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Daily Living > Consumer Guide to Health Care > The High Price of Arthritis: The Personal and Financial Toll
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The High Price of Arthritis: The Personal and Financial Toll

Think your aches and pains are expensive? You’re right. The sky-rocketing costs of joint diseases are taking a heavy personal and national financial toll.

By Jenny Jarvie

4/12/10 Brittiny Peters never imagined she would log on to eBay to sell almost all of her family’s possessions. But that's exactly what 28-year-old, stay-at-home mom from Gainesville, Ga., ended up doing earlier this year when she found herself burdened by thousands of dollars of medical debt.

Her 7-year-old daughter, Ayla, has Still’s disease, also known as systemic-onset juvenile rheumatoid arthritis, characterized by painful joints, spiking fevers and skin rashes. To add to their difficulties, her 2-year old son, Noah, has severe autism.

Brittiny and her husband Gregg, a self-employed tennis instructor, had already hired a budget coach, traded their cars for older models and pared down their cable and phone bills. Gregg cut his hours so his income was low enough for the children to qualify for Medicaid, but the government program doesn't cover all bills, and they faced medical expenses of $2,000 a month.

Selling their home wasn't an option: Even after putting down $10,000 and paying monthly mortgage payments for nearly five years, the dwindling housing market had left them with $20,000 in negative equity.

“For weeks, we asked ourselves: “What do we want to hold on to? What do we want to let go of?” says Peters. “And then it hit us. What kind of parents are we? Do we really want Noah to have three days of therapy, rather than five, just so we can keep the flatscreen TV?”

And so Peters complied a list and then logged on to eBay: Almost everything – from the Whirlpool Heavy Duty washing machine and the king-sized mahogany bed to the kids’ cradles and rope and swing set – was offered for $20,000.

What started as a family joke – “We owe so much money we might as well sell all our stuff” – had become a reality. When Mary Lemanski, a nurse from Springfield, N.J., who has rheumatoid arthritis (RA), psoriatic arthritis and osteoarthritis (OA), became so disabled that she could no longer work, at age 53, the cost of her health insurance soared.

When her premiums topped $1,000 a month, she says she could no longer pay for coverage or for the expensive biologic drug that she calls “my miracle.”

“I am even considering selling my car so I could go back on Enbrel. It was so wonderful feeling that well,” Lemanski writes in a letter to Arthritis Today. “RA is a disease only for the wealthy.”

There’s no question that arthritis is an expensive disease. In fact, osteoarthritis and other non-traumatic joint diseases consistently rank among the top ten most expensive chronic diseases according to the Department of Health and Human Services.

But now, to add to the pain of high prices, costs are shifting. Individuals like Lemanski are being asked to pick up greater percentages of the cost of their health care – a trend that shows up in higher co-pays at the pharmacy and doctor’s office and higher monthly insurance premiums.

And studies show that out-of-pocket costs are rising faster for arthritis than they are for many other chronic diseases.

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ANGELA
12 Feb 2011, 09:59
I HAVE GOTTEN ASIISTANCE FROM THE PARTNERSHIP FOR PRESCRIPTION ASSISTANCE OR PPA.THIS ORGANIZATION WILL ASSIT PEOLPE WITH CONTACTING THE PHARMACUTICAL COMPANYS TO SEE IF THEY HAVE A CLIENT ASSISTANCE PROGRAM OF THEIR OWN.
Terrie W.
28 Sep 2010, 18:45
I really appreciate everyone sharing their medical financial problems. My heart goes out to you all. I have osteoarthritis in my spine,nrvk, hands, feet and spine. I also have fibromyalgia. I also have GERD, irritable bowel, HBP, asthma and allergies to milk and sensitivities to other foods. My medical premium is still covered for another two yes from the job I retired from two years ago st age 53 because I could no longer maintain my performabe due to the pain and fatigue. My copays are generally 20% and I have already paid 3500 out of pocket just for copays and coinsurance. In addition, even with mail order I pay 700+ every three months for my prescriptions. That isn't including 100 per month for the drugs that I can't get thru mailorder because they are controlled substances. I get generics whenever possible but most of the drugs I need are brand name. My retirement is just enough tomake me ineligible for prescription assistance from the drug companies. I barely make my expenses every month. I have begun selling items on craigslist. I worry what will happen when also have to pay my premiums which are around 900 a month. however I appreciate that many have it much worse. I pray every month to nd able to make it ingl next month. Many times I am on a "diet" because I can't buy groceries. Only my faith in God keeps me going.
Joe Burch
27 Sep 2010, 09:18
On Knights for my wife,I through a blanket an pillow in the dryer.Some times take a hair dryer too gloves.Get gossy.
Bernice Possiel
25 Sep 2010, 12:29
This is hopefully a response to help somewhat those with arthritis, fibromyalgia some rheumatoid arthritis and psuedo gout which is what I have. I have been doing low impact exercise for the past 2 l/2 yrs. and now I lead a small class for senior citizens and let me tell you since Ive been doing this 2x a week religiously for 45 mins each I have been feeling so good that I rarely use pain meds. Try it. Hope it works for you
cause man the meds ARE expensive. I found the more you take the MORE you need.
Vickie Lynne
23 Sep 2010, 21:26
I do know since being diagnosed this illness has without a doubt changed my life so very much..it saddens me to think this is the way i have to live my days out ..soon i begin taking enbrel 4 injections now and i pray for all of you and myself that one day some day this huliliating and hurtful disease can of a cure be found ..sweet dreams ...Vickie
Vickie Lynne
23 Sep 2010, 21:23
ive been taking 7 methtrexate and twice monthly injections of humira for the past 6 months ..does the pain and sitffness ever go away ? my diet is healthy and i use very little sugar..plus i have severe night sweats ..any advide would be so appreciated and thnak you kindly in advance ..have a sweet day ..Vickie
Myndi Fitzgerald
22 Sep 2010, 21:00
Like Allison's comments about nutrition, our kids with Ankylosing Spondylitis and Psoriatic Arthritis are also in remission due to nutritional changes to foods high in anti-inflammatories. They drink a nutritional supplement daily which kicked this disease into remission. We went years chasing medications that worked temporarily until we stumbled onto this nutritional answer. Do yourselves a favor and look at your diet...it really can make all the difference.
Allison Powers
22 Sep 2010, 17:17
i have polymyalgia rhuematica but it is in remission. The best offense is a good defense for any kind of arthritis. Moving all the joints thru all ranges every day if possible, more if you can and going on an anti-inflammatory diet(low gylcemic, low carbs), no sugar. The American diet is terrible. Eat fresh produce and fruits and unprocessed food and use olive oil. Study the "blue zone" diets to bring down inflammation.
DebraSwanner
22 Sep 2010, 03:32
What is happening to our healthcare system?
I have a severe case of Fibromylgia, PTSD from being hit by an 18 wheeler 4 years ago, it took my right shoulder! I was diagnosised with Arthritis at 17 years old, possible That I have ostoporous, because from taken Nsaid , prednisone, morphine, was taken cataflam for possible ankolosing spondi
tisis, sent my BP through the ruff! I had a good job for 2 years,but no benefits! can't do much
i owe over 8,000 and no way to pay!
Becky
21 Sep 2010, 20:35
I have had RA for 6 years and am taking Methotrexate injectable, prednisone and Humira. I lost my job at the end of 2008 and have to pay for my own insurance, with a high copay. I was getting help with the Humira copay from Patient Access Network, but there is a waiting list for help from them. I don't know what I would do without the Humira. (I was taking Enbrel for a while, but it stopped working). I also have asthma and the prednisone gave me diabetes.
The insurance companies have raised their rates for premiums and are paying less and less for drugs. I am hoping Healthcare Reform will make our lives easier and not have to sell our belongings just to pay for medications that our doctors told us we have to have.
Marlene
21 Sep 2010, 19:49
My Rheumatologist now want to do infusions and I got a call from the nurse saying it could cost me either $300. or $3000. for copay. She say there may be help (probably from the drug co) but what do I do when the 6 or 12 mo is up? I told her I have COPD and asthma. She says, " you'll get flu like symptoms that will last 4-5 days. " Well, when i get sick it takes 1 month to get over it. Now I am on 10mg Cortisone. I am just recovering from breast cancer and had been on Humira which causes cancer and lymphoma. I was very depressed the last few days(meds don't help) and decided not to do this. I am joining a gym and deating only fruits, veg and some protein to see if I can feel better. Drug co are dishing out poison.
Memere Jackie
21 Sep 2010, 15:59
I was 65 when I was first diagnosed with Polymyalgia Rheumatica, Osteo Arhritis & Spinal Stenosis.

The last week of Dec. 2007 I was struck with all the above symptoms while trying to get out of bed. In re-trospect I had a few warnings of pain but nothing like the above pain. I called a rheumatologist and was told I had to wait 3 months for an appointment. I called my primary doctor and she was able to set up an appointment in Feb.

At the beginnning of the illness I was able to walk without pain for about 5 minutes. Today I can't walk unless I have a cane and my husband is assisting me. I also have a walker with wheels and I can maneuver it but I cannot walk straight. I have a wheel chair which I use to go to the YMCA for swimming but I have to use a chair lift. I was very fortunate that my insurance covered the yearly fee for the YMCA.

I have also done PT and it was gruesome. My husband and I took a 10 week course on pain management and that was very good. I do not have trouble meditating and this is very good to take away the pain. We are also doing some Yoga together but I have to use a chair.

I am on Prednisone, Percocet, Cymbalta for depression. I am in pain most of the day. If I'm lucky I might be pain free one day out of 30.

I had shots that didn't help (very expensive} and also was on morphine for 30 days with no change. I see no relief in my future.

We had a stair lift put in which Medicare doesn't cover. But I was fortunate that Medicare did cover 80% of a scooter that I love.

My husband will be 70 in Nov. and has returned to work part time, what with us losing 30% of our retirement fund, we don't have much income besides Social Security.

My husband has had 2 heart attacks, 2 by past surgeries and a heart stent in 2007. The heart doctors said that this was all they could offer him because of his heart condition and past surgeries. Luckily my husband is a Veteran and has gets drugs at a very low cost.

I am grateful that I have a very good Medicare ADVANTAGE plan which covers dental, vision and drugs. This is a HMO Plus.

"Every day in every way will be better, thanks be to God."
Nicola
21 Sep 2010, 14:40
Reading the article, along with the comments, makes me realize just how many other people have to deal with the costs to help them; yet we cannot affort it at the same time. I have Fibromyalgia, OA, and Sacroiliitis and have been on SS disability for over ten years now. I am remarried and my husband had a stroke when they discovered that he had diabetes and now he can no longer work, so there went our health insurance for our children. We cannot afford to pay for private health care, but we do not qualify to put our children on State health insurance because we make too much. I am confused on how we can possibly make too much when we are both disabled. We struggle each month and we don't have credit cards or fancy items. It is a sad fact that so many of us are in this situation and my heart goes out to everyone that struggles daily for their family.
pam
21 Sep 2010, 14:30
is there a way to contact Mary Lemanski... i am in the same boat... would like to talk her.. maybe we could exchange info...??? Please let me know if this is possible!!???~pam
Cheryl
21 Sep 2010, 14:19
Yes these are the reasons we need Health Care Reform in this country. I too have RA and my huband lost his good job 2 years ago. His new job does not cover my insurance and so I am on a state insurance type of coverage ( yet it is with a major company) which is more expensive than any other insurance. We are borrowing against our home each moth to cover it. I am on Orencia and I have a small job which I do out of our home. With the economy in such difficult straights I make very little each month.I am perplexed as to what I can do to help. I am 62 and in an ok condition. Thank you for this forum!
katie
21 Sep 2010, 11:51
To Amy: as far as diet, I have read that the best diet for arthritis and overall health is the Mediterranean diet-it helps reduce inflammation in the body. I do not have RA, I have osteoarthritis in my jaw, entire spine, hips, knees, my left ankle pops and gets some swelling, my right big toe and foot hurts. I do not have gout. This is a result of alignment problems in my spine and hips that were downplayed and misdiagnosed by three physical therapists and a few providers. Even with the improvemnt of my alignment with my fourth physical therapist, the joint damage is to bad and images from 3 years ago to now are shocking.Like the lady in your article, I sell on ebay-stuff from my closet, our credit cards are topped off and even with health insurance, my expenses to all these incompetent p.t.'s brought us down as my insurance would only cover $2000.00 a year and I've been in p.t. for 6 years. One p.t., highly trained but a train wreck of an attitude cost me $1000.00 a month but I had to try because my hips and spine were so badly out of alignment that I had trouble walking and sitting, etc, never mind working. In my opinion, the major overhaul needs to be the attitude of health care towards those with arthritis and whats behind it wether it's mechanical or autoimmune. I have been steered down a wrong path to many times, falsely reassured, down played, dismissed,denigrated and it is shameful. I have always been a responsible person...always paid my credit card off each month or hardly used it, always had health insurance that I paid for myself. My husbands and my life has changed so much because health care providers did the worst possible thing....they didn't believe the patient. Now I'm stuck with them forever.
Terrie
21 Sep 2010, 11:36
I have R.A.,in both wrist. I also have,G.E.R.D.,Asthma,allergies,Irratiable bowel syndrom,depression and anxitiy,pocket of the bowel and osteaporis. I take 18 pills and shots daily. I am 66 and retired,I get $600.00,a month from S.S.. I can't get help because my husband S.S.. The only way I can get help is to file for divorice.Everything in our lives/marrage has to be in his name. I can't claim anything. Then I can get help with my medical bills. I am a religious person and don't believe in divorace. So I guess I just learn to live with the pain as.
Jean Johnson
21 Sep 2010, 11:24
I have RA, arthritic neuropathy, Crohn's, Meniers disease and HBP. The company I worked for was paying my insurance premium of $1065 per month. They laid me off last May, because they just could not keep paying the premium. I am on COBRA now, but I will only have it through February 2011. If I was not receiving the government subsidy of 65% of the premium cost, I could not possibly pay for it. As it is, I may not be able to keep it after December when my unemployment runs out. These medications cost a lot, but how else can we keep going if we do not have them? If I cannot find some way to keep getting medications, I will lose my hands and be confined to home due to the Crohn's. God help us all.
shelby
21 Sep 2010, 11:12
My mother has RA. Enbrel has been her miracle but the cost is outrageous! She had been getting enbrel for free through the encouragement foundation until she got on medicare. Now medicare will not pay for the enbrel & the encouragement foundation will not help her with the expense b/c she is on medicare. My 17 year old was diagnosed with arthritis a year ago & i cry when i think of how her future may go if the disease progresses. Right now plaquenil is her miracle.
Thom65
21 Sep 2010, 10:29
The above story is more the reason to have National health care. I am on both medicare/Medicaid; yet my co-pays for all the $150 for each MRI, MRA and Cat-Scans for OA, RA, PA plus $35 co-pay and facility fees (room rent); and additional cost for T.I.A.'s (minor brain strokes)and COPD. I owe, I owe, I owe - to each one of the niche medical markets; and my co-pay from May's hospital visit when I had a T.I.A. and Palindromic Rheumatism attack at the same time. I thought that the EMS fees on our house taxes, telephone and utility bill would cover cost - well no I have an additional $150. I was told 40 years ago to get a government job - meaning run for public office or be a staffer.
Linda
21 Sep 2010, 10:16
Humira has an assistance program for Humira. Ask your Rheumatologist for the information. You can get an 800# to call and get help. I have done this and it was successful.
Tammi
21 Sep 2010, 09:48
Yes...it is expensive to use my Enbrel....but it is my miracle drug. I can walk.work.and most importantly be without pain.
If you are having trouble paying for your Enbrel. Contact the company for help. They are fabulous. They have helped many with the cost. If you need help...ASK!
Amy Louise Jooste
14 Jul 2010, 10:53
I'm 33 and have JRA from the age or 6 all my life I've had problems with my joints eyes and what ever goes with it. specially my feet my parents didn't have to pay for any of this, but now they all dead and I'm maried for the last 6 years now.

well deuring this time before we got maries my husband new this could happend that I loose my drivers licens and that medical expenses can get high, but still he wannet to marie my and did.

well after 6 years my arthrites got very bad now and I was in hospital this year for infiltration etc. but now when I had to buy new shoes because I started walking funny and got sevear pain in my feet, legs and hips because of this I had to buy new expensive shoes. and we had a huge fight because of it so much so that he's parents blame me now for the reason that we are in this posision.

even so that he's mom sends him now text mesages to he's phone saying "son are you sure that you want to pay medical expenses shit for the rest of your life" in the meantime I payed all my medication and other expenses with my salary I've never asked them to pay any of my medical expenses for me never asked them to take me to the doctor nothing, I was good enough for them to pay all of my husbands medical expenses deuring the 14 months he was unemplooyed and even earlier this month when he wannet money to go see a doctor just to find out he's got highblood preasure. Well He's dad also send me a very Rude mesage claiming that it's my fole and I'm selfish

are there any otherway that I can make my pain and stress less. do anyone know of a diet that I can follow, I work my but off and only have enough to pay my medical expenses. etc

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