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Symptoms > Fatigue > Coping with Fatigue
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Coping With Fatigue

Fatigue is one of the most common symptoms of rheumatoid arthritis, and it is sometimes the first sign of inflammation. Fatigue can make it harder to concentrate or deal with pain – it can even make people feel helpless. Like pain, fatigue is a signal that something is wrong. Coping with fatigue can help you feel better.

Fatigue may be caused by inflammation, overdoing routine activities, medication side effects, stress, depression or a combination. Poor sleep and nutrition, and absence of regular exercise also may also contribute.

Feeling tired all the time can lead to stress and depression. And, if you become physically run down, your immune system will be less able to fight infection and illness. By setting priorities, making smart choices and conserving your strength, you will still be able to do most of what is important to you.

Pinpoint causes of your fatigue

Your fatigue may be caused by physical, emotional and environmental factors. Environmental factors such as high noise levels, temperature variations, and even daily hassles such as dealing with traffic and waiting in line can make you feel tired.

Keep a fatigue diary

Keeping a fatigue diary can help you discover the causes of your fatigue. Note the times of the day or week when you feel fatigue and what seems to trigger it. Sometimes you may see an obvious solution to the problem. For instance, you may blame overactivity when you feel tired, but by reviewing your diary you may see that your fatigue is a sign of increased disease activity. 

Ask your doctor

Rheumatoid arthritis fatigue due to inflammation is often more easily corrected than fatigue that results from stress. The inflammatory cytokines (protein molecules) that are released in RA are the same chemicals that are released if you have a severe cold or flu. Your doctor can treat this type of fatigue by prescribing higher doses of your drugs or another drug to control the body’s inflammatory process. Once inflammation is under control, fatigue usually lessens.

It is also important to consider other potential sources of fatigue that your doctor can reverse. An example is anemia, which occurs when the body has too few red blood cells to transport oxygen effectively. One type of anemia, also called “the anemia of chronic disease,” is often seen in people with RA. Effective treatment of arthritis usually resolves this type of anemia. Another cause of anemia is blood loss from stomach ulcers, which may require iron replacement and other treatments.

Another consideration is the medications themselves. Fatigue is a side effect of many medications, most frequently drugs for other conditions such as hypertension (high blood pressure) or depression. Ask your doctor if any medications you are taking cause fatigue, and whether any adjustments can be made to improve the situation.

Fibromyalgia is also common in people with rheumatoid arthritis, and may cause fatigue. If you have a second chronic condition, your fatigue level may be even higher. If you and your doctor address these additional problems, your level of energy should increase. 

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ANN
23 Aug 2010, 09:45

I'VE HADE RA SINCE I WAS 19. I AM NOW 51. I MADE UP MY MIND YEARS AGO (AROUND AGE 24) TO STOP TAKING SO MANY DRUGS. WHY? THE DRUGS WOULD ALWAYS MAKE ME WORSE. PLUS I WAS TOLD THERE IS NO CURE FOR RA. I TAKE IBUPROPHEN AS NEEDED BUT NOTHING EVERYDAY. i HAVE FOUND LIKE WITH ANY HEALTH PROBLEM, GET ENOUGH REST, DON'T BE STRESS, BALANCE DIET, AND NO MATTER HOW GOOD YOU FEEL NEVER NEVER OVER DO IT. I KNOW THIS WORKS BECAUSE I'M DOING BETTER THAN PEOPLE WHO HAVE BEEN ON MEDS FOR YEARS.
Stephanie
22 Aug 2010, 21:25
Thank you for all your posts. I too have RA - was diagnosed in Nov 2008. 55 years olds and still working and fighting RA with all my might. I know that exercise, sleep and what I eat affects the way I feel. I'm working towards getting back to the exercise part of life and hopefully I will be more energized and feel like continuing to go on. I will preserve - No RA you can't beat me down! Hugs to all and many prayers to you all......I lift you up to soar on Eagle Wings!
Gail
04 Aug 2010, 14:54
I can only say I feel bad for all of you on this RA ride. I was diagnosed with RA when I was 10 years old I will be 54 this month. When it first started I could barely dress myself, I could barely walk and when the flareups occured that meant I was bed ridden. I have constant pain, fatigue, and swelling. My only advise is get as much rest as you can, rest your joints it helps. I can't say you won't hurt, swell or be fatigued because you will. I've been on almost every medicine there is, sometimes the side effects are worse than the RA. I contiune to wait for a drug with little side effect. I have lived a lot of years with RA and I can't help anyone not even my self it saddens me other people have to live like this. Live everyday like its your last day and enjoy everyone around you and don't dwell on RA just live the best you can. It's not going away!
curly girl 26
25 Jul 2010, 17:33
thankgod im not alone,
i was diagnosed with ra 4 days ago after being in and out of hospital with the pain of my hipps and back for ten months.im only 26 and im very wurried for my future ive been given arcoxia and will be given another drug when i see the doc in a few months,also my stomach gives me alot of problems cramps,pains,throbbing,swollen,constipation,the runs etc.every day is a constant battle for me with chores,work etc.ive recently been suffering with depression and seeing a counseller,ive been trying to get my head round this.ive been told im only in the early stages of the deasease although ive had the syptoms for years but have slowly got alot worse and then things came to a head in september when i woke up and couldnt lift my leg without a tremendous pain.i went to hospital and passed out in a and e,i spent a week in hospital.i no i have to carry on and fight through the pain,its just so hard.Certain foods are meant to help the syptoms and losing wiegh is meant to help.im 5 foot 10 and a size 16 so i should defo loose wieght.if anyone can help me or has any tips id like to hear from you :D
Marianne
12 Jul 2010, 02:53
I am surprised by the news that I have an autoimmune disease, and then to find out it is RA. I am having trouble functioning for some time now. I work full time as a teacher and attend grad school. I always push myself. I've been having trouble with picking up pots and pans when cooking and dropping things. I've had pains for over ten years but thought I shouldn't complain and that I was getting older. I would mention the worst joints when I went to the doctor. My shoulder became very bad and my wrists also. I finally couldn't stand it. When I went to the orthopedist I told him about several joints and he ran blood test. My chest even hurts. I thought it was my heart. I feel weak and tired. I can barely make it to the end of a work day most days. I'm 49. My neck gets very bad frequently so I've tried 6 different pillow and some physical therapy to no avail. When the doctor did a set of blood tests it showed up. I never wanted to mention all of the joint pain before because I felt like I was complaining and now I see that I should have. I would have been diagnosed a long time ago. Tell your doctor all of your symptoms. I am about to start methotrexate. Up until now I have only taken advil for aches and pains. I've been spending much more time in bed to rest up, but it doesn't help. I'm tired. The coffee isn't working. Does the methotrexate help?
Ann Campion
07 Jul 2010, 04:14
Hi Everyone
I have read alot of your messages and find I have alot of the same symtoms. I have ostioarthritis in my neck shoulders ankles and left knee. I had an injury to my neck over ten years ago but doctor did not worn me abut oa so i carried on as normal and was only told last year that the pain i was in was ostioarthritis.

Like alot of people i am the one people came to when they needed help family, friends workmates ect. But find now that the boot is on the other foot Im lucky to get a phone call or visit from them. I have learnt the hard way to look after my self and my husband and let other people do the same thing.
I know I sound bitter but Im not, just realistic. I count my blessings everyday and go easy on my self when its a bad day and woop it up on a good day I refuse anti-depressents from my doctor as I want to meet this thing head on and fight it every inch of the way using self help such as yoga, cider vinegar, glucosamine sulphate and positive thinking. Ive passed exsams while Ive been off work and hope to eventually get back to work only if its part time. I wish everyone well and dont let the bas**ads grind your down.
Lee
22 May 2010, 08:54
I was grateful to read the above notes from other RA patients. I too have had RA for about 25 years. The flare=ups are getting more difficult to deal with as I am now in my 70's. Walking is a problem due to my ankle which is now destroyed due to RA. Walking with a walker does help. I too continue to have fatique and find this the biggest problem as chores just don't sem to get done. But I continue to do the housework, plant the gardens, quilt and go out and walk in the stores as much as possible. Having a positive attitude is a plus. Having a terrific daughter to depend upon (she lives 1200 miles away) but phone calls, e-mails are a shoulder to cry on when I need one. Everyone out there with RA should continue to have a positive approach to life and enjoy as long as we can Thanks for letting me vent, as well.
Yvonne
19 May 2010, 15:48
Hello everyone,

I have had RA for 14 years. I have always been a perfectionist when it came to my family. I always had to have the perfect Christmas, Halloween, Birthday, etc. for my kids and husband. That meant staying up late at night to get things done, working a full time job, helping out a terminally ill father (now deceased), helping out my mom whenever I can, etc. I always put myself last and I really think that had a lot to do with RA coming on. Family and friends have always looked to me to help out with whatever and I very rarely said no. I was always there for whoever needed help. I also went through a very difficult and long separation (5 years) then divorce, my son was going through puberty during that time and he rebelled big time and got into trouble which put the stress on big time. I had to sell my home since I couldn't afford to pay for it myself and have been living with family ever since (5 years). I mention all this cuz I really feel that stress has alot to do with RA flareups. I just turned 50, am divorced, was layed off work and have been unemployed for 2 years now with no income. Talk about being depressed. I was on Methotrexate for years but then had to get off it due to it affecting my liver and now I am on Orencia. It seems to help but i still have flareups and my RA doc just upped my dosage. It seems like the week after I take it, I am really tired and with no energy. The other three weeks I have noticed a difference but not quite there yet. I too have difficulty sleeping. I know I have sleep apnea, but have to go for a sleep study test to make it official. Besides the sleep apnea, I have difficulty falling asleep. I think I subconsciously stay up late at night cuz i wait til I'm exhausted so I can fall asleep right away. If I don't do that, then I lie awake thinking of all the negatives in my life and definitely do not want to do that. I alternate between being happy for the small things in life to being very depressed which I keep hidden from my family and friends. They don't want to hear about the depression, especially since they have all been privy to the past 10 years of my life. I WANT to have a life. RA is bad enough but when you have no income, no vehicle, and no prospects for income, I feel like I'm in a black hole. Okay, I'll stop now. Thanks for letting me vent.
Nicola Morgan
18 May 2010, 06:31
Hi,
I have been reading all of your comments and stories. I am 24 and was told today that I have RA. I am really upset by this and still in shock. I have no pain but received a blood test as I am always tired and exhausted. The blood test has shown positive to RA. Can I ask how it started for you? Like I said I have no pain at the moment but I have been struggling with fatigue for years which has been very difficult to manage. It is also hard as people don't seem to understand how I feel on a daily basis. I work full time as a social worker but I do struggle with the fatigue.

Any tips to help with the fatigue? My doctor is referring me to a Fatigue Specialist as this is my symptoms at the moment, but I have a feeling that nothing can be done for the fatigue.

Any info or advice would be very much appreciated as I am feeling very upset by it all at the moment.
Madonna
14 May 2010, 13:14
I am writing because today I have be very tied in the past 2 months. I thought it was my hermone med. that needed to be upped but that is not working. They digosed me with Fibromyalgia about 16yrs. ago I have be living with that I am now 45 yrs old and like someone else said I feel 85 as old as my Mom she is always saying to me I wish I can help you. God love her she lives 2 blocks from me and fell and broke her other hip and just had a Knee replacement 2yrs ago I helped her rehab. though both I would not let her go to nursing home. I think this time it took a toll on me. I have 9 brother and sisters some welling to help some not and some saying I wasnt doing it right, After 2yrs. I know them better then they know them they live down the road and call me for everything. Well I also was told I have Degenerative disease in lower spine and up neck my doc. said my neck is on my shoulders. I think I have RA the way I have been feeling lately . I have stiff finger I can hardly type,and I am so tried my ankles hurt and even my toes. I Dont Know what to do anymore . I do yoga and get in the hot tub, and I am so tried I just cant exercise right now. I try to walk my dogs as much as I can and bike ride. Sometimes I think I do to much or when is to much to much. That is what my doc said I have to learn. But I think It all come from takening care of my Mom which I would do all over again. Thanks for letting me vent.
Daisy
29 Apr 2010, 07:53
Wow! I'm so glad I stumbled on this website. Sometimes, it's so easy to sit in your own corner of the world and imagine that your life is the worst! Then you read about other's experiences and you realise we all have different burdens. I'm 26 and was diagnosed with RA 3 years ago. It has been very devastating for me. I have always been so full of life, passionate and very go-getter-ish.Look at me now, I'm tired all the time, depressed, constantly on meds (leflunomide, prednisone, and aceclofenac for the pain, i used to be on methotrexate but the doctor withdrew it. I keep thinking, will I really live with this until I die? It scares me.The pain is horrible and the fatigue even worse. And sometimes I feel so alone in this. And I just want to have a good long cry! My career is demanding and very male-dominated and then I just had to go and get RA... I'm not very good at listening to my body which gets me into trouble. I go go go go for a couple of weeks then I crush and burn.

But I do know one thing, your ATTITUDE is everything. It is ok to have those low days or even weeks. All you can do is ride the storm. But you cannot afford to stay there forever. Count your blessings and keep counting until your spirits are lifted up. Take time out (I'm pointing at myself) and love yourself. God bless you all and good luck!
Shannon Dagesse
01 Apr 2010, 18:11
Hello to well Everyone,

I was diagnosed with Fibromyalgia 15 yrs ago. I was also diagnosed with a movement disorder, which I have since learned was not a movement disorder. I have psoriatic arthritis. It was found because I injured my hip by hitting it on a chair and my orthopedic doctor could not get it to heal. He then noticed that I had significant swelling in my joints. He did xrays for arthritis and found osteo in my fingertips but no where else. But because the swelling was so apparent he tested me for RA those came back negative also. Then sent me for a bone scan and low and behold I have mild to moderate osteo arthritis in all of my joints. Now to answer why a perfectly healthy 40 yr old female has that much arthritis. Then he asked the key question,.,. do you have any unusual rashes. My forearms have been raw and scaly for about 2 years, thought I was allergic to the cleaners we use at work. also had a rash on the back of my head in the hairline and was told it was a chemical reaction to bug spray and hair products. Now I had an answer Psoriatic arthritis. He sent me to a Rheumatologist who tested me for PA came back neg but since the signs were there started treatment. On the next test and all since then it has been there. I have a wonderful medical team. 2 here and 2 180 miles from here. I take a ton of medicine. I am now 43 years old finished raising my 6 kids and now have 3 granddaughters. I work full time overtime and have a side business. Yes I am exhausted but my Rhuematologist had me do a sleep study and I found out I rarely go into REM and never go into deep sleep. I also have mild sleep apnea. I will not say everything is perfect in my life I have days where morning stiffness last for an hour or two. I have days when I am so tired I can barely function. I have days when I feel like no one else is going through this. I also have friends and family and co-workers who have learned the days to comfort me and help me out and the days when to kick me in the butt and not let me give up. Just remember dont stop. for those of you with RA my daughters best childhood friend has juvenile RA and she will tell you the same thing. Good doctors, Good family, Good friends and a Good attitude go a long way. I am now having digestion problems probably caused by one of the medications. But it is okay my doctors are on it and I dont know what kind of strings they pulled but got me in to gastroentological clinic that takes months to get into in days. Just remember when things seem as bad as they can be. God or whoever or whatever you believe in would never burden you with more than you can bare. There is a lesson or a reason for everything even if it is just so you are able to help someone else.

Oh yeah forgot to mention. They found precancerous polyps in my Colon in November. They did remove those. Talk about dodging a bullet. If you just need someone to sound off to I am on facebook. just put a message that it has to do with arthritis or this post. I am an emergency dispatcher I make a pretty good sounding board
linda
26 Mar 2010, 00:25

I just reread my story I submitted to you to help you know you are far from being alone with these diseases. I failed to enter that I to was one of my dear mother's care giver in her need for constant care as her alzheimer's progressed to where she couldn't even walk or feed herself. But she was still my mother and I'm glad I really tried to make here life as pleasant as possible. My four kids went to see her regularly and even helped if necessary. So many things in life can be so hard but you have to stop and smell the roses and know that you are doing the best that you csn. What you are doing is living life and that is what is most important. I'm thankf haul to God for my life, my children, husband, dad, my mother for the 74 years that I had her, and the rest of my family. I'm thankful to god for all that sweet, good people out there. And it wouldn't hurt to pray for something to make this stuff go away. One day at a time is all you have to do, and if that is hard, one hour at a time. Concentrate on what is necessary, and divide tasks up and only do one task at a time. I know you with small children and infants are busy since I have four children (21, 23, 26, and 29). When I got RA, my youngest two boys were in first and third grades, my daughter was in sixth grade and my oldest son was in eighth grade. It was hard to get to their sports activities, keep up with the house, cleaning, groceries, laundry, cooking; even getting the occasional takeout was exhausting. So laugh when you can. I love comedies; one of the funniest movies I've seen is the Honeymooners. I'm going to go online and order my family and my dad a copy of it. Take good care of yourself; you belong to you. Take happiness where you can; no matter how trivial it may seem. There's nobody in the world just like you, and you deserve to take care of your illness with a good rheumatologist, talking to him and letting him know what's going on with you. Keep a journal so you can show him or her what's going on about the pain, sleep, and fatigue. He'll know more then if the meds he or she has you on are working. Don't ever, ever give up on yourself.




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Linda
25 Mar 2010, 23:17
Hi everyone. I've just read all of your stories, and I know there's a lot more you want to say but it's so hard to express. I think the girl who said she's "just plain tired" said it best. And, when you have a good day, and mine are few and far betweeen, it's so wonderful; you feel almost "normal". I'm always saying, "I wish I felt normal"; and I look at people and wonder at their normal lives. It's so easy for me just to give in, but I hate myself for giving in. I'm 55, and I've had RA, Lupus, and Fibromyalgia since I was 42 (13 years). I want to send my love to all of you. I had a double hip replacement three years ago. Within a period of three months the left hip popped out of place twice. It was the most horrible pain in my life. The surgeon then replaced the cup with a plastic cup, screwed into place. I've gone on enough. I really and truly feel for all of you. I've been on plaguenal, methotrexate, enbrel, humira, and now Simponi. I'm going to start Orencia this month and very hopeful. I can't take methotrexate anymore because of my liver. I do take prednisone as needed; I try to take as little as possible but it does help as does prescription pain meds, hydrocodone for break through pain and morphine pills twice a day which are low dose (30 mg). Everyone hang on, hang on. Just seeing all of you makes me realize I'm not alone. I just lost my Mom last year to Alzheimers and my husband and my Dad were the ones who took care of her. My Dad and Mom lived right behind me; my Dad still lives there so I try to be there for him as he's 79. I'll keep checking this sight. Love to you all.
rh
19 Mar 2010, 23:38
1.frozen tart cherries for the pain
2.test urine with a pool test kit for lack of magnesium, calcium, body ph
3. cider vinegar to redistribute calcium
4. 6 fish oil capsules day/will take 3 months to take effect
5. 2 c. milk before bed for melatonin that will help make human growth hormone during deep sleep cyle and repair body tissues
6. zinc, coconut oil to kill viruses of ra
7. potassium
8. brocolli and B12 for energy
Kathy Hodgson
11 Mar 2010, 16:23
I have lived with ulcerative colitis for 16 years. 2 years ago I was diagnosed with fibromyalgia. About 8 months ago I was diagnosed with a sero-negative form of arthritis. It took a neuclear bone scan to find it. I am on methotrexate ( tried palquenil but couldn't not tolerate the side effects). The last time I saw my Dr. he said if there is not major improvement by the time I go back he wants to start me on humira. From what I have read that is a vetry scary drug. Is anyone taking it with success and little side effects?I hate to read about so many living with so much pain and fatigue but it is good to know there are people out there that understand. I really don't think even my husband truly understands how much pain I feel and how very tired I am. I work 40 hours a week but it takes all I have to get up every morning and go. Thanks for letting me vent.
Lisa
06 Mar 2010, 12:37
I am waiting for the test results for RA, I have been battling Post Traumatic Stress Disorder for 6 years now and thought when the fatigue started that it was part of this issue but when the pain started in my right hand and right foot I mentioned it to my Dr. who immediately sent me for testing. The fatigue is effecting all aspects of my life, waking up tired, exhausted all day, no drive or ambition is driving me crazy, at least if I find out it is RA then I can stop thinking it is only in my head.
Sandra
05 Mar 2010, 13:42
I have had symptoms for many years beginning with knees many xrays then back and then neck. Doc kept testing me for RA over the years and said it doesnt have to show in your bloodstream to have it bonescan showed osteoarthritis of the back neck and both knees. Last summer symptoms just kept getting worse hands and feet and ankles and my job was very physical and some days id be there for 2 hours and dragged the rest of the day. Hips have been aching for 2 yrs finally the blood test last yr was positive for RA I have been so very tired all the time I left my fulltime job but have gone back 4 hours a day just to keep from going crazy. Today I even called in because im just so tired and in pain. My appt for the RA specialist is in 2 weeks and I have been waiting 9 months keep reading early treatment is important so waiting this long has just made me angry on top of everything else I just want to feel half normal again. I hate being 45 and feeling like 85. Im so glad to see that im not alone in my feeling cause I really dont think alot of people understand just how bad your feeling because they really cant physically see it.
pauline
03 Mar 2010, 14:13
hi all
i was diagnosed in 2007 with ra i started with chronic back pain then it started spreading to my ankles swelling and aching as tho i had a bad sprain etc.
kept going to drs he just put it down to multiple joint pains as im not a thin person but stocky , in the end he decided to send me for blood tests , which came back positive for ra ,,
im on all the tabs now plaquenil , sulfaasine and methotraxate and co codomol ,, i have about 2 good days a week then im off my feet with severe fatigue swellings pain in joints what really hurts me is that i cant run around with my young son and grandson i feel old lots of times i get so angry with myself for stupid things like dropping things its nice to share this with ppl as i know there are thousands who suffer and be nice to talk to them ,,
thanks for taking time to read this xxx
Patricia Hall-West Mulder
22 Feb 2010, 15:52
I have been fighting RA for over 23 years now, was diagnosed symptomatically with it at age 25 (yes, low RH factor in the blood)but have had symptoms since at least age 10. I have had virtually every treatment available including MTX, gold injections, fish oil, you name it, I've tried it (with my doctor's approval, of course). MTX ruined my liver and now my kidneys are failing for no particular reason that we can tell. 23 years of steroids have also caused Addison's disease, along with high cholestrol, now under control, also high blood pressure, now also under control. Along with an 80 pound weight gain and the termination of my 3rd marriage. Steroids are a many splendored thing, aren't they?
My neck and back are pretty well toast. Injuries when I was young and indestructible proved that I wasn't (indestructible, that is). I now have both Degenerative Disk Disease and Degenerative Joint Disease and was scheduled to have fusion surgery on 3 discs in my upper back - lower neck area until my neurosurgeon moved out of town. I have pretty much run the gamut of available medication for pain and have found the most relief with fentanyl patches and various opiod pills (currently hydromorphone). Nothing really completely kills the pain, and I think that is probably the root cause of my fatigue but the fatigue has always been the worst part of the RA for me. I was ADD/HD as a child with emphasis on the HD and I really hate being tired all the time. Of course all of this illness, along with husband #4 turning into an alcoholic (I really know how to pick 'em, don't I?) has caused me to lapse into some pretty severe bouts of depression, which has also required medication. Needless to say, I'm on a first name basis with my pharmacist, along with most of the pharm techs and clerks. Husband #4 has EXCELLENT health insurance, bless his heart and that relieves a lot of stress for me too. What this all comes down to is: LIVE ONE DAY AT A TIME! It's all that we are given. I recently started having falls for no apparent reason and am going through umpteen million tests with a wonderful neurologist. The fact that I may have either a seizure disorder or TIAs (itty bitty strokes) has really given me a dose of mortality that none of my other medical crises have. I have realized that we only are guaranteed today and right now. Not tomorrow, not 10 minutes from now, RIGHT NOW. Just live it. Thanks for reading my ramblings.....
Teresa Hughes
21 Feb 2010, 12:06
I've been diagnosed with RA a little over a year, but have had symptoms for at least six years -- spent a fortune on podiatrist and doctors to hear that it was all in my head. Now I find I also have the fibromyalgia. The fatigue is incredible and nobody seems to understand -- I am just a 58 yo single, fat, lazy hypochondriac. That leads to depression and lots of tears. Trying to get my head wrapped around this stuff, but it keeps getting farther and farther away. Took MTX for a year but it made me sick and I lost a lot of hair. Now I find my liver enzymes are too high to take the other meds. Has anyone had any luck with MSM?
Betty
15 Feb 2010, 16:03
Everyone with RA should refer to Dr. Weil's anti-inflammatory food pyramid:
http://www.drweil.com/drw/u/PAG00361/anti-inflammatory-food-pyramid.html
I have been on a no-sugar, yeast, dairy, gluten diet for about a year and it has greatly helped my pain not to mention losing 15 pounds without even trying! Eat lots of garlic, rosemary and tumeric. I was just put on Methotrxate last week but my pain was managed quite well before I went on the meds. Good luck to everyone! Hang in there.
Patricia Chrisman
11 Feb 2010, 10:29
I have had narcolepsy since early childhood and my symptoms had been fairly controlled with medication until I began having symptoms of RA. Does anyone else have narcolepsy and RA?
Sandra
06 Feb 2010, 20:52
Hola me llamo Sandra y fui diagnosticada con AR, hace 13 meses despues de que mi hijo de 12 meses naciera, y el dolor es la experiencia mas terrible de mi vida porque no te puedes mover sin que todo el cuerpo te duela, y como mi bebe estaba mas pequeno pues tenia que hacer el esfuerzo del mundo para poder alimentarlo y fue terrible en verdad el oir al bebe llorando de hambre y yo sin poder moverme y como mi hijo mayor se iba a la escuela y mi esposo a trabajar pues era aterrador y doloroso y como toda mi familia vive en la Ciudad de Mexico, pues no tengo mas familia aqui q mi esposo y mis hijos asi q aqui estaba yo sola, enferma y con un bebe recien nacido, pero gracias a Dios ahora esta controlada el AR y el dolor es menos.
Mary
05 Feb 2010, 15:29
Just diagnosed with RA. I'm completely stunned! I'm 51 and have been living with symptoms for years. I wish I would have talked to my doctor along time ago about my aches & pains. Live & learn. I will never be so complacent with my health!!!!
Ange Krumins
05 Feb 2010, 06:32
Hello everybody, i too have been told i have RA, i have my first appointment with a consultant rhuematoligist next week.It's a nightmare this.I started swelling up and getting pains back in august 2009. Then a few days after i could not walk, my hip where painfull and my knees too. I was dragging myself around the house on my backside. After a few months of the dr's prescribing me ibuprofen which had no effect i am on cox 2 inhibitor which is fantastic.I only have swollen ankels at the moment. I am constantly tired, find it difficult to do every day things like get up and go to work.Do house work. I cant wait to be put on the right meds for this. I am 45, and a few people have made crap remarks about how its all in my mind. They pain is 10 times worse that child birth. In fact i have never experienced pain on this scale. Or pain that moves from one joint to another so quickly. It is constant. but the new drug i am taking is good and has helped me. I know its not a for ever drug. We all need to hang on in there, and pray that they find a cure during our life time and for future generations.
Tom
03 Feb 2010, 20:51
Hello,

Osteoarthritis - both knees & ankles, probably hips as well. Surgery to remove cartilage a little over a year ago; age 45. I am someone with a website of my own dedicated to people with disabilities, would love a banner to put up on my site for OA.

Meds cost a fortune; ouch. $179 a month is a bit (grin) more than the $8/mo. the VA wants for the things they can treat me for.

Civilian docs through Medicare, with associated paperwork and, 'enrollment periods,' that don't seem to recognize that people have health care issues all year round. AARP medical plan with no prescription drug coverage, health care reform at a stand still, and who knows? Maybe even knee replacements in the picture before too long; sigh.

Fun, fun, fun.

Tom.
Laura
20 Jan 2010, 11:24
Pregnancy and RA are an interesting combination since cause fatigue! But I still want another baby although I now have RA.
Roseanna's miscarriage may not have been caused by RA but some RA medications can be a problem. I'm currently about to start on Humira but I can't take Methotrexate with it because I'm also going to a fertility clinic. As of a couple of days ago I stopped taking Plaquenil because it is no longer working. On Monday I spoke with my rheumy and he said Plaquenil can affect your cycles and can can prevent implantation. Seeing as my first fertility appt was on Friday I'm hoping I'll have more luck now without the Plaquenil! As for her cycles, chances are it's still her body recovering from the miscarriage. It can take a few months for your body to get back on track from that and maybe longer to heal with the RA. One reason she has probably been sick since then is because pregnancy can minimize RA symptoms but from everything I've read after the baby is born the pain will come back and often gets worse than it was before the pregnancy.
Candi
05 Jan 2010, 06:26
Reading all the comments made me feel so much better knowing that I am not alone in this. This winter has been so hard because I have been feeling so tired all the time w. the weather changes. I was wondering if Naproxen is good to take everyday for the inflammation because a doctor got me off them and then I went to see a Nurse about my pains & prescribed me Naproxen again ? Is there anything else I can take that is out of the counter? Rub has been very helpful but it smells lol
Kristina
04 Jan 2010, 15:49
I have had symptoms of RA since I was about 12 years old (I am 28). My cousin (male) was diagnosed at around the same age, and my brother right out of High School. I have had continuous swelling in my knees with bursitis and baker cysts. I have had tendonitis quite a few times, cysts on both wrists I have had removed besides the pain in them. I have feet pain and the new one that is quite bothersome is a lot of back/neck/shoulder swelling and pain. My husband and I have 2 daughters, one is 3 and the other is 1 1/2, and we have a 15 year old foster daughter. My doctor is currently running tests to confirm RA. I have always went to different doctors for all of my issues and he never knew about all of the problems until now (I hate going to the Dr. and put it off). I have been "self medicating" with high doses of Ibuprofen, Naproxen, and had cut back on working hours. I was feeling pretty worthless lately. Until I found this site... seeing everyone else having the same problems with trying to have the energy to get things done makes you feel not so alone. The one thing I have found to REALLY help with the fatigue is this (though I do not know if it's bad to take if you have RA.. ask your Dr., I didn't ask mine) I take a Super B Vitamin, I also take a B complex, Ginko, Prenatal vitamin, Iron (I'm always Anemic), and calcium. Anemia can cause a lot of fatigue. I drink them all down in the morning with a protein breakfast shake. I may not feel like getting out of bed to do it, but it sure perks me up and gets me through until my late afternoon nap.
Good Luck
Helen
17 Dec 2009, 07:24
To Marianne

I also have arthritis which does not have the RA factor in my blood, though the symptoms are the same as RA. I have been on Methotrexate for a couple of years and it is brilliant.
Yes there are side effects (as there are with most medications including steroids) but these are monitored by routine blood tests. However there may be other reasons your doctor is reluctant to prescibe Methotraxate so I recommend you are referred to a rheumatologist as they specialise in this condition and would be able to explain the different drugs avalible to treat arthritis. Its a bit unfair for your doctor to refuse Methotrexate because they feel there are too many side effects, they are not the one who has to live with the condition. Good luck.
Becky
14 Dec 2009, 11:18
Hello to all of you,

I was diagnosed with R.A. 16 years ago and at 51 I still feel mentally like I am in my 30's,,, sadly, my body will not allow it. Everyday is a battle, but please keep your mental outlook strong and keep happiness in your heart. It is practically impossible, I know. The number one thing is TAKE CARE OF YOUR BODY AND THE MESSAGES IT GIVES YOU. IF YOU MUST STOP WORKING AND GO ON DISABILITY, THEN BY ALL MEANS DO IT. Do not worry what others will think,,,,, the pain with R.A. is bad, but a Rheumatologist will help! After several years and different meds, we found my combination. What now works for me....I am on Humira, Methotrexate, and pain meds when the pain gets past the 0-10 point. If it were not for the insistence of a doctor who had me see a Rheumatologist 5 years ago, I cannot bear the thought of what today could have been like. Please, I hope someone reads this and finds out the necessary help and understanding medical personnel specializing in R.A. will give to you.There is hope and help! Have family members go with you to occasional R.A. check-ups, the doctor WILL help them understand your limits and abilities. I can go on and on, I will stop now. I hope this babbling has been help to someone who thought no hope was what life has to offer since being stricken with R.A..
Remember, TUNE OUT people who do not know, no matter what the relationship.
marianne
14 Dec 2009, 09:26
My doctor diagnosed me with RA last year, yet, my blood tests do not show it. Also, I do not have exactly the same symptoms on both sides of my body. Yet, I have the pain, fatigue and sleep problems everyone describes. I am on Humira and asked about adding methotrexate to my treatment, but,she feels there are too many side effects with this medication. I've been on prednisone and this makes me feel almost "normal". What other steps can I take or should I seek another opinion from a different doctor? HELP..
deu
15 Nov 2009, 23:30
In the last month I have been suffering from extreme fatique. I am a nurse manager and I have an incredibly impacted schedule. When I get home, I just drop and even though I sleep, I wake up exhausted. Does anyone have any references for a diet for RA? I am out of shape and eat "on the go" too much. Any suggestions are welcome. I am on Orencia and Immuran. though I am not too compliant with the Immuran. I am really interested in a diet for RA.
KB
14 Nov 2009, 23:50
Thank you all for making me feel NORMAL again. I was diagnosed with RA 4 years ago. Was on prednisone for 18 months, weaned off of that a year ago, and have been on methotrexate ever since. Seems to help in controlling the flare-ups; however, I am so incredibly tired, have trouble concentrating, and just don't have the same "umph" I used to have. I have had to move in with my parents (I'm 44 and a single mom to a 2 1/2 year old) for help. My father understands and is sympathetic when I'm in pain from flare-ups, but he does not get the fatigue thing and thinks I'm lazy. My mom has fibromyalgia and while she's much more sympathetic to the fatigue b/c she lives it, she thinks that I'm tired b/c I don't take care of myself. They do not understand that sometimes I HAVE to take a nap in the middle of the day. Not b/c I want to or went to bed late. A few weeks ago, I made a 2 1/2 hour trip to/from a friend's house. I knew I could never do that kind of driving in one day, so I stayed over. An hour and a half into driving home, I felt like I was going to fall asleep at the wheel. I HAD to pull over in a rest stop and go to sleep for 25 minutes to refresh. It's crazy. But reading every body's posts makes me feel like I'm not the only person living this way. I'm not lazy. And the fogginess and fatigue ARE part of the disease. Thank you, all for sharing. It really does help.
KB
14 Nov 2009, 23:39
Roseanna-
My condolences on your miscarriage--it is truly a loss and I wish you peace in working through it. From what I know personally, and what I researched before I had my son, RA shouldn't be an issue in getting pregnant. Your thyroid issues probably have more to do with fertility problems than RA. My advice would be to see your OB, a fertility specialist AND an endocrinologist (all working together) to get your cycle and your thyroid issues under control. Best of luck to you.
greg manning
10 Nov 2009, 20:03
I am 54 and found out today what has caused me to have two back and knee surgeries, it is this RA. I have the sleep problems use bi-pap and ci-pap in past. PROVIGIAL will correct your sleepiness during the day. Steriods have allowed me to move again without the pain. I just now need something to get rid of the RA.
Tina
07 Nov 2009, 13:09
I'm so glad to have found this site, and see that other persons are experiencing the same symptoms as myself. I've not yet been diagnosed but have been living with these symptoms for the past few years. At times the fatigue is dabilitating. I have a VERY high stress job, I've noticed I can go head strong for a few mmonths and then it will hit me like a ton of bricks. And have to take time off to recooperate.
Visha
06 Nov 2009, 12:45
It is good to know I am not alone. The fatigue with this disease is so frustrating. I have been on MTX, Plaquenil, and prednisone. My doctor has recently prescribed Embrel, but we were waiting for approval from my insurance. I get tired of being sick and tired. I was diagnosed in 2002 after the birth of my second child. I am married to a Pastor, work full time and have two children that are active in cheerleading. Some days I feel great, like the energizer bunny and other days I feel like a car that has run out of gas..I have tried herbal treatment including Omega 3's and B Complex. The only thing that seemed to work was a pill called Steel Libido. It is supposed to be for sexual energy, but it helped with my energy for life. But since I turned 30, my natural libido is too high for me to take it. I am open to any new suggestions...
deidra
07 Oct 2009, 10:23
livingwithraandlups,

I'm so sorry that you've gotten double whammied like that. It sounds like you've reached your limit emotionally and need some help dealing with the lifestyle changes you've been dealt. I have RA and my grandmother has lupus so we collectively understand your pain. I get so angry sometimes, wanting the life that my friends and family have. I watch my sister cook a meal for 4 kids, clean the kitchen and do a load of laundry in 2 hours and I'm so envious. I have to prep my meals in the morning so that I don't have to be on my feet for so long later. It takes me at least 2-3 hours in the kitchen in the evening to get my 16-moth old fed, and the kitchen cleaned up afterward. I haven't the stamina for silmultaneous chores. It makes me feel inferior when people are asking why I haven't done this or that and I have no other answer but that I'm tired. I hope that your diseases are being treated with the aggression so that you can keep a good quality of life. You deserve that. I hope things get better for you.
Deidra
07 Oct 2009, 09:59
Rosy,

I can certainly empathize with you. I've had RA since I was 7 years old, and its been a long road. I'm 30 now, and I have a 16-month old. The best advice I can give you is to stop trying to do it all. Don't give up, but remember that pace is your best friend. Don't ecpect to be able to be that Super Mommy machine that takes care of house, home, school, kids and work with the same ease as your friends and family do. Then take a deep breath and tell yourself that its okay. If you've had a sleep study done and feel that you're in need of a CPAP, that may be a solution. Honestly, the more sleep I get, the less productive I feel. It makes me more tired than when I just wake up tired and go with the flow of early a.m. inflammation and grogginess. I recommend that you take a look at your diet and try to cut out as much gluten as possible. Also, whole food vitiamins have really made a big difference in my energy/stamina level since I started taking them. Also, talk to your doctor about treating your disease with aggression to fight off the inflammation and slow the progression of the disease. If your disease is under control, you'll feel energized like you can almost taste the normalcy that you did when you were a kid. Hope this helps! Take care of yourselves, everyone!
livingwithraandlupus
07 Oct 2009, 09:51
who would ever thought that little word could be so devastating. i have struggled with this symptom for many years, some days much better then others. i try many things to combat it from folic acid and vitamins to the not so conventional use of mountain dew. it is very hard not to get sucked into the fatigue. there are days where i can literally sleep on and off all day and night and feel like i am dying. there are days where i can forget that i am even bothered with it. but those days where it sucks me in, it kills my spirit, my will and my wants. nothing can be done to push those days away. i have NO choice but to give in. this makes me incredibly sad and hurt.

i just feel like giving in on those days and it is hard to convince myself otherwise. it's rough, debilitating and chronic. it is hard to convey what it feels like or even compare it to something.

i am tired... plain and simple.
Dee
18 Sep 2009, 13:31
I sounds like we are all going through the same thing I have RA as well, constant back pain, body aches, fatigue, low energy, and muscle weakness, this has just started, I am going to get a referral to see an Rheumatologist, this disease is not a game, we have to play to win. it is really hard to deal with, I cant do daily exercises to weak, I am 38, had bunion surgery and all this followed, hope it will get better with time.... (:
Amanda
18 Sep 2009, 10:44
I am 26 and was just diagnosed with RA. I am scared and unsure what path this will lead me on. It is a relief in some ways to finally know what it wrong with me. I was tired of everyone looking at me like I was crazy because I hurt all the time and am tired all the time. I didnt know that fatigue was part of the illness. Does anyone have any ideas on how to get a good nights sleep? I sleep but I wake up feeling like I didnt. I have to take a 20 minute nap on my lunch break just to get thru the day and then by the time it is time to go home it is hard to stay awake to drive. Any ideas would be helpful.
larry
07 Jul 2009, 09:00
i've had ra now for a yr. somedays good, but recently my back hurts all the time. the only thing that keeps me going is to pay bills. got to keep a roof over my head. after work, i feel so bad, that i lay down with the chickens. i'm 52 yrs. old, i was hoping my golden yrs. would be a little better.
Ananthi
16 Jun 2009, 21:52
I am 32 and have been diagnosed with RA in December 2004 and have been on medication since. For the first 6 months i was on prednisolone and salazopyrin. After 6 months only salazopyrin, 4 tablets of 500mg daily. I notice I have been putting on weight, continously burp, bloated tummy etc. My diet has been the same yet I continue putting on weight especially tummy. I have checked with my RA specialist & she always tell me the weight gain is not due to medication. Can someone advise me what can be done in terms of diet & lifestyle to have a healthy body weight. It's sad to have people commenting on the weight issues. I have tried dieting & exercising but doesn't seem to help furthermore before I was on medication I don't really have to worry about this issue as I don't put on weight so easily.
Debbie
16 Jun 2009, 15:43
I have Lupus(SLE) and I seem to have my days and nights mixed up I am not sleepy at night and stay up late then sleep in late. Could this a symptom of lupus or maybe the meds?
Roseanna
16 May 2009, 20:48
I had a misscarage in march 2009 does me having RA have anything to do with that becuase i've been sick since then and we are now in may going on June. I have RA , my Thyroids are low, and to top it off I have Anemia. And my monthly cycle wont stop maybe just 4 days a month at the most. Why is this happening to me? Will I ever be able to get pregnant again?
Mohammed
16 May 2009, 04:08
Hi, I am 50 years old, suffering from osteoarthrities. I am walking everyday about i hour. Is walking harmful or beneficial for me ?
Beckie
15 May 2009, 23:10
Hi. I am 48 yrs old and was diagnosed with RAat age 29. I have been tried on everything from weekly Gold shots (years ago) to Methotrexate shots and every corticosteroid made!! All through those years til now I have been on Prednisone 10 mg a day. It is the only thing that has worked for me and although the doctors hate the idea of me being on it for so many years I have not and any side effects. Without it I can barely move or stand the pain and stiffness. The fatigue is just something I give into by taking a nap when possible not feeling guilty about it anymore. Be good to yourself and if others don't understand then they have a problem. Stay in pray and remind God that he said"he will never give us anymore than we can handle"....lol.
Wishing Well
14 May 2009, 01:15
I'm just beginning to learn about RA...And I'm in the process of determining if I have RA. One thing I do know I have full faith in Dr. Perricone's readings and lectures. He's an expert in "Inflamation of the Body" He really makes sense!!! Just Goggle him for further information. It begins with everything that we eat....And then the assistance of medication to curb further inflammation. Research..Research..Research.
Marlena
07 May 2009, 12:31
Hi
My name is marlena i am 25 years old i have been struggling with ilnes for a very long time 2 year ago they informed me that i have fibromyalgia. Then 6 months ago arthritis and deteriating disc in my back. I have a 4 year old son an 8 year old daughter and 12 and 15 year old step-sons my children are very active and i find it very hard to keep up at night i either cannot sleep at all and am exhausted the next dat from lack of sleep, or seem to sleep sound but wake up feeling worse that i had from no sleep. This is all very frustrating i feel i am to young to be having so many problems and cannot get any answers to try and help the situation as much as i try to stay strong for me my husband and my kids iys becoming quite hard. Just dont know whta else to do.
Brenda
22 Apr 2009, 13:05
I got diagnosed with RA and im scared im only 26 yrs old I would like some advice on how to take care of my self like what foods to avoid and what can i do for pain. After reading everyones symtoms i feel a little better and not so alone. Any one with any advice please let me know.
Hyacinth
20 Apr 2009, 03:57
I need a help from you. I have a pain stifness in my wrist and fingers. mainly in 2nd finger. Little swelling but when I move my finger its pain. I get mostly crak sound right wirst and left elbo and right knee. I took some vitamins calcium,Vitmin E, Fish Oil, Hi Glucomicin 1500 and another vitamine good for artherities. After taking that I am comfortable than earlier. In the evening earlier my hands neck should teeth all painful now better. I do my exercise so now I can sleep well. I started strength training for my hands now better. earlier I could not lift my arm I got the muscular pain I could not throw ball far my hands musels painful. What eles I can do. My hasband has died I have a son 18yrs I have to look after him so I have to live for him more healther . Ple help me
Jeanne
14 Apr 2009, 16:42
For Rosy
You must find a good Rheumatologist who can prescribe the right medication for your stage of Rheumatoid. The rest of your symptoms should resolve or at least improve with the right meds. I have had RA for about seven years and am currently on Methotrexate and Humira. They work really well for me. I also do regular water exercise as this keeps my joints moving without impact.
merlyn baldeo
10 Apr 2009, 11:20
hi, am 50yr old, i had rhu. artritis for years. i have the cold regulary, and i feel fatuge also,my joints is stiff anf paiinfull what can i use to help.
Lisa
13 Mar 2009, 12:48
Hi Rosy,
I have rheumatoid arthritis and believe it started after second child was born (I have four). The Doctor prescribed anti-depressant because they did a sleep test and I was not going into REM sleep. If you read about RA you will see that anxiety and depression are also symptoms of RA. I thought it was due to small children etc., but now believe it was because of RA that I was not sleeping. Hope this helps you.
Rosy
08 Mar 2009, 21:53
I was just recently diagnosed with Rheumatoid Arthritis. The thing is though I believe I have had it for several years. I just did not know what was wrong with me. Just before getting diagnosed I was getting sharp pain in my wrists and hands and now, I feel as if I have cronic fatique. I wake up tired from a full nights rest, yet i am dragging my butt the entire day. I even have spurts of fatique as well. One minute I will be great and the next I am so tired. I am wondering if a C-pap would be an idea for me to get that REM sleep, that i have a feeling i am not getting. I am 28 years old working fulltime mom, with a 15 month old son and a 4yr old daughter. My husband is a University student as well. I need help what can i do.

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