Unlike diabetes or kidney disease, rheumatoid arthritis (RA) cannot be diagnosed with a simple blood test. Instead, the diagnosis often takes time and is based largely on what the doctor hears from....
Victor Ruiz
28 Apr 2012, 00:27
Please advice a have read all these comments,going through the same problem
being diagnose bloodwork positive for ra then see a specialist for ra and
same blood work comes back negative they request 3rd bloodwork comes back
negative and problem still hurting joints likes thiers no tomorrow!!!!! in
lots of pain.
Janette
08 Feb 2012, 10:57
Like Catherine, above, I have been diagnosed with RA, twice, presenting the
RA factor through blood testing. After visiting a RA Specialist,
subsequent bloodwork came back as "normal," but my PMC is adamant that I
have RA. My symptoms are consistent with his diagnosis - how do I resolve
this, and what does it mean if more in-depth bloodwork comes back as
"normal"
Teresa
18 Dec 2011, 09:42
I think A lot of Rheumys have NO clue what they are doing. Just because
there is little or no swelling doesn't mean you are cured. They tell you
that the pain you are felling is not RA pain when you know it is. I want to
find a rheumy that has RA! The thing everybody needs to know is there is NO
typical RA symptoms. Everyone is different.
idris
10 Aug 2011, 06:20
I developed this pain after coming from One month Annual leave at my work
place in may 2010. I resumed joined football colleagues on the field, when
the pain started and I consulted a Doctor when the pain was unbearable for
me. After Doctor's prescribtion of some drugs, the pain reduces and started
again after the use of the Drugs. The pain persisted for some month and
reduce some few days but whenever I stretches in the morning I feel muscle
pullon my right leg and stiffness on my Toes. I also feel Pain on my right
shoulder down to my Alm. Could this be Arthritis and what do I do to reduce
the muscle pull, stiffness on my leg the pain on my Alm?
sumbal
02 Aug 2011, 11:52
I am 39 years old. My problem started in 2006. I was diagnosed with
Calcalneous Spur in right foot. With time and anti inflimatory it improved.
Last two years were terrible. My problem started hip pain in my left pelvic
bone and shoulder. My Dr. Advised me Vitamin D capsules after a blood test.
After the course I was absoutely fine. Since last 2 months I hv pain in my
left ankle and my right shoulder. I cannot lift my arm to comb hair. Is it
Rheumatoid Arthritis? I am living in Nigeria where the weather is hot and
humid and we stay in Airconditioner usually. Plz. Help me and advise what
can I do?
Shyenne
28 Jun 2011, 05:08
I also have the R.A. symptoms, but no anti-bodies. My joints damage in
pairs, from left to right. They get a burning (and painful) sensation, when
I use them (ice helps). My joints are riddled with bone spurs. I was
wondering: is it possible to have R.A. with out the ant-bodies? Is it
possible to have both R.A. and Osteoarthritis?
I remember doctors (years ago) casually mentioning that I had arthritus
here and there, but never offering a treatment. I thought that everyone got
it and had to just live with it . I currently, don't have a doctor. Mine
quit accepting my insurance. They are few and far between. Hope to find one
soon.
In the mean time; I'm trying the gluten an sugar-free diet... Also, lot's
o' supplements.
...Sheyenne
Jeanette
11 Mar 2011, 12:22
Note to Angela above and all others - I have always been a go-getter and
tackled everything with plenty of energy. I have suffered since an episode
in Jul2008,a high fever,high white blood cell count, diagnosed as
Polymyalgia Rhemantica, (I had had 5 abdominal surgeries in 06 and 07 and a
large mesh inserted) I was put on steriods, I have terrible spells of
weakness,I can hardly move and everything hurts. I have not yet been
diag.with RA but it is now suspected.Fingers hurt and swollen. Pain all
over in shoulders, back hips, terrible weakness and weird sensations in
legs - almost like electrical flow off and on. I understand you. Blood
work being done for me and maybe a referral to a RA specialist. I have
solved some of my problem to some extent with my doctor's cooperation. (I
experimented) At night I take 50 MG Lyrica,150 MG Wellbutrin XL, 7.5
Hydrocodon Acetaminoph 500, AND Anbien CR. (I cannot tolerate these during
the day except the Hydro and I have to take it 4 times a day for the pain)
Doing this routine at night before bed - I can wake up easily without much
pain and handle my 24 hour responsibilty of taking care of my Mom -she is
an invalid with Alz. For the first time in 3 yrs I feel there may be hope.
I am sure all this medication is not good but for now it works for me.
Cases like ours puzzle us as well as our doctors. I hope they find answers
soon for all of us in situations such as we have. It can ruin your life if
answers are not found soon for this terrible whatever it is. We are not
crazy nor lazy nor making up things. Doctors must understand that when we
complain of all this it is not made up.
Claudia Robinson
07 Mar 2011, 05:49
Goeie dag
My broer is baie lank terug gediagnoseer met rimuiede artritis en het albei
sy bene al verloor in die proses omrede sy are verkalk. Hy is so pas in sy
arm ook ge-opereer met vergroeisels wat by sy pols uitgekom het. Die
dokters het die vergroeisels uitgesny en toetse gedoen om vas te stel wat
dit is en wat dit veroorsaak.. My probleem is, ek is die afgelope paar
maande permanent moeg en het pyn in my gewrigte oral in my lyf. My voete
en bene pyn verskriklik deur die dag en as ek gaan le in die aand. Ek is
bekommerd dat ek dalk dieselfde siekte as my broer mag he. Watse toetse
sal u voorstel wat gedoen moet word om vas te stel dat ek dit ook het of
nie. Ek het ook pyn agter in my blad aan albei kante van my rug. Ook as
ek diep asem haal. My hande, vingers, voete, kniee, en tone se gewrigte is
baie seer elke dag
Baie dankid
Janet
25 Feb 2011, 14:37
I got in to see a rheumatologist after making an appointment 5 months ago.
He said he thinks I have OA but I am concerned he didn't listen closely
enough to what I was saying. My knees have been bad for years but about 9
months ago, many other joints symmetrically on both sides of my body began
hurting. Both hands, wrists, knees, ankles, elbows and toes. But he said
I don't have red, swollen joints so he doesn't suspect RA. Which, I think,
is good. But I also am extremely stiff and sore in the morning for at
least 30 minutes to an hour and if I am sedentary during the day, the same
thing happens. he did do blood/urine tests today so we'll see what that
reveals but I am just concerned that every joint pain has a "twin" on the
other side of my body and most info on osteoarthritis say it is more common
in one joint at a time. Has this happened to anyone out there? I have
also heard you can have RA and not test for antibodies (early in disease).
I have an appointment with a second rheumatologist next month that I will
keep for now unless I start to feel better on Voltaren and Omega 3. Thanks
all!
mary
26 Jan 2011, 22:30
The immune system is going overtime and attacking what it should not. GET
OFF OF GLUTEN, SUGAR, AND ALL NIGHTSHADE. TAKE CHARGE OF YOUR LIFE,
RESEARCE. LOOK AT DOING YOGA STRETCHES, WALKING, AND PUT LESS STRESS ON
YOUR BODY SUCH AS LIFTING ANYTHING OVER 3 TO 5 LBS. The meds had worse
secondary effects on my body so I avoid prescriptions and us herbal and
holistic. Go to Mercola.com and other sites for some ideas on fish oil. Go
as unprocessed as possible with your diets. Some fruit, lots of
vegetables, and alaskan fish.
It has helped me so good luck. One day I just got really mad at the
medical practice and that was the best thing I could have done.
Lesley Johnson
03 Jan 2011, 14:57
This is a response to Clare from Nov 16, 2010. I only have one
recommendation. Fish Oils and a Joint Health Complex with glucosamine and
cats claw. Shaklee has a really good one and my friend takes it for his
knees. He had knee replacement surgery adn nothing was helping with pain
post surgery. He said this helps though. It's supposed to rebuild
cartilege. You can order it online. I take a double dose of pharmacuetical
grade fish oils daily for my inflammation. Really helps with the burning
fire pain. Lesley
holly
29 Dec 2010, 01:07
i know i have oa and ra but when i take so long for these know it all drs.
to diagnoise me i'am going thru a lot of pain and i even have one dr.
working against me and i have not insurance and don't know what to do
wouldn't be nice if oprah or 20/2o or 48 hrs. could brings some attention
to how these lazy dr. don't really feel for anyone in this much pain.
Clare
16 Nov 2010, 06:36
hi can someone please help,i have had surgery to both my knees every year
for the the last 9 years,due to my cartilidge wearing away.im in pain
consantly and they burn and flare up.i have weakness and pain in my wrist
and my fingers are slightly closing,i also have a tennis elbow....would be
very gratefull if someone can give me some advice has im not getting
anywhere....thankyou
Cindi McCurry
27 Oct 2010, 18:15
This email is for Julie Aionaaka. Julie, before I was diagnosed I could not
even get out of bed. My R.A. came on suddenly and with a vengence. My
husband had to put pillows under every part of my body because it hurt to
lay down but the fatigue was so great I could not get up. I am so sorry you
have been on the doctor merry-go-round and for such a long time.
I am a little disappointed in this article when it says R.A. cannot be
diagnosed with a blood test. Blood work will be the first thing your
Rheumatologist will do at your Nov. 15th appt. R.A. is an autoimmune
disorder. If you have an autoimmune disorder you will have antibodies that
will show up in the blood tests. Then it will take a full exam to see if it
is R.A.,or Osteoarthritis, Scleroderma which is inflamation of the muscles
and also involves hardening of the skin, or Fibromalgia etc.
If the doctor that told you that you had R.A. has already done the labs and
you have an autoimmune disorder you might ask him to start you out on
Prednisone. Not only will it take care of the swelling and pain but it will
also help with fatigue. If the doctor that diagnosed you will not prescribe
the Prednisone call the Rheumatologist's office and ask to speak to the
nurse. Tell her the amount of pain your in and ask for suggestions such as
applying ice or heat or wearing the gloves that people with carpel tunnel
wear. The chances of them prescribing any medication before seeing you are
probably very slim.
When seeing a new specialist I always ask to be put on a wait list so if
they have a cancellation I can get in sooner. If they don't have a wait
list then check each morning to see if they have had any cancellations.
Also be sure that you have all your records from every doctor that has
treated you over the past 5 years, along with all surgeries and a current
list of all meds, doses and # of times taken a day.
I will be praying for you, Julie. I know how painful R.A. is. When I went
to my Rheumatologist I had antibodies for R.A., Scleroderma and along with
the antibodies I had some sort of marker for Primary Bilary Cirrhosis. A
liver biopsy ruled out the P.B.C. and as time went on and symptoms
manifested I was finally diagonsed with R.A.
and Scleroderma. I remember how scared I was and how much pain I was in but
the Lord blessed me with the most incredible Rheumatologist and I am
praying you will feel the same about yours.
Take it one day at a time, Julie. Try to move as much as you can. I know
how hard that can be but the longer you remain immobile the more
inflammation and fatigue will worsen.
Please let us know your appt. turns out.
God Bless You,
Cindi
Julie Aionaaka
26 Oct 2010, 00:33
I was just told i have RA. I have had back surgery, knee surgery, foot
surgery, hand surgery, over the past 5 years, and nobody even hinted to the
fact that i may have had RA until my doctor thought something was wrong
with my thyroid. Why with all the pain i have been in would it have to take
over 5 years to tell me about RA? Now i am afraid i am damaged beyond
repair!!! My hands and back and feet are in so much distress i don't think
i can take much more, i was on methadone, didn't help, delodid, didn't
help,morphine, didn't help!! Now i am scheduled to see an RA doctor, on
NOV. 15th, and when i told the doctors office the meds i was now taking
they said they are all wrong!!! PLEASE someone tell me there is something
i can take either over the counter or natural, to help me until I see the
doctor! My hands won't work anymore it took me 1 hour to type this letter!
Needing help in Las Vegas, where there is no arthritis
foundation.......please help me,
thankyou, Julie
shallini
08 Sep 2010, 12:47
Hello, I wonder whether an expert can tell me what kind of arthritis I
have? When the weather changes one of my joints feels cold, then stiff,
then painful and inflamed. However, in a few days time or the very next day
the joint would be completely well again but a completely different joint
would have the symptom. My arthritis jumps from joint to joint.
Many Thanks
Sunny Israelson
31 Aug 2010, 19:20
Hi, I have had RA for over 10 years. Just "caught" it one day. Anyway, a
good dose of prednisone to get the inflamation down, and then an Enbrel
Shot once a week, along with a mild anti-depressant to keep my immune
system from flaring and I have not had a flare since my son was sent to
Iraq for 15 months about three years ago.
Occassionaly, like now, I have some areas that bother me, like my hands,
but I am scheduled to see my hand doctor and he will give me a steroid shot
in the joint and all will be well. I type a lot at work, so my hands
bother me a lot, but this is more the job than the RA. I think I am just
more susceptible.
I highly recommend Enbrel or other drugs like it. However, these drugs are
very expensive and I am lucky enough to have a great medical plan. Tylenol
for arthritis works pretty well for me for the small aches and pains.
TekisuiOnLotus
26 Aug 2010, 20:34
I have not been diagnosed yet due to the fact I can no longer afford the
insurance.
Three weeks ago I woke during the night, stepped down on my foot and
experienced severe pain. This has been nonstop since then. Then this
morning I had pain in my hands. I'm pretty sure this is RA as I have been
experiencing low grade fevers and flu like symptoms. I wish everyone the
best on their recovery and diagnoses. Thank you.
Cheryl
21 Aug 2010, 17:33
Debilatating fatigue, joint pain and stiffness in the morning. Positive
rheumatoid factor.My ANA has been positive and negative,eczema on hands and
legs. I also have Hashimoto's Thyroiditis. I hae been on Plaquenil for
six years. Would appreciate any advice.
missy
29 Jul 2010, 04:23
Just some advice....there is so much information on the internet just a
click away. Take control pf your health care. If your doctor won't do the
tests get a different one.
Here is my experience... I suddenly began having joint pain just about
everywhere, sciatica, muscle spasms, couldn't sleep. My primary said ph you
just have a little arthritis from the weather. The emercency doctor said
maybe fibromyalgia. I told her it was a dump ground diagnosis for lazy
doctors. Of course she defended it.
I eventually got a rf test and bloodwork. Rf neg. Esr 2. Got a
corticosteroid shot and evrything went away. Thought I was crazy. Primary
thought I was just trying to get out of work.
Well a month later went running and it all started again. I went to a
private lab and paid 850 dollars for a complete arthritis panel and a uric
acid test. My feet were real bad. Positive ccp. Positive hlab27. Esr is
still only 3.
Referre to a huge rheumo clinic to a doctor who wouldn't do any additional
testing and gave me prednisone and wrote lies on the documents for my
doctor. Said he did this ans that and he didn't. My doc could tell it was
crap because things I had seen her for he didn't ask me about but said were
negative.
I found my one rheumy. A one docotr small operation with mri in office.
These type of doctors rely on patients to keep their practice open. The
others are paid the same pretty much because they are part of a healthcare
clinic.
He did all the tests and mri of wrists showed bone erosion and synovitis.
So did my ankles, etc.
He has me on the right medicine.
Long story short ask for the tests you want. If the doctor won't do it then
tell them you will find a another doctor.
Diana
27 Jul 2010, 14:52
I too have had pain in both hands, especially the middle joints of each
finger and stiffness and weakness up through the elbow area. This started
just two months ago, after I left a stressful job that lasted only one
month. I woke up to the pain and it hasn't left. It's symmetrical and I'm
awaiting a follow-up talk with my Dr regarding the elevated rheumatoid
factor in my blood work and x-rays. I'm 44, very active and healthy and
going through this not knowing what to expect. I've never been one to take
naps and now I can barely get through a day without one, almost feeling
like the flu is coming on. Does this sound like RA or OA?? I think RA.
christi
20 Jul 2010, 18:41
How did it all start.....I am confused....I have been healthy all my
life.....taken vitamins and don't have any bad habits.....yet when I read
all of the above comments......it seems my symptoms point to RA. That
scares me alot. I have taken a job at a busy resturant for the last 14
months, and lift heavy trays and do a lot of walking. But for the last 6
months.....it has hurt my joints, and is getting worse. On days off......I
have to use furniture to lean on to get out of bed......and sometimes can't
sleep......living on ibuprofen.....and I live in pain some days. I do have
good days.....the days when I basically do nothing...... Before the
job.....I was fine......so it makes me think it is the job....so I told my
boss today that I need to back off a couple of days a week and rest some. I
am doing other things for money.....so as not to lose income. Joint pain,
tiredness, stiffness.....some aches and shooting pains......I feel like if
I had to run in an emergency.....I really couldn't.....scary. I am near
50, and thinking also that menopause could be setting in and causing some
of this.......and the job doesn't help. Any comments.....helpful.....would
be appreciated. Thanks.
Angela
16 Jun 2010, 10:25
Hi, I don't know what is wrong with my body. Almost a year ago, a year
after I had my 5th baby I began to have problems with my hands and other
joints in my body. Since then they have worsened. I began waking up with
very stiff and painful joints in my fingers on both hands. Now, even if I
nap I will wake with my hands stiff and numb. I wear hand splints at
night, but always wake with same problem as soon as I take them off. My
fingers actually lock at the joints. Also, I began having pain when
lifting myself out of chair. Pressure and pain suddenly would be in my
tailbone. I am 34 years old and 125 1bs. I have seen a neurologist that
ordered all kinds of blood tests which came back normal. He did an EMG
which showed a slight amount of carpol tunnel. He said Fibromyalgia, but
that he didn't believe in it, and put me on Lyrica (which only added to all
my symptoms), he reffered me to the chronic pain center for carpol tunnel
injections which didn't change anything. Then when he tried to say I
needed to go on stress meds even though I had never indicated a problem
with stress, I went back to my regular physician. The neuro's report to my
doc was that he had never told me I had fibro and that he had given me
Lyrica for carpol tunnel. Nevertheless that certainly was upsetting. I am
not taking Lyrica, just my vitamins now. I often have periods of fatigue,
weekness in my arms and legs as going up stairs or bending over, stiring
things. I am now going through physical therapy, one therapist treated me
for TOS, which changed nothing. Now I am seeing another who is helping me
with the tailbone pain, which actually seems to be targeting the area of
pain. Doing exercises to help the core. It's hard to do very many of any
of the exercises because they hurt so much. But over the past few weeks I
am now experiencing pain all through the right side of my body. In my hip,
knee, foot, shoulder. I am also waking now with my foot doing the same how
my hands started a year ago. Numbness, and stiffness in my toes. My right
side of the body has always been worse from the beginning. When I drive
sometimes it is really hard to keep my hands on the wheel, because of the
stiff pain in my fingers. Also, sometimes it is hard to keep my foot on
the gas pedal because it hurts my knee. I don't know what to think. I am
tired of not knowing what is wrong. I have issues with my neck and back as
well. Somedays I feel as though I am falling a part. I almost feel
everyday that I need a nap, a few months ago I didn't feel that way. I was
tested for RA but result were within normal range. Anybody else out there
have anything like this happening to them?
hidayatullah
21 May 2010, 03:00
My mother65 yrs old is suffering from RA for the last 14 years.The disease
has affected the finger joiints.RA factor is positive.
She feels pain in whole body instead of specific joints.
She feels difficulty in standing from sitting position.
We have treated her by methotraxate 10mg every week,20mg lefora evry day
marche
16 May 2010, 20:32
I am 38 years old. And I have osteoarthritis.My family doctor say blood
work says no RA BUT i HAVE ALL THE symtoms.
Then he said something about fibro- I dont think they no.
Shawn
05 May 2010, 15:06
Recently I went to the doctor for pain in both knees, my shoulders, my hip,
my foot and my elbow and hand. He said it sounds like I have RA. So I'm
scedule to see a specialist. I'm currently taken high blood pressure
medication, do any of my pain symtops has to do with my hypertension. I
was told that I have glacoma in one eye is this related to RA. My mother
suffered with arthritis for years and her mom and all my aunts. My mom and
aunts all had to wear othopedic hoes and each one of them had knee
replacement surgery, is t possible that I;m next.
lorraine
02 May 2010, 14:38
hi can some one help me i suffer from both osteoarthritis and rheumatoid
arthritis.They have put me on methotrexate.I am in more pain now have been
on it for six weeks now.Will it get better as i have to take more pain
killers to get through the day. THANK YOU
Angie, Huntsville, AL
01 Apr 2010, 07:50
After my 3rd child my RA came back after 10 years of "remission" from my
years of JRA as a child. I was immediately sent to a rheumatologist who
supposedly had 20+ years of experience. I gave him a thorough history,
but, even though I had ALL the other signs/symptoms of RA, I was told by
this "specialist" that I couldn't have RA, because my labwork wasn't
positive for it...yet. Instead, he diagnosed me as having Fibromyalgia
even though I had NO signs/symptoms to fit THAT diagnosis! It took 3 years
of fighting it and being sent to "pain doctors" with nothing but narcotics
being shoved at me (which of course didn't work, no matter how much pain
killers they put me on), before an orthopedist finally agreed with me that
I had RA and he was able to find me a different rheumatologist that
immediately diagnosed me with RA and started me on methotrexate and Folic
Acid. Within a couple weeks I was feeling 10 X better without the severe
pain. The pain was finally managable. Because I wasn't listened to
properly and wasn't properly treated at the time of the RA's "comeback"...I
now have irreputable damage to my hips, shoulders, and ankles. Why don't
these "experienced" doctors read their medical journals? And why is it
that these doctors rely soley on labwork instead of the whole patient?
sangita Singh
28 Mar 2010, 02:09
Hi,
I am 35, and have had RA since i 13 years old. It took years for me to be
diagnosed, and most of my joint damage is from then. My daughter is 14
years old.suggest me where take treatment near delhi. what prpblum coming
in my doughter ?
Please advice me what to do?
Souad
21 Feb 2010, 08:03
I was diagnosed with RA six years ago at the age of 44. I'm currently in a
lot of pain, which was triggered by work related stress. After going to
the emergency room yesterday, because I have been unable to sleep for the
past week due to the severity of the pain, I also discovered I have
shingles.
I desperately need to find a less stressful job, but in the meantime, I
would appreciate any suggestions regarding organizations and foundations
that could assist with Cobra payments during my search.
Thanks
Gloria Sanders
19 Feb 2010, 20:06
I have pain in my joints that feel like I have the flu ,Im 44 years old and
feel like i have lost my ability to take care of myself, how and when do I
apply for disability?
Amy
30 Jan 2010, 22:02
I just turned 42 years old. I was just diagnosedwith RA. My symptoms
started in my 20's, and had multiple miscarriages until I had a leukocyte
transfusion, and was blessed with my daughter. Just had 2 more daughters,
now 2 and 3. I guess I always knew this day would come. My mom was
diagnosed with RA in her 40's (had symptoms since her 30's). I guess I'm
more afraid, because of how severe my mom's RA was. I took care of her
since I was 10, shortly after the death of my father. I just don't want to
put my girls through what I went through. I know that I'm much different
then she was, but I'm just very afraid.
Laurie
05 Jan 2010, 22:35
I am 42 and have had symptoms for about 3 years now. Both hands, but
especially my left, both shoulders, but especially my right,elbows
etc...MRI shows inflammation, but blood work is still negative for RA. I
am on many RX's. I have had many cortisone injections; the same day they
hurt like nobodys business, then it seems to help for about 2 weeks. It
only takes the edge off though. I have recently developed large pea sized,
hard and painful bumps on the bottom of my left foot. Can anyone tell me
why it takes so long to diagnose RA? And does anyone know the "typical
stages" of signs and symptoms? Could this be RA? Thanks
Laurie
Patsy Walker
30 Dec 2009, 00:37
Hello to all,
A little about myself- about 2,1/2 years ago i had lots of things go
wrong with me.Finely saw a neurologist, had blood test, CT scan,Bone scan
you name it, it was done and lots money we dident have. All the test
checked out, I have Savere Rheumatoid Arthritis, and deterioration of the
2nd and 3rd Lumbar Vertebra allso, 4 years ago i had to have a Pace Maker
put in for Bradycardia Arrhythmia, that Iam told may have been caused by
the RA. And darn the luck, on a nice saturday in june this year 2009- I
steped down 1 little step and broke my ankle!
ER doctor puting the cast on my ankle said i should have another bone scan
done. Now as my luck goes, I have Osteoporosis, yes i have pain, I get
tired very easy with any activity, and 2 or 3 days a week my body hurts all
over, in every joint. I never thought I would be in this shape by 50.
So here is my question to someone who might can tell me, I am taking at
this time:
Plaquenil 200mg 2xday, Humira injection once every 10 days, Darvocet 1x or
2x a day, Imipramine at bed time, Prednisone when i need them,
Methylprednisolone 40mg injection every 65 days in between 2nd/3rd lumbar,
Potassium CHLER 20MEQ at bed time, BONIVA every 30 days, Folic Acid 600mg
tab 1xday,
and Calcium 650mg 2xday,, what is this cocktail of drugs going to do to me
in the long run to other parts of my body? I would like to know if someone
here can tell me. I all ready have side Effects from some of the drugs,
like sudden Dizziness or Balance, its like someone fliped a switch on and
off.
Thank you, Patsy
A. James Hillelson
18 Dec 2009, 10:46
Although, I had knee pain and 'crunching' sounds in my knees (bilaterally)
for years, it wasn't until the past couple of years that every joint in my
body with the exception of my elbows, are in constant pain. It seemed to
progress one set of joints at a time. I was finally diagnosed in the past
year with RA at the age of 57.
I've been on several medications, (including metheltraxate) and none of
worked well. My Rheumatologist wants me to begin with Remicade infusions
and I am willing, yet my insurance company will not decrease the co-pay of
$150 per infusion. I, simply, cannot afford it. I've researched and cannot
find assistance, so at this point, I am unable to get the necessary
infusions to retard the disease process that has quickly taken over my body
and to relieve the systemic pain that I am challenged with, day in and day
out.
If anyone has any suggestions, I will greatly appreciate it. I am disabled
with Lupus, RA, etc., yet not eligible for Medicaid. I called a rebate
program, yet I can't afford to put out the initial cost, so a rebate
program really doesn't help me.
Thanking you in advance for any suggestions and recommendations that you
may have so I may live, optimally.
EHE
10 Dec 2009, 10:31
Ida,
The symptoms you described are the ones my wife had for more than 8 months
including the lost of hair until she was diagnosed with MS and Fybromalagia
(No sure about the spelling).
I was reading this blog because my Dr. told me I may have Arthitis in the
begining stage and to be honest I am scare of having it since my wife
already has MS and is difficult as it is already.
pam stevenson
17 Nov 2009, 19:54
my dr told me i tested poss for r/a,i moved and had to change dr he said
the test was neg,can this happen.pam
ida
11 Nov 2009, 04:01
i have all the above sympthoms. i also done the blood test and shos ANA
:+ve pattern homogeneous. but the main thing now the DR still cant confirm
im having athritis or SLE. all my left side joint is pain. i'm having hair
lost alot everyday. but i dont hv any rashes.now im waiting for my dna
double stranded result fron hospital. anybody can helptogv some idea
tina
03 Nov 2009, 08:30
i had cancer ,that has been clear for afew years but now have astoma,the
cancer was inb three places ,i had nothing taken away but was put on hrt ,i
am 37 and in alot of pain down my left side right down to my foot,my
anckle gives way but both ankels feel so swollen ,left two end fingers
tingle but no one seems to no what is causing it. i dont sleep much and
always on the go can someone give me some kind of advice ,was given
painkillers but still when walking ,going up and down stairs really hurts
me at aloss as to what it is, yours hopefully tina.
Rosalita
31 Oct 2009, 23:03
i don't know what i have! 11yrs. ago it was fibromyalgia. now my primary
says RA. rheuma says not yet? now i'm seeing another rheuma. when i hurt i
really hurt. also, i want medicine that takes the pain away, that doesn't
make me put on weight! i don't think i have fibromyalgia because when i am
put on steroids for copd it takes the pain away in my body. i've heard
there is no inflammation in fibromyalgia. so, is it true that steroids
don't help fibromyalgia?
D
31 Oct 2009, 17:40
I just got back from the doctor's office and am waiting for the results of
my blood tests.
I have pain in my wrists but no apparent swelling. Most of the pain is in
my left wrist but my right is a bit sore and noisy. Did anyone else have
similar symptoms in the beginning?
Please help. Thanks.
sara
31 Oct 2009, 16:13
I have all above what the women say they have and my doctor gives me is
pain pills.Some days I don't fell like doing anything.Ican't think.The pain
so bad sometimes in my hands arms back,feet toes knees,soulders.I tell the
doctor about all the pain I have.He just me pain pills.I no Ican't take
them All ways can I what am I to do . Help me olord.
Julie
30 Oct 2009, 13:41
Hi,
I am 42, and have had RA since i 13 years old. It took years for me to be
diagnosed, and most of my joint damage is from then. My daughter is 14
years old now and was diagnosed earlier this year with RA. :( But,
since i noticed the signes and took her ASAP for treatment she is doing
GREAT. We both take enbrel. Life changing for us both!!! :)
Julia Simmons
27 Oct 2009, 17:28
I have RA and I am worried about my daughter having it now or someday.She
has been tested in the past.Her doctor says she doesn't.She has no
swelling,but her hands hurts.
Renee
27 Oct 2009, 13:25
I was diagnosed 20 years ago. I am now 33. When I was diagnosed I was put
directly into the hospital after a routine visit to the dr after my gym
teacher noticed my knees didn't look quite right and I had everything done
from a cat scan, blood work, bone marrow taken out to sample and x rays. It
was a long 8 days in the hospital but that was then and I sure hope it's
easier to diagnose now. After years of trying medication after medication I
simply take Darvacet for the pain but also was recently diagnosed with
carpal tunnel in my right wrist. Taking neruontin for that and it's under
complete control. My prayers go out to all of my fellow RA sufferers.
Penny
25 Oct 2009, 20:29
I have all of the symptoms and a blood RA factor of 423. I think it's all a
crock, they have to know what causes it, it just won't make them as money
to cure it. Just treat it, that is where the money is. There are numerous
things I have been researching and the two in my case that seem to fit are
"leaky gut syndrome" and possibly the crap they have filled my cavities
with. I am having the mercury taken out of my mouth and am working on
healing the leaky gut. I cannot believe that over 20 years of research they
still don't hsve a clue ?
Tejas
18 Aug 2009, 03:47
Hello, My CCP is came negative and RA came postive at 69.30 does that mean
that i have rheumtiod arhtritis. earlier i was having swelling in joint and
ankle which seems stopped from last 3re week becoz of medicine.
Ileana Shofel
21 Jul 2009, 13:49
A duck is a duck is a duck!
While I test zeronegative on blood tests, I present with swelling,
stiffness, and burning pain of the joints of my hands/fingers and
wrists/elbows. I am usually fatigued especially at the end of the day when
the pain often prevents me from relaxing. To a lesser degree, I also have
joint issues with my toes, knees and most recently the shoulders.
I have previously responded to methrotrexate and prednisone treatment.
Due to a disastrous experience with a given rheumatologist, I am awaiting
an appointment with a different specialist; someone, I trust, will treat me
with respect, empathy and competency.
Ileana
July 21, 2009
julie earley
18 Jul 2009, 09:48
i have type1 diabetes 37 yrs on a insulin pump dt my brittle diabetes have
frozen shoulder and rheumtiod arhtritis can any one offer some at home
treatment for rhemuatiod arhrtis or frozen shoulder i take naprsen and
flexeral for bad days advil or tylenol for good days any other suggestions
for my chronic pain? thanks julie
mrr
17 Jul 2009, 08:00
Eat Tumeric capsules or raw rots, dont chew makes teeth yellow..your lifes
will change!
Debbie
16 Jun 2009, 10:38
Pat,
Regarding your comment on 02 Jun 2009, 10:47. I also have osteoarthritis
and my Primary doctor wants me to see a Rhuematologist. He thinks it's
turned in RA. I wanted to make a suggestion regarding meds. I've taken
Relafen for a few years and it helps. You may want to ask your doctor
about this. Definately take calicum suppliments. Thanks
ellen
05 Jun 2009, 10:46
I have RA in my spine and 2 surgerys there . now my other doctor tells me
that he cant fix anymore of my fingers just the 2 he did that didnt work
long .because i have trigger finger in every finger he said its RA also .
Is this right ? anyone who has had trigger finger knows how much it hurts
but to have to live with all of my fingers doing it ..what kind of RA do i
have ..i already went trough shots for elbos knee's etc .My orthoped. has
let me go . Im gitting real scared now .
Pat marquardt
02 Jun 2009, 10:47
I also have a lot of the symptoms of RA, yet the only positive for it is
the Rh blood test at 600. I do have arthritis and osteoarthritis in my
back and knees, most days I hurt all over. My Dr. only gives me pain pills
and recommends calicum supplements. Can you advise?
Pat
Catherine
03 May 2009, 14:21
I have all the above symptoms and yet nothing shows in the blood. Can you
advice
I also have the R.A. symptoms, but no anti-bodies. My joints damage in pairs, from left to right. They get a burning (and painful) sensation, when I use them (ice helps). My joints are riddled with bone spurs. I was wondering: is it possible to have R.A. with out the ant-bodies? Is it possible to have both R.A. and Osteoarthritis?
I remember doctors (years ago) casually mentioning that I had arthritus here and there, but never offering a treatment. I thought that everyone got it and had to just live with it . I currently, don't have a doctor. Mine quit accepting my insurance. They are few and far between. Hope to find one soon.
In the mean time; I'm trying the gluten an sugar-free diet... Also, lot's o' supplements.
...Sheyenne
My broer is baie lank terug gediagnoseer met rimuiede artritis en het albei sy bene al verloor in die proses omrede sy are verkalk. Hy is so pas in sy arm ook ge-opereer met vergroeisels wat by sy pols uitgekom het. Die dokters het die vergroeisels uitgesny en toetse gedoen om vas te stel wat dit is en wat dit veroorsaak.. My probleem is, ek is die afgelope paar maande permanent moeg en het pyn in my gewrigte oral in my lyf. My voete en bene pyn verskriklik deur die dag en as ek gaan le in die aand. Ek is bekommerd dat ek dalk dieselfde siekte as my broer mag he. Watse toetse sal u voorstel wat gedoen moet word om vas te stel dat ek dit ook het of nie. Ek het ook pyn agter in my blad aan albei kante van my rug. Ook as ek diep asem haal. My hande, vingers, voete, kniee, en tone se gewrigte is baie seer elke dag
Baie dankid
It has helped me so good luck. One day I just got really mad at the medical practice and that was the best thing I could have done.
I am a little disappointed in this article when it says R.A. cannot be diagnosed with a blood test. Blood work will be the first thing your Rheumatologist will do at your Nov. 15th appt. R.A. is an autoimmune disorder. If you have an autoimmune disorder you will have antibodies that will show up in the blood tests. Then it will take a full exam to see if it is R.A.,or Osteoarthritis, Scleroderma which is inflamation of the muscles and also involves hardening of the skin, or Fibromalgia etc.
If the doctor that told you that you had R.A. has already done the labs and you have an autoimmune disorder you might ask him to start you out on Prednisone. Not only will it take care of the swelling and pain but it will also help with fatigue. If the doctor that diagnosed you will not prescribe the Prednisone call the Rheumatologist's office and ask to speak to the nurse. Tell her the amount of pain your in and ask for suggestions such as applying ice or heat or wearing the gloves that people with carpel tunnel wear. The chances of them prescribing any medication before seeing you are probably very slim.
When seeing a new specialist I always ask to be put on a wait list so if they have a cancellation I can get in sooner. If they don't have a wait list then check each morning to see if they have had any cancellations. Also be sure that you have all your records from every doctor that has treated you over the past 5 years, along with all surgeries and a current list of all meds, doses and # of times taken a day.
I will be praying for you, Julie. I know how painful R.A. is. When I went to my Rheumatologist I had antibodies for R.A., Scleroderma and along with the antibodies I had some sort of marker for Primary Bilary Cirrhosis. A liver biopsy ruled out the P.B.C. and as time went on and symptoms manifested I was finally diagonsed with R.A.
and Scleroderma. I remember how scared I was and how much pain I was in but the Lord blessed me with the most incredible Rheumatologist and I am praying you will feel the same about yours.
Take it one day at a time, Julie. Try to move as much as you can. I know how hard that can be but the longer you remain immobile the more inflammation and fatigue will worsen.
Please let us know your appt. turns out.
God Bless You,
Cindi
thankyou, Julie
Many Thanks
Occassionaly, like now, I have some areas that bother me, like my hands, but I am scheduled to see my hand doctor and he will give me a steroid shot in the joint and all will be well. I type a lot at work, so my hands bother me a lot, but this is more the job than the RA. I think I am just more susceptible.
I highly recommend Enbrel or other drugs like it. However, these drugs are very expensive and I am lucky enough to have a great medical plan. Tylenol for arthritis works pretty well for me for the small aches and pains.
Three weeks ago I woke during the night, stepped down on my foot and experienced severe pain. This has been nonstop since then. Then this morning I had pain in my hands. I'm pretty sure this is RA as I have been experiencing low grade fevers and flu like symptoms. I wish everyone the best on their recovery and diagnoses. Thank you.
Here is my experience... I suddenly began having joint pain just about everywhere, sciatica, muscle spasms, couldn't sleep. My primary said ph you just have a little arthritis from the weather. The emercency doctor said maybe fibromyalgia. I told her it was a dump ground diagnosis for lazy doctors. Of course she defended it.
I eventually got a rf test and bloodwork. Rf neg. Esr 2. Got a corticosteroid shot and evrything went away. Thought I was crazy. Primary thought I was just trying to get out of work.
Well a month later went running and it all started again. I went to a private lab and paid 850 dollars for a complete arthritis panel and a uric acid test. My feet were real bad. Positive ccp. Positive hlab27. Esr is still only 3.
Referre to a huge rheumo clinic to a doctor who wouldn't do any additional testing and gave me prednisone and wrote lies on the documents for my doctor. Said he did this ans that and he didn't. My doc could tell it was crap because things I had seen her for he didn't ask me about but said were negative.
I found my one rheumy. A one docotr small operation with mri in office. These type of doctors rely on patients to keep their practice open. The others are paid the same pretty much because they are part of a healthcare clinic.
He did all the tests and mri of wrists showed bone erosion and synovitis. So did my ankles, etc.
He has me on the right medicine.
Long story short ask for the tests you want. If the doctor won't do it then tell them you will find a another doctor.
She feels pain in whole body instead of specific joints.
She feels difficulty in standing from sitting position.
We have treated her by methotraxate 10mg every week,20mg lefora evry day
Then he said something about fibro- I dont think they no.
I am 35, and have had RA since i 13 years old. It took years for me to be diagnosed, and most of my joint damage is from then. My daughter is 14 years old.suggest me where take treatment near delhi. what prpblum coming in my doughter ?
Please advice me what to do?
I desperately need to find a less stressful job, but in the meantime, I would appreciate any suggestions regarding organizations and foundations that could assist with Cobra payments during my search.
Thanks
Laurie
A little about myself- about 2,1/2 years ago i had lots of things go wrong with me.Finely saw a neurologist, had blood test, CT scan,Bone scan you name it, it was done and lots money we dident have. All the test checked out, I have Savere Rheumatoid Arthritis, and deterioration of the 2nd and 3rd Lumbar Vertebra allso, 4 years ago i had to have a Pace Maker put in for Bradycardia Arrhythmia, that Iam told may have been caused by the RA. And darn the luck, on a nice saturday in june this year 2009- I steped down 1 little step and broke my ankle!
ER doctor puting the cast on my ankle said i should have another bone scan done. Now as my luck goes, I have Osteoporosis, yes i have pain, I get tired very easy with any activity, and 2 or 3 days a week my body hurts all over, in every joint. I never thought I would be in this shape by 50.
So here is my question to someone who might can tell me, I am taking at this time:
Plaquenil 200mg 2xday, Humira injection once every 10 days, Darvocet 1x or 2x a day, Imipramine at bed time, Prednisone when i need them, Methylprednisolone 40mg injection every 65 days in between 2nd/3rd lumbar, Potassium CHLER 20MEQ at bed time, BONIVA every 30 days, Folic Acid 600mg tab 1xday,
and Calcium 650mg 2xday,, what is this cocktail of drugs going to do to me in the long run to other parts of my body? I would like to know if someone here can tell me. I all ready have side Effects from some of the drugs, like sudden Dizziness or Balance, its like someone fliped a switch on and off.
Thank you, Patsy
I've been on several medications, (including metheltraxate) and none of worked well. My Rheumatologist wants me to begin with Remicade infusions and I am willing, yet my insurance company will not decrease the co-pay of $150 per infusion. I, simply, cannot afford it. I've researched and cannot find assistance, so at this point, I am unable to get the necessary infusions to retard the disease process that has quickly taken over my body and to relieve the systemic pain that I am challenged with, day in and day out.
If anyone has any suggestions, I will greatly appreciate it. I am disabled with Lupus, RA, etc., yet not eligible for Medicaid. I called a rebate program, yet I can't afford to put out the initial cost, so a rebate program really doesn't help me.
Thanking you in advance for any suggestions and recommendations that you may have so I may live, optimally.
The symptoms you described are the ones my wife had for more than 8 months including the lost of hair until she was diagnosed with MS and Fybromalagia (No sure about the spelling).
I was reading this blog because my Dr. told me I may have Arthitis in the begining stage and to be honest I am scare of having it since my wife already has MS and is difficult as it is already.
I have pain in my wrists but no apparent swelling. Most of the pain is in my left wrist but my right is a bit sore and noisy. Did anyone else have similar symptoms in the beginning?
Please help. Thanks.
I am 42, and have had RA since i 13 years old. It took years for me to be diagnosed, and most of my joint damage is from then. My daughter is 14 years old now and was diagnosed earlier this year with RA. :( But, since i noticed the signes and took her ASAP for treatment she is doing GREAT. We both take enbrel. Life changing for us both!!! :)
While I test zeronegative on blood tests, I present with swelling, stiffness, and burning pain of the joints of my hands/fingers and wrists/elbows. I am usually fatigued especially at the end of the day when the pain often prevents me from relaxing. To a lesser degree, I also have joint issues with my toes, knees and most recently the shoulders.
I have previously responded to methrotrexate and prednisone treatment.
Due to a disastrous experience with a given rheumatologist, I am awaiting an appointment with a different specialist; someone, I trust, will treat me with respect, empathy and competency.
Ileana
July 21, 2009
Regarding your comment on 02 Jun 2009, 10:47. I also have osteoarthritis and my Primary doctor wants me to see a Rhuematologist. He thinks it's turned in RA. I wanted to make a suggestion regarding meds. I've taken Relafen for a few years and it helps. You may want to ask your doctor about this. Definately take calicum suppliments. Thanks
Pat
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