Achieving arthritis remission may not actually be as daunting as the death-defying tasks that brought super-spy Ethan Hunt out of retirement in Mission Impossible III. In fact, it may be well within....
chevieman
20 May 2012, 14:23
diagnosed with severe Rhuematoid Arthritis a year ago. The following is
what I did to treat it.
1. Ascorbic Acid- at least 1-2 Grams per day. Yes Grams. Vitamin C- Aka
ascorbic acid was looked at by big pharma and was found to be almost
miraculous in the treatment of a number of diseases. They attempted to get
patent rights for it and were denied, no profit no more research. I have
always felt that RA is an imbalance in my immune system, Ascorbic Acid
helped restore that balance.
2. Boron- Here is the kicker you can only buy it in 3 mg capsules but You
need at least 20 mg per day total taken in 3 doses, so stock up on the big
bottle. Why does this work? Your immune system is in your gut/intestines.
An imbalance in the fauna and flora sets up a dominoe effect to allow
fungus such as candida albicans to take root in your intestinal walls
causing leaky gut syndrome. This is how food allergies and reactions to
specific stressor foods manifest themselves. Boron is one of the best "all
natural" anti-fungals known to man. It makes you pee bright yellow but that
is the only side effect other than killing unwanted fungus in your
intestines.
3. Pro-biotics. Like I stated previously all of your immune system
originates in your intestines, when you take care of the good bacteria in
your gut, then your gut will start taking care of you. I recommend a
pro-biotic that is of soil origin (will say on bottle)and more than one
type. These types go after the bad guys in your intestines and stop the
proliferation of the bad which gives your gut the time it needs to heal. If
you don't take soil origin probiotics at least twice a day and You have RA
then You are indeed a fool.
3. Reishi Mushroom extract- proven immune system modulator.Follow
recommended dosage on the bottle. It helps your immune system rebalance
itself.
4. If You have RA the foods you consume are no longer about what You like,
thats what got you into this mess to begin with. When you have inflammation
in your body from other than injury, its guaranteed you have inflammation
in your intestines. Every time you think its "okay" to consume a stressor
food (can be found on the net what they are) it is like adding fuel to the
fire. Especially night shade family veggies, grains,and dairy. I know its
hard to give these up. They used to be my favorites. But it is possible.
Also Stay away from processed foods, chemical additives of any kind are not
your friend including those that you wash with or that go on your skin.
Stay away from commercially raised beef and stick to grass fed. Stay away
from chicken and stick to turkey without additives (shady brook brand)Did
you know they were putting arsenic into the chicken feed and hence it could
be found in the meat? Find a recipe for bread made with brown rice flour,
no potato starches or oils other than coconut. Stay away from soy bean oils
(check your supplements) so many of them are GMO you cannot trust the
source anymore and GMO food will send You into flare quicker than anything
I know of.
5. I found a rhuematologist who put me on minocycline and that is what I
prefer because it isn't as toxic as other drugs. I started out on 100mg 2x
a day with the above regimen until I went into remission then I cut back to
100mg 1x per day until in remission for more than 2 weeks then cut back to
100mg 1x per day on Mon, Wed, and Friday. (see Dr. Mercolas web-site for
the Mon,wed,Fri regimen)Rhuematologists are hard to find that use
minocycline or that you can convince to prescribe it to you alone,I
personally have to travel 120 miles for appointments but here I sit in
remission, joints healing up, no swelling anywhere. I honestly don't know
if this regimen will work for those on the more toxic drugs but I believe
you have everything to gain. If You don't take any other supplements at all
the Ascorbic Acid, Boron and Pro-biotics are the most beneficial. others
that I take are":Glucosamine chondroiton with MSM
magnesium 500 2x a day
potassium 1gram 1x a day
selenium 1x a day
zinc 1x a day.
N-acetyl cysteine-builds up your glutathione levels. something found
lacking in all with arthritis of any kind.
Boron can be increased up to 30mg perday if symptoms are stubborn.
It took me 2 months on this regimen to go into remission. It is a wonderful
thing to be able to say that word "remission" without the fear of going
into flare-up tommorow and I am not there yet. I will say the only other
thing I would attempt to do is relieve as much stress and anger in your
life as possible and make sure you have a strong personal relationship with
God and Your family. If you don't have faith you can beat this disease from
running your life, then you won't.
I sit here symptom free and grateful that I am. If anything I have learned
compassion for others who suffer from RA and other debilitating diseases
and that is my only motivation for posting this. I pray that one day they
will have a cure available and these type of diseases can be treated with
something which works quickly and effectively but until the pharmacutical
industry is more cure driven than profit driven I really dont see that
happening. I hope for the best for you. I think you are going to see the
ascorbic acid/boron and probiotics being used more in the treatment of this
disease as more is learned about it.
waassim
02 May 2012, 06:31
Hi, its been a hard time for my friend since last 7 years. i really don't
know how to go by the treatment and stuff, she does her routine medicines.
the initial stage was when she was 15 yrs. now i need some help from an
intellectual how to cure it from the root and to just finish it from her
suffering life. because of the pain and stiffness she couldn't sleep at
night and also when there is a sudden change in climate occurs then it goes
to worst including high swelling. really wanted help and is keen to know
how to remit it totally.
Su Su
07 Apr 2012, 18:26
There are better ways to treat RA with vitamins and certain foods that work
better than the meds. Remission can last years. You know when you are in
a remission because no drugs are masking it. The Big Drug companies make
billions every year on RA drugs and most honest doctors will tell you the
companies are not even looking for a cure. RA made them too wealthy.
ib
01 Apr 2012, 17:00
Does someone know about unusual side effects of biological meds (Enbrel,
Orencia, Simponi). Things like severe dry, thinning skin and wounds that
won't heal?
I had to stop biologicals last summer (2011), when I developed multiple
infections that wouldn't go away with antibiotics. But over time, my skin
thinned out and I've noticed wounds won't heal fast enough.
Until last summer, I’d been on biologicals (since trials for Enbrel began
in 1996, with some breaks to try other (like holistic) approaches.
Just as a warning perhaps, I say this. My RA began when I went to an
allergist. I was 39. Trying to find the source of my allergies, my back
was injected with dozens of allergens (and turns out I was allergic to all
the things that make life worth living--from coffee to all the ingredients
of cheesecake, so I went on a macrobiotic diet). After that first cocktail
injection, my hands swelled up. The allergist thought it was a bad
reaction to the injection and prescribed Benadryl. The swelling persisted
and I was finally diagnosed with RA. Doctors won't admit a cause and effect
here, but I believe those allergy injections brough out my RA.
Back in 1996, the pain and swelling in my hands was so bad, I was ready to
quit my job and move from Florida to Alabama just to enroll in the only
Enbrel drug trial available at that time. I was lucky that soon after,
Enbrel began drug trials an hour away. Enbrel was a miracle. I went into
remission for the next seven years, until it stopped working. Since then,
I've been on other biologicals and most have worked well.
I always heard of infections and never had a problem (except for my skin
thinning, dry eyes and wounds not healing fast enough) until last summer.
That’s when I came down with unrelated sinus, ear and eye infections.
They wouldn’t go away after the first round of antibiotics for each one.
I stopped the biological meds and have been on remission for the most part
ever since then. No infections, no pain, nothing, until a couple of weeks
ago. The RA is slowly coming back. I'm currently taking Celebrex for a
couple of swollen joints, but it doesn't do enough. I fear I'll have to go
back to the biologicals. I'm not looking forward to it.
And so, back to the biologicals. I'm in my mid fifties now. I fear long
term use of biologicals has caused (at lease in part) my thinning skin. I
see other women my age and their skin is not as thin and transparent as
mine. My case is more severe than normal, people comment. My
reumathologist shrugs. My dermatologist gives me samples of moisturizers
and sends me on my way. However, after minor surgery, the wound took a long
time to heal. The surgeon blamed the biological. He also thought it caused
my thinning skin.
I wonder if there are others out there with severe thinning skin (and cuts
that take a while to heal) who'd been on biologicals for a long time like
me. Also, has anyone suffered multiple infections and had to stop the
biologicals and if so, how long did the remission last? Thanks.
jim lutes
27 Jan 2012, 15:13
In the first place I have rheumatoid arthritis. It was in remission and
came back after the death of my spouse who also had the joint disease. As
much as you push the prescription drugs, I don't hear you saying anything
about what methotrexate does to the body. Completely compromises your
immune system and opens you up for any infection which was the case of my
wife. She contracted MRSA which infected her heart valves and ultimately
killed her. I won't be surprised if someday its pulled from market aned the
ones its related to. Sad in Illinois.
Craig
19 Jan 2012, 11:50
I was diagnosed with RA in 2004, felt like I was hit by a freight train,
but it was caught early. Was on methotrexate for 5 years, at present I am
in remission, little pain no stiffness and have been off all medications
for two years.
abdulahadmemon
13 Oct 2011, 13:11
i want to contact Dr sallahuddin kazi.plz help me.give his e mail or
contact number/address thanks.
Darla
19 Sep 2011, 15:24
My RA hit me in 2006 and was dignosed in 2008. I am on methotrexate and
have experienced pain everyday. Last week when I got up I noticed right
away that I was pain free. The last 5 days have been so wonderful without
any pain. My question: If I am in remission will I have to continue
taking methotrexate?
Judy
30 Aug 2011, 21:45
I wanted to add some other medical/dietary info that may be of interest.
In January of this year I started on a gluten free diet at the suggestion
of my gyn doc who has had RA remission of a young patient by change of
diet. He feels that anyone with RA needs to go Gluten free and possibly
lactose free........... also, recommended that I read, "The Paleo
Solution".
Have been on a Testosterone Cypionate/Testosterone Propionate/Estradiol
injections every ten days for treatment of my severe osteoporosis since
November of 2007. Fosamax did not have any positive affect on my bone loss
and caused a painful irritation of the cardiac valve (at the
gastroesophageal junction). The first year on Testosterone injections I
gained 7% bone mass and it has gradually impoved my bone density numbers
until, at this time, I have numbers that reflect osteopenia.
Am on probiotics daily (since the diverticulitis episode) and take fish oil
daily.
Wanted the entire "picture" represented in case it was of
interest/assistance to anyone.
Judy
30 Aug 2011, 21:29
I am a 66 y.o. woman. April 10, 2009 I awakened with horrendous pain in my
feet and over the next couple of weeks I had pain, swelling and stiffness
in my fingers (it moved from finger to finger on a daily basis). I went to
a walk-in clinic and the doc did blood tests. My sed rate was normal (and
has always been normal) but my rheumatoid factor was 400+ so he diagnosed
RA. I went to an internist in my home town who put me on a 10 day course
of Prednisone and kept me on a minimal amount until I could get in to see a
rheumatologist. That took about a month. When I saw him he did further
blood testing and my rheumatoid factor was slightly decreased. He took me
off the Prednisone and on Methatrexate 2.5mg (7 per week) and Folic acid 2
mg. daily. I continued on that regimen until May of this year.
I suffered my second bout of diverticulitis in May. It did not respond to
antibiotics...I was on Flagyl 500mg and Cipro 500mg twice daily for 10 days
and then Augmentin 875mg twice daily for 14 days. Finally was hospitalized
and given a regimen of three IV antibiotics for four days....and developed
C. diff infection (a horribly painful intestinal infection with colitis).
Finally, was seen by an infectious disease specialist who gave me Augmentin
875 mg. twice daily and Vancomycin four times daily. I was on the Vanco
for three weeks. Had contacted my rheumatologist the first week of June
and he gave me a a two week period off my Methotrexate and Folic acid.
The Infectious Disease doc contacted the rheumatologist and asked that the
methotrexate be discontinued. It was.
So, to date (August 30, 2011) I have been off all my RA meds completely and
have had no problems.
During this time without methotrexate I had a sigmoid colon resection to
get rid of my diverticula. My healing has been great. My surgeon decided
to go ahead with the surgery so that if I have to go on heavier RA drugs in
the future I won't have the diviticulitis to contend with.
Here's hoping, guys and gals!
Judy
Janice
07 Aug 2011, 23:00
It's all about the FOOD! Read about the real remissions below. Those
people who aren't on any meds eat vegetarian, gluten-free, and dairy-free
diets. It is worth every second. Yes, it can be done. I don't know why the
doctors don't want to help (of course they would lose you as a patient).
Imagine not worrying about meds making you more sick than the original RA.
I've had RA for 13+ years and was taking Enbrel for 12 years. I stopped
eating meat and poultry. I had to make additional changes, but it can be
done. There's a documentary "Forks Over Knives" that explains why we're all
sick from the food we eat. You can save yourself. Your doctor won't tell
you about it! You might find it interesting that my rheumatologist is a
vegetarian. I wonder if your doctor is a vegetarian???
gloria
19 May 2011, 12:53
hi
i have suffered from ra and oa for almost
3 decades my latest doctor just told me i
came to see him too late he will not be able to cure or help me.
can you help?
thanks
g
Ileen Swelland
06 May 2011, 22:36
I was diagnosed with RA in Oct of '08, after spending 6 months going from
Dr to Dr, all the while in severe pain from shoulders to knees. Felt like I
had been hit and run over by a semi! I had been very active, doing aerobics
and working out 5 days a week and one day I woke up with excruiating pain.
My rhuemy Dr put me on plaquinel and naproxin. It took about 2 months for
the meds to kick in. I still have flares but for the most part, I feel
pretty good. At my last appt, my Dr wrote a script for Simponi and after
all the blood work was good, I took the script to pharmacy and with my ins
paying 75%, it's going to cost me $525 per month. Since I am on Medicare,
SimponiOne does NOT help with the cost. Therefore, I have decided to
continue with the plaquinel and started on Methotrexate. I am so upset over
the cost of the biologics and all their side affects...hence, I will not be
injecting more meds into my body. Pfizer has a Biologic pill that should be
available in 2012...but will probably be as costly as the injectable ones.
For now, I'll try eating healthy, walk every day and take aleve as needed,
along with the 2 perscriptions.
Lauren
24 Apr 2011, 12:34
April 24, 2011
FULL CATASTROPHY LIVING - Jon Kabat Zin
My RA came on after the death of my mother and several other life stress
factors, divorce, only child going to college, all around the same time.
My maternal grandfather was very deformed by RA, so there was a gentic
factor also. So I knew immediately when the RA came on, to test and
treat.
After ten years of methotrexate, prednisone, soma, norco, and the various
biologic drugs as they came on the market, I went for psychotherapy where
the counselor gave me a book that, when practiced, continually reduced my
RA symptoms.
A year and a half of practicing with this book, and on and off with the
psychotherapist, has left me RA pain free.
The hardest part was no longer taking the pain medication. But I had had a
problem with alcohol too, so that would make sense.
I hope this small post allows someone else to discover the book: Full
Catastrophy Living. I got my life back.
Good Journey,
laurenrae@goldrush.net
vivica lanier
19 Apr 2011, 12:29
i have had ra for the last 5 years i also take methretrate,simponi,folic
acid,nexium,presidnone,also diabetic metroformin high blood pressure
lisinproil
i wish i could come off of everything pain every day
tish
11 Apr 2011, 08:53
I was diagnosed with ra in 2007. Ave been on several drugs, muvera,
prednisolone, lefra and others. What i found out is that predisolone
actually reliefs one of pain and you can do the things you like doing, the
only thing is its very sensitive to my stomach. one week on predisolone
lives my stomach sore. Currently am on Sionora, lefra, folic acid and
methrotextrate (not sure of spellings), ave also had to change my diet
alot. Taking more of raw vegetables and fruits and exercising 5days a week.
Ave not had an attack for the last 8 months. My doctor advises continuance
use of the prescription until we wipe this thing out. Am hopeful that one
day I will be Ra Free. Lets use all that is within our power. Diet, drugs
and exercise.
Patty Swanson
11 Apr 2011, 01:09
Dx with RA December, put on Arava, which helped with pain, so I joined a
Gym and had fun gradually increasing my workouts, some with a trainer.
Just saw my Rheum. who ordered me off that kind of exercise and said pool
work only. I am very discouraged as I'd paid 2 years at the gym. Now my
Fibro acts up badly - much pain - as I haven't yet found the pool I can
work out in. I guess I have started to deform and my CRP is up, I'd had
to go off Arava due to a sinus infections, and the gas from it was so
horrible, I requested another option. So, now I am on Azulfadine
(sulfasalicylate), but no pain relief yet. This is so rough. My Dr. poo
pooed my natural approach with the Life Extension RA protocol supplements.
I had felt they relieved my pain, yet damage was going on. This is so
confusing. Help.
denise
19 Mar 2011, 06:35
I still dont have a positive answer as to what i have but it is looking
like ankylosing spondalitus arthritis.Can hardly move as my spine hurts so
much shoulders elbows wrists fingers hips so painful.I was stared on
plaquenil and itched until i bled then tried anti-inflammatory drugs didnt
work and now been on sulfasalazine for 9 days and have an unbelievable sore
throat so stopped taking yesterday until i can ask my rheummy what i should
do.I am so fed up with not being able to take these meds and being in
pain.I dont know if i just have a sore throat or if i is sulfasalazine
doing it also pain in my ears.I dont have a cold so should'nt have a sore
throat.Has anybody else had the same problem whike taking these meds?
Karen T
31 Jan 2011, 20:17
I'm a new visitor to this site, having wandered in whilst researching the
topic "humira and RA Remission". What strikes me about the posts is that
so many of us had to wait years for a diagnosis. I have probably had RA
for most of my life, but it was passed off as everything from 'growing
pains' to 'menopausal problems' to "fibrositis", "Bursitis" and so on. At
one point my GP sent me to the physio, who manipulated and taped my painful
wrist bones every week and gave me ultrasound treatments on my elbow and
massage for my shoulders. As anyone who has tried that route knows, for a
little while you feel better but the pain comes back. I had the usual
blood tests, but like many RA sufferers, on that particular day the RA
factor wasn't there. Eventually I was sent to a rheumatologist and got a
diagnosis, about 15 years ago. Since then have been on everything in the
arsenal, from salazopyrin to cyclosporin and everything in between.
(Methotrexate by tablet has been a constant, plus whatever else we were
trying.)In August 2010 I started fortnightly humira injections, stopped in
September for 6 weeks due to a flu-like bronchial/sinus thing (it was going
around, so I don't think it was related to the drugs) and went back on
Humira in December. I have monthly blood tests and at the moment , things
seem to be under control. I have occasional flares, which respond to
Naprosyn SR 1000 pretty well. I note the concern of fellow patients about
methotrexate, but I think at maintenance doses it's fairly safe--it's been
15 years or thereabouts that I've been on it and my liver and kidneys are
still operational. The reason I went on the humira was because of the
increasing deformity of my right hand, which is beginning to look like
James Coburn's, if anyone recalls what his hands looked like in his later
movies. My keyboard skills have gone frome excellent to fair, as the joint
deterioration increases, and it is my hope that further problems can be
forestalled. Suppose it's too much to hope that the damage can be reversed?
Anyway, I have not had to have an injection into any joint for over a
year, so that's a plus--I really hated those needles into the hands! I am
very grateful that I live in Australia, where the national insurance scheme
gives me the expensive medication for a very small price. It is
heartbreaking to read previous posts from people in the US who cannot get
the help they need due to high cost. One of my dearest friends died of
complications from RA when she could have been helped but her HMO wouldn't
pay for the drugs she needed. Finally, I agree with several of the
previous writers: don't give up, badger your doctor to get a referral to a
rheumatologist, and then be firm and friendly with him/her until you find a
drug regimen that helps. And yes, do take fish oil, if nothing else, it
helps with the Sjogren's syndrome which is a frequent fellow traveller with
RA. The gluten-free path does help some people, I have a friend here in
Australia who has successfully 'cured' her arthritis that way. I suspect
when they finally do all the research and get to the bottom of the disease
they will find it's not one but a multiplicity of conditions, all arising
from an immune anomaly of one sort or another.
Janis
26 Jan 2011, 14:15
After 10 years of severe RA, I am completely drug-free and have no symtoms
of RA at all. I am 48 years old and began having symtoms after my first
child was born 11 years ago. Shortly after my second child was born 2 yrs
later, I finally went to a doctor due to my lack of ability to pick and
handle the children - snapping my daughter's clothes, pull up her socks,
getting her out of the crib, etc. was impossible some days. I was
diagnosed with RA and put on Methotrexate. It made life do-able, but my
feet were still very swollen and I had many severe RA attacks in my knees
and shoulders (esp. when stressed). Remicade - a bimonthly infusion - was
the next drug prescribed to me. This drug completely relieved all RA
symptoms, but due to the drug's effect powerfuf effect on my immune system,
I was sick often (pneumonia, serious infections, series of strep throat,
etc.) After 5 years on Remicade I skipped 3 rounds of treatment due to
illnesses. After 6 months of no treatment and no symptoms, I decided not
to restart the medication. I was completely free of RA and RA drugs. My
diet is gluten-free and organic. I have absolutely no symptoms of
RA...this is huge considering I could hardly turn the ignition to start the
car (wrists) and had to walk down the stairs backward because my feet hurt
so badly. I'm not sure if the Remicade helped "cure" me, but I do think
the diet change has had a huge effect on staying RA free. It's hard to
take wheat out of your diet, but gets easier after a couple months. I feel
blessed and thought I would share this story. My doctor is puzzled. I
think the Remicade "trained" my body to stop attacking itself and the
organic, wheat and dairy-free diet has kept it at bay. I just wanted to
share a huge RA success story.
Cindy Rivera
22 Jan 2011, 11:15
For Sue Altop
I am about your age and have had RA for about the same amount of time,
otherwise good health and am also looking for alternative methods of care.
I was impressed by your improvement with alternative health care. Could
you please tell me what you are using, in the form of herbs or vitamins?
I have now developed osteoporosis, aggrivated by prednisone use and have
had to start treatment for it also. I'm determined to quit the prednisone
to save my bones.
Any help or comments are welcome.
God bless
Sue Altop
05 Jan 2011, 21:26
I am a 57 year old woman. I was diagnosed with RA 17 years ago. After 3
years of meds and doing what the doctor said, only to end with 6 ulcers at
age 43, I chose the higher road. I was already athletic, ate well, lived a
clean lifestyle. I determined that I felt better without the meds. I
embarked on a clean life WITHOUT pharmaceuticals! I use exercise, filtered
water, organic foods, alternative health care and am proud to announce I am
in remission with a SED rate of 2, my RA factor down from 86 to 23, and my
ANA now within normal ranges. There are no side effects to what I do. I do
not have to worry about my organs being attacked, headaches, skin
disorders. It is a shame that pharmaceuticals are pushed like street drugs
because our insurance companies will not cover the more natural methods of
health care. It is also a shame that people are not taught this is quality
of life or death choices. If a person had diabetes, they would be told to
get off the sugar. This is the same, get off the sugar and fats, start a
program of all of the above and see what happens. I did and I am glad I
did.
katie
05 Jan 2011, 04:50
I have had ra for 10 year it want into remission for two year felt great
now it back .Had blood test and Dr. said they are off the wall higher then
. Methotrexate work the first time i took it by shot this time taking pills
for the frist six weeks to see if it works . I'm not gone to let this damn
ra beat me .
Pallavi Singh
28 Nov 2010, 08:08
My RA symptoms began about two and a half years ago. I was diagnosed about
a year and half back and my rheumatologist started me on methotrexate(15 mg
per week), sulphaslazine, hydrochloquine and weekly folic acid supplements.
From exteme morning stifness, fatigue and difficulty in walking, all my
symptoms disappeared after about three months. I was even able to get my
strength back. Currently i am still on methotrexate and sulphasalzine.
There are no major symptoms currently barring slight tenderness in my knees
once in a while. But as a result of the heavy medication, I lost
significant amount of weight. There has also been a very significant hair
loss. I am also prone to indigestion and constipation more than i used to
be. I want to discontinue methotrexate but my doctor hasn't agreed so far.
How serious are the side effects of the drug with my dosage? Is it
necessary to quit alcohol comletely while on the drug? Most importantly, is
this remission? How likely is it for the pain and stiffness to come back?
Janice
08 Nov 2010, 23:17
I have had arthritis for some time. I was able to control the poin and
stiffness through diet, basically, low sugar, low sodium and no caffeine.
It really makes a difference but the diet is tough as it is in everything.
So go fresh, no packaged foods. Unfortunately over time my arthritis has
gotten worse and I just started medications. The diet does help.
david freitag
03 Sep 2010, 10:18
I have been finally diagnosed with arthritus after complaining about it for
7 years. my father had RA. And i watched him suffer in agony and pain for
years. His bones grew in ways to where he couldnt us his hands, anyways my
question to all of you what are the real early stages of RA and how close
is this to ostioperosis? i have pain in the shoulders hands and hips
thank you dave
Jeff
02 Sep 2010, 17:42
As the parent of a 10-year old who has had JA since the age of 3, I am both
encouraged and concerned by this report. Of course, we all want remission
and even a cure - and the advances have been great. But remission is
tricky, just in terms of its definition alone. It also concerns me knowing
how difficult it is to raise money for RA research and programs. I don't
know how many times people have asked me if my daughter will "outgrow it".
This disease suffers from lack of understanding and exposure as it is.
It's hard enough to overcome the "every gets it eventually" stigma, without
tossing in "you've got a 50% chance of remission" when we don't even fully
understand what is meant by remission. Still, this is good news and my own
daughter is evidence that early treatment with what we know today can make
a huge difference.
Les
22 Aug 2010, 20:12
Jessica,
I was recently diagnosed as well & my doc didnt give me any options other
than methotrexate or being crippled. I only have pain in my fingers &
wrists and I felt it was only a flare up. I have been doing so much
research & cannot find anyone with a similar situation so I have changed my
diet & balanced my hormones in order to get my immune system strong &
healthy in hopes that I will beat this thing. Reading your post just gave
me the most hope Ive had in weeks! Thank you!
Maria Elena
13 Aug 2010, 22:27
Marie,
I have noticed that when I have fasted the pain goes away. There has got to
be a diet connection to this, so I have started to explore what foods need
to be eliminated in order to feel better.
Kayla
28 Jul 2010, 22:37
RON- I got turned down for long term care and when I spoke to the
underwriter it had more to do with the use of prednisone than for having
rheumatoid arthritis. It in there experience indicates that the disease is
not well controlled and I am able to try again for insurance as well as a
better life insurance premium within two years. I recommend trying another
treatment since the long term side effects of prednisone can be worse than
RA itself....good luck!
Jessica
15 Jul 2010, 14:13
I was diagnosed with RA just after my 17th birthday. I was experiencing
extreme flare ups in all of my joints. It took only 4 months for my Dr to
diagnose me, my RA factor was positive. I was crushed to be so young and to
be diagnosed with such a crippling disease. I started getting depressed and
sleeping all the time. I was constantly in pain and tired no matter what I
did. My DR put me on prednisone and plaquinil with cortosone shots in my
fingers for the swelling. It was terrible. Then my insurance changed and I
had to start seeing another doc who decided that I should be on
methotrexate. I didn't want to take it because of the side effects, but the
doctor told me that if I didn't I would end up disfigured and unable to
move. I was horrified so I started taking the meds. I also decided that I
wasn't going to trust the doc anymore and that I was going to look into
other methods of control.
I started reading on changing diet and exercise. I started practicing yoga
2x weekly and pilates 2x weekly. Then I decided to work on my diet. I
started reading all these articles about all the crap that is in our meats
and dairy and the thought occurred to me that maybe my immune system was
attacking my body because of the things I was eating. I first cut out soda
and beef. I started to feel better and decided to continue by cutting out
chicken and pork. I stopped having pain and swelling. I stopped taking the
meds and stopped seeing the doc that recommened them. I have since been in
remission and continued to cut out white flour and sugar. I use soy, but I
might start cutting back because I have heard that it is better to use it
in moderation. I am seeing a new doctor, but he told me that I am doing so
well that he doesn't believe that I need any meds and to keep doing
whatever it is that I'm doing. I am so blessed to be in remission. I am
only 26 and I feel like I have my life back. I cannot tell you how
wonderful it is. For all of the people who suffer, I understandwhat you're
going through and I just want to encourage you to look into other methods
of control for your pain. Exercises that strenghten and stretch with low
impact are great, changing your diet can have an amazing influence, and
above all please trust yourself and what you feel is right for you. I'm not
saying stop all your meds right now, I'm just saying that you should
consider all your options and see what works for you. I am still actively
looking for ways to keep my RA in remission and I learn new things about
nutrition and staying healthy all the time. Keep your eyes open and have
faith and hope. There will one day be a cure for this disease and we will
know the cause of it.
Ron
06 Jul 2010, 14:23
I was diagnosed with RA by my Rheumy in Fall 2009.Severe joint pain in my
hands. The blood test indicated negative for RA. never-the less Insurance
company turned me down for Long Term Care because of being treated with MTR
( 4 tablets of 2.5mg once a week...I am also taking 4mg of Pred 2 times per
day. I am otherwise in excellent health (both of my parents lived well into
their 80's). Currently I seem to be fairly well controlled from the pain.I
am concerned about long term affects of the medicines.
Has anybody been turned down for LTC Insurance in a similar circumstance?
A note to others...my Doc could have responded to Insurance company query
by stating that I had "arthritis"-that had a blood test result of
"negative" for RA. Had he handled it that way I probably would have been
approved (so please make sure you discuss in advance with your Docs when
you are applying for insurances so that factual information that helps your
case is provided instead of factual info that hurts your case.
I'd appreciate comments on any of the above.
God Bless everyone1
TLB
05 Jul 2010, 23:37
I've just been diagnosed with RA. I was given shot of cortizone to help
the inflamation and pain temporarily. I have been given some info sheets
with limited information about the different medication options which I'm
supposed to choose from. I am trying to research the best options but am
at a loss without a medical degree......
Does anyone have a "DMARDS & Biologic Agents Cocktail" that they have found
effective. My goal of course is complete remission.
Karen
20 Jun 2010, 22:01
No need to be in pain. As soon as you are diagnosed find a rhuematologist.
Only see a specialist! If you are in pain after being prescribed assorted
pills make sure you take/try the biologics (newest class of drugs). I am on
humira, plaquenil and prednisone and according to this website I am in
remission. Sounds good to me. I have minimal if any pain. Life is good : )
Marie
13 Jun 2010, 21:05
I was diagnosed in Oct. 2009. Had a hard time accepting the RA. I thought
it had something to do with the birth control shot I just started in Sept.
of 2009. Everyone laughed at me. The rhuma doc started me on plaquinel,
sulfasalazine, and prednisone. I refused the methotrexate and still do. The
doc is upset with me because of that. She just doesn't understand why I
don't want to take that "chemo drug". When I got rediculous swelling of
ankles and lower legs my Prednisone was increased to 60mgs a day for a
week. I started Humira 5 wks ago (1 shot every 2 wks), which I am scared of
the side effects since I don't have a spleen, which leaves me even more
prone to infections. It was amazing for the first 2 wks but has started to
lose it's effects already.
In Feb 2010 i had emergency surgery for obstructed bowel & was taken off
ALL meds & no food/drink for 4 weeks. I didn't have any flare ups or
symptoms. It was amazing. The RA didn't return until April, and it hit me
like a semi truck!!
I now wait...but can't help but think that fasting helps in some way.
perry fleming
11 Jun 2010, 01:42
not sure if all commenters are sufferers. my wife is. she speaks of
constant pain and agony. she has progressed from tna inhibtors to (soon to
be) infusion theropy. hopeful thoughts and prayers are not recipes for
cures. contributions for ra research are.
thanks,
perry
rocio
19 May 2010, 16:16
I was diagnosed with RA September of 2009. At the time my symptoms were
very painful. I started taking Plaquenil and Prednisone. I stopped
prednisone in February and just manage my pain with Plaquenil and Advil
when needed. I practice yoga, spinning and walk everyday. I follow the
blood type diet and my symptomps have improved 80%. I only have mild pain
within the first our after I wake up. Good luck to ya'll.
Stephanie
18 Apr 2010, 02:06
I have an idea that fasting may help. For 3 years I fasted once a year and
ate a diet consisting of 95% raw food. I totally excluded Meat,
Chicken,Diary and Wheat.
During this time I did not take even one painkiller or supplement of any
type. I just dont seem to have the emotional resources to do this again.
I still do not eat meat or chicken, but am now on so much medication that I
feel like I rattle. I am diagnosed with RA, Fibromyalgia, Chronic Myafascia
Pain Syndrome and Astma.
Good luck to you all
Danny
05 Apr 2010, 15:22
I was diagnosed with RA back in 1999 when I was 38 years old. It was
horrible. I was in extreme pain and could barely walk and could not button
a button. I went on prednisone, but quickly tapered off of it and was on
it for only 13 weeks. During that time, I fasted (2 days/week water only;
2 days/week juice fast). I was symptom free and my sed rate and RA factor
plummeted. My doctor was amazed. I had been completely drug-free and
symptom-free for almost 10 years. I compete in triathlons and I lift
weights daily, etc. I am very athletic. But now it has come back. Has
anybody else had success with fasting?
Bonnie
03 Apr 2010, 18:08
I was recently diagnosed with RA. I am 37, and I am about to begin tx with
Metrotrexate. I'm scared of the side effects, but want remission. If I go
into "remission", can I stop all meds or at least this Metrotrexate? Has
anyone done that?
Diwakar
31 Mar 2010, 10:46
Very useful information. I have found other related information which
helped me a lot here
Good news!! I have had RA now for 3 1/2 years. It took 2 years to get a
proper diagnosis. My Rheumatiod factor in 03/08 was 177 at discovery.
Today, it is 33!! Even my sed rate is normal and the pain is mercifully
gone. Methotrexate did not work for me. It made me very,very ill. I did
not like the horrible side effects of all the other RA drugs so I instead
went to a Doctor of Traditional Chinese Medicine. He mixes an herbal
formual specifically for my needs and I drink it twice a day. Dr Ma says
that auto immune diseases can be controlled by non-toxic herbs just as well
as by the toxic western drugs. He is my hero because he has given me my
life back. It took a year and a half of drinking his herbs for all of the
pain to go away, but the pain did subside gradually over this time. There
is a way to control your RA without using toxic drugs with terrible side
effects. If anyone reading this would like to ask more questions, you can
email me at motley92@hotmail.com. Just put RA in the subject line so I
don't think it is junk. My blood results are proof that chinese medicine
works!
Melissa Jordan
13 Jan 2010, 22:01
I am a 38 year old female and I was diagnosed with RA about 3 months ago,
right before my b/d. The prednazone I was on, then tapered off of
completely, really helped me alot. I then started on the sulfasalazine for
a month and my doctor called me and told me to stop immediately because my
liver levels were up. That was 3 weeks ago and I am not taking anything
right because she told me to stop all meds even my vitamin d. I have had
injections in my shoulders and was pain free for about 2 mths. They are
hurting again but not as bad as before. Before I would be up all night long
in tears. I got an injection in my left thumb a few weeks ago and so far no
pain or swelling. I am scared to try a new medication in fear of the damage
I will do to my body. I have a good mind to tell my dr that I am going to
try natural ways of getting better for a while just to see what happens. I
really want to be in remission from this disease. I am praying daily to be
healed or for a cure. Does anyone know of a good exercise program that will
help with pain. I was told exercise may help. I enjoyed reading all the
posts on here because it really did give me hope!
cj
13 Jan 2010, 21:36
I was diagnosed with JRA at the age of 3. Physical therapy, nsaids,
sleeping with braces on my leg and wrist, cortisone shots, gold shots,
hospital stays.... had it all as a child.
I have had no symptoms since I was about 15. When I turned 18 my
rheumatologist said at that point with no symptoms, I was in remission and
only needed to see a rheumatologist again if it ever started to bother me
again. Just turned 40 and still haven't been back to a rheumatologist -
so remission does happen!
CJ
02 Dec 2009, 20:29
I think that there maybe help out there if you want to try biologics like
Humera Embrel Remicade??? not sure of the spelling but if you contact the
companys directly they may help... that is what i have heard...Is there
anyone who has tried herbal remedies and diet remedies together... I have
had RA for over 3 years have been on hydroxycloriquin or (plaquinal) and
pain management are the only things I could count on... had sever reactions
to almost all meds for RA (have not tried Biologics) the pain is still
sever and feel like you just do not want to move ever... am so afraid to
try any of the biologics the reactions to sulphasalizine methotrexate
pednisone very sever lost my eyesight my face became swollen breathing
problems looking for something that will not make things worse than it
already is as I am sure all of you are Hoping for the best for you all hope
info helps thanks for listening cj
julie
19 Nov 2009, 12:06
I was diagnosed in 95 and went through 5 years of experimentation, trying
this drug and that drug, nothing worked, then went on mtx orally plus
prednisone and plaq. this helped but changing to mtx injectable and then
adding enbrel really helped. but then 4 years later my skin developed
crusty sores that were diagnosed as pre-cancerous. then the meds stopped
working. I quit the shots for 3 months and the sores subsided but I was in
bad pain. I started the shots again for 6 months and the pain lessened but
the sores came back. in sept this year I stopped the shots again. no bad
effects this time, so far no shots for 2 months and sores are going away
again.some pain but I take 5 mg pred when I need it, every few days or so.
maybe I am in remission? I hope so! if the docs only knew what this disease
really is and really how to make it go away!
Kevin
16 Nov 2009, 20:10
This is in response to Karla, who on 30 Sep 2009, 15:08, wrote of not being
able to afford medication.
I do not suffer from RA, but am very close to someone who does, so I know
how awful the suffering can be. We also do not have very good insurance,
but I've learned that the makers of Enbrel can offer assistance to those
who cannot afford it (and if you are not independently wealthy and/or do
not possess excellent insurance, you cannot afford Enbrel - that is for
sure).
We have not yet contacted Amgen/Wyeth (the makers of Enbrel) but we are
about to. The assistance information is here:
If the proprietors of this site would please forward this message to Karla,
that would be greatly appreciated.
Thank you.
jojo
03 Nov 2009, 10:53
I've had RA for a year. Prednisone seemed to work to relieve symptoms.
Methotrex. was awful-made me feel ill for several days a week. Not worth
it to me. Very afraid to start injectables- fear of side-effects. Can
people reach remission with alternative treatments?
Mei
12 Oct 2009, 12:34
I had RA since 95 and had all the up and down, tried a lot of med, now I am
on Enbrel,Plaquinil, olchicine and Prednisone 2.5mg (trying to cut it out).
I have been felling nearly normal almost 6 mon.
It took a long time for me to accept the reality of having RA and having an
incurable disease. I did wrong choices on finding the treatment. Now,
luckily I have a good RA doctor and I try to work with him. Eating healthy
is important. Exercise is a must. Since I got RA, I practice Tai Chi
daily and follow a wonderful teacher all those years. It helps me
tremendously.
I was prescribed Enbrel last fall and it worked wonder right away. My worry
is how long the Enbrel will last. My doctor said that sometime the body
will reject the med after certain years, and the med won't work. Then you
have to try another kind. I used to ask often...why me?! When I read
other people's suffering stories, I could totally feel it - I went through
hell (if you didn't go through this that you could not understand the pain)
and I am glad for now, I feel OK. All I could say is don't give up, rest
well (good night rest is essential) and eat well and try to find happy
thought while in misery.
valentine
08 Oct 2009, 08:37
i was diagnosed with RA at 16 years old. that was 13 years ago.
i have been thru it all and taken all there is to take.obvious;y by now i
have irreversible joint damage and take prednisone, leflumonide,painkillers
.
i just wonder is tehre any hope for a remision for a case such as mine?
i am now 29 yeras old and hoping to have a baby soon.
i need to keep informed and know if it is possible for me
LOIS
05 Oct 2009, 16:32
HI ALL. I AM IN REMISSION FROM RA. HAD IT FOR OVER 13 YRS. DID MY HOMEWORK
AND READ THE BOOK "RHEUMATOID ARTHRITIS THE INFECTION CONNECTION" BY
KATHERINE POEHLMAN PHD. GOT ON THE ANTIBIOTIC PROTOCOL AS DEFINED ON THE
SITE WWW.ROADBACK.ORG.I AM NOW IN LESS THAN A YEARS TIME IN NO MORE PAIN
AND MISERY! IN REMISSION AND FEELING GREAT! EDUCATE YOURSELVES FOLKS! YOU
NEED TO TAKE CONTROL OF YOUR HEALTH AND DO IT NOW!
Karla
30 Sep 2009, 15:08
Hello, My name is Karla and I have had RA for 5 years. First I had no
insurance so I did not go to the Dr. Now I have bad joint damage in my feet
(Toes) and wrists. I live with pain and am now on Disability. Well, my
Rhumy wants me to go on Orencia and medicare does not allow that infusion
so I am on a limited income and cannot afford the medication as I
understand it costs approx. 22,000 a year.... IS THERE ANY HELP WITH
MEDICATIONS. I CAN ONLY AFFORD MEDICARE INSURANCE AND HAVE NO OTHER
INSURANCE... HELP ME I CAN'T STAND THE PAIN
Wes
12 Sep 2009, 11:14
Well, I'm a 31 year old male and have been on Humira for almost a year...I
was diagnosed with RA about a year in a half ago. I decided to stop Humira
and its been a month since my last injection and I feel pretty good. I
have been swimming 30 laps (25 meters is one lap) at the GYM pool twice to
three times a week. My muscles get sore but I don't have joint pain yet so
I am stoked. I take probiotics, fish oil, and pure encapsulations -
Nutrient 950. Wish me luck that I can stay off Humira and go into
remission. I need to make sure I have a little better diet too.
Michelle
12 Aug 2009, 07:33
I was diagnosed with RA in 2007. I was first put on Plaquenil. But this
wasn't enough. So I was put on Sulfdasine(this is not the right spelling).
This 2 meds did the trick. I then started a vitamin reg. I am up to taking
6 Omega complex a day. I see that alot of people are not eating wheat
products, I eat wheat products everyday and I haven't had a problem. I just
saw my Dr. and I haven't have any major flares, so I am slowly weaning off
the sulf. I guess we will see. I am hoping to get off all the meds. But in
reality I know that the ra can come back. But I will hope for that I may be
the exception.
Paul Ely
09 Aug 2009, 08:35
I first had RA when I was 42 (18 years ago). Doctors then (in UK) told me
that diet had nothing to do with it. Eventually I was put on Methotrexate
and the RA went into remission after about a year. (I also cut out wheat
for 5 years which helped immensely). I then had 5 years pain and medication
free - even enjoyed wheat products again. However a year ago the RA
symptoms all came back again. I am now struggling to get it into remission
again. I just found a website that said methotrexate should be continued at
a maintenance level - I wish I had known this 5 years ago. Just so others
might be warned - RA ALWAYS COMES BACK!
Mary
05 Aug 2009, 11:00
Has anyone looked into the information/studies done through The Arthritis
Trust - The Rheumatoid disease foundation at arthritistrust.org The results
really make you wonder what the right direction is. The meds we all have
been put on can be very damaging and have bad side effects to your system.
I would love for someone elses opinion who has actually researched the
protocal they have used..even someone like me just trying to help
themselves out of frustration. I have read all the case studies and
leaning toward it being worth it to get the outcome if it worked...I just
dont want to fall in to the hands of a quake...this study could have some
truth to it after reading others I really question it.
kate
26 Jul 2009, 08:04
I was diagnosed in march09 my father had RA my RA factor and CCP are very
high and I was feeling horrible. I cut out wheat, dairy, red meat and soy
through a comprehensive elimination diet. I feel so much better. I've
just started 10 mg mtx since I was afraid of joint damage. Diet has helped
80% but I want it to be 100%. People have asked me how can I be on such a
restrictive diet. I feel much more incontrol knowing that I can have a
positive inpact on my disease. My hope is that I can go off the Mtx within
a year.
Pim Collier
14 Jul 2009, 16:08
I was diagnosed w/ RA in April 2008 and I was heading down hill fast. Last
August (2008), I went to a medical doctor who practices natural medicine,
Dr. Asa Andrew, in Nashville (I am so blessed to be living in Nashville and
working down the street from his clinic). You can visit his website at
www.drasa.com - he also has a syndicated radio talk show. I recommend
reading his book "Empowering Your Health" and getting the "Foundational
Food Guide" which list the approved & unapproved foods for the
anti-inflammatory diet (this is good all and not just RA). I went through
his program at his clinic and changed my life. In this program, I went
through a series of detox, 70-panel blood test to determine deficiencies in
my body (which dictates the supplements I needed to bring my body back to
balance), and changed the foods I eat - stay away from: gluten, white &
processed flour, wheat, processed & fake sugar, dairy & soy as well as
processed foods and foods w/ additives. I believe Dr. Asa is opening
clinics in other cities and does long distance consultations.
According to Dr. Asa and many medical doctors, the root of most
inflammation starts in your gastrointestinal tract (most people don't know
there is an issue). I strongly urge you to read his books and start
changing what you put into your body – it would also help to do a liver &
colon cleanse. Nothing changes over night, but if you stick with it, it
does make a tremendous difference on how you feel.
I do not take any medication for my RA any more as of April 2009 and have
no RA symptoms. I went to see my RA doctor in June 2009 & he pronounced me
"in remission" & told me to come back only if I need to. My primary care
doctor thinks very highly of Dr. Asa and was thrilled to hear that I am
doing so well. I told him that this is the best I've ever felt...probably
since my early 20's (I am 39).
I wish you all the best. If you have any questions, please feel free to
e-mail me at pim_collier@yahoo.com.
donita
02 Jul 2009, 17:32
i have ra in my lungs rare i know but it happens i have tried many drugs to
try to stop the ra from growing and taking over my lung density i am on
oxygen 24/7 because my lungs aren't pumping enough to my other organs i
have recently started rutuxin therapy and it has helped my pain and
stiffness but it is so expensive (all the medicine i take for ra is) my
question is if ra goes into remission does that also mean ra will stop
growing in my lungs? my next question is there ways to get help with
prescription cost? if there is can i get the information please? thank you
donita
sonjia montgomery
28 May 2009, 23:23
I was diagnosed with RA April 08`.I have struggled with this disease for a
year.I was considering disability because I felt to awful to work.I started
on Methotrexate and Prednisone,then went to Hydrocloriquine and
Sulfasalidine(these may be mispelled)because of elavated liver enzymes.I
have gone off and on steroids for a year.I went to a different RA doctor I
had no swollen joints,when I went to his office.He took me off all RA
medicines,and gave me samples of Celebrex,Cymbalta 2 x 60mg per day,5mg. of
Prednisone.Also I said I have Fibromyalgia which goes hand in hand with
RA.Insurance Co. do not cover Celebrex,it is very $$$$$$$.So I am not
taking it either.I beleive I am in a remission.This is the first time in
over a year I have been able to function.Isure hope this lasts!!! Sonjia
Milan Darda
26 May 2009, 11:46
Hi!!
I am new member in the RA Family. Just few months back i was diagnosed with
RA and my first Allopathic Doc started with steroids (preduisolone 10 mg).
But my friends suggested me to consult a Rheumy, she started Etoxib 90 mg.
Now i m feeling better, but my left shoulder keeps on paining often.
I am 30 and after understanding the (side)effects i am really worried. I
tried Ayurved but in Vain, What should i do?? My wrist joints swells too
often.
pam
19 May 2009, 13:53
When i was 23 and told I had RH i was not to worried I took the meds had
the surgeries 60 and counting had my flare ups and very scary side effects
from many meds. Stopped taking meds walked 5 miles a day I was winning
this thing! I am now 46 am so ill and then find out my heart has been
damaged from this horrible monster. I never new about organ damage I know
now so all of you read and learn all you can so you are not like me with
one chronic illness that has generated another. The thing is with most
people with heart problems a change to there lie style will help turn
around damage or even stop it. Not with RH it is just as bad in destroying
organs as joints and there is no turning it off. So take care and keep
informed.
costantino Micallef
06 May 2009, 08:49
Male 71 In previous email forgot to ask.
Am member of Life Extension Foundation and they say that they have advised
countless 70 + men to adjust and balance their Testosterone to the upper
1/3 of the scale and estrogen to the lower 1/3 of the scale ie. youthful
parameters and often inflammation disappears. Also that one should use
natural testostorone cream not Penteston pill which can damage liver. Do
you hold these views.
Regards C. micallef - NZ
Nel
25 Apr 2009, 17:07
I've had this coming on for about 4 years..they still don't know for sure
which autoimmune disease it is...Was put on prednisone and
Metrotrexate..started at 40mg pred, but am down to 2 or I should say was
down to 2. Went to see my Rheumy Thursday and he said my sed rate was still
up in the 40's so I'm going up to 3mgpred..darn...just once in a while I
feel a bit better, but I don't think I've had many remissions, if any..They
think I may have Polymyagia Rheomatica..
I take coumadin also, so I'm so bruised that's it's pathitic..my hands and
lower legs..I have Afib, so have to be careful what I got to take for the
RA..Tylenol..is it.....good luck everyone....Nel
Sally
22 Apr 2009, 18:39
I was diagnosed with RA at 27 years old. I am 55 years old now. Over
the years I have been on many different prescription drugs. I started
taking biologics (first Enbrel and currently Humira) at least 10 years.
The biologics keep me in remission.
Remission IS possible and CAN last a long time (I'm talking years!)
Remission is what you and your Rheumatologist are working toward, so don't
ever give up. The journey sometimes can be difficult, but there are meds
out there that can work for your...some times it takes a combinations of
meds to achieve this. I just cannot "stress enough" the need to have a
good relationship with your Rheumatologist because you have to work as a
team to reach this goal. Remission is worth it! Good Luck!
Angela
19 Apr 2009, 19:43
RE: Patricia
I was diagnosed and started with MTX last year. I didn't have a fast
response to the drug, but my RA is bordering severe category. If you are
not experiencing some relief after 4 weeks, ask Doc to increase dose, I am
currently at 8 2.5xs a week, plus recently added Enbrel due to a flare
about a month ago.
Don't give up and insist your doctor look at other options. The meds can
take a while to work, so give them a fair shot, but always ask "Why, and
Why not?"!
Good Luck!
patricia gullage
16 Apr 2009, 09:21
I started to take methotrexate four weeks
ago and I am still in quite a bit of pain. I
am taking 2.5mg six pills every Saturday.
When do most people start to feel some kind of relieve or do I just need
for the doctor
to increase my dose. I am very discouraged.
zalikha ibrahim
20 Mar 2009, 00:53
i started taking combination therapy (MTX + arava)in january 2009. within 1
week after taking the medication, i experienced no more morning stiffness
also no tender joints. is that mean im in remission?
i was thinking to further my study, but afraid the pain will come back
during the time. how long does the remission last? what can i do to
maintain the period? what makes me confuse is, how am i going to arrange my
future which enables me to continue my study without pain?
catalina morvant
15 Mar 2009, 13:54
i've been in remission for during my pregnancy in 2005 . symptoms came
back 2 months after i had my baby.
started again with meprednizone and humira. had another remission that
last 6 months. last night i had an episode like when i just was diagnosed
with ra. unbearable pain in my right side. i immediately started w
humira, medrol that i have still at home . also took a mobic.
i had slight symptoms along the week -before last night-but i refused to
accept that it could be ra again.
how long does the remissions last? how could i extend that period? what
can i do to not reach this level of pain?
1. Ascorbic Acid- at least 1-2 Grams per day. Yes Grams. Vitamin C- Aka ascorbic acid was looked at by big pharma and was found to be almost miraculous in the treatment of a number of diseases. They attempted to get patent rights for it and were denied, no profit no more research. I have always felt that RA is an imbalance in my immune system, Ascorbic Acid helped restore that balance.
2. Boron- Here is the kicker you can only buy it in 3 mg capsules but You need at least 20 mg per day total taken in 3 doses, so stock up on the big bottle. Why does this work? Your immune system is in your gut/intestines. An imbalance in the fauna and flora sets up a dominoe effect to allow fungus such as candida albicans to take root in your intestinal walls causing leaky gut syndrome. This is how food allergies and reactions to specific stressor foods manifest themselves. Boron is one of the best "all natural" anti-fungals known to man. It makes you pee bright yellow but that is the only side effect other than killing unwanted fungus in your intestines.
3. Pro-biotics. Like I stated previously all of your immune system originates in your intestines, when you take care of the good bacteria in your gut, then your gut will start taking care of you. I recommend a pro-biotic that is of soil origin (will say on bottle)and more than one type. These types go after the bad guys in your intestines and stop the proliferation of the bad which gives your gut the time it needs to heal. If you don't take soil origin probiotics at least twice a day and You have RA then You are indeed a fool.
3. Reishi Mushroom extract- proven immune system modulator.Follow recommended dosage on the bottle. It helps your immune system rebalance itself.
4. If You have RA the foods you consume are no longer about what You like, thats what got you into this mess to begin with. When you have inflammation in your body from other than injury, its guaranteed you have inflammation in your intestines. Every time you think its "okay" to consume a stressor food (can be found on the net what they are) it is like adding fuel to the fire. Especially night shade family veggies, grains,and dairy. I know its hard to give these up. They used to be my favorites. But it is possible. Also Stay away from processed foods, chemical additives of any kind are not your friend including those that you wash with or that go on your skin. Stay away from commercially raised beef and stick to grass fed. Stay away from chicken and stick to turkey without additives (shady brook brand)Did you know they were putting arsenic into the chicken feed and hence it could be found in the meat? Find a recipe for bread made with brown rice flour, no potato starches or oils other than coconut. Stay away from soy bean oils (check your supplements) so many of them are GMO you cannot trust the source anymore and GMO food will send You into flare quicker than anything I know of.
5. I found a rhuematologist who put me on minocycline and that is what I prefer because it isn't as toxic as other drugs. I started out on 100mg 2x a day with the above regimen until I went into remission then I cut back to 100mg 1x per day until in remission for more than 2 weeks then cut back to 100mg 1x per day on Mon, Wed, and Friday. (see Dr. Mercolas web-site for the Mon,wed,Fri regimen)Rhuematologists are hard to find that use minocycline or that you can convince to prescribe it to you alone,I personally have to travel 120 miles for appointments but here I sit in remission, joints healing up, no swelling anywhere. I honestly don't know if this regimen will work for those on the more toxic drugs but I believe you have everything to gain. If You don't take any other supplements at all the Ascorbic Acid, Boron and Pro-biotics are the most beneficial. others that I take are":Glucosamine chondroiton with MSM
magnesium 500 2x a day
potassium 1gram 1x a day
selenium 1x a day
zinc 1x a day.
N-acetyl cysteine-builds up your glutathione levels. something found lacking in all with arthritis of any kind.
Boron can be increased up to 30mg perday if symptoms are stubborn.
It took me 2 months on this regimen to go into remission. It is a wonderful thing to be able to say that word "remission" without the fear of going into flare-up tommorow and I am not there yet. I will say the only other thing I would attempt to do is relieve as much stress and anger in your life as possible and make sure you have a strong personal relationship with God and Your family. If you don't have faith you can beat this disease from running your life, then you won't.
I sit here symptom free and grateful that I am. If anything I have learned compassion for others who suffer from RA and other debilitating diseases and that is my only motivation for posting this. I pray that one day they will have a cure available and these type of diseases can be treated with something which works quickly and effectively but until the pharmacutical industry is more cure driven than profit driven I really dont see that happening. I hope for the best for you. I think you are going to see the ascorbic acid/boron and probiotics being used more in the treatment of this disease as more is learned about it.
I had to stop biologicals last summer (2011), when I developed multiple infections that wouldn't go away with antibiotics. But over time, my skin thinned out and I've noticed wounds won't heal fast enough.
Until last summer, I’d been on biologicals (since trials for Enbrel began in 1996, with some breaks to try other (like holistic) approaches.
Just as a warning perhaps, I say this. My RA began when I went to an allergist. I was 39. Trying to find the source of my allergies, my back was injected with dozens of allergens (and turns out I was allergic to all the things that make life worth living--from coffee to all the ingredients of cheesecake, so I went on a macrobiotic diet). After that first cocktail injection, my hands swelled up. The allergist thought it was a bad reaction to the injection and prescribed Benadryl. The swelling persisted and I was finally diagnosed with RA. Doctors won't admit a cause and effect here, but I believe those allergy injections brough out my RA.
Back in 1996, the pain and swelling in my hands was so bad, I was ready to quit my job and move from Florida to Alabama just to enroll in the only Enbrel drug trial available at that time. I was lucky that soon after, Enbrel began drug trials an hour away. Enbrel was a miracle. I went into remission for the next seven years, until it stopped working. Since then, I've been on other biologicals and most have worked well.
I always heard of infections and never had a problem (except for my skin thinning, dry eyes and wounds not healing fast enough) until last summer. That’s when I came down with unrelated sinus, ear and eye infections. They wouldn’t go away after the first round of antibiotics for each one. I stopped the biological meds and have been on remission for the most part ever since then. No infections, no pain, nothing, until a couple of weeks ago. The RA is slowly coming back. I'm currently taking Celebrex for a couple of swollen joints, but it doesn't do enough. I fear I'll have to go back to the biologicals. I'm not looking forward to it.
And so, back to the biologicals. I'm in my mid fifties now. I fear long term use of biologicals has caused (at lease in part) my thinning skin. I see other women my age and their skin is not as thin and transparent as mine. My case is more severe than normal, people comment. My reumathologist shrugs. My dermatologist gives me samples of moisturizers and sends me on my way. However, after minor surgery, the wound took a long time to heal. The surgeon blamed the biological. He also thought it caused my thinning skin.
I wonder if there are others out there with severe thinning skin (and cuts that take a while to heal) who'd been on biologicals for a long time like me. Also, has anyone suffered multiple infections and had to stop the biologicals and if so, how long did the remission last? Thanks.
In January of this year I started on a gluten free diet at the suggestion of my gyn doc who has had RA remission of a young patient by change of diet. He feels that anyone with RA needs to go Gluten free and possibly lactose free........... also, recommended that I read, "The Paleo Solution".
Have been on a Testosterone Cypionate/Testosterone Propionate/Estradiol injections every ten days for treatment of my severe osteoporosis since November of 2007. Fosamax did not have any positive affect on my bone loss and caused a painful irritation of the cardiac valve (at the gastroesophageal junction). The first year on Testosterone injections I gained 7% bone mass and it has gradually impoved my bone density numbers until, at this time, I have numbers that reflect osteopenia.
Am on probiotics daily (since the diverticulitis episode) and take fish oil daily.
Wanted the entire "picture" represented in case it was of interest/assistance to anyone.
I suffered my second bout of diverticulitis in May. It did not respond to antibiotics...I was on Flagyl 500mg and Cipro 500mg twice daily for 10 days and then Augmentin 875mg twice daily for 14 days. Finally was hospitalized and given a regimen of three IV antibiotics for four days....and developed C. diff infection (a horribly painful intestinal infection with colitis). Finally, was seen by an infectious disease specialist who gave me Augmentin 875 mg. twice daily and Vancomycin four times daily. I was on the Vanco for three weeks. Had contacted my rheumatologist the first week of June and he gave me a a two week period off my Methotrexate and Folic acid.
The Infectious Disease doc contacted the rheumatologist and asked that the methotrexate be discontinued. It was.
So, to date (August 30, 2011) I have been off all my RA meds completely and have had no problems.
During this time without methotrexate I had a sigmoid colon resection to get rid of my diverticula. My healing has been great. My surgeon decided to go ahead with the surgery so that if I have to go on heavier RA drugs in the future I won't have the diviticulitis to contend with.
Here's hoping, guys and gals!
Judy
i have suffered from ra and oa for almost
3 decades my latest doctor just told me i
came to see him too late he will not be able to cure or help me.
can you help?
thanks
g
FULL CATASTROPHY LIVING - Jon Kabat Zin
My RA came on after the death of my mother and several other life stress factors, divorce, only child going to college, all around the same time. My maternal grandfather was very deformed by RA, so there was a gentic factor also. So I knew immediately when the RA came on, to test and treat.
After ten years of methotrexate, prednisone, soma, norco, and the various biologic drugs as they came on the market, I went for psychotherapy where the counselor gave me a book that, when practiced, continually reduced my RA symptoms.
A year and a half of practicing with this book, and on and off with the psychotherapist, has left me RA pain free.
The hardest part was no longer taking the pain medication. But I had had a problem with alcohol too, so that would make sense.
I hope this small post allows someone else to discover the book: Full Catastrophy Living. I got my life back.
Good Journey,
laurenrae@goldrush.net
i wish i could come off of everything pain every day
Gym and had fun gradually increasing my workouts, some with a trainer. Just saw my Rheum. who ordered me off that kind of exercise and said pool work only. I am very discouraged as I'd paid 2 years at the gym. Now my Fibro acts up badly - much pain - as I haven't yet found the pool I can work out in. I guess I have started to deform and my CRP is up, I'd had to go off Arava due to a sinus infections, and the gas from it was so horrible, I requested another option. So, now I am on Azulfadine (sulfasalicylate), but no pain relief yet. This is so rough. My Dr. poo pooed my natural approach with the Life Extension RA protocol supplements. I had felt they relieved my pain, yet damage was going on. This is so confusing. Help.
I am about your age and have had RA for about the same amount of time, otherwise good health and am also looking for alternative methods of care.
I was impressed by your improvement with alternative health care. Could you please tell me what you are using, in the form of herbs or vitamins?
I have now developed osteoporosis, aggrivated by prednisone use and have had to start treatment for it also. I'm determined to quit the prednisone to save my bones.
Any help or comments are welcome.
God bless
I was recently diagnosed as well & my doc didnt give me any options other than methotrexate or being crippled. I only have pain in my fingers & wrists and I felt it was only a flare up. I have been doing so much research & cannot find anyone with a similar situation so I have changed my diet & balanced my hormones in order to get my immune system strong & healthy in hopes that I will beat this thing. Reading your post just gave me the most hope Ive had in weeks! Thank you!
I have noticed that when I have fasted the pain goes away. There has got to be a diet connection to this, so I have started to explore what foods need to be eliminated in order to feel better.
I started reading on changing diet and exercise. I started practicing yoga 2x weekly and pilates 2x weekly. Then I decided to work on my diet. I started reading all these articles about all the crap that is in our meats and dairy and the thought occurred to me that maybe my immune system was attacking my body because of the things I was eating. I first cut out soda and beef. I started to feel better and decided to continue by cutting out chicken and pork. I stopped having pain and swelling. I stopped taking the meds and stopped seeing the doc that recommened them. I have since been in remission and continued to cut out white flour and sugar. I use soy, but I might start cutting back because I have heard that it is better to use it in moderation. I am seeing a new doctor, but he told me that I am doing so well that he doesn't believe that I need any meds and to keep doing whatever it is that I'm doing. I am so blessed to be in remission. I am only 26 and I feel like I have my life back. I cannot tell you how wonderful it is. For all of the people who suffer, I understandwhat you're going through and I just want to encourage you to look into other methods of control for your pain. Exercises that strenghten and stretch with low impact are great, changing your diet can have an amazing influence, and above all please trust yourself and what you feel is right for you. I'm not saying stop all your meds right now, I'm just saying that you should consider all your options and see what works for you. I am still actively looking for ways to keep my RA in remission and I learn new things about nutrition and staying healthy all the time. Keep your eyes open and have faith and hope. There will one day be a cure for this disease and we will know the cause of it.
Has anybody been turned down for LTC Insurance in a similar circumstance?
A note to others...my Doc could have responded to Insurance company query by stating that I had "arthritis"-that had a blood test result of "negative" for RA. Had he handled it that way I probably would have been approved (so please make sure you discuss in advance with your Docs when you are applying for insurances so that factual information that helps your case is provided instead of factual info that hurts your case.
I'd appreciate comments on any of the above.
God Bless everyone1
Does anyone have a "DMARDS & Biologic Agents Cocktail" that they have found effective. My goal of course is complete remission.
In Feb 2010 i had emergency surgery for obstructed bowel & was taken off ALL meds & no food/drink for 4 weeks. I didn't have any flare ups or symptoms. It was amazing. The RA didn't return until April, and it hit me like a semi truck!!
I now wait...but can't help but think that fasting helps in some way.
thanks,
perry
During this time I did not take even one painkiller or supplement of any type. I just dont seem to have the emotional resources to do this again. I still do not eat meat or chicken, but am now on so much medication that I feel like I rattle. I am diagnosed with RA, Fibromyalgia, Chronic Myafascia Pain Syndrome and Astma.
Good luck to you all
http://www.vedantatree.com/2010/02/treatment-for-rheumatoid-arthritis.html
It may help others.
Diwakar
I have had no symptoms since I was about 15. When I turned 18 my rheumatologist said at that point with no symptoms, I was in remission and only needed to see a rheumatologist again if it ever started to bother me again. Just turned 40 and still haven't been back to a rheumatologist - so remission does happen!
I do not suffer from RA, but am very close to someone who does, so I know how awful the suffering can be. We also do not have very good insurance, but I've learned that the makers of Enbrel can offer assistance to those who cannot afford it (and if you are not independently wealthy and/or do not possess excellent insurance, you cannot afford Enbrel - that is for sure).
We have not yet contacted Amgen/Wyeth (the makers of Enbrel) but we are about to. The assistance information is here:
http://www.amgen.com/citizenship/encourage_about_amgen_wyeth.html
If the proprietors of this site would please forward this message to Karla, that would be greatly appreciated.
Thank you.
It took a long time for me to accept the reality of having RA and having an incurable disease. I did wrong choices on finding the treatment. Now, luckily I have a good RA doctor and I try to work with him. Eating healthy is important. Exercise is a must. Since I got RA, I practice Tai Chi daily and follow a wonderful teacher all those years. It helps me tremendously.
I was prescribed Enbrel last fall and it worked wonder right away. My worry is how long the Enbrel will last. My doctor said that sometime the body will reject the med after certain years, and the med won't work. Then you have to try another kind. I used to ask often...why me?! When I read other people's suffering stories, I could totally feel it - I went through hell (if you didn't go through this that you could not understand the pain) and I am glad for now, I feel OK. All I could say is don't give up, rest well (good night rest is essential) and eat well and try to find happy thought while in misery.
i have been thru it all and taken all there is to take.obvious;y by now i have irreversible joint damage and take prednisone, leflumonide,painkillers .
i just wonder is tehre any hope for a remision for a case such as mine?
i am now 29 yeras old and hoping to have a baby soon.
i need to keep informed and know if it is possible for me
According to Dr. Asa and many medical doctors, the root of most inflammation starts in your gastrointestinal tract (most people don't know there is an issue). I strongly urge you to read his books and start changing what you put into your body – it would also help to do a liver & colon cleanse. Nothing changes over night, but if you stick with it, it does make a tremendous difference on how you feel.
I do not take any medication for my RA any more as of April 2009 and have no RA symptoms. I went to see my RA doctor in June 2009 & he pronounced me "in remission" & told me to come back only if I need to. My primary care doctor thinks very highly of Dr. Asa and was thrilled to hear that I am doing so well. I told him that this is the best I've ever felt...probably since my early 20's (I am 39).
I wish you all the best. If you have any questions, please feel free to e-mail me at pim_collier@yahoo.com.
I am new member in the RA Family. Just few months back i was diagnosed with RA and my first Allopathic Doc started with steroids (preduisolone 10 mg). But my friends suggested me to consult a Rheumy, she started Etoxib 90 mg. Now i m feeling better, but my left shoulder keeps on paining often.
I am 30 and after understanding the (side)effects i am really worried. I tried Ayurved but in Vain, What should i do?? My wrist joints swells too often.
Am member of Life Extension Foundation and they say that they have advised countless 70 + men to adjust and balance their Testosterone to the upper 1/3 of the scale and estrogen to the lower 1/3 of the scale ie. youthful parameters and often inflammation disappears. Also that one should use natural testostorone cream not Penteston pill which can damage liver. Do you hold these views.
Regards C. micallef - NZ
I take coumadin also, so I'm so bruised that's it's pathitic..my hands and lower legs..I have Afib, so have to be careful what I got to take for the RA..Tylenol..is it.....good luck everyone....Nel
Remission IS possible and CAN last a long time (I'm talking years!) Remission is what you and your Rheumatologist are working toward, so don't ever give up. The journey sometimes can be difficult, but there are meds out there that can work for your...some times it takes a combinations of meds to achieve this. I just cannot "stress enough" the need to have a good relationship with your Rheumatologist because you have to work as a team to reach this goal. Remission is worth it! Good Luck!
I was diagnosed and started with MTX last year. I didn't have a fast response to the drug, but my RA is bordering severe category. If you are not experiencing some relief after 4 weeks, ask Doc to increase dose, I am currently at 8 2.5xs a week, plus recently added Enbrel due to a flare about a month ago.
Don't give up and insist your doctor look at other options. The meds can take a while to work, so give them a fair shot, but always ask "Why, and Why not?"!
Good Luck!
ago and I am still in quite a bit of pain. I
am taking 2.5mg six pills every Saturday.
When do most people start to feel some kind of relieve or do I just need for the doctor
to increase my dose. I am very discouraged.
i was thinking to further my study, but afraid the pain will come back during the time. how long does the remission last? what can i do to maintain the period? what makes me confuse is, how am i going to arrange my future which enables me to continue my study without pain?
started again with meprednizone and humira. had another remission that last 6 months. last night i had an episode like when i just was diagnosed with ra. unbearable pain in my right side. i immediately started w humira, medrol that i have still at home . also took a mobic.
i had slight symptoms along the week -before last night-but i refused to accept that it could be ra again.
how long does the remissions last? how could i extend that period? what can i do to not reach this level of pain?
Leave a Comment