New Rheumatoid Arthritis Drug
By Denise Mann
10/27/08 When taken with methotrexate, a new pill that blocks an inflammatory protein called syk kinase may be another weapon in the ongoing war against rheumatoid arthritis (RA), finds new research presented at the American College of....
I am down and in pain and have not found any relief! So many drugs and nothing works. I have lost my family members to this awful chronic diease!
I am alone in this diease and when these web sites talk as if everything is going to be o.k. it is not! Forgiven me for my negative posting but let's get real....
Arthritis Health Associates in Syracuse, NY. This is the best group of doctors, nurses and support staff anywhere. They are consumate professionals on every level.I wish I didn't have to deal with this depressing condition but it makes it a little more bearable when you know your getting the best treatment available from the best people.
Angioplasty has proved to be a boon for patients suffering from heart diseases in the last 2-3 decades. It is efficient, economical, time-saving and involves less fuss. But in spite of that, there are a few side-effects of angioplasty as well. Let’s have a look at what could be the possible risks involved in and how to overcome them.
As far as meds, I take nothing. My sister had scleroderma; the extreme meds they had her take eventually caused her death. An innocuous-looking fever blister turned into a brain infection, she suffered bouts of shingles and other maladies due to the drugs suppressing her immune system.
I have chosen not to go this route, I need to stay healthy. I chose diet and exercise to help with the pain and depression.
Whatever I have has begun to affect my eyes ("floaters" in my field of vision and uveitis), but again, I am choosing not to medicate.
I am not sure what will happen over the next few years. The pain gets pretty bad at times, (especially if I am stressed and/or the weather is cold and damp), so before I go to bed, I take two Advil or Motrin and lay on a heating pad.
Rigel's drug and many others are discussed here...
http://earningsview.blogspot.com/2010/12/new-drugs-in-development-for-rheum atoid.html
Last year, I was in excurciating pain, on a walker, in a wheelchair, and ended up having to having a hip and knee replacement! At that time, the Doc. changed my meds. DUH??? yes, my fault, for not changing doc's! I am now doing the Ebrel injections (10 mo. now) along with taking Plaquinel. Together they are working GREAT!!!! The only pain I have is when it is cold and rainy.
Everyone is different. I pray you will find the right combination for your RA! God Bless you. Oh, my hair is still falling out, and I do get exhausted. :(
Thanks,
RJ
i have been diognosed with ra about 8 months ago. My doctor gave me a script of PIROIXAM for it and recomended me to see a specialest in wanatche wa which is about 200 mile from where i live. I asked my doctor if he could find someone closer and he said that medicade in washington state wont do it. I need to see someone about it because the problems are getting worse and i cant see no one about it because the only doctor that i am allowed to see is too far away and i cant take that long of a trip because of the ra and other problems. I've been searching for help from any one who will listen to me. i am running out of options. please respond asap. I live in the mid valley of yakima county. thank you. Nancy tobin
One cold night last year,my right knee was in such a extreme pain that I tried keeping it warm and comfortable, so I could go to sleep. The pain got worse,so I decided to reverse the warm nice treatment; I applied ice to the knee and the frozen knee hurt as if it was broken,but suddenly,I fell asleep and the following morning felt much better.
I believe that my pain has a mean level of tolerance, but to quickly ease my flare ups, I fight back utilizing Frozen packs.
good luck
Some treatments helped, some did nothing, some I actually got worse. I have been taking enbrel injections since 2001, that with pain meds and vitamins and supplements has kept me going me off and on through the years.
I take cortisol for the low adrenal function, westthroid for hypothyroid and bio-identical hormones.
Today I am having morning stiffness and pain, swelling and heat in various joints. Even my new knee, got my first surgery with right knee replacement last June.
In April I somhow ended up with an infection/inflammation/pain in my stomach which landed me in the hosptial for 3 days on I.V. antibiotics. So,I am wondering now if this is what has stirred up this flare-up like I have not had in many years???
Maybe R.A. does have an infection component as many have said for years. Maybe some of the bacteria was killed off and this is a die off reaction.
Since when I was a young teenager I had infections in my gums and lost front 4 upper and lower teeth I have always wondered if that isn't where this all started.
God I wished I knew. But God bless all who suffer. I am humbled by reading all of these posts, many so young and so many sufferring. I praise God we have what we have and I pray for a cure for this very painful conditon. Keep the faith and never give up, I know it is a difficult path but hopefully someday we will know what it feels like to live without pain and restrictions. God Bless You All!
I've been told by my rheumatologist's nurse that this experimental drug has been approved by the FDA but I have not seen anything about this drug anywhere.
I am so thankful that the 24/hr a day pain has been aleviated. I hope this drug comes out soon (I take it once a month by infusion) so all of you who suffer pain from this debilitating disease get the relief that I now have.
take mehrextrate 2.5 mg x 8 every friday,folicacid 2 a day ibuprofen,nexium,vitamin b-12 my most pain is in hands,wrist,knees,feet, and neck some days are good worst time is first thing in the morniings and i also take 2 injections a week of enbrel pain every day
age 27. I work 40 hours a week and have had
to give up bowling, and a few things I like
to do, but I am fighting this disease. It is
a disease and I have to live with it, but I
try to stay positive. Stress, worry and
sad feelings all increase it and give it life. I am 62 years now. I take Enbrel weekly, which was a life saver. Some day I
pray it will disappear as quick as it started. It is a hideous disease, robbing a
person of their vitality, energy and bones.
Keep fighting. Some one will find a cure.
My husband is suffering from RA from past 1 year. He is taking SAZ and Nucoxia daily. His eyes were affected but he recoverd that stage safely, but now his right leg knee in swollen heavily and his feet also.. He cant walk properly... Apart from doctors suggestion we would like to know if someone knows any other remedy that could relive some pain ...
Thanks
Kamalika
I have not been on any kind of anti inflamatory since my attacks I took viox and the doctors believe that is what contributed to my first heart attack. The second was because the stints were to small for the artery in which they were placed. My RA is full blown and I am dealing with a lot of pain is there any thing I can take that is safe for my heart.
The Humira (an ethical treatmemnt) only worked a few months. My body won't tolerate the the Methotrexate --now I have a liver problem! I will not take the RA meds,that are derived form Aborted fetal cells! A dooctor lied to me or didn't know it when I asked about where the cells came from! I found I a site online that has a chart of ethical and unethical injections and immunizations. You would be amazed!
I am looking for natural means to get over this toxic congition!
As for the HAIR LOSS, Biotin is supposed to help that condition--- a high amount can be taken daily!
My wife is suffering from severe RA. She likes to know any new drug is available now in the market for RA so that she can be relieved of pain. Another point which I would like to mention here is that Meditation, for at least 20 minutes, daily gives a lot of relief.
A neurologist gave me this suggestion for RA flareups and/or neuralgia. It really does work. (Don't use on an open wound.) It's practically free and you can avoid taking more medication when you have a flareup. Put about 10 aspirin in a small container and just cover with warm to hot water. When aspirin has dissolved completely, add hand lotion (I use Vaseline Intensive Care or unscented Aveeno)and stir until it reaches a consistency of thick cream. Spread thinly on hot, inflamed, painful areas (wrists, knees, etc.) Repeat after i/2 to one hour if needed. Keep mixture covered and stir each time you use it.
not taken it in about a month, I have not had
any problems in fact I feel better without
the shots. I don't know if this is going to
have some effect on me later.
I just had my 18th surgery June 23 09 I had a total knee replacement and am struggling with recovery. They then had to munipulate under anestesia in sept. I go to therapy 5 days a week 3 hours a day.. I have been on disability since June and now my job benefits run out as of November and have to return to work.. I now been having severe hip pain so I went to the Dr. he mentions I have avascular nacrosis where the hips don't get enough blood supply then the tissue and bone dies I will become paralyzed from the waist down if I dont get my hips replaced and at 26 replaceing my body parts isn't exactly what I want to do. I'm in a new marraige and im sure it takes a tole on my wife. although she very supportive, but its just hard because we dont go out as we use to my friends start doing there own thing singling me out because they do things I can't par take..Its sad when you see friends drift away, thats what should make us apprieciate our spouse. I know we can relate on here. we are all going thru tough times.. but by writing on this you never know who you will inspire! Its hard when you go from having alot and being able to do so much to almost losing everything and almost being able to do nothing.. I feel like im going backwards! But trust me people we have to stay as possitive as possible and believe me I know its hard! Its funny because Im sure you've heard "oh it could be worse theres people out there that are really bad or have cancer or whatever" and you feel like your being selfish because in your mind you dont care what anyone else has or going through. all you know is the pain you suffer from! Anyways Even though its hard! try to smile thru the pain keep possitive and know that there will be a better day! Take your meds, excercise,use heating pads, ice, go for a soft relaxing massage whatever it takes to help you get thru the day! talk to your Dr about everything. dont hold anything back get second opinions make smart decisions. work hard!. the funny thing is us with problems work harder then people without problems its like we have to prove something to ourselves! or you know those people on welfare that dont need it but get it anyways rather then those who really need it!! I just lost medicade that I had since I was 3 because I got married isnt that something? they combined your income well NJ does anyways.. oh well
ENJOY LIFE GOD BLESS!
Since I started the injection I had a noticeble improvment, but yet months later I am still in pain,and my quality of life is not that great.
It is very sad that in the year 2009 there is no cure for this condiction.
Anyway my toughs goes to everyone that does not have an insurance willing to pay for the medication or even worse insurance at all.
So I may suggest somenting that brought me some relif: Boswellia serrata (aryuvetic medicine),Tumeric (both for the inflammation) and as probably many knows the combination of glucosamine 1500 mg, chondroitin mg and msm 500mg. that it worked for me for a wile pretty good.
I hope to have been helpfull.
Meanwile i was wondering if anyone have some tips for the hair loss that I am experiencing wile taking metotraxate.
Something natural pheraps?
God bless
i have R.a now for five years i'm 53 now , and sometimes my pain comes and last for two weeks i have heard about this new drug , i;m very interested in trying it if you know of a study in the ohio area please contact me , i would love to try to help all of the 1.3 million others with this desease, to live a better life, thanks tony
I can withstand most off the painful joints, but the only one that brings me down, is when it is in both of my jaw joints, that is very bad, but I thank my God, it only lasts for about 5/6 days.
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