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Many People With RA Still Don’t Exercise

Lack of motivation, disbelief in benefits of activity keep rheumatoid arthritis patients sedentary.

By Otesa Middleton Miles

2/10/12 Despite numerous public service campaigns and studies touting the benefits of exercise for people with arthritis, more than 40 percent of those with rheumatoid arthritis, or RA, remain inactive, according to a new study published online in the journal Arthritis Care & Research. But the researchers found that up to 65 percent of this extra inactivity is due to two modifiable risk factors, suggesting that more effective public health initiatives could turn the situation around.

“We were surprised they were very inactive,” says the study’s lead author Jungwha “Julia” Lee, PhD, assistant professor in the department of preventive medicine at Northwestern University Feinberg School of Medicine in Chicago. “Regular, moderate physical activity offers a host of benefits. It helps reduce pain and improve well-being.”

James O’Dell, MD, president of the American College of Rheumatology, or ACR, and chief of rheumatology, vice-chairman and residency program director at the University of Nebraska Medical Center in Omaha, agrees. “The bottom line is activity keeps you healthy,” he says. Physical activity can help shore up joints by strengthening the muscle around them and also combat heart disease, adds Dr. O’Dell, who is not associated with this study.

“The primary reason RA patients have decreased life expectancy is because of increased cardiovascular events. We know from many, many studies how important activity is to decreasing cardiovascular risk factors,” says Dr. O’Dell.

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melinda ventola
21 May 2012, 13:06
My son has RA & tries to exercise & lift weights to exercise but frequently ends up "hurting" himself by overdoing it or moving the wrong way. I think there should be guidelines & people with arthritis should know their limits & be very careful. They are in a more fragile state tham most people.
Julie
11 Apr 2012, 13:05
I try to exercise, but the stiffness is in my hands, especially my thumbs. Very hard to excerise them; when I try to write or open a bottle of water, I have no strength. My right hand is the worse...I try to move the joint and it sticks-which is very painful.
I've had injections which have not helped.
Anyone else out there with this problem, and does anyone have suggestions on what kind of exercise to do to help with this? Thank you!
Megan
03 Apr 2012, 10:44
I would be able to take this more seriously if all of the researchers performing the study had moderate/severe RA that wasn't well-controlled. Perhaps then they would be better able to understand why some people don't meet the exercise guidelines. I find myself becoming defensive when reading studies like this, until I remember that before I had RA I had NO IDEA how completely physically ill it can make you.

I am a young mother of 3 who developed RA after the birth of my 3rd child. It is not well controlled at this point. I do what I can, as I believe most people do. Sometimes that includes exercise, other times it means just keeping my family clothed and fed.

Arthritis Today, how is this article helpful to those of us who live with RA?
Nancy
18 Mar 2012, 10:08
I am 58 years old an I have read the comments about exercise and medications. I have RA and fibromyalgia, sometimes I'm not sure which disease is causing my pain and fatigue. I take methotrexate and plaqunil. I've been advised not to take Ibuprofen in addition to these meds. I do feel if I could take Ibuprofen I would feel less stiff and sore, and would be more motivated to exercise. I have been advised to exercise every time I visit My Rheumatologist and primary phy.

I do all housework, cooking, shopping andything that runs a household. I agree with some of you that with the fatigue I have to conserve energy for priority chores.

Lisa
16 Mar 2012, 19:30
I'm 42, have RA, and had total knee replacement surgery three months ago. I've probably had RA for a decade but, because of major depressive disorder and anxiety disorder, I didn't receive a diagnosis of severe RA until last January. One thing I made myself do most days these last ten years was exercise (with increasing help from Advil). It was 30-60 minutes where I escaped and became a "normal" person each day, and thank goodness. Because of that and not being overweight, and pre-op P/T, according to my orthopedic surgeon my recuperation has been amazing. I'm walking up to 5 miles a day, strength training, practicing yoga and Pilates. It's a constant struggle, but it helps my RA and new knee, AND my depression and fatigue (that I fight even on anti-depressants), and side effects of RA like constant URIs and severe dry eyes. My rheumatologist has never mentioned exercise, though I tell him what I do. I research this disease and know moving is better than sitting (or standing!). I don't believe the study mentioned depression as a possible reason for remaining inactive. My situation is unique, but I understand that this devastating disease can wreak havoc on your mental health, too. A strong support system is imperative for people with RA. We need motivation wherever we can get it!
Jessica
15 Mar 2012, 13:25
As a 23 year old who 6 months ago was diagnosed with RA and SLE I can agree completely with this article.
Yes, there are days when I flare up and can barely even open a water bottle but nothing a few ibuprofen can't fix!
Even if my joins are stiff and swollen, I use it as my motivation to stay active.
I know I will never be cured but it is my belief that it will get better with time and I know by me sitting around doing nothing I am not helping the cause.
I crossfit and love every minute of it.
Janice
15 Mar 2012, 10:10
I have yet to have one doctor tell me that I should exercise to help my RA. Not a one, and I have seen 4 rheumatologists and 2 primary care physicians. When I exercise, I feel better. Yes, when I flare, I take a break but then restart exercising. I wish more doctors would advise RA patients to try exercising.
Ann Bjornson
20 Feb 2012, 16:27
The author is misguided in her conclusions.
The stage of the disease, the severity of the RA, the amount of deterioration of joints should be the critical determinants in choosing the type and amount of exercise that is appropriate for each patient with RA.
It is easy to flare this disease through too much of the wrong type of exercise.
For the author to leave the impression that any RA patient can simply go out and mow their lawn or do 45 minutes of any type of moderate exercise is the worst possible advice. It is vital to balance muscle strengthening and fitness with avoidance of a flare and progression of joint destruction.

peggy stewart
16 Feb 2012, 17:39
To avoid knee surgery I did 5 weeks of Physical therapy three times a week and found building the muscles with very challenging exercises worked wonders. I am 70 years old and use to ride my bike long distances, cross country ski, hiked to the top of Angels Landing with my family 5 years ago before the RA. The greatest challenge is lack of energy, pain in feet and knees, and feelings of sadness on days when I seem to wear out before I get started. Trying to stay active but by the time daily tasks are done I have spent all my energy. Would love to do more physical therapy but am still paying for the last time.
Lisa
14 Feb 2012, 16:20
I am proud to say I am one of those persons with RA (18 years) who does exercise daily above and beyond activities of daily living. I even lift weights (heavy ones at that)and ride my bike for more than 20 miles at a time. How do I do it? I am heavily medicated: enbrel, methotrexate, prednisone, ibuprofen, & plaquenil. The drugs allow me to move without pain, limit fatigue, and live my life the way I want to. And my rheumatologist is fine with it. She doesn't try to wean me off anything like so many other with RA that I have talked too. Because I am able to move, I am normal weight and don't have a problem with weight gain with prednisone.
Rose
13 Feb 2012, 14:10
I agree that exercise is important. I know from first-hand experience that regular mild to moderate exercise makes us feel better, however; in order for RA patients to be able to exercise their disease has to be somewhat controlled. While in a full on flare with its associated pain and fatigue the sort of exercise mentioned in this study is virtually impossible.

Secondly, I think the sample population of this study needs to be better described. Knowing how many of the study participants work either in or out of the home, how many are on disability or retired, and how many are represented in each of the age groups directly impacts the reliability and validity of the study. Having recently completed a doctorate I do understand the implications of clearly identifying the participant population.

The third point that I would like to make is that although study participants may not have participated in 30 minutes of moderate activity, activities of the workplace might be almost as effective. To compare a teacher's daily activity with someone who is retired and doing virtually nothing is not a valid comparison. The teacher may be busy throughout the working day and involved in a variety of activities that do not meet the criteria of "exercise" yet still be busy and still be getting a substantial workout when the whole day is considered.

The fact that exercise is important cannot be denied. Encouraging people with RA to exercise is also important and should be part of every self-help program.

Additionally, mental and social activity are also important considerations. Keeping the mind active enables patients to focus on other things beside their disease, and being socially active has numerous benefits. My thinking is that all three work hand-in-hand. If people are mentally active and feel they are vital members of society they are more likely to have a greater sense of well-being which then contributes to the desire to be more physically active.

Having people know their disease, understand their limitations, and not fear exercise are all desirable goals. For that to occur, the care team must be actively involved in patient care to help patients work within the limits of their particular disease and work out exercise regimes tailored to the patient's particular situation.

I have had J(RA) since I was 15 and am now approaching 58. I have had numerous surgeries and tried many meds including the anti-TNFs and rituxan. I also was a first grade classroom teacher for 34 years until my retirement last July. I completed my doctorate in 2010.
Diane
13 Feb 2012, 13:54
I think some of you that have left comments might be misunderstanding (or I am!). It sounds to me like even though many of you are not in a regular exercise program, you are still active with daily life. ADL, or activities of daily living, is also an important and viable way to keep moving. When I read this article, i think of people like my own mother who is extremely sedentary to the point of only getting out of her chair maybe 2-3 times in an entire day. She even avoids activities of daily living, to her own detriment and my frustration and concern. I am a water exercise instructor at my local YMCA, and i do have the beginning of arthritis (I am 51)so i have seen the benefits over and over again of a good arthritis exercise program. You only do what you can, and a good instructor will never push you beyond your capabilities. Anyway, I think if you are continuing to keep moving with just daily life that's a good thing too! Just don't retire to your chair to never move again, it won't make your pain better, only worse.
Lucy
13 Feb 2012, 11:20
I have more than one autoimmune disorder (RA + SLE +...); exercising would be awesome, but as mentioned in several other posts, it causes flares. "Normal" daily motion is what I strive for: walking, climbing stairs if I can, getting in and out of a car, and so on. I have attempted a variety of exercising in the past with very poor results due to weeks of setbacks via flares. I know Tai Chi is one, swimming is another method of safely using my joints to strengthen the muscles without stressing joints/tissues/etc. (I can't swim for other reasons). As stated previously, time and fatigue are huge reasons for not participating in tai chi classes, but it is on my short list of things to do this year. I've had these disorders for over 20 years, and plan on living for many more.

Until that time, maybe we can convince these researchers via e mail to look into other variables (reasons) for persons not exercising? They study the condition, but don't "know" the disorder and what it really is like to live with it daily.
Karen
13 Feb 2012, 11:02
I am a teacher. I spend a great deal of my day up and down from my desk and then standing to teach. Standing . . . not walking so it wouldn't be captured by the method the researchers used to measure this study. The standing in one place to teach or do dishes is extremely difficulty with RA in your feet and knees. I have two five year olds. Between taking care of them, dance, soccer, and my full time job-- time is often short. I agree with Heather's post above. If you are working full time with an office job and then coming home to take care of your family a scheduled additional work out is painful and less likely to occur.
Tori White
13 Feb 2012, 10:59
Perhaps the research is flawed from the outset considering it failed to include, what I believe is the primary reason RA sufferers may not be consistently active, it hurts. When your energy resources must be reserved for rudimentary activities like cooking meals, going out to the mailbox, and navigating the aisles at the local grocery store; there is nothing left to exercise.

When RA physicians begin to take the devastation felt by RA fatigue, perhaps exercise may be a reasonable expectation. Better yet, I would commit to daily exercise for the remainder of my existence if there were a magic pill to renew my energy and take away my pain.

My sentiment is not to castigate the researchers' efforts, but to disavow the very real effects of RA symptoms like pain and energy level is disappointing and fails to delve into real solutions.
Heather
13 Feb 2012, 10:13
Does anyone know the circumstances of the % of RA sufferers that reportedly do not exercise? Do they work? Are they confined by their disability? Many that suffer will wake up, go to work, come home, make dinner, take care of a family, clean up & go to bed...just to wake up & do it all over again. Do they have children with JRA? Do they have family to help them? This study can be interpreted as people with RA are not disabled, just lazy, thereby perpetuating the myth that people with disability are 'faking it'.
For the record, I personally exercise however, many of my RA friends are not able to due to the fact that their RA is not well controlled. Exercise can be a painful experience if not done properly. Did this study include a list of "proper" exercises for those with RA?
We need support of this disease for the children & adults that suffer, not incomplete reports of why we're apparently failing at controlling our disease.

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