ADVERTISEMENT
Close
In This Issue, Subscribe, Free Issue, Contact Us
ADVERTISEMENT
 
Symptoms > Fatigue > How To Beat Fatigue
Text Size Plus Minus | Print Email

How To Beat Fatigue

Fatigue is a mysterious and persistent foe, but you can beat fatigue and feel more energetic than ever.

Everyone gets tired. That is how the body signals it needs to rest and recharge. Overwork yourself physically and you feel it in your muscles or joints. Overwork yourself mentally and you need a break. But when your need for rest seems excessive or becomes disruptive – thwarting your productivity, making everyday tasks seem daunting, robbing you of enjoyment and interaction with others – what once may have been tiredness has become fatigue. But rest assured: There are viable fatigue treatments and means to beat fatigue.

Fatigue often means something sinister is lurking. The symptom accounts for 10 million doctor office visits each year, many of who are by people with arthritis-related conditions. Up to 98 percent of people with rheumatoid arthritis (RA) report fatigue, as do 50 percent or more of those with lupus or Sjögren’s syndrome. The percentage grows higher when obesity, depression, fibromyalgia, congestive heart failure, lung problems or chronic headaches are present, too.

Because so many people with so many different medical problems experience fatigue, doctors have a tough time sorting out causes. Here we take a look at what could be behind your zapped energy and help you learn how to beat fatigue.

The challenge of fatigue

Fatigue is hard to describe and harder to diagnose. If you find yourself with no energy even after a full night’s rest, it may be fatigue. But understanding fatigue requires more than understanding the body’s normal need for rest.

Martha Grant, 53, of Berkeley, California, knows fatigue all too well. Except for a brief respite in her early 20s, she’s struggled with it since her diagnosis with juvenile rheumatoid arthritis (JRA) at age 11. “Most people feel well as the norm and then get the flu for a few days. For me, living with fatigue is like having the flu every single day,” she says.

In a study of how people with RA perceive fatigue, Sarah Hewlett, PhD, senior lecturer in Rheumatology Health Professions at the University of Bristol in England, found patients described fatigue as “severe weariness and dramatic and overwhelming exhaustion attributed to inflammation, working the joints harder and getting unrefreshing sleep.” Patients with various chronic diseases experience fatigue as an occasional come-and-go symptom, but many RA patients experience long-lasting fatigue, says Ken Pischel, MD, head of the rheumatology division at Scripps Clinic in La Jolla, California. Their bouts of fatigue sometimes seem unwarranted because they usually aren’t preceded by excess activity and may even occur when their joints are feeling good.

As such, patients have a hard time telling their doctors what may have led to the fatigue. In Hewlett’s study, the few RA patients who felt comfortable discussing fatigue with their doctors still reported inadequate care for it, perhaps because of the emphasis on more measurable physical problems, or perhaps because pain is usually eased with medication, whereas a fatigue treatment isn’t that straightforward. In often-rushed appointments, doctors may only be able to confirm fatigue’s existence, but Hewlett says this offers little help to patients.

Grant agrees. She knows the “Oh dear, here we go again” look from doctors when she brings up her fatigue. “Doctors don’t want to hear how tired patients feel – I think it makes them feel uncomfortable because they can’t fix it,” she says.

Page 1 | 2 | 3 | 4 | 5 | 6

Brenda
31 Jan 2012, 19:44
I have several medical problems. I have had 3 lower back surgeries(fusions) 4 neck surgeries(fusions). I also have spinal stenosis, degenerative disc disease & fibromayalgia! I have severe fatigue, pain 24/7. Some days, I have to just push myself to get out of bed . People without fibromaylgia do not have a clue how bad the pain is...I am on Cymbalta & pain medication for the pain...but nothing helps much. I get a little relief when I take a nice hot bath with maginisum crystals in my bath water. I just wish someone ,someday would find a cure for this dreadful disease!
Bev Keaveny
15 Jan 2012, 17:10
A sacred oil from India is found as one of a little known herbal arthritis remedies and has been shown to treat osteoarthritis and alleviate joint pain as effectively as non-steroidal anti-inflammatory drugs (NSAIDs)?

Indian frankincense (Boswellia serrata) has been used in the Middle East for religious rituals and healing for thousands of years. The herb is a powerful anti-inflammatory, anti-arthritic, and analgesic.

Recently, European and American medical professionals have begun to confirm the tremendous health benefits of frankincense, and are increasingly incorporating it into clinical practice.

Speedy Relief from Arthritis Pain
One the most promising applications for frankincense is in treatment of osteoarthritis, the most common form of arthritis and a major culprit behind knee and hip pain.

Osteoarthritis is caused by a breakdown of cartilage in the joints. This painful and often debilitating condition affects 28% of adults over age 45 and 37% of adults over age 65 in the United States.

Studies show that herbal arthritis remedies such as an enriched frankincense extract could significantly reduce symptoms of osteoarthritis within 1 week!

One trial, led by Siba Raychaudhuri of the University of California, Davis, investigated the effects of 30% AKBA (3-0-acetyl-keto-beta-boswellic acid), a concentrated version of one of the active ingredients in frankincense.

According to Raychaudhuri, “AKBA has anti-inflammatory properties, and we have shown that [frankincense] enriched with AKBA can be an effective treatment for osteoarthritis.”

Herbal Arthritis Remedies: An Herb Fit For a King
Practitioners of Ayurvedic medicine in India have used frankincense for centuries. They call the herb Gaja-bhaksha or Sallaki Guggul, and have used the gum resin to treat everything from fevers to…respiratory diseases…diarrhea…leprosy…dysentery…ringworm…and heart conditions.

Pliny the Elder, commander of the early Roman Empire and author, naturalist, and philosopher, mentioned frankincense as an antidote for hemlock poisoning. The ancient Egyptian elite used it in rejuvenating facial treatments. However, its most famous historical use is as a precious gift given to kings and other nobles.

Frankincense is also used ceremonially by several religious denominations.Its sweet, earthy aroma stimulates and elevates the mind. It’s said to be a helpful aid for:

• Visualization
• Improving your spiritual connection
• Centering the self
• Recovering from emotional trauma
• Overcoming stress and despairHow Frankincense Targets Arthritis
Researchers believe that frankincense’s medicinal properties come from boswellic acids. Boswellic acids have proven anti-inflammatory abilities, and may be useful for the treatment of conditions such as:

• Bursitis
• Tendonitis
• Rheumatoid arthritis
As mentioned above, boswellic acids are also very powerful against osteoarthritis. Additionally, preliminary research indicates that boswellic acids may actually protect your cartilage from damage and deterioration before it occurs.

In June 2011, Dr. Emma Blain and Professor Vic Duance of Cardiff University, with Dr. Ahmed Ali of the Compton Group, spoke to the media about the benefits of frankincense for alleviating arthritis pain.

The team believes that an extract of a rare species of frankincense–Boswellia frereana–blocks the generation of molecules that degenerate and inflame cartilage tissue. Their work so far has focused on “whether and how these extracts can help relieve the inflammation that causes the pain.”

Ending Inflammation Without the Side Effects
Boswellic acid appears to reduce inflammation in a way similar to mainstream non-steroidal anti-inflammatory drugs (NSAIDs), which make up approximately half of all drugs used to treat pain.

Unfortunately, long-term use of NSAIDs–as for a chronic condition like arthritis–often results in irritation and even ulceration of the stomach.

Dr. Raychaudhuri noted, “The high incidence of adverse effects associated with currently available medications has created great interest in the search for effective herbal arthritis remedies and safe alternative treatment.”

It seems frankincense is a wonderful candidate for that position! Considering the negative side effects associated with mainstream osteoarthritis treatments, it becomes even more appealing.

A recent study in India found that compared to the common osteoarthritis drug Ketoprophan, frankincense is:

• Less toxic
• More beneficial
• More potent
Herbal Arthritis Remedies: How to Use Frankincense
Natural health experts recommend taking a 400mg dose standardized to contain 37.5% boswellic acids, saying that this dose can be taken up to 3 times daily. And even though this herb has shown the potential to reduce pain in as little as a week, results may not always be immediate.

Therefore, most practitioners advise using frankincense consistently for at least 8 weeks before deciding whether or not it’s working for you.

Side effects at the 400mg dose are rare, but in some instances, individuals have had mild allergic reactions or some gastrointestinal distress.

Experts advise that pregnant woman should not take frankincense and its safety for young children, nursing women, and those with severe liver or kidney disease is unknown at this time.

Further Related Reading:
NSAIDs Drugs and Their Risks
Natural Arthritis Treatment By Way of A Green Lipped Mussel
Methyl-Sulfonyl Methane A Natural Supplement Helps Arthritis Pain
Joyce
17 Nov 2011, 14:00
My fatigue along with alot of the meds I take for other reasons cause drowsiness, so this is the pits!! NICE to read others in the same boat!!! BUT it makes me feel so lousy to be this tired all the time, then at night I don't sleep, naps are out, my MIND then becomes very active, so here I am feeling the pitty me days!!!
Marie
17 Nov 2011, 04:19
I have had both RA & OA since I was 37. It was one of the reasons my ex left - he said I was no longer the woman he married. I went on to raise 3 kids by myself.

The fatigue is one of the most limiting factors of these diseases. I have found the following to be helpful:

1) Get involved in positive activities. My 3 blessings were quite involved in 4-H, and I was a 4-H leader. We are also involved in our church. Both groups are very positive and most people are quite understanding of your limitations.

2) Eat healthy foods. I have found that eating 3 good meals a day helps a lot in keeping fatigue down to a minimum.

3) Whenever possible, stretch out on your bed for 20 - 45 minutes a day. Even if you don't sleep, the stretching out allows your body to relax & restore. I found it's best if I don't read, watch TV or listen to music during my "stretch out" time because my mind needs to rest, also. If I am gone all day, then I try to take 20 minutes when I get home before doing other activities such as fixing dinner, cleaning, etc.

4) Get a hobby. Write, crochet, garden, build things, embroider, read to kids, sew - do something to get your creative juices going. Sure, you might not be able to do as much as you used to because of physical limitations. But, keeping your mind active helps a lot with fatigue.
One lady I knew sent birthday cards out to everyone in the church each month. The church supplied the cards & stamps - she took the time to address & mail them. It meant a lot to her and it was one of the things that kept her going until she passed away (she was in her 90's).
A lady in our church who has MD & RA serves as the "check-in" person for children's church. She also occasionally sings solos in the services.

5) Don't give up. Keep on going. Yes, there will be bad days - I've had my share of them. But I have decided to NOT let them hold me back. See yourself as "re-inventing" you from your pre-disease days to what you are now - and then accept your new self. This attitude will help a lot in keeping both depression and fatigue to a minimum.

God bless you all.
Rene
16 Nov 2011, 07:04
I was reading some of the comments above and saw several with my same diagnosis. It looks like depression, fatigue and RA go hand in hand. I was amazed at all the positive reaching out to people who asked for help. I have been struggling with chronic depression and fatigue all of my life. Now that I have gained a substantial amount of weight in a short period of time, I have been diagnosed with RA in my knees. I am hoping that with diet and exercise I will lose this weight and not need knee surgery in the summer. I am a full time student now and I am taking the summer off to have surgery. I really don't want to have the surgery. At age 49, I think I should try and solve this with diet and exercise. That is easier said then done. It is true that exercising does give me energy. It is getting started that is hard. I am having a hard time sticking to it. I was walking the tread mill every day for 5 months and doing Pilates and yoga. I lost a total of 4 pounds in 5 months. I was eating right and really stuck to it. I do not understand why I can not take the weight off. My nephew did the same things I did and he lost 40 pounds and really toned up. He is 37 years old. Why can't I lose weight. I've been like this my whole life. The only difference is I have never been over weight before. I was always healthy, not the perfect size, but properly per-portioned. I'm going to try again. I am moving to a place where I have access to a tread mill again. So on December 1, 2011 I start again. Hopefully I will be going to the gym instead of the operating room. Does anyone have any suggestions? Thanks for listening.
maria
16 Nov 2011, 04:53
i am 32 years old, i have RA and i've living with this for 4 years, i know how it feels, and im living alone, i have 2 kitty cats, they are my family, i hope i can get some friends with my same problem....disease...because between us we understand much better, right???
Kenneth
15 Nov 2011, 20:42
My wife deals with RA,Fibro, and Lupus and I am here to tell that I enjoy doing things around the house on days that I see her struggling just to make it through the day, its a sad shame that most men that have wives or girlfriends that have this stuff and walks out on them. I am so proud of my wife for keep going and not giving up.
Nancy
15 Nov 2011, 12:22
I was fatigued, had persistent swelling in my hands and feet and my allergist suggested I try Apple Cider Vinegar. After 4 days of drinking the vinegar mixture (It's similar to lemonade)the swelling was gone as well as the fatigue, even my spirits are higher!

1 teaspoon Apple cider vinegar (I use Bragg's, there's a recipe on the bottle too)
1 teaspoon honey or any sweetener you like
1 cup of warm water

Mix it together and sip slowly when you first get up. You're not supposed to chug it.
Repeat mid morning and again mid afternoon.

I mix all 3 servings in the morning, so I don't have to bother all day.
Patti
07 Jun 2011, 16:17
Fab, I know it's been a while since your post but I just found this site. If your boyfriend is throwing you out because of your fatique and pain. Let him he isn't worth keeping. People who have not been through what we have will never understand. But there are men out there who love us even if we can't do the housework and everything in one day anymore.(some will work all day come home do laundry and then fix dinner on your bad days) The friends who don't call they weren't your true friends to begin with. Find a Dr. who cares!! They are out there. I am alive and living today because I have a Dr. that cares and does everything he can to control my pain.Of course disability is hard to live on but it's easier than living with a bum that doesn't care if your hurting or not. I'm beauty in my mind but I try to keep a positive attitude and 5 guys want to marry me. I am overweight(lost about 60 and have 25 to go.) and there are days I can't do anything so I don't. None of these guys mind, they know I hate not being able to be active and would love to do what I use to do.Stay positive find a guy who loves you for YOU and a Dr. who cares and doesn't want you to suffer. I have RA, Fibro, digen. joint desease, acid reflux, osteo Arth.,depression, bi-polar (mild) I have had a total knee, a neck fusion,6 car accidents leaving me with severe back pain, (none my fault)my left shoulder surgery my right elbow surgery, gull bladder surgery, total historectomy, and now I am looking at both hips, hoping to make it through Summer before I have to give in and do that.Only 2 people have turned their backs on me. Both my sisters, Why? because I no longer work and have money to give them when they want it. Kick these people to the curb and do as much as you can and then rest as much as you need and continue on.(Sleep it's a hard one. I take a med the Dr. gives me and Melitonen over the counter) Don't feel bad for the so called boyfriend or friends they were not there for you anyway. Find a support group. Don't feel like a formal one create your own with people just like you. Like yourself, then you can like others your worth it. The thing that gets me the most is not being able to play as much with my grandkids as I would like and looking at these pills every morning and night and on a bad day inbetween those times. I would love to not have to take them but you know what I trust my Dr. and before I found him my kidneys were failing and at one time my liver was shutting down. He knew what to do or where to send me. Live! don't let this get to you I know that sounds easy from here but it's not,but we have to want it. So want it as bad as I do and you'll make it happen and please don't leave God out of this you need him too. When you think no one else listen he will.
Sangeeta
03 Jun 2011, 20:45
I have RA, obstructive sleep apnea, high BP, chronic depression and now Fibromalgia. I have found deep nerve massage beneficial both in the long run(helps build up strength) and short run (gives good sleep). Also nasal douche for sleep related disorder.

Besides the tests mentioned above, I'd recommend Vit D3 tests, another cause of fatigue. I was tested and found low, and medication has helped lessen fatigue.

Splitting up rest through the day, educating my family members so they can recognise symptoms of fatigue and expect lesser of me, and regular light exercise and yoga regime has helped cope.

Although I have only tried electrotherapy to great success, I believe other alternatove treatments like acupuncture, massage with emu oil and tender points and oral consumption of emu oil capsules do help for fibromalgia.

Good luck and good health to all.
Amber
28 Dec 2010, 02:40
i just saw that Wikipedia has changed its definition for Fibro again! It says that Fibro somehow is linked to massive depression. I don't believe this to be true. I believe people with Fibro may become depressed b/c of pain that causes them to stay home too much unable to do anything meaningful or socialize with others. I don't believe Fibro is caused by depression.

The best thing for Fibro based on my experience is to keep your body warm/hot at all times to the point of sweating. sit in the sun. wear hat/warm clothing in cold weather. take hot baths often. exercise to very slow music in a calm environment. Since Fibro I don't go to the gym anymore, I do it at home.
I found sleeping pills to be the worst thing since they cause drawziness during the day time. Fibro causes fogginess/fatigue there is no need to add to that by taking sleeping pills.
life with Fibro is just slower than normal, like a slow motion movie nothing else. too much pressure on any part of the body can cause severe pain that can last for a few days, so stay away from physical stress as well as mental stress.

take it easy if you have Fibro.
Glenda Wagoner
06 Sep 2010, 23:07
Wow, I am amazed at all of the people with exactly the same symptoms as I have and many of the same diagnoses. Fibro, stenosis, I did not see spondylithisis or spondylithosis, yet, certain may have that problem as well, stenosis, degenerative arthritis affecting many joints, shoulders, knees, neuopathic pain radiating on the right side, numbness, as well as all the chronic fatigue, weakness and brain fog. I also feel light headed and dizzy, now have grit in my eyes, pernicious anemia, and hypothyroidism. I used to be able to get up and go to mass each day, work out at the YMCA, volunteer in that time period, and have overall functionality, on Wellbutrin, until they made it a generic, then all I got was headaches and saw all of my symptoms flare more and more, along with 12 cortizone injections in one year, blew me up to 230 pounds! In 2006, I found a fibro specialist who put me on what is called the Marshall protocol, which turned everything around, especially using heparin under the tongue, which Traditional Western Medicine does not believe in, but it works. This doctor, an MD believes this disease is caused by an intracellular bacteria, so the blood pressure is lowered by taking benicar, 40 mg, every 6 hours, and adding 4 different antibiotics gradually while the body overcomes what is known as a herx reaction. It is a 2 year plan. My body could not proceed due to my kidneys reaction to the antibiotics, and she lost her contract with Medicaid last June. I feel many days as if I am dying, the clotting factor is bad in my blood, or inflammation is going on, I mentioned my symptoms because I am clear tonight, many days even if I write them down, I feel so weak, i cannot communicate them effectively to my new doctor and to get any real pain relief is like not gonna happen in my state, but I do exercise still on Friday and Saturday evenings for even an hour to live music with free style dance.
I pray you all find answers and hope and pray we all survive til the cure is discovered. Thanks for listening, maybe some of this will help. You can plug in the Marshall protocol into the search engine to get more information about it.
Lizzie
31 Aug 2010, 11:54
Ok....we know we're all exhausted from our physical ailments, and it's hard to rise above them, however; how about discussing what we can do mentally, spiritually, emotionally, physically to help ourselves maybe feel just a little bit better in some small way. This is all sounding like a depressing pity party!

Praying the Rosary is very peaceful and renewing for me. Sewing is a hobby that cheers me and takes my mind off of how I am feeling. Watching a good movie or visiting with family or friends helps me feel more normal. Doing mild stretching sitting in a chair helps me move and lessens pain.

What are you doing TODAY to help yourself feel better?
Yvonna
28 Aug 2010, 20:42
I have had RA for almost 8 years and the exhaustion is almost as bad as the pain. My friends don't really understand that part of it. They think I am just making an excuse and my husband bless his heart wants me to stay in bed all the time. All I want is just a little of the energy I once had and some of the quality of life I had. I don't think that is asking too much is it?
June
24 Aug 2010, 12:54
If there is someone in your life that does not understand your pain throw the bumm or bummers out-my husband did not it was all about him and he had to have the most pain of anyone-God called him home and now I can utter the words my back hurts anytime I want to
Becky
21 Aug 2010, 21:29
Scary,fall on my face fatigue. I have R.A. so at least I know what is causing it. The Humira helps quite a bit. Too tired and in too much pain to exercise, besides it makes me puke.
Nancy
20 Aug 2010, 11:38
Adelia, I am with you on the exercise! It is like my miracle drug. I have Lupus, Sjogrens and fibro. The fatigue is very frustrating, joint pain even more so! This past year I lost 36lbs. myself with exercise and healthier eating. Still in pain and tired, but lookin' good for this Grandma! Lorie, Blessings to you honey! I raised my twins alone after my husband left a few decades ago, but now married to a wonderful man who works hard and understands my pain and fatigue. Who could ask for more? My prayers for all of us who are suffering, we are not alone.
Cindi
20 Aug 2010, 01:41
I feel for ev1 in pain. I fell down stairs in my apt in 1991,dislocating shoulder in the process. I have degenerative disc disease, migraines, compression fracture in spine,oa in neck, back , shoulders, knees and ankles, fibromyalasia, scolosis since I was a teen,depression, carpal tunnel in both hands.I just recently came out of hosp from having double pneumonia and was in unit for 11 days. I am in constant pain every day. I fractured my tailbone a couple years ago as well. Hard to get comfortable and walking and standing still is painful. One DR recommends aqua therapy for arthritis pts. I am not nearby anyplace like that.
I am on lots of meds, also have sleep apnea and on a bipap machine at night. I cant drive because of muscle relaxers and so many pain pills and other meds. I have to find others to take me places. Having problems with legs and ankles swelling a lot but am on lasix and am watching salt and sugar intake. I hope that everyone can find peace with themselfs and take it one day at a time. But most of all, try to keep moving. Move it or lose it motto. If you dont keep trying you will lose any mobility you do have. Take care everyone and God Bless~!
alfredo munoz
19 Aug 2010, 13:19
pinched neck nerve.severe burning pain on shoulder and arm...arthritis on hand and joints.cupul tunnel............help
FAB
19 Aug 2010, 02:47
I can relate to all of you, as I have severe OA in my lower back, RA, and of course, the cream of the crop, fibromyalgia. Also, deg. disc dis., spinal stenosis, scolosis (which no Dr. ever picked up on til now) at age 50, herniated C5-T1 in my neck which really causes alot of headaches and neck and upper shoulder pain, and a permanent knee injury that screws up my posture even more-oh I forgot to say I have this sexy "dowager's hump" since I was born.. I could go on but you all get the idea. My bitch is that UNLESS you have RA (I don't have any noticable damage YET) or FM, nobody can understand it. You look okay; so you must be okay (and overexagerating, again!). If you don't have it, you just DON'T UNDERSTAND! My boyfriend doesn't believe its that bad and that I'm a drug addict because of all the meds I take. I show him the Dr.'s name and pharmacy's label-my doctor wouldn't give it to me if I didn't need it, stupid! My family knows I'm in pain and sick but I'm still expected to drive an hour and a half (one-way) for all holidays, of course. No one offers to come and pick me up and take me home. I've lost all of my friends only a few months after getting sick-it amazes me how shallow people are. Hey, can't you just call me once in a while and tell me what you're up to? My boyfriend will soon be asking me to leave, he's had enough-he didn't sign on for this, thank God I didn't marry him, but how do I live on Disability? Even Section 8 housing, you have to make a household income of $1000/mth. I can't even qualify for those dumps! I'm just getting my strength back from another bout of IBS, I'm weak, tired and bitchy. No one cares, not even my family, why? Why did God do this to me? I pray for a cure, but know it won't be in my lifetime. God bless all of you who know the suffering I do. What I wouldn't give for a totally pain-free day...
Joyce Fisher
17 Aug 2010, 23:26
I just had my last IV for mrsa. The symptoms were lack of oxygen craving sugar products pain to the point I could nolonger walk tired all day long. I sleep almost 16 hours a day. I had a pain stimulator placed inside my buttox and it got infected, thus the mrsa invaided my body. I am so tired of sleeping all the time and being in pain. I do wish I could find a way to make me not so exhausted as I feel exercise may help me. Just want to open up to anyone out there that may have similar situations and have found a solution. The pain stimulator helps some of the pain but the mrsa has put a damper on trying to walk again an exercise. Thanks for listening.
Thom65
17 Aug 2010, 23:17
I think any of us are shocked by these events of RA, OA or PA - along with any other disorders we may have - T.I.A.s, brains strokes or aneurysm. All of it hit like the "Perfect Storm" and took me to SSI - a place I never expected to be - loss a lot "friends" from the days of being a Rainmaker. Once I got passed the need of ego stroking friends - I have a peace inside that I never had before - I can spot insincere people! Thom
Mitzi
17 Aug 2010, 23:10
I appreciate the validation........I have CREST syndrome and some RA joint involvement as well and know well the dilemma of feeling extremely fatigued with no event or activity to point to that could be said to have triggered the episode. I am will within my weight range and work out regularly, but despite my fitness find there are periods when I'm just plain weary and sometimes have to just take myself "offline" for a day or two or three to rest.
Kay
17 Aug 2010, 19:44
I have RA and Scoleosis. I'm finding it harder and harder to do the things I used to be able to do.I am on Methotrexate. I'm not sure its doing anything. I wake up in pain and go to bed in pain.I don't know what else to do.
Debbe
17 Aug 2010, 19:26
I was diagnosed with FMS in 2000, well, sort of pre-fibromyalgic. I had 9 trigger points at that time. The condition worsened and I was eventually diagnosed with the syndrome. I was in the studies at UC to get pregabalin (Lyrica) approved for the public and couldn't take it. It caused muscle tics on the left side of my mouth and chin. I couldn't take Prosac or Cymbalta, either. I found a rheumatologist willing to work with me and she put me on Savella. It is very effective, but it took a while to realize that. I go to the YMCA regularly and exercise. I started with water aerobics and now do other things. Water aerobics is a great place to start if exercise is hard for you to do.

I probably had this working on me for a while before I was diagnosed, because my osteoarthritis started when I was in my late 30s, early 40s and now I have degenerative disc disease. I have mold allergies, acid reflux, irritable bowel syndrome, carpal tunnel, battle weight problems, have ongoing problems with my feet, concentration and memory issues, am now disabled. If I could recover my concentration and memory issues, I would probably give up my SSDA and go back to work even with the pain and exhaustion. However, now I can't multitask at all and the least amount of stress sets me off. So, I am stuck. Being 56, I am not old, but am not a spring chicken, either.

I read everyone's comments and I can relate. I can't keep up with my house, cooking, laundry, etc. It drives me crazy! I have never been a good housekeeper, but I like it a little better than it is. I have trouble organizing myself and think I could manage better if I could just organize myself. I am overwhelmed.

I have lost something like 15 family members and my dearest friend (she died in a plane crash) in the past 5 years. I know I need to talk to a counselor or therapist of some kind, but never get organized enough to do it. I need one my insurance will pay for, of course.

To top it all off, we are on COBRA and are paying $1183/mo for insurance until I am eligible for Medicare in January. This was the stupidest provision to put in the SSDA eligibility regs--that you have to wait 2 years from the date of your original application to get Medicare. I know two people who are in this waiting period and they have no insurance and they are sick and they need it! This should not have been stricken from health care reform, but it was.

All of this helps make me a bit of a crazy lady. I look forward to the day that they isolate a gene or something and can develop a cure for this.
Rebecca Moeller
17 Aug 2010, 17:11
Hi,
My name is Becky in the year 2000 I broke my ankle it took over 6 months to heal. The Doctors didn't really know what to do with me. The pain was always there. so they sent me to a specialist who said I had RSD. They said that I would just have to live with it and the pain that goes with it. A doctor did a lumbar sympothectomy on me with took away some of the pain. A year later my neck was hurting so bad I ended up have back surgery, well really 2 back surgeries. The 1st one after I went home I nocticed the pain was worse I called the office and the receptionist said I had to give it time. Well after 1 week that was enough, I called back and said I was coming in no mater what something was wrong. Sure enough he had done the wrong disc. So that night I was put into the hospital and had the right one done, it was 4, 5 & 6 disc they took a bone out of my hip to put inbetween the disc, that was no picnic! So everything went ok. But I kept getting tired and my joints hurt so bad. Next thing I knew they were sending me to an Arthritis Doctor. Ran more test and found out I had RA. I was given all kinds of meds,prednisone, plaqunil,Humara, and the last one was Remicade which worked great for a 1 year, then everything went wrong! The Remicade torn into my immune system. I was in the Sidney Hospital for over 3 weeks they couldn't figure out what was wrong, so they sent me home with a fever. About 3 days later I fell onto the floor, don't remeber much but I was sent to St Ritas Hospital for about 3 weeks and 2 days. Most of my Doctors were nice one though gave me a very rough time. I was in Isolation for 3 weeks, sick so sick I couldn't even sit up and was loosing alot of weight. When the Doctor came in he was up set because I wasn't up walking in the halls. The ladys from rehab told him I wouldn't try. Well when you have to were a face mask and you are throwing up and can't walk it is a little hard to do the exersize. So He said I would send you to Ohio State but it is over the holiday and they will not take you, I tried to tell him what was going on and thank God I had a great nurse because when this was all going on the nurse was in my room getting my meds ready and he stuck up for me and said I was very sick. well the Doctor left. Everyone left the room, it hit me hard and I started to cry well my nurse, Mike came back in and say me upset and said are you ok and I said I am trying so hard but all he, that Doctor does is yell at me, and my nusre said don't worry you are doing fine and he does that to everyone when he gets in a bad mood. The next day when the doctor came back in I said I want to go home. I had been in the hospitals over Hollween and Thanksgiving I will go back to another hospital but I am spending time with my family. That Doctor never did say he was sorry, but he said he did read my chart and say where I was very ill with fever of 104 and vomiting and the blood clots. I left I ended up going to Cleveland Clinic, They were GREAT! After all the test I went threw I had 4 virses attacking my immune system. The main one was Hymoplazmosis, they put a port in my chest and I did my treatments at home for 1 month every day I was hooked to an IV it took 3 hours for this medicine to go threw. The home health nures that came to my home were so careing, Betty and Jim they were so kind and understanding. And couple of times I got down but they Betty or Jim who was ever here would always be so positive. And that whole time no one could come over because of the medicine I was taking, they were affaid if I got a cold or anything it would not me down so it was pretty lonely. the worst part is my Grandkids would call and I missed them so much, When Timmy said Grandma are you better today so you can come over it would kill me to say no. Now I am thank full that things are so much better. I just got to watch what I do. When ever it gets ready to rain the RA really flares up. And my liver is not good and they found a spot on my lungs which Cleveland keeps an eye on. So if you ever have to take any medicine please read all the side effect before you start! It could mean your life! Everyone wants to win the Lotto to me if you have good health it is so much better than the Lotto!!! Life is short enjoy all of it while you can, you never no what is going to happen. Sincerely, Becky
Ruth McCumber
17 Aug 2010, 13:32
I fell about a year ago and since then I am tired all of the time. Could I have a form of arthritis? If so what can I do to change this down in the dumps feeling.? I am tired of being tired. Thank you
Danny Schromen
17 Aug 2010, 13:16
I feel chronic fatigue everyday as well. I was diagnosed with JRA at age 3. I am now 33 and have tried to learn to deal with my ups and downs. I have had my jra affect my eyesight, my lungs and it akes it hard to do many things. I have had my hips, knees and elbows replaced. All of the successfull except my left elbow which has been fused since i was in junior high, the operation was a 50/50 gamble and i chose to do it. It would be great to be able to bend it. I am depressed and am on medications to help sleep and try and function throughout the day. I havent been able to work in over 5 years and that makes it incredibly hard to live on less than $700 a month from social security. I am going to start going abck to see a therapist because i would like to find a balance in my life. 50% of the time i feel good and am happy but that other 50% is horrible and i feel like i dont have a real reason to keep fighting.

What i try and do is keep on writing, i am aspiring writer. I have written many short stories dealing with my life. I have completed one novel but i need it to be edited and hopefully someday published but that takes a lot of money or people who know how to get that done.

I try and keep myself busy with volunteering during my good days. That makes me feel good and helps quite a bit.

I wish everyone the best with their RA or OA or whatever aches you have.
Kay Day
17 Aug 2010, 13:10
I was diagnosed with fibromyalgia 10 years ago. In 2003 my husband and I moved from San Diego to Columbia, Missouri, where he got his master's degree in mathematics. In 2007 we moved to a small town in central Missouri.

The move from San Diego to Columbia in 2003 caused a major fibro flare. I was in severe pain, up to level 7, almost every day. I was severely depressed. Then in April 2004 I was rear-ended, which caused neck pain and aggravated the back pain I had had from a work injury in 1996.

In July 2004 I began participating in a 4-month clinical trial of exercise for people with fibromyalgia and/or arthritis. Unbelievably to me, my pain level went down and my depression decreased. The instructor continued the class at the request of several of us who felt to much better.

In 2007 I became an Arthritis Foundation Certified Exercise Program Leader. I have taught the class since then.

I cannot tell you what a difference regular exercise has made in my life. I have had only two episodes of moderate depression, I am sleeping better, I do volunteer work, and best of all, my pain level rarely exceeds a 1 and is frequently 0.

To find an Arthritis Foundation Exercise Program, click on the link at the top right side of this page, click on Programs and Offerings, enter your zip code, and find out if there is a program near you. For those who can tolerate the chlorine in a warm pool, the aquatics program works wonders, too.

My husband tells me I talk too much about the program, but it has helped me so much I want others to know about it. If there isn't an Arthritis Foundation Exercise class near you, any kind of gentle exercise done regularly will help. Tai Chi, yoga, walking, gardening...all of these help. You can also buy an exercise DVD or video tape from the Foundation.

Good luck to all of you. I can't tell you that you will have the same result I got, but I can tell you that you will feel better. Even if you're in so much pain you can hardly walk, just walk across your living room one time. Then in three or four days, walk across the living room two time. Increase as much as you can tolerate. Any movement is better than none. You may be able to only lay down on your bed and lift one of your legs a bit, or lift one of your arms a bit. Every little bit of exercise helps.

Thanks for reading all this. I'll step down from my soap box now,

Kay
Gayle Armstrong
17 Aug 2010, 13:06
I have just recently gone to the doctor for feeling tired most of the day. The summer is a time to enjoy being off, since I am in the teaching feild. I have pains , redness, and some numbness in my hands. My feet feels like I have added extra weight to them as I walk. How do I greet the students as they come back to school? I feel exhausted.
Joe
17 Aug 2010, 12:43
nee your help
KSue
17 Aug 2010, 11:49
Sorry to hear about the pain and fatigue in everyone's life. I've had FMG for 10 plus years, depression, chronic fatigue, corporal tunnel syndrome, restless leg syndrome, hypothyroid, migraines, and the list just keeps growing and growing. I take 17 different medications each day. I spend 99.9 %of my time in bed. I also have IBS and take B12 shots weekly. I feel your pain! I forgot to mention my neck, shoulder and back pain. I've been out of work for 11 years. Thanks to my family for putting up with my needs over the years while waiting on my social security disability. Please, whatever you do, just take it 1 day at a time. Someday there may be a cure. We mustn't give up on hope. May God heal us all someday. May God bless you and keep you, may His light shine upon you and keep you in perfect peace. Without my FMG and other diseases, I may have not came to grow closer to God and become the special person that I am to my family and friends. I know my pain isn't nothing compared to what pain Christ went through when He died on the cross to wash away my sins. I was arrogant and proud when I wasn't ill but now I'm very humble and thankful. I hope this message helps you and you can find comfort in these words. Read the Bible and know someday we will spend eternity in Heaven in bodies that will never deteriorate. Thank you.
CJ
17 Aug 2010, 11:42
I have read all of the previous comments and I feel blessed that I can still get up in the morning and I have a physician who cares about me. My rheumatologist tried me on Humira, Prednisone along with pain meds...the Humira caused me to have pheumonia 3 times in 6mo. so he stopped the treatment. I have had OA and RA for 10yrs. with degenerative back. I had a discectomy at L4&5 on May 1 2007, which has left me with neuropathy down my r leg from the damage to my sciatic nerve. In 2009 I had r rotator cuff repair....and the left one is torn. I had bilateral knee scopes on July 14 for torn miniscus, lateral releases and dislocated knee caps.....I am doing physical therapy now.....I am also on social security disability and am going through a divorce....so I am diligently striving to stay on top of everything to keep me from digging a hole...climbing in....and having someone cover me up.....every day I try to find something different or new to do. It is a exhausting struggle. All I can say to you all....is...please talk to someone....use heat and cold to help with your pain....and research natural remedies...I know that may sound wierd coming from someone in so much pain, however our grandparents...greatgrandparents, and those before them had to deal with pain and discomfort with the use of natural relievers and herbal remedies......Good luck to all!!!
Jan
17 Aug 2010, 11:26
I know how you feel. Enbrel and Remicade have both helped me get going with a boost of energy. When it gets really bad-like now or I wouldn't be looking at emails-I drink lots of ice tea and water. My dr. told me not to drink sodas and 1/2 pitcher of tea a day gives me a lot of energy. I also draaaag myself to the Y and take an early morning swim class. I hate going, but it makes my day so much better and seeing all the other people with issues helps too. Happy people and upbeat music help. Jan
Vicki
17 Aug 2010, 10:38
I have experienced fatique since I was going into my teen-age years. Since then it has progressively got worse. I am now 58 years old and I feel like I'm 90 and have no reason to livel. If I don't feel like I have a life, and am not able to do things I enjoy, what is there left to do? Doctors have put me on anti-depressents, diet pills, and vitimins and nothing takes away the fatique. In some instances it became worse. Is there a cure out there? My parents just called it lazy when I was growing up and made me go to the fields anyway and it's not what is wrong, I am really exhausted. I'm a female of58 years of age and should be still wanting to enjoy life but just can't find the energy. Even when my children were born, it took everything I had to get up with them when they were babies. This is not the ideal life I had in mind for myself and having to grow old with this is even worse. I feel like I have been cheated out of having a life.
Tonie
17 Aug 2010, 10:31
Jodi:
The same monsters reside in my body and like you I am trying to work that 40 hour week and keep going. I live alone with two doggies (and the Lord) So there is no one to do the things for me, so I just do what I can when I can. I have GOd and without Him I don't know what I would do. Prayer and faith keep me going, and interacting wtih people like you guys who know what it is like and care.
God Bless you and be good to you.
Tonie
charles donaldson
17 Aug 2010, 10:07
i have suffered from fatigue for over 2 0yrs. i have sleep apnemia, arthriths in my back, neck, knees and shoulders and diabetes from being overweight. i get up in the early morning and have a cup of coffee or two and go back to bed for two or three hours. back to bed after lunch and another nap before supper. it seem as if i'm sleeping my life away. i'm 68 yrs old.
adelia
17 Aug 2010, 09:54
I have fibro and several other things... I control it with swimming. Not a cure, but it does help me function every day. I also exercise as much as possible, stretching is the best and most helpful. I have one of those mini-trampolines and it is the best 'warm-up' in the morning. I just gently bounce, no jumping, but it all helps and I don't have to take a bunch of pills.
Blessings and love to all
Sharon Smith
17 Aug 2010, 09:46
I was diagnosed with chronic fatigue and pain syndrome in 2000. Since then I have also been diagnosed with fibromyalgia and OA. I spent aqlmost 15 years in bed and took pain meds. I got off the pain meds and starting exercising and I walk a lot. This is the best therapy I have found, I can take a walk and come back energized. Don't waste your life in bed like I did for years, get out and exercise!!
Lorie M.
13 Jul 2010, 02:57
Hello, I am a 31yr.old mother of four children,Daughter 13,Son who is 8, and twin 13mnth.old twin girls.I am with my twin girls father who is wonderful to us.I have been living with severe fatigue for about six years,also I have had several accidents in my lifetime that have severely put me in pain, in my back,neck and currently found out that I have severe disc injury and a pinched nerve down my leg, where I cannot walk right now or take care of my babies or anything ,I feel helpless..also I have dealt with severe depression all of my life and recently found out that I am bipolar,these issues are a never-ending battle for your life,sanity,peace,love,self-worth,I could go on and on....And the WORST effect to me is watching my children, myself and everyone else's life go bye, while I am watching from the sidelines(in my bed),I am missing so much I feel, and I don't know how to deal with it or fix it......One more important thing I want to mention, the next worst thing in all of this is, having medicaid(being poor) you think insurance paid doctors don't listen to you,I have only found one in my lifetime that is a good caring doctor,(your not just a number)this would be my children's doctor,GOD BLESS HER..... Furthermore,I have been reading these blogs and it makes me wonder if I might have FB.. Again I feel for you all, and will say a prayer for you,
Lorie
Brenda Cheney
24 May 2010, 17:28
It 's somewhat helpful to know that I am not alone! Fibro was diagnosed 25 or so years ago. I have had pain in my knees since I was 5 with sevier Rheumatic fever. Then I got Osteo and now I also have RA! thank God I do not have the Lupus my sister has. But now my eyes are having extreme dryness and inflammation and I am taking Restatis for it.
Why must everything to treat our problems be so gosh-darn expensive? If it where not for special programs for medicare people in my state, I would just suffer and go blind and live on pain meds in a stupur. As it is Lortab is what lets me sleep many nights.
But....I refuse to give in...I will find a way to do the things I want at least to some degree and I will find joy in the small blessing in life. When I garden I enjoy it so much...but then I spend 2-3 days in extreme pain. but I will not just sit in my rocker and grow old and stiff till I die. I will fight and I will find enjoyment in life. Oh did I mention I also have bipolar disorder and I have fought it and have it in controll will good meds and fine therapists.
Life can be hard....but we can find joy.
Also may I add do NOT feel GUILTY because you get tired easy...it is NOT your fault and you sure didn't ask for it.

God bless you all and keep trying to find at least 1 good thing in every day.
neeser
03 May 2010, 18:01
i suffer from oa and fybro. i can't get off the couch. im depressed miserable and feel like know one understands me. people just expect you to get up and perform. if they could live in my body for one week they would understand. i've taken every fybro med known to man they do nothing or very little it's depressing! i feel like a worthless cripple. i'm close to losing my job/insurance i cant take care of my home. i just want to take a walk in the sun without this mentally and physically draining disease any suggestions to stop the depression?
Denise
03 May 2010, 17:42
I'm glad I'm not the only one with this crappy thing called fybromyalgia. It has drained all the happiness out of my life. I cant get of the couch. I can't take walks and enjoy the sun. I sit here and watch people walk by my window and envy them. why can they enjoy the sun and walks and i cant. I've taken every fybro med under the sun and they don't help much or not at all. I'm close to losing my job/insurance. i'm mentally depressed and physically drained. there has to be help out there somewhere. people can't live in your body and feel the horrible pain you suffer with every day. they don't understand. this just plain sucks!
Dee
25 Apr 2010, 11:09
I was suffering from chronic fatigue for many years.After the birth of my third child 15 yrs ago it felt like something just sucked all the life out of me. At the age of 28 i felt like i was 100yrs old,joint pain and swelling could barely get out of bed to stand nor walk. Chronic fatigue,shortness of breath,chest pain,severe facial and jaw pain felt like all my teeth were rotten. Went to doctors continuously only to be constantly misdiagnosed and treated with no empathy because they did'nt have a clue nor took the time to really understand.Well it took 7 yrs of suffering,loss of job due to disability and a grave stint in the hospital to determine i have SLE,Fibromyalgia to add to the list of other health problems.
Jim
02 Mar 2010, 14:45
Ok, so the minority (men) need to speak also. I have RA and have real issues with fatigue. It feels like I am walking through deep mud at times. Like some of you I have found that concentrating on other things does help. Here is my own tip: To battle fatigue on my job I listen to music! I have a technical job and am somehow able to focus on the music and my work as well. Try that one on for size.
Elaine
17 Feb 2010, 11:20
Oh how I understand the above comments.

I have the type of mind frame that I won't let illness defeat me but after a year of very little sleep, (I could fall asleep but it only lasted two hours) and pain all over my body that was so bad I didn't know how I was going to keep working. I went to the doctors. Two years later with visits to many doctors and every conceivable test coming back "OK" I thought I was going crazy. Then a neurologist asked me if I had seen a rheumatologist, "no" said I thinking here's another doctor to tell me that there is nothing wrong! Fortunately this wonderful doctor set my mind at ease (I wasn't going mad after all)and diagnosed Fibro. It's not a disease but a syndrome I was told. Here I am over twenty years later still in the holds of this "syndrome", with additional problems due to the many pills I have taken, gastric, intestinal etc. and not to say the least memory and attitude problems. I get so upset with some of the "nasty" side effects of the "intestinal" problems that I get off all of my meds to clear my system and live more normally (not having to ask "Where's the nearest toilet!"). I must admit that regardless of what I have taken none of the meds have really taken away the full pain. Of the ones that seem to be good the main side effects are a greater tiredness and loss of sharpness of memory (not good when you have to work! AND WEIGHT GAIN.

I am now retired so I can give in to the lack of sleep, pain etc. BUT I truly feel by giving into FIBRO (like any other illness) we defeat ourselves. In the beginning I was very much into fitness, I gave it up because I couldn't stand the PAIN but looking back I feel I should have continued with arobics to keep my tendons and muscles more limber. So my advise to all of us Fibro's is to exercise gently to keep ourselves limber.

I have found with myself that I must do everything possible to NOT GET a cold or the flu. These are murder on my system.

My top dislike when we go to the doctors with another health issue is "when they know we have "Fibro", the first thing out of their mouths is "oh well this is most probable related to your "Fibro"! I wish we could train the doctors not to think this, because we can get ill without any relation to "Fibro"

Good Luck with your ILLNESS!
Sherri
05 Jan 2010, 13:35
I am permanently disabled with OA, Fibromyalgia, Spinal Stenosis and Ulcerative Colitis. I am now taking Savella for the Fibro. It has been a life saver for me. Just to get control of some of the pain. It was difficult to get approved through the insurance company. But it was worth it. I also take Remicade treatments for the spine and Ulcerative Colitis and a polefera of other medications. But the Savella has made the biggest difference in my quality of life in the my treatment for the past 20 years.
SANDRA
16 Nov 2009, 22:12
I WAS A NURSE FOR MANY YEARS UNTIL THE FIBROMYALGIA AND FATIGUE GOT SO BAD THAT I COULD NOT DO MY JOB ANYMORE. I WAS DIAGNOSED WITH FIBRO IN 1998 AND WORKED UNTIL 2002. NOW I CAN BARELY ATTEND ONE FUNCTION OR GO TO ONE STORE WITHOUT BEING COMPLETELY EXHAUSTED. I DO MY MORNING CARE IN STAGES.THE ONLY THING THAT REALLY HELPS ME IS TO LIE DOWN AND APPLY HEAT TO THE ACHING AREAS, SOMETIMES MORE THAN ONE AREA. MOST PEOPLE DO NOT UNDERSTAND THE PAIN AND FATIGUE. IT MAKES YOU FEEL 100 YEARS OLD.
Jodi
05 Nov 2009, 12:13
Katerina,

I'm a nurse also, I know exactly what you mean. I work in an office and there are times by the end of the day my husband has to come and help me get out of the car because I can't get out and into the house by myself. Then I sit in a chair watching him fix supper and clean up, do laundry, housework, ect because I can't do it anymore. It's all I can do to work the 40 hour a week job I have. I try so hard to stay positive and get out of bed every morning and get to the job but I know that at some point, I'm not going to be able to work anymore and then we will lose out medical insurance. ( My husband is disabled) If they would just recognize the disease and work with you to help your individual symptoms and needs it would help so much. I am so fortunate that my PCP does understand and does all she can to keep me on my feet but I know many others aren't so lucky in their choice of doctors. Many still don't acknowledge that Fibromyalgia is a disease. I don't know who is finally going to listen in the medical world but please know that those who read this know how you feel and are pulling for you. I don't know your options, if there is a pain management specialist in your area or if another PCP might listen and treat you but don't give up. Go to every doctor you can until you find someone who will help. You can be helped to stay on your feet as long as you can, with medications and the right exercise program. I had a hard time finding a water therapy place but it helped me so much when I did find one and go. I know these measures won't last forever but as long as they work, I'll keep working. After that, who knows? Maybe by then it will be recognized and treated differently than it is now. Hang in there!
Katarina
04 Nov 2009, 18:37
After being ignored for years about my compalints of extreme body pain and debilitating fatigue by my PCP,I was finally listened to by a doctor at a walk in clinic. He ordered labs that showed an elevated ANA, SED rate and many others that were abnormal, which indicates an autoimmune disease. The labs were sent to my new PCP who referred me to a small town rheumatologist who diagnosed Lupus and put me on Prednisone and Plaquinil and kept telling me to wait and see how it goes. Frustrated with being ignored again,I made an appointment with a rheumatologist at a city teaching hospital who diagnosed fibromyalgia and immediately took me off the Plaquinil and weaned me off the Prednisone and told me he only treats Lupus, referring me back to my PCP who doesn't want to treat the fibromyalgia. I then went to a big city specialist who told me "FIBROMYALGIA IS NOT A DISABILITY"!!!! How can this woman treat people in crisis with no empathy or understanding of the disease! I wonder when was the last time she had debilitating fatigue and couldn't get out of bed!
I am now at risk of losing my job as a nurse because I cannot keep up the physical pace of my job.
Why doesn't the medical world think fibromyalgia is debilitating, devastating, life changing, heart breaking,unbearable, incapacitating and overwhelming,
causing anxiety, depression, chest pain, brain fog, blurred vision........excessive medical bills.....who is going to listen???
Jodi
04 Nov 2009, 09:34
I have RA, OA and fibromyalgia and know how those of us with this horrible, draining fatigue and pain that stays at a 7-8 on the pain scale on a good day feel. Some days just getting out of bed is a challenge but I have found that the days I give in and say " OK, I'm staying in bed and not moving because I'm so tired and I hurt so badly" are worse days than when I make myself get up and get moving. It's no fun and I hate it but I have to keep trying because the alternative is to end it ( not an option, really. I don't want to have to explain to God why I took over His job!), or lay in bed and hurt so badly I can't stand it. I'm on Lyrica, sulfasalazine, methotrexate and two pain meds that help some.These diseases don't give us a good option. Please, everyone hang in there and do the best you can to live your life as best you can and with as much joy you can. It's so hard but it can be done. The ones who love you will be glad you did.
Lorena
03 Nov 2009, 18:14
Is it possible that the trimestral use of remicade,can help a bipolar to reduce the intensity of the mania, and stabilised this person, letting him having a normal life. He didnt know he suffers this bipolar disorder, and now he seems to be very normal, since he is having this remicade injection trimestrally?
ali
19 Jul 2009, 19:00
I seem to have my pain under control, but the fatigue has been a problem with all aspects of my life. Last year I got married and ths year I lost my father. The stress of both events has sent some of my symptons into overdrive. I shoule be a happly married newlywed and I am always tired. I feel really bad for my husband.
Jill
29 May 2009, 23:30
I got RA 22 yrs ago with a lot of pain. Then I got an eye desease and wanted to die. My eye doctor told me no cure and to seek help. I didn't know where to go. Today I am a lead Coordinator for the visually impaired and blind. I have been with them for 12 yrs now. It was hard helping them and wearing splints on both hands, sometimes I didn't think I could get dressed. To sum it up I am like brand new because of helping people and getting my mind off myself. My members always thank me but they are the ones that help me feel better with my RA and of course with my eye desease. Just remember helping others will help you.
ghada
25 May 2009, 09:47
I HAVE FIBRO AND OVERALL FATIGUE 18+YEARS .NO ONE FEELS MY PAIN .I'D RATHER SHOOT MYSELF TO STOP THIS VICIOUS CIRCLE.I AM ON LYRICA AND HYDROQUINE.NEED ADVICE TO REMOVE PAIN ONCE AND FOR ALL.
Audrey Atherton
25 May 2009, 08:17
I have had fibro for about 12 years. Nothing helps. I have tried Tylenol 4 and am on Lyrika. The pain is severe from neck to toes. I can understand why people in pain would rather be dead.
irma
12 May 2009, 20:57
HI I AM IRMA AND I AM SICK FOUR YEARS AND I HATE IT I AM GOING TO MANY DOCTES AND I FEEL THE SAME
Diane
18 Apr 2009, 17:18
I have PSA and Fibro- fatigue is my biggest enemy. I have found out that I can only work out in the evenings and then i do group work outs because I need that push of someone going with me and the group is my social time. I kill to birds with one stone!

Leave a Comment

The comment function provides the opportunity to comment on the content above.

General comments or questions to Arthritis Today editors and medical experts can be submitted here. Past medical questions and answers are available here.

Promotion of products and services and other inappropriate comments are prohibited and will be removed. If you spot one of these before we do, please send an alert.

All fields are required but only your name and comment will be displayed. Your e-mail address will not be used for any other purpose.

Name:
Email:
Text:

ADVERTISEMENT