosurgeon to get things in check, then do it. Join a gym, even if you can only get in the pool and move around, you have to keep moving or everything gets worse fast. I have had osteoarthritis for decades, had my entire back (S1 to T9) rebuilt with numerous rods, bolts, and a cage surrounding my spine after my arthritis degenerated to scoliosis; also had total knee replacement; then another back surgery when I broke a titanium rod, just to get it replaced. All of this is so I can keep going to the gym; cause as I have learned, if you stop, everything stiffens up much faster and you only get worse. For some of us, pain meds are a way of life, you get used to it and you keep going - after all, what is the alternative?
deniece
12 Nov 2011, 19:19
i've was first dx w/ra back in 2003. it took nearly a yr before i was able to be sent to a ra doctor who then dx me. after all the tests & blood work done. even though he started me on mextroiate & folic acid pills. found it that was not enough. then i also went to remicade. after a two yrs of tx. finally found out what would work for me. once i lost my job along w/my health insurance. was hard trying to find another insurance that would except me w/my dx. when i did find one & making my preiums every month. i found out the insurance don't pay for the remicade or the infusion. so w/o medical insurance i contiuned to work. some part time. the more i kept going the worse my ra started coming back. feet/hands was in contant pain. i tried to deal w/it til last yr on nov.23,10. & filed for ssi, which i have been denied 3x already. when i finally did get on the county for insurance. thought everything was going to be great. can get my condition back under control. now out of medical insurance again. my doc keeps telling me i will be able to go back to work. i don't see how i can when i can't get my ra under control. i'm more of a liability than an asset to an employer. when my hands & feet swell or in severe pain where i can't do nothing at all cept for to deal w/it. i'm hoping soon that there will be someone out there who would be able to help people w/this condition. not set over to the side due to no insurance.
Gracie
09 Nov 2011, 19:33
I have lived with RA since 1998. At least I was diagnosis with it since then but I think I have lived with it longer never knew it. I am having problems with Doctors accepting my Humana/medicare insurance. I am seeing a RA Dr that has stop trying to treat me. So after my next visit to him. I will start searching for another Dr. I live in West Texas. It is very hard finding a good doctor who cares. The doctor I am seeing doesn't want to listen to any suggestions. He told me this is as good as I am going to get. Does anybody have suggestion. Oh yes about God I respect people believes and those who do not believe but there is no need to be hateful about it. I believe so there. Let not include "GOD" in this. We are asking for info on how to live with RA, OA and Lupus.
Claudette
01 Nov 2011, 09:47
I have had arthritis most of my life, I am now 52 yrs old. Now I have been diagnosed with Osteoarthritis which is very painful.

Currently both my knees are in pain and I have been seen by specialist of the bone.

I am too young to have knee surgery, which I would love to have though I know it can be a painful recovery.

I just happen to find this forum on line and I think it is good that different ones can voice their opinions no matter how large or small they maybe.

Still searching for an answer as to what to do next!
Kathie
22 Oct 2011, 16:19
To Malinda from Sept 2011: Go find yourself a GOOD Rhuematologist and forget the PA. I'm an RN and a PA just has 2 more years than me. Yes, they can write some prescriptions but you need a diagnosis first of all. An NP (nurse practitioner) or PA (physicians assistant) are very similar, and while they have their place in cutting costs and treating existing diseases you need to see a real doctor first and foremost. Then you may could be seen by a PA for more routine visits. Stop wasting your or your insurance companies money, find out what kind of arthritis you have and get on the right treatment. Good luck
Ricardo Ovalle Reiley
05 Oct 2011, 04:26
GOD has a big Plan, just wait in line and depends on what you believe is that plan..Try to think about Reencarnation (Bible=Elias>Elosia>John the Baptise).I have Reiter's Syndrome. VIOX was the best for me,everybody has to die why not with less pain.I returned to Indomethacin=US$5.00/monthly,and in your webpage nobody talks about my sickness Can you add Reiter's Syndrome as a RA, and what is the best medication? My DR. tried CELEBREX in me, after 14 days suffering pain again I returned to Indomethacin, why others don't Try Indomethacin? God Bless You. RROR.
richie
04 Oct 2011, 12:38
this is supposed to be an arthritis site . can you please stop with the fairy tales about God. stop injecting your misplaced belief systems on the rest of us.Who Cares if God gets you up in the morning. did he also want to inflict arthritis on you ?You think maybe you get yourself up in the morning? If he loves you so much why doesnt he ease your pain? get a life and leave the rest of us intelligent biengs alone!
malinda
23 Sep 2011, 16:01
I am 33 yrs. old and have some sort of arthritis. The trouble is that my Dr. is a PA. So, she has to go through a real physician before she can change or do anything with my condition. This is a problem for me. My Dr. doesnt even know what I look like....much less who I am. I know I have the choice of finding another dr. but am having trouble finding one. Im currently taking Naproxen and Tramadol for pain. Neither works. Also, I have no idea which type of arthritis i have. i have no faith in my dr. at all. she has referred me to a bone specialist. shouldnt i see a dr. who specialized in arthritis instead of bones? unsur of what to do. help!!!
duane
20 Sep 2011, 10:07
i am 70. i had my first back surgery in 1985. i had hip replacement in 1996. knee replacement in 2010. i am gotten halogen shots in the other knee for 2 yrs now. i have spinal stenosis. i take ibuprofen and tylenol for pain. used to be on prescription drugs but it was tearing up mu tummy so i went these and they work fine. i exercise every morning for 45 to 60 minutes, which i feel is what is keeping me going. i do 3 yoga stretching exercise for lower back,2 for knees, 1 for hips and i do 12 sets of exercise for chest and abs on monday, back and legs tues., shoulders and abs wed.,arms and abs thur. and chest,back and legs on fri.
Linda Mahrous
06 Sep 2011, 19:49
I am 61 years young and have osteoarthritis in virtually every joint, incl the lumbar spine. Knee surgery is on the schedule for later this month. It is not easy to deal with the pain and the realization that there is no cure, that it will continue to worsen with time and age, and that I will never know a pain-free day. BUT, it could be worse! I could have a disease with no cure, with the pain, and is terminal! Every dark cloud has some silver lining. It helps mentally as well as physically to try to find it...everyday!
Norma
06 Sep 2011, 18:53
I have been diagnosed with degenertive Arthritis in my lower spine and also in other parts of my body. I have had it for some time, but it is getting a lot worse. I am 75years old and am afraid I am going to get to where I can not walk. What sould I do>
Angel1
16 Aug 2011, 15:41
I just stumbled on this site , thank God. BTW, I believe in God very much, but I cant just sit on my butt and pray, I've go to do the footwork ( no pun intended). I found out approx. 3 weeks ago that I have Sciatica, not sure if its damage from having type II diabetes- or that in combo with arthritis in my back and disc damage. Anyway, I had the worst pain since childbirth 29 years ago and I couldn't even walk ( which I love to do)for days! I still cant take my dog for a walk , I'm so frustrated, I am on oxycodone and Aleve and it really helps but I had always been active and I got sick at 46 ( congestive heart failure, diabetes, pancreatitis, hypertension - don't let the stress of life and work take you out kids get checked out before it gets this bad) and it all appeared over a 4 month period in 04. Then I had my knee replaced, and avoided cancer by have a hysterectomy in 06 ( also find your bio fem if you are adopted to find health history). Just when things were calming down - now this!!! I don't know why you all were talking about God, but if I didn't have something to believe in I'd just give up. I have my two wonderful kids, my friends, my dog and a volunteer job that I do to give back to all the good people that have helped me along the way. Also to take my mind off of me, which is the healthiest thing you can do when you are in pain.I am now 53, people tell me I dont look or act sick, and this is due to a true faith in God and love of life. I know by next summer I'll be out walking my dog daily again, maybe not as fast as I used to but I'll be there. Good luck to all of you, and God Bless......
Linda
05 Jul 2011, 12:17
Reading the comments and was taken somewhat aback by the bickering about whether there is a God or not. Why is this even on this site? One's belief has little or nothing to do with arthritis. May we stay on topic?
Carol Young
07 Jun 2011, 12:23
I to suffer from pain in my joints (all most all of them) but I look at it this way, any day that I can put my feet on the floor and get up is a good day. A lot of people can not get up. So by the grace of God I try to enjoy each and every day.
Sandra B.
14 May 2011, 22:59
I'm 21 and I just found out the other day that I have arthritis and mild scoliosis in my lower back. The pain is getting so irritating. It seems like no matter what I do I can only get just a tiny bit of relief. It wakes me up at night and, at times, keeps me from enjoying everyday things such as sitting down with friends to watch a movie, draw, or even go on a walk and I LOVE going on walks. I just don't want to be in pain like this any longer. Is there any way that I can finally enjoy life like a young adult again?
Charles R DeStefano
19 Apr 2011, 12:08
I HAD 5 MAJOR BACK SURGERIES WITH NO RESULTS IN THE PAIN DEPT.I HAVE 10 COMPLICATIONS FROM THEM AND NOW I HAVE 2 BROKEN SCREWS (LAST SURGERY).I HAVE TRIED ALL OF THE TYPES OF PAIN RELIEF BUT TO NO AVAIL.DR. RICHARDSON HEAD OF ORTHO AT DUKE UNIVERSITY TELLS ME THAT I HAVE 2 MORE RUPTURED DISCS ABOVE THE RODS.I AM ON NARCOTIC PAIN RELIEVER'S.D I HAVE RHEUMATOID ARTHRITIS.
I WOULD APPRECIATE ANY HELP YOU CAN PROVIDE.

Charles R. DeStefano
252-726-3378 or 866-539-7385 cell
Carol
17 Mar 2011, 19:42
Hey Sven, I agree with you too, about the christian 'god,'. I call it the 'god,' word.

I have OA and just discovered that ALEVE which I've been taking since a week ago Saturday, the 5th. as an inflammatory for strained quadricp/s muscle/ss on my upper left thigh, works for OA too. I take CYMBALTA for fibro pain as well. So far, so good, no side effects.
carolyn
01 Mar 2011, 12:12
Reading all the other comments on here makes me realise im not alone or going bonkers!
I am English,but living in Turkey with my Turkish husband,and therefore have very little access to support groups ect.as my Turkish isnt as good as it should be!
I was diagnosed with lupus and RA 2 years ago,and take the usual meds,Plaq. injectable methetroxate,and the corresponding ones to lessen the side effects of the ones i take.
I am never sure if the pain and especially the "odd" feelings i experience are part of the desease or the side effects of the drugs, even with the medication i take i know i am getting progressivly worse and at times find everyday life a struggle. Hope some of my comments ring a bell with some of you,I would be grateful for any feedback!
Jan
01 Mar 2011, 09:19
To Sven---Maybe your God is imaginary but mine is very very real. Perhaps you should look for the real thing. It is through Him that I can get out of bed every day with my RA.
Chris Davis
12 Feb 2011, 11:08
I was diagnosed with OA 30 years ago, and ha e been struggling with it ever since. I've had move than 20 operations on my knees just to keep up with the bone spurs. Five years ago, they tested me for RA and even tho I tested negative, I still have it. I am now a on so much medications that it is hard to function sometimes. I am a caregiver and there are times when I can't help myself, much less help others. I am so glad to find this comment section. I do ha e my down days, I call them pity-parties. I allow myself one every now and then, don't want to feed into my depression, which is very common when you have a chronic illness. About God, I know for myself, that if I didn't believe, I wouldn't be able to get out of bed every day. I have to believe there is a reason that I have this and my other family members don't, and I take solice in the fact that they are all very productive in their fields. Anyway, thanks for listening, sometimes we need to just have someone listen. Thanks
Bill
08 Jan 2011, 10:14
Just wanted to say to Sven that God is indeed real and in no way imaginary!!! You should watch what you say. Anyway since they took darvocet off the market what is good to take in its place?
Sven
04 Jan 2011, 14:28
Hang in there, everybody! Make the best of the good days. Remember, god is imaginary. It's just us real people in this thing together. Let's help our doctors and researchers find better treatments - and maybe a CURE! ...hey it worked for polio... and small pox.... and whooping cough..... and... :-)
Judy
21 Dec 2010, 03:17
Geez, I thought I was the only one going thru all this. Haven't been pain free since my knee operation for a torn meniscus which was almost 6 years ago, unfortunately it feels like I just had it yesterday, everyday I feel this way. Its so painful, as one of the ladies mentioned unless your bones are sticking out or your bleeding no doc or nurse seem to believe you are in pain. I have tried everything, pain pills, creams, lotions, bought everything and anything that swears it would help the arthritis pain, this is what the operation ended up as, arthritis. I never in my life even so much as used the word in any conversation, as I never thought this would happen to me. Really, this is so uncalled for. The doctors here in Alaska have nothing to offer, as far as the ones I have seen I shouldn't say just Alaska, actually the capital of Alaska, what a joke they are. Like I said before unless you are bleeding or bones are sticking out, we don't get seen here. I just can't believe how long I have suffered with this and there is absolutely nothing that has worked. Prayer is being used daily. I just wish we could find some thing that would at least alleviate some of our pain. God bless you all that are hurting out there. I pray some one out there finds us "that" cure. God Bless!!
Amy
15 Dec 2010, 19:09
My heart goes out to you all. I feel your pain. I can relate to each one of you. I'm 46yrs old. Husband left me. Going through nasty divorce. Now I have to defend myself for having pain. He is claming I'm lazy,(pill head. I'm having to write a letter for lawyer. RA doctor says she will sign it but won't even give me the diagnosis. Say I have Arth, Lupus, and my levels of protein are always abnormal. Had herniated disc in neck(surgery)3yrs ago. Carpul tunnel surgery 2months ago. I have done hair for 27yrs. Hard to work long days on feet. Have 3 or4 good days then do to much. Then in bed 3 or 4 days.Tried all the meds too. Nothing works.I feel we need to start support groups in our own areas. This site sure makes me feel not alone. I wish you all Merry Christmas. Give our Lord and Savior your heart. All things are possible through and with him. My love to all Amy (Feel free to contact me:walding_amy@yahoo.com)
Dorothy
06 Nov 2010, 18:45
Dear Shari, I totally understand! I have had joint pain for most of my adult life and have been gone to many different doctors looking for help. Like you said, since there are no bones sticking out and I am not bleeding, everyone thinks that I like to complain. No one seems to understand that I do not like living like this and do not enjoy being in pain every day of my life. I can barely move at times especially after sitting for any length of time and upon rising in the morning or getting up in the middle of the night. Finally, about a year ago, my provider sent my to a pain management specialist and they have me in a better place than before. I am only 52, but looking at the possibility of retiring on disability. For a long time, the doctors told me that I needed to get out and excerise. This is not an easy thing to ask. I pay a huge price just for getting out and working in the yard. My family gets tired of listening to me complain and no one really understands what I go through. I am very depressed at times and have days that I cry or am sad all day. I used to have good days and bad days, but it seems that I have more bad days. I feel very isolated and have no one to talk to. I recently started going to another psychologist, but this one seems to really listen. It was my pain management doctor that referred me to him and thank goodness for him. The only problem is that I can only get into see him every 6 weeks. Any way, thanks for reading.
Sandy Theisen
02 Nov 2010, 11:04
After reading the comments, just continue to seek help. The first rhuematologist I went to never examined me or looked in my file, just patted my hand, told me to "lose a little weight honey" and buy a good pair of shoes. I persisted and found a very caring doctor who has help me. I deal with fibromyalgia and proriatic arthritis.
Shari
29 Oct 2010, 17:30
I forgot to mention that I was tested for RA, which was negative, I was told. I haven't been retested in several years, and I also have not been sent for any bone scans, x-rays, or other screenings for Osteoarthritis (except for my neck, done by the chiropractor), or any of the other related diseases. I do run a high level of C-Reactive Protein, which was recently higher than ever, and I do not know what my ANA is, or if my SED rate is elevated. Thyroid levels are low but within normal ranges... Hoping the orthopedic with run some thorough tests...
Shari
29 Oct 2010, 17:24
I was diagnosed with Fibromyalgia at age 40, although symptomatic for a couple years prior to that. I am now 44. I have extreme fatigue, morning stiffness, joint pain in my hands, wrists, ankles, shoulders, and now in one of my knees. I also have severe chronic tendonitis in my right elbow which has now spread upward toward my shoulder. I do have some degenerated disks in my neck C3-C6 which causes frequent headaches. My body is tender to pressure, not only at the "tender points", but anywhere that the bone is close to the skin, such as forearms, shins, hips, etc. I went to a Rheumatologist who said I had a difficult to treat condition and should just learn to live with it! I went to physical therapy a few times, a chiropractor, and my family doctor. My family doctor is the only one who understands my frustration and she has been more than willing to do "trial and error" to see what helps me. Currently I only take Cymbalta, which helps considerably with the stress of living in pain, along with muscle relaxor Flexeral which helps me sleep. I have tried many NSAIDS but they really do not help me much since I have been taking them for so long, so I don't take them anymore. Excedrin Tension headache does helps with my neck/headache pain a bit. Nothing seems to help with my tendonitis except ice. I am going to see a different Rheum. but couldn't get in until December. I am seeing an orthopedic for my tendonitis next week. My biggest problem is because I "Look" fine, no one takes my pain and fatigue seriously and I get a lot of ribbing about being a "complainer" or a hypochondriac, which is almost worse than dealing with the pain!!
Barbara
21 Oct 2010, 22:51
I find it amazing how many of us suffer from multiple problems. I have had fibbromyalgia for over 30 yres, have had a brain tumor, breast cancer, PMR, osteoarthritis, have had both knees totally replaced, and degenative arthritis and bone sdpurs in my shoulder and neck. My hands and feet hurt constantly along with the muscles in my upper arms. Now I am having shortness of breath and sharp shooting pains up both sides of my neck with only minimal activity. I am in the process of going through tests to diagnose this. I recommend that every once in awhile you take a "wallow day"...where you just cry, feel sorry for yourelft, rail against the world and scream why me?? and then get up the next day, go to work, and live your life. My daughter has lupus and Raynauds, and she also takes a wallow day every so often. Believe me...it works. I don't know how this is all going to turn out but I am going to fight to the very end!
Sharon
25 Sep 2010, 20:21
I have OA in left knee as well as degenerative disc desease in c3 through c5 of neck and also in lower back.I am diabetic,type 2 and now I think I am developing arthritis in both hips.Have had knee surgery once on left knee which made arthritis worse. My doc put me on Meloxicam 15mg about 4 years ago and has helped some.I also take narcotics on a daily basis but am still not pain free. Sleep is not good and insurance does not want to pay for the only sleep-aide that does help me.I am on my feet for 6 to 8 hours at job everyday and by the time I get home I am done. I just stumbled across this site and am grateful to be able to actually talk to others who are in the same situation.God bless all of you and if anyone has any suggestions on remedies to ease pain please let me know.Thanks for listening and good night.
marianna
21 Sep 2010, 17:02
i was diagnosed with rheumotoid arthritis 2 years ago. before that, i went to numerous drs. and hospitals(E>R>)and they all treated me like a nut case wanting pain meds.my OB dr finally ran the necessary bloodwork and was so glad to have the proof on paper that i wasnt acting..my neck,jawbone,both arms and shoulders were hurting,my wrists and hands.i couldnt wip myself to go to the restroom,nor bathe myself or brush my hair or turn a doorknob.my feet were burning ,feeling like i was walking on hot rocks.i startyed seeing a rheummy in atlanta,and they did all of the necessary bloodwork,did a complete workup,even down to each joint and bone.they put me on feldene,methtrexate,humira. i must say it worked for a while, then i had these serious skin reactions all over my body.Looked like puss in them,about the size of a dime.needless to say, i took myself off of the humira and methotrexate.i was in remission, for the most part. i was also diagnosed with oseoarthritis,copd and heart eurthymia.now, i have added lyrica and klopodin for my sleep aids along with celexa and isosorbide for my heart.i applied to SS but was turned down twice.all of my brothers are on it,besides me. one has multiple scelorisis,diabetes and depression and the other has copd.i have no medical coverage and evrytime i go to the dr i have to be treated as cash pay.
jane chandler
21 Sep 2010, 11:38
Noticed there are many new patients making comments. Well i was diagnosed 8 years ago with psoriatic arthritis. He put me on 4 tabs methotrexate a week and 1 mg folic acid. Also 800 mg ibuprofen 3 daily. eventually we tried embrel-didn't make much difference. then he put me on remicaid infusion. I had a heart attack august 2007. Not connected to arthritis. At this point, i had to retire oct 2009 because my knee was very bad. i had total knee replacement Feb 2010.It was due to arthritis. Inow take remicaid infusion-full amt allowed for my weight-every 6 weeks-8 methotrexate tabs on sat- 1mg folic acid every day- 7.5 meloxicam daily -600 mg neurotin daily for artheritis. Of course he has diagnosed me with neuropathy- age onset arthritis and other minor things. I also take meds for my heart and am doing well. worse problem I am having now is stomach issues. We are trying new proton pump inhibitors to see which is going to work. The psorisis part is the worst part of my health. I have to say that right now i am doing better than I have in last 8 years. I have a primary that runs the show-rhemotologist-cardiologist and orthopedic for knee. I feel the most important thing about getting better and maintaing is a good primary. Mine is stubborn and has made it clear that he runs the show. He tells them no if he feels it is not good for me.He is always on top of everything that happens to me and will not hesitate to call other doctors if he feels they haven't treated me right. He also talks to me a lot. So get a good primary-mine is older and cantankerous! gOOD LUCKTO ALL! hAVE PATIENCE- THIS DOESNT IMPROVE QUICKLY.
Anne P.
11 Sep 2010, 21:30
I have had severe neck, shoulder, wrist, and finger pains for years. I finally went to a rheumatologist this past month. He gave me muscle relaxers (no help), did blood test (low vitamin D, and no lupus were the results), and xray. Went back last week and he said I have a bad neck riddled with arthritis and the worst he has seen in a 39 year old. Said to take Ultram for the pain and nothing else can be done. He did not say what kind of arthritis this is or offer any alternatives. Not sure what to think at this point about the doctor or what he had to say. He didn't elaborate much on anything. He is the only dr. listed even remotely close to where I live who accepts my United Health Care insurance. I live in the metro St. Louis area.
carleen
26 Aug 2010, 18:21
Hi,
I just found this site and have read all your stories. I am 52 years old. I have Fibromyalgia, Hypothyroid, IBS,Hypoglycemia,bulged and degenerated disks and other back issues. I was just diagnosed with RA yesterday. I also am in constant pain although most people who know me who attest that they find it hard to believe. I am a christian , trust in the Lord for everything. Don't get me wrong I am in PAIN! every day, can't sleep well and have my good and bad days as well. But the one thing I know for sure is that without the Lords word that feeds me and encourages me and without a possative attitude i would never be able to get out of bed and do all I do. I am not thrilled with taking the meds that the dr. will probably want to put me on so I am trying to seek out a natural way to help myself. I know you have to careful of that as well. has anyone used anything natural that has helped with the pain? I figure the side effects still have to be better. May the Lord bless all who are in pain and may He heal all your diseases.Pray, Pray, Pray. He does hear your prayers, but remember that every trial is not to harm you it's to increase your dependency on God and increase your trust in him. God Bless
Deba
19 Aug 2010, 13:59
A Reply for Idella's question...I just saw your comment on 8/19/2010...I understand your question about RA Meds and should you get a second opinion for Treatment of your active RA bothering hands & hips. I would still work with the same Dr if you have been w/ him or her a long time...Are you comfortable w/the Dr? I have RA too and I have been on methotrexate once a week (6 Tabs) and my folic acid 6 days a week. Also on injection Med Humira this year. But used to be on Enbrel and it gave me a lot of relief from symptoms of RA. Injection Meds can help your future if you have a lot of inflammation, and it sounds like you do since you have 5 tabs weekly. Even the methotrexate is a serious medicine just like the biologics (injections). So I am age 40 now and had RA since age 30. I did try 2 different Rheumatologists in FL and guess what? the second one suggested the same treatments. And so I went back to my original DR and stayed with her for 8 years now! Idella keep up with your appointments and talk to a good friend or family member to help you decide too! I hope my story helped a little! All the Best! from Deba
Idella
17 Aug 2010, 11:14
I have RA and my DR.prescribed metotrexate for my artritis in my hands and also I have alot of pain in my hips. Just recently he increased my dose to 5 tablet in the morning. That help some, but it doesn't help much. He even suggested that I start taking injection, but I heard all about the side effects. I also forgot to mention that I take folic acid on the days that I don't take metotrexate. Metotrexate 5 tablets a week and 1 tablet of folic acid 6 days a week. Should I get a second opinion?
Barbara Stein
03 Aug 2010, 18:04
I don't ever see any information regarding
bulging disks which I have been diagnosed
with. It seems, of course, that everything
is a coverup
Todd
17 Jun 2010, 14:57
Through years dealing with this disease I want to share something I've found. Be very careful with NSAID's in my case Naprosyn. My Dr. finally took me off after 5 heart attacks. Since stopping that med. I no longer have angina or have I had anymore heart attacks !
Mary
09 Jun 2010, 00:51
My fibromyalgia was an onset do to a work related injurys. I.ve been treated by Pain management he moves on and passes me on to another. This Is what worked for me percocets hydromorphine(Dilaid) Before I was put on these narcotic pain relevers I did try everything on the market but did'nt work for me. So I hope this helps anyone who really needs it. When I'am on these meds I feel normal and I can move around better as long as I limit myself.
Marie
05 May 2010, 21:56
Read everyone's comments please try chaga go to web site www.mychaga.com/marieshada. Chaga has 30 day guarantee.It has helped me it's all natural. Chaga has decreased my pain meds and helps me sleep at nite plus other things.
Vana
15 Apr 2010, 14:32
I'm 45 and have OA, Ankylosing Spondylitis, Lupus and am being tested for MS. I had my right hip replaced 3 yrs ago, 2 disks in my neck and a surgery on my left shoulder. My pain started in my feet as well about 14 yrs ago. I was put through the gambit of anti-depressants and therapists for the first couple of years. I found out that the crippling of the joints can show up before the damage will on an x-ray or MRI because my fingers have started to twist, first on my left hand and now on my right. I think it is important to have a Dr. that believes in supplements as well as drug therapy. I have gone from several medications to just a few and feel so much better for it. The D3 test showed I was extremely deficient. And since getting it back to it's normal level I feel much better as far as depression goes. Living with chronic pain is exhausting in itself without all the other ailments to go along with it. I feel for each of you and your battles for answers and help. A great Dr. and Rheumatologist make all the difference in our ability to deal with the changes we have to endure. Your are your own advocate. Only you know what your body is saying. Make sure you have a Dr. who is listening. Love to all, Vana
Deb
12 Apr 2010, 22:55
It certainly takes many years to finally get a diagnosis. Why do doctors always want to just assume your depressed and load you up with prozac or some other depression meds. I was diagnosed 5 years ago with mixed connective tissue disease, What? Apparently is a combo of arthritis, lupus and who knows what. Rheumatologist put me on plaquenil and a number of nsaids and now vitamins. Have taken meloxicam, celebrex, lyrica and all the anti-depressants of course. Took 10 years and many doctors to finally get a diagnosis. I have found though that I feel better when I take care of myself and take less drugs than prescribed. Im not the best patient. Sleep is my biggest problem, cant get off the ambien. Oh well will keep trying. Someone who doesnt have pain everyday and no energy has a hard time understanding what we go through. I wont feel sorry for myself, I wont let it beat me.
Annie Adams
06 Apr 2010, 13:26
I have been diagnosed with Adult Onset Still's Disease and Fibromyalgia. I am 31 years old and I feel like I am 80. The Still's hit me one day out of the blue, and I have never been the same. If anyone else has Still's, I would love to hear from you.

Annie Adams
phelps358991@bellsouth.net
Liz
14 Mar 2010, 09:42
I have been diagnosed with RA,the treatment I have been given is a weekly injection of Metoject 15mg (metotrexato solution )
Has anyone heard of this treatment before.I have more pain now than before I started the treatment.

Thanks Liz
Valerie
26 Feb 2010, 21:27
3 months after my last child I developed inflammatory arthritis. I went on Methotrexate for a year. After I went off I didn't have the joint swelliing only some stiffness. Approx 1 year later I had a couple of iritis attacks. Doctors didn't think it was anything. Approx 3-4 years ago I had more and more iritis attacks and in the last 1 1/2 years the attacks have increased and the pain was unbearable. My eye guy was excellent and I got a referral to a Rhumatologist. He indicated I did not have joint swelling, took my history and he feels it's a reactive arthritis. My mom had RA. I am now on Methotrexate again, and he has referred me to a specialist for a colonoscopy. Has anyone had arthritis/iritis connection?
Merina
20 Feb 2010, 20:08
I have been dx with fibromyalgia,restless leg syndrome,degenerative disc disease,discitis,asthma,mitral-valve prolapse which thankfully don't need treatment yet and just recently sleep apnea. I take so many meds every day it's not funny. I take tramadol/ultracet, hydromorphone, lyrica, cymbalta, baclofen, voltaren gel which really helps, ambien cr, requip, celebrex,rantitidine for nausea. I have been on alot of these for a few years already and I am not even forty yet it really sucks to not beable to do alot of things but I have learned to adapt for the most part. I was getting epideral shots in the lower back but have found that decrompression feels really good at least for a few days....I am hoping to get into an arthritic water exercise class. I've heard that helps a lot with mobility and all... I just wanted to say that if it wasn't for all the pain meds and stuff I take I couldn't even get out of my bed I was in that much pain before I started taking all the meds...don't get me wrong I still hurt but would much rather live on pain meds than the way I was before at least I can move some now and have somewhat adapted to it now although there are days...just wanted to share my experience...
ANGELA HART
17 Feb 2010, 08:59
For the people looking for something that helps the pain ALCIS pain relief cream, a topical analgesic has given me as much relief as anything, sometimes even the pain medications prescribed; for both stiffness and swelling. I used it every day at my worst about 8 years ago but now when the problem arises a day or two and the relief holds again. 1-866-ALCiSiS
Diana
04 Feb 2010, 09:09
I was told I have calcium build up in my shoulders. I cannot move either one of my arms towards the back. I can hardly dress myself and fix my hair. It is also very hard to sleep at night due to arm pains. I do not want to be on pain medicine. Does anyone know what to do besides surgery for this?
Nicole
28 Jan 2010, 12:42
Where do I begin... I am 25 years old and have pain in my wrists/back of the hands/elbows for approximately 4 years. It started when I was pregnant with my first child. It was determined to be Carpel Tunnel. Of course that was pregnancy related. Approximately 9-10 months after having my son I started to notice pain in my wrists. I would be whisking eggs (etc.) and I couldn't do it for very long. Doing these activites was not out of the ordinary but I thought nothing of the pain. I attributed it to the Carpel Tunnel. About 2 years after the pregnancy/Carpel Tunnel I was pregnant again and my pain was increasing so I was sent for day and night splints and was thought to have Carpel Tunnel again. After giving birth to my second son my pain continued. I have been for nerve testing (which found scar tissue from original Carpel Tunnel but nothing else), physio therapy (could not help because could not find any inflammation/heating of the joints), and to see a rheumatologist (which could not find anything wrong). I have been on a few medications to help with the pain (i.e. naproxen and now celebrex) and yet the doctor's still do not know what is wrong with me. It is now believed that I have some form of arthritis.
Nadine
18 Dec 2009, 14:23
I am 60 yrs old. I have had RA-Osteo for 4 years. I was in a wheel chair at one point as it was impossible to walk. The pain was in ever joint in my body.I finally went to a rhemotologist. I am on Norotin as well as lots of ca;cium and 2 shots a week of M I walk 3 miles a day now and am free enough of pain I do all my chores and volenteer some.I give the full credit to God fr wnere I am today.I read all your letters and will be praying for you. Just have FAITH God still heals.
Lois George
14 Dec 2009, 14:42
Have any of you ever had your D3 level checked? It can be done when you are having other blood work done. Just ask your doctor to add that test. You need for your D3 level to be at least 50. Below 20 you have a deficiency.

Lois
Ceil
01 Dec 2009, 18:22
This is my first time to this site and I know that most of these people have been to Rheumatologist along with their PCP and pain management doctors. I have Psoratic Arthritis;Fibromyalgia degenerative arthritis; stenosis and herniated discs cervical and lumbar.Along with hypertension; TypeII diabetes; carotid artery disease (L.carotid is calsified totally and the R.carotid is 70% blocked. I am disabled but I still manage to do all my daily chores and take care of my husband the house and animals. I do Aqua therapy and massage and take more medications and vitamins, than I think anyone else does. The pain is there everyday but you have to keep going and doing all the time. Have Faith, BELIEVE God will not give you more than you can handle. AND help someone else with something today. Do not just sit, lie, or moan and groan, Take only the medication you have to and make something,(sew,crochet,knit,make jewelry,ceramics etc.) if you can't use your hands use your toes. The thing is Do something. Thank you Jesus everyday.
Malinda
01 Dec 2009, 17:31
This is a great site...seems like we all have some type of arthritis...like one big happy family. LOL. Now my story. I just turned 41 but have been having joiunt pain and chronic debilitating headaches for years. The pain in my joints just kept gettting worse but was really overshadowed by my headaches that I got every single day. Woke up with them and went to bed with them and it was driving me insane. I had seen my regular physian for these headaches and was diagnosed as having "stress" induced headaches (yeah the headaches were giving me stress lol.) During this time I was being treated by the same physician for neck pain which was also chalked up to stress and overwork. I was given one medication after another for my headaches and physical therapy for my neck (twice) neither of which worked. The doctor started looking at me like I was bothering him every time I complained about the pain in my joints and everything else...he finally told me to go take yoga to help my stress. are you serious? I never went back to him but suffered for 10 years like this. I self medicated with tylenol, advil, motrin, excedrin sometimes mixed with each other but mostly one or the other...and not the recommended dose either I was taking 4 or 5 pills at a time probably every 3-4 hours to kill the headaches and neck pain just so I could get through work every day and then to get a couple hours of sleep. Then I started getting hit with what I can only describe as waves of fatigue. It would just sneak up on me and hit me full steam over and over again for just a few minutes and sometimes for the full day. Then last year it all came to a head. I had bursitis in both my shoulders 3 times, every single joint hurt, the fatigue, insomnia, depression you name it...just gradually worsened day by day. Funny though this is not what sent me back to a doctor....not after the last experience I had...I went to my fiance's doctor because I started having kidney/bladder problems. He diagnosed me as having a UTI but more importantly he recognized that I was having these other problems, tested me and I was finally diagnosed as having DDD, OA, and Fibromyalgia. I am in pain mgt now and oxycodone, lyrica, and cymbalta. They help me get through the day even though I am not pain free and probably never will be. Unfortunately I damaged my kidneys pretty severely by overdosing on all the OTC drugs I was taking on a daily basis. I am writing this as a warning to all pain sufferers to not overdo the OTC's. If your doctor is not helping you...find another who will. Don't wait 10 years like I did.

Hoping all have a pain free holiday
John
10 Oct 2009, 08:53
Hi I have R/A, Degenerative Disc Disease along with a couple of Herniated Disks so far the only relief I get is 3 percocets throughout the day and 5mg of lorazapam to help me sleep at night. Living with chronic pain is a tough go but I try and keep as active as possible, at 52 Im not ready to put the shovel down, having said that I have heard a lot of good things about cherry juice has anybody here tried using this as as remedy for R/A and what kind of results did you achieve.

Cheers John
sandra
28 Sep 2009, 18:52
THIS MY FIRST TIME SEEING YOUR BLOG. I CAN FEEL EVERYONE'S PAIN I HAVE BEEN SUFFERIN WITH ARTHO OF THE SPINE SINCE 2004. I'VE HAD NUMRTOUS INJECTION AND STILL HAVE THE PAIN MY NEW PAIN MGMT DR IS GOING TO TRY THE STIMULATOR I HOPE THIS WORH AS I AM TIRED OF ALL THE MEDS.
julie
07 Sep 2009, 07:28
I was diagnosed in 1989 with MS I was told I was young and strong and to continue to work to keep my muscles strong. That was 20yrs now and yes I can still walk and talk I have awful painful bursitis in my right shoulder and right hip. The Orthopedic Surgeon I'm seeing says surgery to scrap bone spurs would help with the pain I'm all for that cuz they certainly can't prescribe a damm strong pain med oh I might get addicted. Yea I'm a crying baby when it comes to pain can't stand it especially when it's always there and driving me crazy in the head. I work ft and pt for financial reasons, I applied for SS about 5yrs back, got to the third hearing,but had to take a ft job cuz my husband was waiting for his newly SS paperwork to get finished. Unfortunately my husband commited sucide 3yrs ago so I'm living with my daughter and her 4 1/2yr old thank god they keep me moving about constantly. Here's my question do bursitis,arthritis,joint pain,muscle loss go hand and hand with MS? I would so much like to hear stories of others who are having this issue. Thanks for listening cuz my daughter doesn't understand why I whine and whince in pain. I'm going to be 52 soon.
Terry Lynn
03 Sep 2009, 18:39
Hi well my story is similar to most of yours. I am 51 years old i began having arthritus problems at the age of 22. The progression continued. I have scolosis of the back which has developed into a stenosis of the back i also have degenerative disc disease now in the advanced stages. Along with other junk like obstructive sleep apnea and now they have found a mass in the brain that keeps changing they are wanting to send me to another neurologist about i guess this guy is the best in the field ..I have gone from asprin therapy thru ultram to injections and spinal injections , accu pressure you name it over the years i worked for 32 years full time until i had to final give into a knee replacement 4years ago. Now the other knee is shot too i just walk until i just cant anymore i have to take naps i am so tired all the time i am on morphine, lyrica and zanaflex..along with b/p med and now vitamin d and folic acid high doses because of my health ..I am a single mom my youngest child is 15 is at home with me. I divorced and my ex remarried this past year after over 18 years of marriage. I am not even sure why im writing all i know is each nite before i sleep i pray that i will again wake up to a new day and i am thankful when the daylight comes. I am up and down all night the pain gets to me. Lord help me if i fall asleep on my back then im grabbing walls or whatever to try and pull myself up right. I feel so bad for my son having to see me in this condition..As far as going to the new neurologist to find out about this brain mass to be honest i really dont even want to know..I am a woman of strong faith but my fears lie with trying to be sure my son is on the right path in life during my lifetime i know his dad well he is very self centered. He doesnt even now look or put our boy first in his life. So i fear anything happening to me would have a terrible dommino effect on those i love so dearly like my son and my daughter shes 29 but there is still alot of growing up emotional that girl has yet to do. I guess i would only ask any one who reads this to just always keep hope and faith in whatever beliefs u have. and realize that for what ever reasons in the longrun i do believe we are the stronger ones in life and we do persever sorry im not a very good speller..and if you would i dont ask for anything but maybe a prayer..I am kind of at the point in my life that that seems to be the most logicial answer to my problems..

God Bless all of you and i hope things get better for each of you in your pain and fight with the arthritus and other medical issues in your life.

Terry Lynn
Michele
02 Sep 2009, 05:15
I am 50 years old and was diagnosed w/OA of the hip 7 years ago. Since that time it has progressed to include the remainder of my joints except for slight pain in my knees.
I have had cervical surgery (ACDF) due to deterioration of my spine and at this point I was told by both my PCP, Rheumatologist and Ortho Surgeon that there is nothing left to do but pain meds, surgeries as needed and injections. Since I have at least (and hopefully) another 30 years or so to deal w/OA I have selected my course of treatment to continue w/ current pain meds (Ibuprophen, Vicodin and Percocet)until no longer effective, then injections, then surgery.
On any given day I could either feel like I could run a marathon or I can't get out of bed at all. My PCP hopes that this accelerated progression of OA will at some point stop but until that time I hope I can continue to endure this chronic pain.
I can't remember a day in the last 7 years that I haven't been in pain. I wouldn't know how to live without it.
And they wonder why we get so depressed?!
Ariviste
21 Aug 2009, 13:56
J. Kato,
You should probably see a rheumatologist. I have spinal stenosis, degenerative disk disease, and some trapped spinal nerves. Some of my symptoms sound similar to yours. You might get an evaluation from a neurologist. If you have any of the conditions that are described as "spinal arthritis", there are surgery treatments for many of those, but be very careful of who does it. You could end up in worse shape than you are now. (That is advice I got from a neurosurgeon.
Steph
21 Jul 2009, 14:37
I was diagnosed with fibro back in 1994. Drs. placed me on all sorts of anti depressants, drugs with heavy narcotics and very habit forming drugs.

I found an OTC pill that I had used after a major operation gives just as much relief as the prescription type.

Percogesic is a non aspirirn for enhanced pain. I take 1 or 2 and can go for 2 to 4 days without taking another one. I tolerate as much pain as possible before I take them as I do not want to become and addict of any kind. My friends ask me what I take and they look at me like I have 3 heads. You can find it on the bottom shelf at most drug stores. My friends with minot arthritic problems and other ackes and pains now all swear by the little orange pill.

Good luck all and remember do not become a slave to the meds. God will help!
Freddie Brackenridge
21 Jul 2009, 13:22
I suffer from degenerative arthritis. I am diabetic have a pacemaker and also a heart stint.
I can't use antinflamtories as I take both Plavix and coumadin. My doctor prescribed Lortab for the pain and the relief provied in minamal at best.I am presently doing some PT and will continue for six weeks unless I am not showing inprovement.
Is their help for me????
Freddie
Kevin
14 Jul 2009, 15:13
I see a lot of questions on this site but no answers... why?
Janice
10 Jul 2009, 10:51
I have psoriatic artritus in my hands, feet and knees with psoriasis on my scalp. I take Methotrexate, prednisone, sulindac and am now on every 8 week infusions of Remicade. I exercise and feel great. I can even start back golfing again.
Floence
07 Jul 2009, 12:36
I have Fibromyalgia. I have had it for a number of years and tried almost everything. There are a few things that have given me my life back: 1)a medication called Topamax - Cleared my Brain Fog and helped witht the Pain. 2) Trigger Point Injectins, 3)Diet,4) Arthritis Water Class - the only exercise I can really get into and helps with my weight. 5) Stress Control. 6) Chiropractic Manipulation and Supplements. 7) Emotional Release/Healing with a program call Soul Renovation. This I think is very important. Release the emotional, anger, baggage, whatever we have stuffed or carried, past & present. If interested go to www.soulrenovation.com. You will be glad you did.

Yes, I do take other medications when I need them. I have other medical conditions that lead up to the diagnosis of FMS. Keep a positive outlook and don't let the condition own you. And Ladies, get your hormones checked. I found that going on HRT help a lot! Hey, look at the bright side ladies, FMS has some possitive effects - NO HOT FLASHES or NIGHT SWEATS - we are always hot! facility
Corrin Jordan
15 Jun 2009, 13:52
June 15, 2009

Hi People. You are all so well-informed. I was
diagnosed with degeneraive disk disease in my back and I had been seeing a chiropractor with
my insurance monies covering most of it. My primary care Dr. pooh poohs everything. By that I mean my questions about treatment and pain. He says there is nothing I can do but to lose weight to improve matters.

Right now I weigh upwards of 350 lbs. And I am only 40. And a Type II Diabetic, which I manage to control. I also take various types of psychiatric meds for bipolar disorder.
So I don't know what to take that will help.
For now I'm staying with otc products from the drugstore. But I'd be interested in hearing from the person withthe long laundry list of supplements which ones were successful! Thank you for this site.
Hiarn Das Mahar
14 Jun 2009, 00:42
This website is great. Thank you for sharing and all the info. I was diagnosed about a year and a half ago , My Knees pain at sitting .. then I went to doctors.They SayIt is Osteoarthritis .I serched in e-net it;s medicine ... then following herbal medicines from south Africa is foud e-net . But the address of supplier and aplling methedology is yrt to search ... Would You Kindly help me.........???
Algophytum,
Arthrosetten H,
Arthrotabsm,
Artigel,
artiglio del diavolo,
, Devil's Claw Capsule,
Devil's Claw Secondary Root,
Devil's Claw Vegicaps,
Fitokey Harpagophytum,
Harpadol, HarpagoMega,
Harpagon, Harpagophyti radix (Latin ) ,
Harpagophytum procumbens ,
Harpagophytum zeyheri,
harpagoquinone, harpagoside,
, Rheuma-Sern,
Rheuma-Tee, Salus

We're waiting for your reply with a bless of cure..... Thanking U........!!!
Megan
10 Jun 2009, 12:41
This website is great. Thank you for sharing and all the info. I was diagnosed about a year and a half ago. RA hit my hands, wrists. The lower thumb joints are shot. Rheumatologist said those are osteo. Anyone who has had surgery for those are you happy with it? My rheumi says it is not great yet, but getting better so if I can I should wait. Not good mobility after it. Would love to hear from anyone about that.
I have had great relief from pro lo therapy shots. A very natural thing injected into joints. Only problem is it is pricey and insurance does not cover it yet. Hoping it will as I had no relief with cortizone shots. Tried accupuncture, was skeptical, but it works! yeh! almost as good as the pro lo therapy , less money and insurance DOES cover some of it. Thought I'd be grossed out by the needles but they were so tiny and you dont feel a thing. AND I have the BEST naps while on table with them in. Everyone says that. It is amazing. Try being open to other cultures/ways of healing. There is so much out there. Our medicine is not always the only way to go. Accupuncturist is also an 'herbalist' recommended to me by my gynocologist believe it or not. She said so many of our illnesses these days are due to inflammatory things. So she recommends him to patients with any kind of inflammatory illness. He put together anti inflammatory herbs in capsules and they help so much, and also give me energy, etc. Oh, by the way, I have found the best solution, for me, if I am 'fatigued', and it is EXERCISE through it rather than lie down. Get the heart pumping even though it is hard dragging myself to the gym. But then I fell better than ever. I got through the fatigue exercising rather than sleeping through it.
My rheumi is great in that he is very open to any alternative things so I always bring him things I find in health food stores, etc. I take many of the holistic anti inflammatory things. I am on Plaquenil and so far have not had to go on anything stronger, the drugs frighten me, so I thank God for that. He thinks I am doing well due to all I am doing in addition to his prescription. I read about the antibiotic treatment and talked to him about it and he put me on minocycline and my numbers went down. I went off as I was worried about my stomach but he was happy with the results so told me to let him know when I want to go on it again. We are a good 'team' kind of trying things and I feel lucky have such a great, open doctor who does not want to rely on the stronger drugs if he does not have to. He is not thriled about having to prescribe them and has seen some bad side effects in his practice. The antiobiotic treatment was info. from The Road Back Foundation, and the book, you can go to their website, based on the research by a doctor and Thomas Scammel. There are doctors who treat RA just that way and they will give you info. if there is one near you.
About a year ago I thought I might be getting it in my knees, for a brief time I had little pouches along my knee caps. Dr. did not know what was going on either. Honestly, I got right on the treadmill every day and it went away! Never came back. My heart goes out to anyone who has gotten hit in legs or feet or knees. Although I have lost some use of my hands I am praying and doing all I can to prevent it from hitting my legs, my strongest part. All the talk about exercise is TRUE. It is like a miracle. It is saving my life. My hands even feel so much better after about 20minutes on treadmill. They start to feel nearly normal again. Is it the oxigenation? I dont know. I do an hour, sometimes more, and the eliptical. And I do weights to strengthen the rest of me. And I am actually going back to dance classes at 58! Ballet to start for the stretching, bar and floor work. I take two two hour workout classes a week that have some yoga, tae chi, light aerobics with light weights, lots of deep breathing, stretching on mats with thera bands for resistance. I get out of bed a heck of alot easier days after those classes. I think even if it is hard to move, just move. Push through it. We have a woman in a wheel chair in our classes, an amputee. She is such an inspiration to me! You will find it really will help you move and make you feel so much better and help you deal with all of this better in a more relaxed more positive way. It will make you happier and believe me, happiness and feeling of well being helps. It is also empowering. To be able to do all that, it makes me cope better with the things I struggle with (buttons, things in kitchen, etc.) and my joints actually are not as inflamed or in pain if I keep exercising.
I helped with a neighborhood garage sale sunday and worked hard and I also notice when I work outdoors I am not in as much discomfort as when I work in the house. I think the air and sun really are the reason. So I try not to sit here at computer too much or in the house. Maybe the joints/ cells etc. being oxygenated as when we exercise are the reason. I was amazed at what I could do outside with all the items, moving things, some heavy moving, etc. and although I ws not perfect, I was not in major pain. AND I felt better the next day too.
I have been in and out of physical therapy as neck was getting hit and I have had back disc problems on and off for years in back. Which the exercise also helps. Physical therapist taught me how to do things without having to engage my thumbs as much. I hold things differently, lift things differently, and do not pull things as I used to with my thumbs. You dont realize how much you use your thumbs until you cant, due to those lower thumb joints being bad.
Heating pad is a Godsend, for neck, back etc. That helps me tremendously. I wont even travel without it.
And massage, but try to get a medical masseuse, who understands joint pain. I have one from the physical therpists group.

I am a vegetarian(just no meat), very low fat diet for years. I eat more salmon. lots of fruits and vegetables, and I am at a good weight, but sort of lost weight and muscle mass from this (not unhappy about not having to watch my weight anymore!) but work out to keep the muscle mass and be stronger. And thank God I was healthy as a horse when this hit (heart, no cholesterol, I was the 'health nut" in the family..ugh!)so that has helped. My rheumi assures me due to my diet, my health, and all the exercise (I tell him I am going to 'dance away the RA' He loves that)I should not worry about the darker possibilities of this, like inflammation of heart and other organs. SO I try to NOT even think about those things. A day at a time. Today is good, so I am happy. If anything this has made me take better care of myself. I take in addition to the Plaquenil, which even that I am not thrilled about as I never even took aspirin before this..
MSM, hyalonic acid, fish oil capsules, flax seed oil, strong multis, calcium, vitamin D, glucosomine condroitin, arthritis-eze i found on a website, also has alot of things so i dont have to take seperately, bromelain, boswellia, zyflameds (have a number of anti inflammatory things in them so I dont have to take them seperately) C's, E's, cucumin, tumeric (in capsule and on foods), the herbalists potion. Not every day, I play it by ear. My stomach can only take so much so I kind or alternate or rotate things. anything that is listed as natural antiinflammatories.
I am praying I will not have to go on the stronger drugs as I have cancers in my family(Mom, Dad, Grandmother, Niece, etc.) so my doctor has never pushed for me to take those. He is happy with how I am doing with what I am on now. So God bless and good luck to all. Please do take care of yourself, diet, weight, exercise, and I believe you will notice you are feeling better. The two people I know who are not doing well with it really have not changed their lifestyles at all. Bad diet (and admits it) no exercise. Overweight. I believe it really is our responsibility to take the reins in our own hands. It IS possible. Dont accept that you will never feel good again. Or be able to walk or be able to move well. In the beginning, I thought my life was over. After a few months I felt myself coming back again. Now it is my job to do all I can to ward off it spreading or getting worse, Oh, and avoid stressful situations, they are the enemy for inflammmatory conditions. I have a deeply spiritual friend who connected the word inflammation with any inflammatory situations and even 'anger'. DO all you can for YOU. Now is our time to care for us. After taking care of kids, husbands, wives, loved ones, now we have to take care of ourselves too, sometimes not the easiest thing for some of us. But we are all worth it. And to be good stewards of these bodies God blessed us with. Enjoy life, the sun, the air, the flowers, our pets, our families and friends and enjoy taking care of ourselves. And MOVE, even if is your shoulders and neck to the radio in the car. And DANCE...even if it is alone in your bedroom. And LAUGH, it will make you feel SO much better.God bless.
Megan
rita
03 Jun 2009, 12:06
I HAVE FIBROMYALIA, OSTEOARTHRITIS, AND RA IN MY HANDS. I HAVE A PAIN MANAGEMENT DR. I WAS DIAGNOSIED IN 1985 WITH FIBRO. AND HAVE IT IN MY FEET. I TOO, WEAR THE ORTHODICS. SOMETIMES IT HELP IF I AM NOT ON MY FEET ALL DAY. MY PAIN IS IN MY BACK AND HIPS SO BAD I CAN'T SIT, SLEEP, OR WALK. NO ONE WAS FIND ANYTHING TO HELP ME WITH MY PAIN. THIS GOES ON EVERDAY. CAN'T SIT STILL, VERY RESTLESS.VERY FATIGUE,NEED TO TAKE A NAP IN THE AFTERNOON. NO ENERGY TO DO MY NORMAL WORK AROUND THE HOUSE. I AM 40 LBS. OVER WEIGHT. DEPRESS A LOT, CAN'T GO OUT IN PUBLIC WITH FRIENDS. WHAT DO I DO???
Susan
03 Jun 2009, 06:44
Just been to my family doctor and he has told me that I have arthritis in my back and both hips. Some days it is hard to move around. After sitting in chair, I really get stiff but after I move some it get better. Need to fine a RA doctor to help.
J. Kato
30 May 2009, 05:04
Excuse me, BUT... Am I the only man on earth that has arthritis? I certainly do not mean to offend anyone, but I'm feeling a bit alone here.

I have recently been told by my doctor
(a woman) :O) at the VA that I have arthritis in my back.

I have no idea what kind it is, and I understand there are over a hundered kinds it could be. In many cases of arthritis, they (doctors) don't have a clue as to what causes it.

About three months ago I began having severe back pain. It is now also in my left leg and foot and my right foot. It has began to affect my back and neck also.

One doctor said I had a "pinched nerve" and arthritis.

I have been given Ibuprofen and methocarbamol and a heating pad. It helps some, but not much. I am to see my doctor this June 22nd for futher evaluation. Any suggestions? :O)

Peace to all... Jack

Sylvia DiNello
26 May 2009, 08:31
I have what I think is muscle pain, mostly
in my legs at night, also neck pain. It does
wake me during the night.
I am taking Diclofenac 100 mg twice a day.
The Blessed One
22 May 2009, 08:31
I don't know what type of arthritis, that i have, it's in both knees and my lower back, moving to upper back, and i have multiple sclerosis.
Janet
07 May 2009, 19:05
Sherry

Perhaps you should see a Pain Management Physician. He could evaluate you and recommend either pain meds and/or an epidural for pain or other treatment for your lower back.

Also, I would recommend acupuncture for pain. I have acupuncture every two weeks for pain and to improve my immune system as I have RA. I truly believe it is worthwhile looking in to. I also have a Pain Management Physician. I get a lumbar epidural periodically as well as other treatments for spine pain and sciatica, for spinal stenosis due to OA.
Delores
05 May 2009, 13:12
I was recently diagnoised with RA and I find besides the joint pain in my thumb and right hand, hips and so forth that I'm extremely hot at night when trying to sleep. Is the body temp. associated with the inflammation RA causes? I feel like I'm literally burning up!
Debra
21 Apr 2009, 22:50
For Sherry, I will be 43 next month & have OA also & have had it for almost 10 yrs.. By the time it took the dr's. to stop saying "You're too young" the tissue in my thumbs was gone & I had to have total joint resections w/them taking the palmaris tendons underneath my wrists & putting them in my thumb joints & taking out a lot of OA in my hands. I've had both my knees scoped almost 5 yrs. ago & will do so again shortly. Also have in my back, hips, feet. Lucky to have a good family dr.. And I can take NSAIDS. Along w/a mass of pain pills. And despite my pain, I do yoga-pilates, a gentle program & use to walk quite a bit before my latest knee flare.
You need a pain specialist. Or a physiatrist. Does your area have either of those? Though you can't live pain free, you should @ least be able to function in a manner that is not crippling to you. God Bless & best of luck to you. To all of you...for chronic pain is indeed hard to live w/so I find laughter to be the best medicine.
Kathy Davis
21 Apr 2009, 14:54
Do you have any knowledge and/or information on Palindromic Rheumatism?
Kelly
21 Apr 2009, 08:59
Funny, I just learned about the antibiotic protocol and was wondering the same thing! I am about to approach my doctor with the question but wanted some information to back-up my request. My RA was caused by either an illness or the medication I took for the illness more than a year ago and so it would seem like a worthwhile exploration.
Luka
17 Apr 2009, 12:57
This is for Sherry, I too am 42 and about 30 pounds overweight with OA, just diagnosed in April 2009. I've had 2 trigger finger surgeries in one day and on one hand. The pain pills helped and I healed well. Then my right hip started to give me pain. Its kinda hard to exercise on my Gazelle (walking exercise thingy) while my hip is hurting. So, basically exercising that way is out. I've been thinking about doing the opposite. Instead of swimming lie down on my bed and pretend to swim or do some kind of exercise. Will keep you posted as to how that works out or not. :)
Good Luck to you and every else who suffers with the pain everyday. Keep the Faith and Pray that God will help you heal. :)

God Bless you all.

Much Aloha,

Luka
Sherry
07 Apr 2009, 20:17
I have OA (osteoarthritis) in my lower back, minimal in my hips, and now I think it is in my knees and ankles. I am only 42 yrs old. I am 30 lbs overweight and trying to lose the weight. But here is my problem, I can't tolerate the side effects of the NSAID's and they don't work for me. I need the analgesics, but my general dr. won't prescribe them due to his fear of me becoming addicted. How do I find a good dr.(and what kind of Dr.?) who will prescribe these meds for me, so I don't have to feel DAILY pain every single day? I only want to live pain free!!!!! I'm tired of feeling pain.
Jennifer
07 Apr 2009, 16:59
Bruce -

While the Podiatrist is great for assessing the immediate foot pain, I encourage you to see a rhematologist. My RA symptoms started in my feet when I was 19 and I spent 2 years going back and forth with podiatrists, orthodics, cortisone shots, advil, tylenol...you name it, I tried it. Finally I vistited a rheumatologist and my life was changed. I'm now a 12 year vetran of RA and have my rhematologists to thank for living a pretty normal life.

Good luck to you!
J
Bruce Tippie
30 Mar 2009, 18:30
I have arthritis in both feet but nowhere else. The Podiatrist says there is not much he can do. I already wear orthotics but that doesn't aleviate the pain in the joints. Do you have any suggestions?

Bruce Tippie
Valerie
20 Mar 2009, 14:12
I don't see antibiotics like Minocin on your list of drugs. There are many RA sufferers, myself included, that are experiencing major relief of RA. Is the Antibiotic treatment something your organization has researched?

Thanks,
Valerie

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