ADVERTISEMENT
Advertisement
ADVERTISEMENT
 
Daily Living > Consumer Guide to Health Care > How to be an Arthritis Advocate
Text Size   Plus   Minus   |   Print   |   Email  

How to be an Arthritis Advocate

You don’t have to be a mover and shaker in Washington, D.C., to get a face-to-face meeting with your Congressional representatives: All you have to do is ask. If you’re planning to be in the Capitol, you can make an appointment for while you’re in town, or if you’d rather stay close to home, call to find out when your representative will be in your area and ask for an appointment then. Even if you don’t meet your representative in person, you can write a letter or send an e-mail.

Start with your story. Your personal experience living with arthritis is the most powerful lobbying tool you have. Keep it simple – include your diagnosis, your daily struggles and the impact of arthritis on your life.

Follow up with the facts. Get familiar with the statistics about arthritis – how many people are affected, how much it costs and what the government has done in the past to help people with arthritis. (The information on www.arthritis.org is a treasure trove.) Putting your personal story into a national context helps your representative understand how far-reaching the effects of arthritis can be.

Know what you want. Are you asking your representative to support a specific bill or part of a bill? Do you want her to vote “no” on a particular issue? If you can tie your story to a specific action item, it’s more likely to resonate with your representative. Note, too, that you don’t have to connect it to an arthritis-specific piece of legislation – you can use a bill designed to, say, promote diabetes awareness, to point out the benefits of a similar bill for arthritis.

Time it right. If an issue is close to a vote or getting lots of media attention, your representative will probably be more tuned in to his constituents’ opinions about that issue.

Be persistent. The legislative process can be slow sometimes. Don’t give up. Keep in touch with your representatives by e-mail or letter, and check their records at election time.

John
22 Dec 2009, 05:05
!I feel ya! as they say now days. but litteraly serous multipal leval degeneritive disk and whole body ostioarthritis 'kill me please' can't take opioids. can't even get a definetive diognosis most do not show on blood tests so cant even get some doctors to beleve me living in hell need to contact govorment on health care reform to make sure can cover speacalists. I can not see a reumatalogist eather. fighting SSI for over five years. I have heard much much worse. ugly ugly ugly must vote stay tough dose not get any easyer.
Angelia Phea
10 Jun 2009, 21:14
I want to be heard and need medication and want to see a rheumatologist.
Angelia Phea
10 Jun 2009, 21:11
I need pain medication and need to see a rheumatologist for my pain. I guess a limb have to detached from my body to get results.I,ve been suffering too long with this disease just to be in pain with no relief.

Leave a Comment

All fields are required but only your name and comment will be displayed. Your e-mail address will not be used for any other purpose.

Name:
Email:
Text:

ADVERTISEMENT
Advertisement