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Symptoms > Fatigue > Instant Energy Boosters
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Instant Energy Boosters

By Jodi Helmer

You wake up exhausted, and then drag all morning. In the afternoon, it takes several cans of soda for you to be alert enough to slog through a mile-long to-do list. And when the evening rolls around, the only thing you have enough energy for is a date with your favorite sitcom stars. Sound like a typical day? You’re not alone.

“We have an epidemic of exhaustion in our culture,” explains Judith Orloff, MD, psychiatrist and assistant clinical professor of psychiatry at the University of California, Los Angeles. “We need to learn to take charge of our energy levels and tap into practices that make us feel vibrant and happy.”

Instead of dealing with all-day exhaustion and forgoing activities because you don’t have the stamina, learn some tricks for getting instant energy boosters:

Turn up the tunes. Listen to your favorite CD on the way to work, or sing along to “Elmo and Friends” with your grandkids. Researchers have found that listening to music helps boost energy and stimulates positive thinking.

Straighten up. Bad posture can slowly sap your energy. According to the International Chiropractors Association, slouching requires your muscles to work harder to hold up your body, and that can lead to fatigue. Just 15 minutes of reading or typing in a slouched position strains the neck, shoulders and upper-back muscles.

Take a break from work every 30 minutes. Go for a quick walk around the office, get a glass of water or do a few slow stretches to get your blood flowing. Practice good posture by ensuring that your shoulders and hips are aligned, and your head is straight. At your desk, sit in a chair that provides good lower-back support, and keep your knees slightly higher than your hips.

Do a minimeditation. Setting aside time to do minimeditations throughout the day can help when you’re overwhelmed by demands at work, dealing with a needy friend or just feeling stressed about the state of the world. Meditations help refocus your thoughts and create positive energy.

Dr. Orloff, the author of Positive Energy: 10 Extraordinary Prescriptions for Transforming Fatigue, Stress & Fear into Vibrance, Strength & Love (Harmony, 2004), recommends finding a quiet spot with no distractions, sitting in a relaxed position with your eyes closed and taking deep, slow breaths. Focus only on breathing in and out. As outside thoughts enter your consciousness, acknowledge them and then refocus on your breathing. Do this for three minutes.

Wear red.
On days when you’re feeling sluggish, try wearing a colorful sweater or scarf for an immediate pick-me-up. Studies indicate that color has a huge impact on energy level. Red, in particular, has been shown to improve mood and alertness.

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Jerry La Bathe
20 Jan 2012, 21:22
I have Ra. My hands and my knees are in pain most of the time. I go to the gym when I can and walk the dog everyday. I just took an early retirement because I was a construction worker and between all of my meds and this disease I can no longer work in the trade. My point is you have to keep moving. Granted there are days when I can't do a thing and then there are the "good days." Those are the days I get off of my but and move. Lol
Mary Taylor
09 Aug 2011, 20:10
I wanted energy boosters.
Sarah
09 Aug 2011, 12:34
Hi Misty,
I know how hard it can be but you have to make yourself! I walk everyday, some days slower than others and that's ok.
I started doing this about 5 months ago and have noticed a huge change!
The less your blood pumps, the less energy you have, the more you want to sleep, the pain worsens because you're not doing anything!
It's not easy to be active when you hurt, but it's worth a try if it makes it go away!
TRY THIS: Call a friend or loved one and make sure they will be home, let them know you are going for a walk to get your blood pumping and ease your pain, ask them to be by their phone in case you go to far one way and just can't make it back... My dad is usually my "go to" person for this, he's very proud that I'm excercising, so he does anything to help to keep me going!
No one said it was easy, but it's worth a try! ;) YOU CAN DO IT!!!! :)
Misty
09 Aug 2011, 12:22
I am 32, and was diagnosed 2 months ago with psoriatic arthritis. I went from being healthy to being this person I don't even recognize anymore, I am tired all of the time....always in pain, even with pain medication, and nothing seems to help. They say to be active, but how do you do that when everything hurts? So frustrating!
Sarah
09 Aug 2011, 12:05
One more thing....
No part of this article suggested that it would cure everyone..
IN-FACT it doesnt even say ANYTHING about easing pain!!! It's about boosting your energy, healthy ways!
For those of you who's flare ups are effected by certain food i.e. caffeine, red meat, certain veggies, etc. SHOULD know that cutting out caffeine just to make it through your day, CAN HELP!!! Also another thing, for those of you/us that have had any kind of arthritis for 3+ years SHOULD know what helps your pain, and shouldn't need to rely on an article... everyone's bodies and pain are different... Shame on arthritis today?! No shame on you, for not picking yourself up, dusting yourself off, and showing the world that arthritis is something you have... it does NOT define you!
Sarah
09 Aug 2011, 11:53
Colleen,
I bet you have alot of pain that you often give into!
I have severe JRA, at the time of my diagnosis (18 mo) I was one of the MOST severe cases any doctor had ever seen... I am now 22, walk daily, enjoy life, and do not give in!
Why not try what the article says?!
I have a desk job, and I find that these things work very well for a slight pick me up!
To have arthritis and be a functioning adult is to having a positive attitude!
If I didn't constantly smile through my pain, then I would as docs predicted either be in a wheelchair permanently by my 12th bday or be dead by my 16th, but here I am!
I wish you and your family all the best, look at it this way, at least you have a family that goes through it... I never even met anyone my age with arthritis until I was 17 years old!
Karen O.
07 Aug 2011, 13:24
This is for Dharma Raj and others:
I started with facet injections of cortisone after the usual pill form RA meds. The 1st. worked like magic but then, they did not last. The last one lasted only 2 wks. I was referred to a pain treatment center in New Haven, CT. and started on a Fetanyl patch which helped some. In 18 mos., I got the implanted stimulator that really mask my severe chronic pain. You can have facet injections very often and if you get cortisone in a joint, it can damage it. Cortisone is wonderful but it reeks havoc with your body. It didn't help my back but contributed to many problems. If the M.D. had known 23 yrs. ago to pair it with calcium, I'd be better off. You need the right, caring M.D. for you.
Jeanne
05 Aug 2011, 13:01
This is for Debra Jones. I am not Dave but I can answer your question. MTX is I believe methotrexate. I usually call it MTRX but his dose is identical to mine and it must the same medicine. It does require a prescription and is used for most types of RA. It is taken once a week either in pill form or injection. I use it in conjuction with Remicade infusions.

I see that other people have mentioned this drug but I did not see anyone answer you specifically - so hope this helps.
Annette ONeill
04 Aug 2011, 00:33
I have had Ankolysing Spondylitis for 3 1/2 years now. and this I hope helps Donna. You are right there is not any support for this disease because only 1 in a half-million people get it and mostly men have it, not women. It hasn't been researched much at all; so one does feel helpless; even the doctors don't have any real answers for you. Anyone with this needs to research it all you can. Your diet also makes a huge difference, because the foods you eat can add tremendously to the inflammation you have. There is only 1 website that I found that was very informative about Ankolysing Spondylitis. It is KickAS.Org. I am taking Meloxicam and tramadol daily; but still deal with chronic pain, but not as bad as the first year. I sleep much better now. Hopefully, in the future there will be more answers out there for us. But I am thankful for all that I can do, and keep a Positive Attitude....when the pain is bad, I use distraction to help me.. and think of the things that bring me Happiness... It is no fun to suffer with Chronic Pain. I hope this helps others and particularly Donna.
S
03 Aug 2011, 14:01
listen to Elmo - I would feel more relief strangling Elmo!
Debbie Ennis
03 Aug 2011, 11:45
This is a load of BS....... I have had RA for over 8 year and fibromyalgia for over 4years and all of these things are stuff any healthy person would do anyway. I have tried just about anything and nothing works. I have for kids and two grandbabies, work full time and I an treasurer for my youngest sons baseball boosters. For these "PEOPLE" to tell me to listen to music, or have some health snack, drink water or even brush my body..... who do they think they are? They MUST not have RA or Fibromyalgia and stuggles with cronic pain every minute of every day and night!
Romeo Robitaille
03 Aug 2011, 10:17
I find nothing new in the news letter...More and more advertising of products with questionable benefits..The latest article on pain relief Listen to Elmo sing or a CD with music or wear Red...You joke of course.
What is the latest progress on Platlet injection....Who would benefit from it th most. What other procedures are on the horizon that might help????
Yvonne Amos
03 Aug 2011, 08:46
You have got to be kidding - the above article isn't all that helpful .. wear red, listen to a CD on really bad days with arthritis you are lucky to be able to get up and dressed and get to work let alone singing along to Elmo.

Feel this detracts from the issues and feel there has got to be more information on breaking the cycle and pushing through the pain barrier then what has been presented?

Just sayin! Yvonne
debbie
02 Aug 2011, 20:15
wow, its so nice to read and hear all the good infor on ra, i have strugglein with it since 2002 but last yr all meds stop workin, and last winter was worse of my life. waitin on dr to start on orencia, i pray this gives me back just part of the life i use to have a yr ago, once again thank for the hope u all have givin me, god bless
Megamimi
02 Aug 2011, 16:39
I have OA and my husband has RA & OA. I've had OA for many years--probably about 23-24. Thankfully, I've had knee replacements and am doing pretty well. My husband was just diagnosed with both RA & OA 2 years ago. He's had a very difficult time with it and has pretty much given up on doing anything.

GR82B60, your comments were inspirational and I've forwarded them to my husband. Hopefully, he'll catch your "perky" spirit! You keep that positive attitude of yours and I'm sure you'll continue to be happy! Good for you!!!
Nancy
02 Aug 2011, 16:19
I agree with Colleen!
Debra Jones
02 Aug 2011, 14:55
Dave
What is MTX and is it a supplement or do i
need Dr Orders
maxandra
02 Aug 2011, 14:00
To Dharma Raj - Cortizone has been my salvation and I recommend it highly. The only problem is that you can't get an "entire body" injection for those times when everything hurts. If you get the spinal injections and the first one doesn't help, keep trying because sometimes the slightest millimeter change in the injection site can make all the difference. It's kind of a pain to get it done because you have to go to the hospital to get it but it is worth it in the long run. If you have hip, shoulder, foot or any other type of "spot" pain they can do those in the office and, for me, they are about 95% effective. No matter what area I have had done, The pain relief lasts about 3 months and that is worth any amount of trouble and momentary pain (from the injection) it might take.
Lori C
02 Aug 2011, 12:45
This is for Dharma Raj...I have been getting injections for several years now. They DO help and are worth every bit of discomfort you may have while the injections are being done. I can back off pain meds and have almost full use of all joints. Pain is decreased more than with pain meds.

If you have the opportunity, do it!! I go to a "pain clinic" here in Wisconsin, and I'm told there are places that do this all over the U.S. Ask your doctor or clinic for a referral - do it now!

Best of everything to you

Lori
Henry Hanson
02 Aug 2011, 10:50
I've had RA for 26 years. I can still do a lot of things. I played golf until I fell off my bike and injured my left wrist. I started out on aspirin and added methotrexate five years later. Then I switched from aspirin to Dolobid (generic is difunisal) 1000 mg per day 6000 mg of aspirin prior to that. In the early 2000s I went on remicade but it caused too many sinus infections. Through this time I've kept a positive attitude (easy for me because I am an incredible optimist). Do what you can do and exercise (it took a heart attack to get me exercising). Don't wait that long. Start now even if they seem to be very simple easy exercises. Find a good rheumatologist -- he or she can help a lot. It sure did in my case.
GR82B60
02 Aug 2011, 09:50
First of all I am sorry for all you are all going through. Illness can be so discouraging. For the past 25 years I have had OA and am now unable to walk BUT I am thanful everyday for what I can do. Above my computer I have an Irish proverb - People who are the happiest, don't have the best of everything. They make the best of everything they have. Try to look at what you CAN do. Although you have to rest more than others and have imitations, THERE ARE SO MANY THINGS TO BE THANKFUL FOR. Keep your glass half full and you will be much happier. Sorry no pill can change your attitude, you have to do that. I know the pain is real but try to concentrate on other things - like a project you CAN do. What ever you can do to get your mind off of the pain.
Hope this helps some of you. My MOM used to say you can always see someone worse off than you. My best to you all.
PS. I have been housebound for the last 4 years. Medication AND a positive attitude I strive for everyday have made me Happy 2 b 60+.
donna
20 Jul 2011, 20:16
been diagnosed w/ anclosing spondylitis about 2 yrs now hard to find much info much less support. i have times where i can hardly get out of bed, but when i try to sleep thats when the pain starts. so tired all the time but cant sleep. having trouble w/ everyday tasks buttons zippers & those pesky lids. i continue to work full time but after that im done for the day,no energy no motivation does anyone else have this? im tired of people saying but u look fine & your too young to have those problems. im om mehtotrexate simponi & various antiinflamitories pain & anxiety meds. still hurting tired &depressed if im this bad at 41 what will my 60s &70s be likehtnera1156
kim luck
24 Jun 2011, 19:30
Himy names kim i ve had RA for 3 years now and find most days a sruggle i am unde the hospital a few times a year ive been on plaquenil for 18 mths not sure if its really helping me im in pain all the time cant do things like i did it gets me down i suffer depression and take mediation for that also im constantly tired other people dont realize how much pain you go thru on a daily basis it makes me so sad and want my old life back wish there was a cure for this condition im going back to see my consultant in august love and hugs to you of you out there that are suffering take care kimi
Dharma Raj
22 May 2011, 15:05
I have been coping with RA for almost three years.Above all the medication which are described by the writer I used ,but hardly any of these medicines work.instead according to others experience it makes us compell to use one after another medicine with a hope to get quick and effective recovery.So lastly I have come to a conclusion to inject a injection name CORTISON.As I heard its very very very effective once you inject and rarely a side effects.Can anyone has this experience,pls I seek yours advice......pls..
Dave
16 May 2011, 05:54
I was diagnosed with psoriatic arthritis January 2007. I didn't start MTX until June as I was afraid of it. Now I realize how much it helps and (20mg a week) I have absolutely no side effects.

I got on treatment when I could barely and very painfully walk. I had psoriasis growing everywhere and my scalp was bad. I had to try everything I could think of first and when I did MTX the first time I could feel the benefits within half an hour and knew it was good for me.

I went through a year and a half on a walking stick, was on Enbrel which I wasn't responding to, when I switched to Humira. Whoa I started getting better fast. My knees went down in size, pain receded.

I also take xanex to ad my sleep, a good sleep helps me immensely. I also found hot tubs and heating pads helped a lot. I get cramps and stiffness which muscle relaxants help control. Drinking LOTS of water is good. Paying attention to my stress and diet triggers took a while but you learn. Keep a diary with dates and symptoms and food and what is going on in your life.

You have to take a holistic approach. I use visualization. Instead of thinking I'll beat it, or even thinking of the A word, I visualize myself in perfect heath walking about doing fun things. It is amazing how fast that works. Pick up a fun hobby that you have always wanted to learn and pursue it. You have to live and enjoy life.

I still battle it, I'll still have flare ups, but I have changed my whole approach to life now. I have moved, changed careers, make less money but have more fun. People think arthritis makes you weak but it doesn't. It makes you strong.

So if you read this and are recently diagnosed, fatigued, or having a flare up, or down a bit, I hope you find something here that might assist you.

Stay positive, think healthy, live healthy, and most importantly enjoy life.

Colleen
19 Apr 2011, 13:24
This is one of the silliest, supercilious articles that I have ever read regarding finding relief from the fatigue we experience from arthritis.
The solutions are more directed to the healthy population who go through an occasional "afternoon blah".
OA and RA is no stranger in my family. The utter life sucking exhaustion is not even recognized in this poorly demographed article.
For an arthritis information piece, this publication could have and should have done better. Shame on 'Arthritis Today'.
Inshan
30 Mar 2011, 03:00
I have been diagnosed with RA about 10yrs now (in my early 40s now). It took many years prior, seeing many different doctors trying figure out why I was having joint pain in my 20s. Tried many different medications, some worked temporarily, others due to side effects I had to stop taking.
Prednisone helps but not something you want to take long term. For the past 5yrs I've been on Remicade and I have to say it's nice to have my life back. This medication by far (I have tried quite a few, including methotrexate) seems to work the best for me. I get the energy back and get to play with my kids again. I can walk 2miles, do many light exercises I couldn't do before. Part of this coping with RA was finding the foods that triggered or caused flair ups...you'll have to experiment on your own to figure that out, but it's worth doing. Gaining weight can add to the joint pain, especially the knees and ankles, been there to.
The biggest problem with all of this initially was depression. I was young, couldn't interact with my kids like I wanted to, I just had to many limitations...and that gets to you. It's worse when you know people who have really unhealthy life styles and their not affected by any of this stuff. You ask yourself...why me!!!
I realized quickly I needed a doctor who will be aggressive in helping me with this, as well as finding means to cope with it. I could let it control me or I can control it. I choose the latter. Once in a while I do get bad flare ups, I take some Prednisone for a few days, pain pill and move on. When it's time for my Remicade I do that and feel even better.
From everything I tried, and try today, the best peace of mind came when I started trusting in the Lord to help me cope with this....he lead me to the right doctors and medications.
Jeannette
14 Mar 2011, 20:22
I have been diagnosed with RA for a couple of months now. I have been doing all the reading I can and learning what I can to control the RA or at least be comfortable. There are so many things I have learned by reading all everyone has shared here. I am one that can take pain, I just feel so very overwhelmed at times as I have heard others describe also. Reading all your situations has so made me feel not alone. My family doesn't hear me doesn't even try to understand what all this means. I am only 46 and very afraid of what this all means. I didn't realize being tired all the time is directly related, what a relief to know. I couldn't understand why I wanted to sleep so much! I have spent most of my life working two jobs to raise three kids alone. I don't think at this point and time I could do that again. I recently changed doctors as I have for a good ten years because I felt I wasn't being heard! Not only does my latest Doctor hear me she did all the tests and didn't take her but a day to show me what was wrong and why. That is another big thing..... I believe after all I have been through to get here female doctors have better listening abilities and understand female health better. She does specialize in female health. I travel thirty min. to see this doctor and have been seeing her a little over a year. In my twenties and thirties I took what ever the doctor told me as gospel until it just got to the point I wasn't feeling any better I had no energy and they were blowing me off. She has refered me to a specialist. There are other problems but she didn't ignore me and worked with me and listened to me (I know my body better than someone that sees me a couple times a year) she was very determined to make sure we figured out why I felt so worn out and hurt all the time. I can't tell you how much it meant to me to be treated like a person and not a paying patient. I so understand the days that I wake and just lay and cry at the idea of having to move and get my day started. I am a very active person and I work out everyday (very painful) but it helps tremendously! I also have excepted the fact that I can't go all day as I used to. I have excepted that I can ride bick's with the kids but not nearly as long as I used to. I have modified so many things and some days it is so overwhelming. I have hit the depression like a wall! Most days I can get around it, like most of you I try new ways to get around it. Thank you so much for sharing your stories and what has worked for you it has giving me hope above all else!
Gwen Chautin
13 Feb 2011, 15:55
I was diagnosed with RA in 2005 through a routine blood test. My levels were high enough for my rhrumatologist to request that I get started on Methotrexate. I have a miminimum pain level, so far, and after reading the horrific side effects of this drug, I chose to opt out. Yesterday I saw my 1st cousin. Tremendous shock! 6 months ago she was dancing with her husband. Now, she has to be carried to the bed, bathroom, can barely hold a spoon, and can't even hold her grand-babies! The disfigurement was over-whelming for me. All joints distorted, fingers turned, and huge nodules on her arms, hands, shoulders. I cried when I saw this. She had what she thought was a stiff shoulder, and possible corpal tunnel syndrome. Within just a few weeks, she lost 50 lbs, and was diagnosed with the most severe form of RA. She's on methotrexate and many other drugs. In April she will have 2 knee replacements just to be able to stand!***She advised me to get on methotrexate now, or I'd end up like her...healthy today, and disabled tomorrow. I'm afraid of the side-effects. Can anyone out there share anything positive that would help me make this decision? She is my 1st cousin, and if genetics is a factor, I need to start preparing for this. But I'm trying to be cautious. I look forward to some feedback. Thank you.
Trudii Janzen
23 Nov 2010, 00:05
l only recently learned to use the internet,thanks to my sons pushing me to learn by buying me a laptop for mothers day.whew!! what a relief to find this site and others.l thought l was losing it with the depression,fatigue,pain,anxiety.l got diagnosed with RA at 29,right after my 2nd son was born.l have ALOT of rage,frustration towards my family.c'mon,after 16yrs,can't they look up RA and stop asking stupid questions?
or just believe me when l explain? l'm sure they don't really believe its as bad as l say.l come from a very large family,my husband too,and all live close to us.we are as good as forgotten!we feel very alone and misunderstood.lf you look fine,you should feel fine is their belief. of course they only see me a few times a year!l take plaquenil and recently started prednisone injections that ease the pain for a while,never all of it,but any relief is welcome.thank you as well for letting me vent.that helps me more than the silly tips l read for fatigue.nobody likes a whiner,but it would be nice to feel at ease for 3 minutes with someone and really tell them how you feel without the trapped,uncomfortable look you get right away,like its too painful for THEM to bear it!its ok to talk about the most trivial things,but heaven forbid you reach out for comfort! well,l feel better,just in the fact that l know you know exactly how l feel.put that in your tips for fatigue.
Virginia
11 Oct 2010, 11:41
I was diagnosed with RA 2 years ago. Just woke up one day and my whole life changed. It has been a struggle to "get passed the pain". After several different treatment regimens, it seems like we may have some control with Orencia, Methotrexate, Plaquenil, now in process of reducing Prednisone.
I have been on Prednisone at high doses for a very long time, so worried about the effects. Really hate this drug, but when you need it, you need it. Hope to be off it in the next month or so.
My biggest problem right now is fear and anxiety (that the pain will return), and depression over how my life has changed and the effects on my body and psyche. Need to exercise and my mind just won't let me get there?
Any suggestions on getting past this hurdle? I just can't get moving and I don't really know why!!!

Rick
08 Sep 2010, 22:42
I have psoriatic arthritis along with sensory neuropathy affecting the legs and hands.The most frustrating part is one that most persons don't view you as being sick. Since many times there are no outward signs your labeled as lazy ,as being soft,or as a malcontent.Doctors tend to place patients in silos i.e. he has arthritist or he has a neurpathy and therefore he should see a neurologist.Each Doctor treats their area of expertise but they tend not to look at the added impact of other diseases. These silos need to be broken down so that the doctor is treating the whole patient.
I know it is asking alot for Doctors in the same hospital to at least discuss with their conterpart the diagnosis and future counorse of action.From experirnce it is sorely lacking with the exceptipn of Mayo Clinic.
ann
01 Sep 2010, 04:33
If the sunshine seems to help you but being out in the sun may be a bad idea, talk with your health care providers (dr, pharmacist, etc.) about taking a Vitamin D supplement, especially in doses of 1000 IU or more. Recent research has found it to be important in many processes in the body, not just avoiding osteoporosis. It can even help fight off depression (in conjunction with other treatments). I've had 2 doctors in my family recommend it to me and it seems to be helping. Still having problems with fatigue, though. Not sure what all I have yet although I know I have OA, lung problems, and possibly Sjogren's Syndrome.

Cheryl, I'd check with my dr. and/or a pain management specialist about a different medication for OA; I've had to try a number since I can't tolerate NSAIDs other than Celebrex (but have GERD, partially due to it). There's more out recently and more coming.

I'm at the point again (had both knees replaced a while back) where I think I'm going to have to go on painkillers again but am hopeful I'll be able to tolerate one of the new ones or Celebrex again (if I can have surgery to relieve the severe GERD that I have). In the meantime, I resort to heat &/or cold treatments, my treasured electric blanket (whole-body heating pad!), and chocolate-as-needed. It's so nice that chocolate helps up the endorphin level for us chocolate lovers!

I'm so glad to find this site; there are tons of good hints and lots of hints, help, and support from the posters, too. I've picked up a number I'm going to try soon, too.
Betty
23 Aug 2010, 11:00
There are 3 generations of Arthritis; my mother, diagnosed at age 67; me at 41 and my daughter at 11. I pray my granddaughters ( I have 2) will be free of this curse but fear they too will be afflicted.

My mother has RA, Osteoarthritis; I have RA, OA, Fibromyalgia and Sjogren's. My daughter has RA, Lupus, Reynaud's, Sjogren's and Scleroderma. Pain is no stranger to our family.

We have all been treated and handled our disease very differently. My mother was given Aleve and for years this worked. But this year, 15 years later, she began medication for depression and anxiety as well as plaquenil. She became extremely ill and hospitalized because of the medication and is now taking nothing except for tylenol p.m. and uses Voltarin Gel for pain.

I on the other hand have been on various mediations for 20 years from OC meds such as Aleve (when it was prescription only) to plaquenil and methotrexate. I have tried the diets, exercise and meditation programs too but with little result. Recently, I have gotten pain relief from Methotrexate, Celebrex and Cimzia. I no longer take Ultram or vicodin for pain or plaquenil. To sleep and for anxiety I take Trazadone and Ambien. I continue to be stiff most of the time and fatigued. I was always busy and doing for others and realizing that I now could hardly care for myself caused deep depression early on and continues to visit on occasion. I am 62 (was 42 when diagnosed) and tend feel like the best years of my life were wasted on pain, anger and fatigue while I went from one doctor to the next and visited labs. But then I think of my daughter and how she has had to live with this most of her life.

My daughter has dealt extremely well making lemonade out of lemons. It was tough in school because she was so fatigued but looked completely healthy. Growing up in So. CA learning the dangers of the sunshine (unable to enjoy the beach or go to Disneyland without fearing a seizure or days in bed as a result ) was the most difficult for her and missing out on school activities, dances etc. When most young people were participating in after school activities she was home sleeping. However, she used this time researching how she could benefit from alternative medicine, meditation, exercise and counseling. She took classes at the community college on nutrition and yoga. She became a medical assistant and then a medical esthetician working in the field of dermatology (today part-time). Like I said, lemonade...! Working in the field of medicine offered her the opportunity to obtain information from patients as well as doctors. Until recently she was successful in staying off medications she so desperately wanted to avoid. However, unfortunately, the inevitable finally happened. She is on plaquenil and medication for depression and anxiety as well as eye lubricants for the Sjogren's. She believes she has prolonged her life and avoided other complications by staying off medication for as long as she could. 25 years later we are so grateful she applied such tenacity and effort into her own care and it worked so well for her.

Obviously not everything works the same for everyone, but lots of help can come from doing the "most" for ourself through group chats or support groups; or meetings, exercise groups, and learning as much as we can about our condition, medications and side effects. When I was diagnosed, unlike when my daughter was 5 years earlier, I was without medical insurance so learning through my daughter was my saving grace. When she was 11 and so ill, I often asked " WHY HER GOD" .... Years later I got the answer.

I sincerely wish everyone who reads my story gains hope and inspiration to find the right "formula" for them. It has taken me years literally to learn i "can't" spend 2 or 3 consecutive days shopping, cleaning, gardening or even with family. I need a rest every 2-3 hours. I can only drive during certain hours or I may doze at the wheel.... Life changes and so must we. As resistant as we try to be, at some point we must given in .... but NEVER give up.

Happy 2 B Moving (at a snails pace)... ;-)
Betty


Erle Pieratt
13 Jun 2010, 13:09
I have had RA for 11yrs. I took methotrexate for 9 years. It worked very well. At first I had flu like feeling, but after a few weeks it gradually went away. Then after 2 months of taking methotrexate I got relief. I still had flair-ups but I adjusted and moved on. I have found good diet of low fat, exercise, low stress and lots of rest makes a big difference. plus being around positive people and limited sunshine all makes a big difference. I understand your pain!!!!! Last year the methotrexate stopped working, so we added Enbrel. In march of this year I ended up in ER with major pain. I have enlarged spleen and cancer. I stopped all meth and enbrel and pain stopped. The CLL -cancer is slow growing type. Just stated on Orencia and I pray that RA and cancer will be controlled. Thank you all for sharing your stories, I hope my comments helps someone??? God Bless you.
Alanna
04 Jun 2010, 17:26
i am so glad that I have found a support group of people that has RA and what we go through on a DAILY DAY!!! I love all the comments and I will put them into actions. I Have been DX with RA 2 years, and the first year I suffer trying to get this illnes under control... Please keep sharing your experiences with me and others.
Lisa
14 May 2010, 09:21
I have RA but have only been diagnosed since mid April, but I've certainly had and understand the whopper fatigue and migratory pain and stiffness that comes with it. My GP prescribed me xanax to help counter my depression. It really helped! I only take 1-3 .05mgs a day, but when I start having the RA blues I take one and it often stops the downward tailspin and can actually start me on an upswing again. I also take 1 of the xanax and sometimes a pain pill before bed and I now sleep EVERY night. I don't know why this drug works so well for my RA symptoms.....but it does. I'm on methotrexate which is now beginning to work after 5 weeks but I'm still in a wait and see pattern. Before I had this disease I had NO IDEA what fatigue really ment.....not a clue. I hope some of you can get something to stop the tailspin...even if just for a few hours a day it will make life worthwhile again.
Amanda B.
29 Apr 2010, 13:11
I have RA and Sjogrens an autoimmune disease that attacks moisture producing glands and causes a lot of other problems. I have had problems almost all of my life and I am 31, I have had stones in my gallbladder, both kidneys, both parotid glands, and I do believe there are some in my tear ducts and those glands, I have gallstones still forming in my liver, which come out and cause problems every so often. But the main problems are the horrible joint pain and the fatigue that makes me do face dives into my computer, food, and even in mid-sentence while talking. I even think I could fall asleep while standing up. My knee caps are wierd they wiggle around, which causes the cartlige underneath to be damaged. My other joints are almost always inflamed and painful. Just getting up and dressing is a major under taking, I just want to be able to get my cleaning done and be able to sit down without passing out. I can't watch TV, or enjoy anything with my daughter, go anywhere, or have a life.
I have a lot of patience but this is really getting the best of me, I can't do anything I enjoy all I do is sleep, I really can't even eat because of the Sjogrens my teeth are just about gone. Dry mouth caused my teeth to literally crumble away, which is extremly painful, I have had 7 pulled and need all but 4 pulled. I am looking into dentures but they may not work, implants may be the only answer. I really don't know what I am going to do. I quit taking pain meds almost 2 years ago, because the docs kept telling me that they were making me hurt more, and making my teeth fall apart, and causing all my problems, but low and behold someone finally did the right thing and did some blood work and poof, found what was wrong. I was right all along there was one main problem causing all my symptoms.
Sorry to vent but I just hope it helps someone else. So in the event that you have dry eyes and dry mouth and they are not medication related, you may want to ask your doctor to test for Sjogrens Syndrome. It also causes problems with liver, kidneys, thyroid, and other organs. Do a search to learn more, most docs don't know about this disorder.
SILVIA GMURRAY
22 Mar 2010, 08:23
i HAVE A GRANDDAUGHTER DIAGNOSED WITH jia,POLYARTHRITIS, AGE 3 IN aUSTIN AREA. lOKING FOR OTHER FAMILIESIN THE AREA WITH SIMILAR CONDITION. THANKS, sILVIA
Lionel Logan (use 'Bluesman329')
10 Mar 2010, 21:00
I have had osteoporosis a few years and recently contacted arthritis. Do I have osteoarthritis? I exercise moderately and walk and so far, Thank God, no pain. My Doctor wants to give me prescription. My Pharmacist suggest 'Flexamin-triple strength' or 'glucosamine/chondroiton/MSM' pills which he says helps rebuild cartilege. Says If I need pain relief; ibuprofen pills or capsation.
Your ideas or experiences, please.
(...The e-mail address that I signed up with is no longer valid 'twcny'...).
I hope the answer will be in 'comments' in the e-mail
Kay
05 Mar 2010, 09:21
I have osteoarthritis and osteoporosis. I have tried to get help from my doctor, a chiropractor, and by exercising at the local "Y". My family doctor prescribed a pain med (which I don't take; it just masks the problem). The chiropractor visit gave me temporary relief. The exercise helped somewhat. I can't believe in this day and age we can't go somewhere for a diet and exercise program (and whatever else the "professionals" deem will help us) geared to our individual problem. If there were such a place, the average person probably couldn't afford it! I have come to the conclusion that my inground pool is the only thing I can resort to for exercise in the summer. I took care of my mother for 20 years. She was paralyzed from a stroke and she also had arthritis in her hips and hands as I do. I would also be interested in the heredity aspect of arthritis. I am now 63 and so discouraged I could just give up! I, too, have always been a go-getter and a hard worker, but I'm just worn out from this arthritis. I am sitting here crying after reading all the distress it has caused for so many people.
francine
18 Feb 2010, 07:35
I have osteoarthritis in both my hands. My dr keeps testing me for RA - which thankfully has not shown yet. I have had fatigue for years. I was treated for candida at one point. I changed my diet - no sugar and no processed foods at all - and drank a great amount of water. It helped. Once I get going I am normally ok - but there are days I just don't have the energy at all.
char
13 Feb 2010, 11:49
i work in a production place. We don't get to take tunes or breaks when we want we have one at nine-fifteen, lunch at eleven thirty and another break at one forty-five.....we don't necesarily get out of work at three thirty neither. we have a certain target every hour that we have to meet....so what can i do to boost my energy at work other than have hot chocolate or pop at break??? No radios, mp3's, Ipods or phones allowed except at breaks.
Rudy Rogers
27 Nov 2009, 22:45
I have had R.A for 5yrs.I on humira & methotrexate.this messes with my lungs.they will sometimes give me L-tab 3 pills a day and I'LL take 4 or 5 in a day.they don't get it. its like having a BAD headace with a bottle of asprin in front of you your going to try to get out of pain.I cry out to god to please heal or let me die!I can take some pain It's that it's every day of my life.if I do day that pains not got me in tears,I'am so tired just wore out.It's not living.your energy boosters.don't work for me.If I just fell my pain one weak.I promise any one would understand.I realy wont that. I'AM sorry for going on.thanks for your ears.R.ROGERS
Peggy
15 Nov 2009, 17:59
A friend told me to try taking a high dose of Guaifenesin (the main ingredient in Mucinex sold in drug stores)for Fibromyalgia fatigue. My doctor said there is no proof it works but that it couldn't hurt. It gave me instant energy..not like the old days but now I'm up more than I'm down.
Yvonne
14 Nov 2009, 08:08
I too have exhaustion all day long. My Mother-in-law had bone cancer and passed away from this. She used to say that she was so ehausted she felt like she could die. I have Fibro and Psoriatic Arthritis. I feel everyday the way she described feeling. I exercise and do not feel any better. It just makes the pain and exhaustion better for about 1hr.. My doctors don't address it either. I take Humira and methrotrexate. Nothing gives me back my energy.
Lisa
06 Nov 2009, 17:28
WOW!!!
This is the first time i have been to this site and it`s wonderfull to hear that im not just getting old and lazy.
I did1nt relize that the fatigue is from the RA. I am an E.M.T. and work 24 hour shifts which are getting harder and harder to make it through a day.I have been thinking of changing jobs but at least i do get a chance to lay down and rest at work. but when i get 48hrs off i end up sleeping about 36 of that just to be able to go back to work.Sometimes i feel like i`ll never have the energy again to do the things i want and enjoy.
THANKS FOR LETTING ME VENT
Leeann
04 Nov 2009, 21:15
I was diagnosed with RA 6 months ago. Fortunately, I work in a large clinic that has the best rheumatologist around. So, I get a lot time to talk with my RA doctor and she also has RA. For the fatigue I have been taking weekly B12 injections, an otc Vitamin D 2000iu daily, and a rx drug called Provigil. My doctor also uses this drug for her fatigue. We like it because it does not make you jittery, and for us does not have any side effects. It's not a magic pill, however. I began the Provigil after I had been so exhausted I would nod off at work, and while driving. The medicine didn't make me feel brand new like I could run a marathon, but it did give me enough energy to get out of bed. I had been feeling so tired I would lose focus at work, and leave all the household chores to my boyfriend. Now, I still feel tired but I don't struggle half as hard to get out of bed like I did.

As to the article, I find these tips extremely useless. There is no way the writer could have any idea the fatigue you suffer with RA. This magazine should hire some writers with RA. Or ask experts on RA to write articles.

I also like the comment made about having things family members could read. This disease is invisible to the common person. I wish I could have something to give to friends and family so they can know how I suffer physically and emotionally. I hate trying to describe to people about how much I'm suffering bc I don't want to come across as whiny. Although, since I'm only 24 years old and am expected to have all the energy in the world, I would like people to understand why I can't keep up with them. I fear people thinking I'm lazy when actually I am working very hard and busting my butt.
JUDY
03 Nov 2009, 15:23
I talk to my physician all the time about the fatigue and he just says he doesn't know why it is not relieved with the Humira. I have been on Remicaid and Embrel and they were changed because he thought it might help but overall I don't feel that he realizes how bad it is-that maybe it is depression or maybe I need to exercise more. I get so frustrated!
John
03 Nov 2009, 10:01
I just read Larry Fluellen's question about the sun and RA...I have RA and Fibromyalgia...I decided one day several years back to start sunning for relief because the sun always seemed to make me feel better and it lasted once I started to do it regularly. I built a private sun deck and began sunning on a daily basis..weather permitting. It does get a bit cold in Louisiana in winter. I still made the most of the sun even on chilly days I spend a hour or so sun bathing. Since my fibromyalgia affects most of my body, I began nude bathing in the privacy of my private sun deck. I have been doing this since I was about 48. I am now 62 and the sun still helps me a lot. When I have to go long periods without sun my aches get worse.
I am aware of all the sun risks, but since I am not all that fair I tan easily and do not burn. However, I have found that the best way for me is sun exposure starting with only a few minutes (say 15) to start and once my skin tans increase gradually to up to two hours of full body exposure. I guess one has to measure the risk. If your skin needs protection, certainly use it. I tan and use no type of blocker only skin creams to keep my skin soft and moist after sunning. It seems that all the types of radiation from the sun is needed for me or at least, I might say, since I don't know which ones to block I choose not to block any. Please use any cautions you deem necessary to protect from skin cancer..but sun does help in the way I do it...for me and others I know...Larry you might like to consider sunning for a short period until your body gets used to it and working up to 2hrs or so. I have stayed longer, but if I start to feel discomfort, I stop. Our bodies are all different as far as reaction to exposure to sun is concerned, again, take sensible precautions. You know your skin condition..but the sun will help you. I hope this may help some who suffer as I do.
Sincerely, John
Neva
06 Oct 2009, 10:30
EXERCISE! EXERCISE! I have "lotsa" arthritis. In 1980 I joined the Y and have been exercising every since. I don't have to take any pain medication because the exercise takes away the pain.
Before the exercise I had taken 4 or 5 heavy pain medications in order to exist. Once I exercised, I hardly ever have to take any pain medication.
Marie
02 Sep 2009, 09:34
I don't think there's that much you can do about fatigue. In my case it's clearly linked to the medication I take. Sometime I find swimming can do some good, it's not as hard on the joints as walking or cycling. But basically the only thing that really helps me is sleeping enough.
Ashly
21 Aug 2009, 13:54
I enjoyed these tips and techniques but I don't believe you can get long lasting relief by doing just these simple things. I'm a waitress and have suffered for several years with hip and knee joint pain. I tried the chiropractor and it helped but for a short time, however the pain creeps back. I searched for a natural remedy, as I don't like taking medications, and I found the solution through a website: fastjointpainrelief.com
In fact, that site linked me to this site. I hope it may help others looking for relief.
Bette
19 Aug 2009, 02:18
While I agree that doing the things the article suggests does make some types of lighter fatigue better, for the really hard fatigue, the RA kind that makes my eyes cross, makes my body weak and limits so much of my life, I have not found any remedy. A four hour nap sometimes helps. Unfortunately most employers frown on their employees taking a four hour break to nap. And by the way, every employers I have ever had would frown on their employees doing anything but working every 30 minutes. They say that anything that needs to be done can be done on the two 10 minute breaks and a 30 minute lunch for a 8 hour day. While the tips can help a minute amount for a normal person, realistically helpful to a person trying to survive with RA they are not.
margaret
05 Aug 2009, 11:36
I have RA and fibromaylia I am so tired and hurt to move .I can not get out of a pool , can not walk . I take medictions vitamins not one thing helps . I sleep 12 hours a day and Iam still tired . So far not one thing has helped , can not walk good anymore.If anyone can help it would be great, thanks margaret
Cheryl
23 Jul 2009, 10:53
Hello,
I've been recently diagnosed with Osteo-arthritis in my back, what kind of pain relievers are out there instead of taking the perscription the doctor gave me, it's too hard on my stomach.

When will I feel like I havent been beat up every morning when I wake, I'm always sluggish and sore, does anyone have any suggestions, I could really use one, lol.

This is a great site too!

Thank-you
C.
Kate
14 Jul 2009, 11:50
I was diagnosed in 3 1/2 years now and the enbrel and humaria have not helped. I battle with the fatigue the most. I have to sleep a minimum of 12 hours to function. Does anyone have any tips.
Rosemarie
07 Jul 2009, 19:31
I agree with Anjela. I think the title is misleading and so the article is disappointing. I would love to exercise, but arthritis has worn away the cartilege in my knee and it is painful to walk around my house.
Josephine
25 Jun 2009, 16:51
What a relief!You just gave me an answer to my "Total lock of energy" Thanks.
Kim
21 Jun 2009, 15:14
It is such a relief to know I'm not the only one with this life-wasting fatigue. I'm newly diagnosed with RA and was diagnosed with Sjogren's almost 2 years ago. I've always had a lot of energy and I've been a can-do person. Now I feel like I have lead in my blood and fuzz in my brain and it is unremitting. Not only is the fatigue difficult for me to adjust to, my family can't quite believe it's real. When I've spoken to physicians about it, they side-step the question, perhaps because there isn't much they can do about it. So far what has helped me the most, other than the common sense guidelines of good diet, exercise, etc., is the validation I have received on this website. It's good to know that "fatigue is one of the most common symptoms of RA" - it's not just me. Perhaps there could be information sheets on this we could print out and give to family members/friends? Thanks.
Nancy
21 Jun 2009, 09:51
to larry fluellen-depending on what medicines you take for your RA, you should be very careful of sun exposure. My medicines make me sensitive to the UVA/UVB rays and I can get a bad sunburn quickly. My advice is to read the warnings that come with your prescriptions and/or ask your physician and/or check the various medical web sites for side effects of your medicines. I do know that the warmth from the sun feels good but too much is not good for anyone. Skin cancer from sun exposure is also a real danger-don't add that to RA.
Marcy
19 Jun 2009, 12:01
I hear you! I'm the editor of Arthritis Today. It's great to get this feedback. I'd love to hear more about how fatigue affects you and what advice you would give others.
rachel
19 Jun 2009, 11:16
I can definately agree with Angela. These do not hel ppeople with REAL honest to GOD fatigue. And NO ONE seems to understand!
kate
17 Jun 2009, 06:00
I identify with the fatigue and tiredness that people with arthritis have I have had this condition for years. So for me exercise energizes me and the pain in my knee, etc. is helped with physical therapy.
Marged
16 Jun 2009, 23:31
I thought these were excellent suggestions.
I copied them & sent on to several people &
plan to use them myself. Most of them I already
do. These are the kinds of things I like in
the magazine. I am not interested in the dangerous drug treatments coming from the pharmaceuticals and doctors. Alternative medicine is the way to go for most all our ills.
Marged
anjela
16 Jun 2009, 17:55
I can't believe whoever wrote this article has ever had real fatigue- It would have been better titled regarding tiredness- yes tiredness not fatigue.I have a neurological condition with crashing fatigue-I didn't know whether to laugh or cry at the suggestions. Take a walk....no a 'quick' walk around the office. Listen to Elmo(as if the fatigue doesn't make me woozy enough) If you ever had fatigue it doesn't allow for these things-
This remminds me of someone who said when I told them of MY fatigue how after a trip to Nordstrom or their spa they too feel exhausted.
Please let people who know about fatigue and reserve your tired recommendations for those just get tired or lazy!
Susie
16 Jun 2009, 14:18
What a great space to share experiences.
I've learned that feeling lazy is not lazinees, is depresion, I am exhausted thinking, working, etc.etc.
Yes! For a short perior of time, I read, I listen music, I excersice, meditate, and also I do have a short talk with God. Doing one of these things helps me to keep going in my life!
Sara Sesals
16 Jun 2009, 13:26
Thanks
larry fluellen
29 May 2009, 22:30
does long periods of time in the sun effect RA in an way.

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