While there is not as yet a fibromyalgia cure, the key to finding relief from the pain and fatigue is usually a combination of existing fibromyalgia treatments and therapies. It may take some trial and error to find an effective combination of treatments. Here are several options worth trying:
Medications
Currently, there is only one FDA-approved drug for use as a fibromyalgia treatment: pregabalin (Lyrica). Lyrica was originally developed as an anti-seizure medication, but has since shown benefits in relieving anxiety, some sleep problems and pain in people with fibromyalgia. Another anti-seizure medication, gabapentin (Neurontin) is sometimes used off-label (meaning it is used for but not FDA-approved for a condition) as a fibromyalgia treatment.
Four other types of medications have also been shown to provide symptom relief. Doctors can and do prescribe these medications to fibromyalgia patients, sometimes at doses specific for treating fibromyalgia symptoms. They include:
• Analgesics, including tramadol (Ultracet, Ultram)
• Antidepressant medications, such as amitryptiline hydrochloride (Elavil, Endep), duloxetine (Cymbalta), fluoxetine (Prozac) and paroxetine (Paxil)
• Muscle relaxants, such as cylobenzaprine (Cycloflex, Flexeril)
• Fatigue medications, such as modafinil (Provigil)
Other medications are being investigated for their usefulness in people with fibromyalgia, as well.
Exercise
Physical activity is has been shown to be a valuable fibromyalgia treatment, but activities must be chosen carefully and started at a low level.
“Deconditioned muscles are a potent pain generator in fibromyalgia,” says Kim Jones, PhD, a fibromyalgia researcher at Oregon Health & Science University in Portland. “It’s not fair to tell people with fibromyalgia, ‘just exercise and you’ll feel better,’ because many people have tried that and they end up in bed for two weeks recovering,” she says.
“The trick is to exercise slowly enough that you can condition muscle without generating pain, and we’re finding perhaps this can be done more efficiently if people with fibromyalgia are given the drug pyridostigmine (Mestinon) prior to exercise,” she says.
I have had 6 steroid injections in my legs, One in my arm, One in my neck, One in the back and front which has helped the pain a lot, but having them be injected hurts so bad but is well worth it.
Fish Oil pills and glucosamine help the pain too.
hope you all feel better soon xx
I tried Vicodin, OxyContin, and Tylenol w/ Coedine #4...and they all made me so sick, I was hallucinating.
So my doctor put me on Ultram, up to 8 pills (50 mg.) a day. I take much more than prescribed, went to get detoxed but they don't do Ulrtam if it's for pain, only narcotics not taken for pain, for severe addicts. I'm scared...I can't decrease the amount I'm trying to go back down to 8 pills a day from around 14-16 pills a day. Anyone have any ideas? Ulram is much harder to go down on than all narcotics combined. Will someone who reads this and has abused Ultram please help me.
Thanks,
Allanarae
I too am a fibro victim. I say victim because it has me in a chair all day with most activity paid for in the long run. I am now on a journey to fight for the right to smoke cannabis as a way to help the pain. I am taking 10 pills a day,2x's Opana for pain,narcotic, 2- 1/2 doses of Valium, narcotic, 800mg gabapentin, drug, 2 cymbalta, drug, 1 seroquel for sleep, drug. Can you see where I am going for this. Fibro pain can be tamed with medical cannabis smoked. It is a natural, 1000+ year old tested herb for pain, sleep, depression and the other bad things that happen with fibro. Right now I am having to see a dentist. Another whole story unto itself when you have fibro. This was a site for accupuncture. I want to see him for the fibro. i am not sure what to expect or what to ask him to do being an inexperienced in accupuncture. If someone out there knows what places to put those needles I would appreciate it. I know someone out there knows the exact # of the area where those little needles can help fibro. Please help. Thanks B Personally I would ask you to check out Medical Cannabis in your area and if it is not legal yet, please join the fight for this natural herb to be legalized and available for us who believe it to be the best thing since band-aids.
I have tried: trigger point injections which help short term (a day or so) osteopathy doesn't do anything. de-nervation reduced my headaches for 6 months, but is a bit scary having nerves killed in your spine whilst being awake.
Currently I am having accupuncture and taking chinese herbs, he hopes to cure my symptoms within 6 months.
Capscacin cream helps, but it is applied to the skin and can feel like it is burning.
I also do stretches in 32degree celsius water, yoga and strengthening exercises which I believe are essential to keep the muscles strong.
Sometimes essential oils being burnt can help with sleep, try peppermint, lemongrass and basil (halve the basil amount to the other 2)
Hope one of these suggestions help.
I read a book called The Mindbody Prescription by Dr. John Sarno (Rusk Institute, New York University Medical Center)and saw a local doctor in the L.A. area who studied under him. If you call Dr. Sarno's office they can tell you who the closest doctor is to you.
Basically it is a true understanding about what is causing the pain and other symptoms. It's the conflict between the unconscious and conscious mind. The unconscious is trying to push feelings to the surface and the conscious is trying to keep them down. In order to distract you from the feelings the mind causes symptoms so they don't come to consciousness.
Now even if you are skeptical, really do you have anything to lose by changing your thoughts and shift your attention from the physical to the emotional? There is nothing invasive, it is a thought process.
This is no joke, after reading the book and seeing one of the doctors in less than a week I was 80% symptom free. Now I am 95% symptom free. I can't tell you enough how this saved my life. I know everyone puts in their two cents, but Dr. Sarno really understands the cause and the cure is not difficult. Here I am 11 years later after going through this process and can do WHATEVER I want.
Kat
I don't know if this would be true for everyone, but it is worth trying.
The urethritis behaves just like a bladder infection (with bleeding, too), and responds to a med regime just like a bladder infection, but the organisms they test for in the urine are not there. It may be some other organism which also responds to the antibiotics and anti-inflammatories, but doesn't show up in the testing.
I'm pretty young myself, 30 in January, and was officially diagnosed earlier this year, but my doc suspects that I had juvenile onset fibro based on my med history. I've been on gabapentin for a number of months and that has certainly helped with sleeping, which is the first and easiest thing to fix. I've added a low-dose of Gaba along with a Super B-Complex vitamin to help during the day, and it's made a HUGE difference. I'm working on adding the slow increase exercise to the mix (I can use the weight loss too), but the weather here in Northern Utah makes that difficult. Anyway, I'm happy to converse with anybody about stuff that works. :-) (@jedi_wizard on Twitter)
I am so very grateful to come ac crossed this thread to see that other people are dealing with similar issues and then to also see what you are currently doing to cope with your pain. The only difference that I could see is I am young, 25years old and was diagnosed with Fibro at age 22 following a severe labor. I have alot more bad days, then good. And unfortunately, this disease is really costing me my marriage, and also I am loosing my self-esteem, and motivation. Not having any motivation..is preventing me from doing fun activities with my daughter. I desperately want to-but I just cant get myself out of bed some days! And my husband just doesnt understand. Comments he has made are: "How can everything hurt all over your body? Why is it everyday is a bad day? How come one day this hurts and the next day that hurts? So are we going to have to live like this the rest of our lives? GET out of bed, stop being a ZOMBIE!
I think this is where my self-esteem has been lost, and then with him not understanding. Including the rest of my family as well-in not understanding, or not caring.
I guess I am just lost-and need some input or suggestions--maybe a motivation pep-talk...
I'm 39 years old and I have dermatomyositis with pulmonary fibrosis, vasculitis and arthritis. The pain I have is very similar to fibromyalgia, so I sympathize with everyone here. It's horrible; like being trapped inside a medieval iron maiden, but with millions of tiny, dull needles instead of the huge spikes.
Because we have these 'invisible' diseases, people don't believe us since we generally 'look' okay. Except for the 80 pounds I put on from taking corticosteroids (just one of the meds I take), I look 'fine' - for a fat person. I don't have a horn growing out of my head and my skin isn't rotting, so I must be okay. Right.
I know how you feel, Carol, and I too am wondering if I should stay in my relationship (albeit for somewhat different reasons). A friend of mine recently asked me, 'have you considered that maybe you're not getting any better because you're with him?' Food for thought.
Maybe your husband doesn't really 'get it'. Ask him to really overdo a physical activity (that he doesn't normally do) for one day and then ask him how he feels the next day. Then tell him that's how you feel ALL the time, ALL over. Maybe he'll have a lightbulb moment. Maybe not. You could go to couples counselling, if you haven't already.
When you got married, 'in sickness and in health' were undoubtedly in the vows... if he has no compassion and patience and is only preoccupied with his needs, then maybe you need to start planning your new life without him. You should NOT be dreading going to sleep in your own bed because of him. You are not an object to be used at his whim. If he starts saying things like, 'well if you don't put out, I know other women who will,' that's emotional extortion and it's abusive. A good man will NEVER say things like that to a woman he loves. If you're afraid of what he might do, you need to get out.
Sex is a topic that should be discussed more - too many people are too embarrassed to talk to their doctors about it, including myself. Women often put out just to keep the peace or because they're afraid their partners will leave them. That's so wrong. And so sad.
I am unable to work due to when I stand to do dishes/cook or anything my back starts to burn and hurt so bad after 15 minutes that I have to sit/lie down. The insomnia is driving me crazy, so very tired. I am going to try to file for disability as I am currently receiving unemployment.
I love this forum as it really helps knowing that so many people out there understand and know what you are talking about when you have days you do not want to get out of bed. There are good days but I just want the pain to go away.
My husband "says" he understands yet he expects me to be "ready, willing and able" for that - It has gotten to the point where I am starting to dread bed time and the arguments and am wondering if I should just get a divorce so I don't have to go through even more pain than I already have on a daily basis.
Also Lyme Disease shows in my testing. Hmm, other symptoms, as well. I've found that taking an anti-inflammatories helps me, and not being too sedentary. I need to stretch, cannot do a heavy exercise routine. Intesting to me is that I read many have trouble sleeping. I have (am!). Didn't realize that was a symptom. Also, feel as though I'm coming "down with something", body aches, feverish, chilled, so on. I manage to pretty much do what I need to do, usually I'm moving about most of the day; however, at times, I DEFINITELY NEED A NAP!
Thing that bugs me about Fibro is that there is not actual test.....the doctor has to come to that conclusion from hearing a patient's symptoms. God Bless you all!
from Kay #3 (67, fibro diagnosed 13 years ago, osteoarthritis diagnosed 10 years ago, spinal degeneration and osteopenia diagnosed 6 years ago),
Not only do we have a name in common, we all three have fibro plus other medical disorders. Isn't it wonderful to find a forum where we can discuss our medical issues and be understood?!
Kay #1, what you have with your knee sounds very similar to the knee bursitis I had 4 years ago. It was due to pressure on the lumbar nerves from the spinal degeneration. I had been attending the Arthritis Foundation Exercise Program for 2 years, and six weeks of physical therapy helped tremendously. Occasionally when my knee bothers me, I start doing the exercises again, and the knee is better. When I overdo by lifting objects I shouldn't be lifting or standing too long, I have to return to the physical therapy exercises I did for six weeks to relieve my back pain. Usually within two to three days (combined with stopping the lifting and/or standing), I can function again.
I now teach the Arthritis Foundation Exercise Program, and it has helped reduce my pain level from all my medical problems (too many to list here) tremendously. I am much more functional because of exercising regularly three times a week. The participants in my class sometimes think I'm joking when I tell them the reason I teach the class is to make me do it. I don't exercise at home on my own.
You should talk with your arthritis aquatics leader about your knee pain. She may be able to help you modify some of the exercises so that you're not aggravating your knee. We exercise instructors must be re-certified by the Arthritis Foundation every three years. We are always taught that we must know our participants medical histories enough that we can modify the exercises for the participants so that the exercises don't aggravate a medical condition. I have some participants who do not do several exercises at all because their doctor has told them it would harm them more than help them.
I empathize with both of you. I have been where you are, and sometimes I go into a flare just as each of you has. It's part of the illness arthritis. My husband took a new job in August, and we moved into an apartment because the house we bought needed a lot of work. I've overdone it a lot, had days of tears and pain, and finally remembered to do the right exercises to relieve the pain. And also remembered to stop doing those things which aggravate my pain.
Kay #2, don't wait for your funeral for someone else to speak up for you. No one will. Write your own eulogy and find a trusted friend to read it for you. Better yet, find a support group (there are several online)where you can discuss your feelings.
Gentle hugs to both of you. May you find some way to ease your pain, both physical and mental. My thoughts are with you.
Kay #3
The pain then started in my joints and hands which is now diagnoised as rhematoid arthritis.I am taking Lyrica,cymbalta,mirapex.loratabs for pain and two kinds of blood pressure medicine.and as far as sleeping,not! I sleep a total of one and ahalf hour to three hours a night. and that even with a sleeping pill. Well good luck to everyone. I'll remember you all in my prayers.
It took time to get over the effects of vertigo.I had to go on meds for panic attacks. Was Dx.with Fibro 1996,was living with pain,finally gave in to the meds.In 1997 I was found to have kidney cancer,lost rt kidney.It was a tumor that was incapsilated and had not spread, so no chemo.I had worked at a job this whole time. I had hid any of this,but I had to tell employer about cancer.I thought everything would settle down, not so. In 2002 I was dx. with Poly,& peripheral neurophothy, lost feeling in feet,then legs. To make it worse, my 1 kidney started to shut down due to pain med. So now I go with no pain meds. As of April 2010 I am on infusion theraphy treatment with Gammunex,it was 2X's a week, then 1X's, now 1 every 3 weeks.It takes 6+ hours to have the infusion. Still no pain meds. It is hard, if any Dr. or anyone knows of a pain med.that I could take and not lose my 1 kidney, it would be a blessing.I never want dialysis. This site is a great place to help a person who thinks they are alone in this world.
Researchers are for example, finding that many sufferers have experienced abuse or a serious car accident. And since Fibromyalgia is usually accompanied by many other medical problems, there is no diagnostic test for it. Other things are ruled out until that is all that's left. This is also why there is no set treatment method.
After I was officially diagnosed in 2003, it took a team of doctors and two years time to actually figure out the best combinations of medications AND dosages for me. Each case is different, and each person's reaction to the treatments is also different. All of this further compounds the problems.
Keep a journal of the different things you try, and whether or not they work for you. As frustrating as it is, don't be looking for a cure anytime soon.
Generally speaking, avoid stress and cold. Do your best to stay upbeat. Eat a well-balanced diet. Be careful not to overdo on the days you feel a little bit better. Rest during the day when you have the chance. Accept your limitations or you'll only make matters worse. Educate yourself as much as possible.
Ditto to all the things that are bothering you. Been there done that. I suggest you go to Social Security and apply for disability. They will send you to one of their doctors and he in turn will reccomend wheather or not you qualify. This is just a suggestion you might try. Good luck.
You should check with your county health department or your doctor for referral to see if there is a health plan in your area for the uninsured. We have two plans in our county that can be applied for and it has saved us a great deal of money. You may have to wait for openings as they do fill up. Also you should go to your Department of Human Services to apply for financial, food and health help. I'm sure you can find help there.
I have applied for disability and SSI, and still they will not approve me for either. I have problems walking, standing, bending, and sitting for too long because i end up in pain. I have been out of work for over a year now and can't get unemployment, SSI, or even state (Maine)help with their health care program. I really need help to ease some of this pain that i am in. I also need help on getting some kind of health care because the bills are stacking up. If you know of anything or can suggest anything that will help me, i would greatly appreciate it a lot.
Thanks,
Wayne Alves
My diagnosis for fibromyalgia was in 1987.I am now 70. I remember as a child discovering that I was always in pain. The worst aspect for me has been my brain going to sleep for days and a lifetime of insomnia.
The first time I went to a rheumatologist in 2000, I explained that I had been diagnosed with fibromyalgia by a University rheumatologist in 1987. He first comment was that he didn't believe in fibromyalgia. I found a new doctor. Before I started medication, I would get piercing pains in my wrists and hands. I later found I had rheumatoid arthritis, but now my medication helps somewhat. My most important medication is my nightly ambien. It's wonderful to fall asleep for three or four hours at a time. I was also glad to find there was a reason for me to be brain dead for several days at a time.
For the past five years I had had mouth pain. My dentist suggested I had burning mouth syndrome. I read about it on the Internet, and I've consulted with my dentist, internist, 2 rheumatologists, 2 neurologists, ENT, and 4 psychiatrists. Apparently nothing can be done for it. It starts burning in the p.m. until I go to sleep and it is every single day. The newspaper doctor calls it physician's and patient's worst nightmare because nothing has been known to work. I think relief is dependent on going into deep sleep because I feel great when I wake up and think, "My mouth doesn't hurt now."
I have Systemic Lupus and Fibromyalgia, High blood pressure, IBS, Barrets asofigus, COPD, Migrains and of corse the Horrible Cronic pains and over all ill feeling through out my body that goes along with it all.
Yes Its very hard to make family and the one's who claim they love you to understand what we are going through with our cronic illnesses. No one seams to understand or cares enough to. I have been accused by several family members that I am Lazy and "Faking it for attention" That has also caused me a few tears and very hurt feelings throuout my life, but I have learned not to complain in their presence if at all possible and try to avoid seeing them as much as possible to avoid myself any more anguish caused by their lack of knowledge and for some just pure ignorance! I pray one day at my furneral some one will speak up for me and Tell of my pains and hurt feelings for those who refuse to understand what all I have been through, but that of corse just might be wishfull thinking on my part. Ive been told by many people that I don't look sick and was even belittled by my own Mother and sister more times than I can count. I moved to the country and stay mostly to my self for that reason. I went for years not knowing what was wrong with me and spent endless dollars looking for a doctor that would care enough to run the needed tests to find out what was really wrong. Sence I was 22 years old I went through countless Medical doctor's, Sugar pills and shrugged shoulder's until I went to the 3rd Rheumatloogist and after she tested me for Lupus twice she was the only one who had the knowledge to tell me not to take even an asprin for three weeks and she would retest me for Lupus and bingo she found I had Systemic Lupus the worse one to have. and several years later another one found I also had fibromyalgia. I am now 54 years old I was diagnosed with Lupus 6 years ago and the fibromyalgia 2 years ago. I have had cronic pain sence I was a child. And I have records a foot think that no one cares to read that proves that Im not faking! I understand where you are comming from completely!
Hugs!
Kay
I am on Lyrica & flexarol & Ativine.
Right now I am having the worse flare up
ever Plus a strange thing.
I have pain in one knee that when I turn
the knee it is so severe it brings tears to my eyes.
The pain runs upward to my groin.
Stairs are a killer. More than 2 & I am done.
I do aqua artheritis arobics 3 x a week &
getting there is a problem.
I also have severe arthritis in my back.
So walking is out.
Has anyone had this type knee pain?
However, I have been helped the most by aquacise for an hour, three times a week in a WARM pool, up to my neck. I go downhill very fast without this. These are few and far between, unfortunately, but you may be able to contact your local Arthritis Foundation office for them. I'm not sure whether they will tell you about the ones they don't sanction. Rheumatologists should be prescribing this FIRST for patients!
Arthritis-Fibromyalgia! To access.I entered this Web site for POSSIABLE Answers-Relief from Pain,Fatigue.Osteoarthritis&Rheumatoid
Arthritis&Fibromyalgia ALL 3 the Medical community Experts say I Have. I know I have
CONSTANT Pain&Fatigue 24/7. I have found NO answers but it does HELP a Little to hear see
others input who have same condition as well
Ideas suggestions etc. Example terri b 06 May
2009 19:56 hrs Text. I to have seen mulitiple
Doctors Specialist Experts and have TRYED JUST ABOUT ALL and have been advised Medical
community has nothing else to offer at present time other than Lyrica-Tramadol-
Tolmetin Daily- DOSENT HELP much if any at all. So far ALL other med,s NO Help Pain&
Fatigue as well, Many if not MOST ALL Side effects use of SOMETIMES as BAD OR WORSE than
Arthritis-Fibromyalgia PAIN&Fatigue.Until a
person has Arthritis-Fibromyalgia they have
NOT a CLUE as to the living HELL a person
goes thru 24/7. CONSTANT PAIN and because of
Pain constant Fatigue because your BODY is
fighting Pain 24/7. Your muscles become worn
out tired. I have NEVER been overweight and
I intend not to be because I could only guess
the increase PAIN caused by being so. Exercise I continue, It HELPS NONE Pain& Fatigue it increases PAIN Levels ONLY Myself.
BUT I continue for ONE Reason ONLY. I am NOT
a quitter and refuse to give in and shut down
no matter the PAIN YET! KEEP Moving Physicaly
not so much exercise program type talk. Just
HOBBLE the Best you can when you can!If and
until something a CURE FOR comes along.DONT
BUY INTO ALL the Medical BLOW thats out there
because they DONT KNOW ALL, They have been
playing with chemistry sets for Decades and are WAY OVER RATED with NO ANSWERS CURES FOR
BUT we can ONLY HOPE and HANG IN THERE!
I went from walking 2 miles a night to barely being able to walk because of knee and foot pain, so I switched to an upright exercise bike which is a good way to do seated aerobic exercise. If you can't sit on a bike there are foot/arm bikes that help.
I use therabands for resistance training instead of weights, but I used to be able to use food cans to lift weights.
When doing stretching it's really important not to follow the "no pain no gain" mantra, as our muscles don't repair themselves correctly. I have found that holding a stretch only 2-3 seconds instead of the 10-30 seconds recommended by most physical therapists is much better for me. There is a new system of exercise therapy which is based entirely on this concept - my massage therapist took classes in it.
Massage therapy is essential to my well-being - I have a session every week and don't know what I would do without it.
Whatever exercise you choose to do, it's vital to start low and slowly grow - start with only 3 repetitions, or 1 minute on a bike. Keep doing that every day until you're ready to do a little more. My rheumatologist recommended I increase my bike 1 minute per week, and I got up to 3 15-minute sessions per day. When I was off the foot bike for a while after surgery, I decided I would go bac to my 15 minute session - tried it once and I'm now in PT for ITB strain and hip bursitis!
Start low and grow slow!
I ENTERED THIS WEB, TO LOOK FOR SOME NATURAL VITAMINS THAT WILL HELP ME REGAIN MUSCLES.
YOU ARE NOT ALONE. I WAS DIAGNOSED W/FIBRO.. 3 YEARS AGO AFTER VISITING SO MANY DIFFERENT DOCTORS IN THE US,). IT AFECTED MY SPINE VERY MUCH,STOPPED ME FROM RUNNING, WATER SKI, ETC.
THERE IS ONLY 2 VITAMINS TAKE, AND HAD COMPLETELY CONTROLLED MY PAIN,ETC.THIS WAS PRESCRIBE BY MY DOCTOR(IN SOUTH AMERICA), ON TOP OF MILD ANTIDEPRESANTS, TO RELAX THE MUSCLES AN TREAT THE PAIN, BUT I DID NOT CONTINUE W/ THIS PILLS, SINCE I STARTED TO PUT WEIGHT ,ETC.
THE MAGIC CURE TO THIS, IS CAMU-CAMU, AND SEAWEED.TAKE NO MORE. JUST MAKE SURE IT IS FROM A GOOD BRAND, SO THAT IT WILL WORK FOR YOU.GOOD LUCK!!!!!!, AND I HOPE EVERYBODY FOLLOWS MY ADVICE.PLEASE LET ME AND EVERYBODY ELSE KNOW, THAT IT WORKS.
SOF
In answer to your comfy shoe question -- I recommend Noat, Mephisto, Dansko, Birkenstock, and Beartraps (in that order of comfort.
I do not know of any videos but maybe getting something in beginning yoga would be good.
Also, a great heating pad - whether electric or a gel based pad that can be frozen or heated by a microwave - would be nice.
I also have a fantastic mattress topper from Costco on my bed that has a memory foam insert and a fiber bed insert made together and zips on the bed. It makes for a better nights sleep with less pain.
You can also buy microbead pillows that you can sleep on as well as prop hurting body parts on it in the bed or while sitting in the car or on the couch.
Hope this helps.
My Mom has just been diagnosed with Fibromyalgia - she lives in African and not alot is know about the illness. Can you please enlighten me as to how I can help- are there any really comfie shoes or sandals I can send to her from N america? Do you recommend any tai chi exercise dvds? Is there a specail diet? Please help me as I am worried sick and so far away....
I am so sorry that you have this disease at such a young age. I'm 47 and hate the way it makes me feel and all the things I'm missing out on because I can't move after working all day. I wish there were some easy answer, all the recommendations from those who post here are excellent and since this is such an individual problem, nothing works the same for everyone. You just have to try things singly and then in combination to find out what works best for you. As for your boyfriend, I know you have invested three years in this young man and especially at your age, that's a long time. However, additional stress, depression, anxiety and anger all make fibromyalgia worse and it sounds as though he could be contributing to a lot of those kinds of feelings, if you have them. As we "old timers" like to say, there's a lot of fish in the sea and you need someone who is sensitive to your condition and helps you get through it, not tears you down and doesn't help you, emotionally and physically. He is young yet and I'm sure will become a great guy someday but you need someone mature enough to be supportive now. You have to remove any toxic relationships you can for your own sake. If you sat down with him and explained how much this hurts you and is damaging your feelings for him, do you think it would help him think about it differently? If so, I would. If not, I'd move on. It will hurt emotionally but your pain level physically is high and you don't need anything adding to it. Please know I will be thinking about you and your situation and praying for you both. Hang in there and keep your spirits as high as you can.
No one seems to understand the daily struggles, or wants to. My boyfriend of 3 years looks at me like he doesn't know me anymore and he refuses to talk about it. He says to suck it up, and it's not going to kill me so just deal with it. does anyone have any advice about how to deal with this? I feel so lost and alone.
Blessings
Narcotics keep me awake, make me itch, and only helped for about an hour, besides none of my doctors wanted to perscribe anything other than antidepressants that gave me diahrrea.
Throughout the years I have learned this: exercise hurts bad at first, but when you get through that initial hurt, you'll feel better than ever, just take it slow...
AND unfortunately, nothing works forever. It seems like it goes in cycles, this is the worst year I've had in a long time, though I felt great last year, (except for the IIH). I am really hoping they can get a handle on fibro., they sure are a lot further than when they were sure it was all in our heads. Nothing is worse than being told you're a liar.
If you have fibromyalgia, you are also more likely to have PCOS, poly cystic ovarian syndrome, IIH, type II diabetes, and a host of other problems.
Best wishes to everyone!!
It was determined by a rheumatologist and back specialist that I suffered from Fibromyalgia about 12 years ago. I was in great shape at the time.
I can understand and agree that I have acutely and chronically somatisized my stress since I was a small child. I think that it was something that I was born with. I get angry when people tell me that I can control the pain and fatigue. I "controlled" it for a long time but by my early 40s, and yes I had one huge stress after another for over a decade,I was a physical and then emotional mess and the Fibro took over.
My life is very different now. Some would think that they should feel sorry for me or that I'm "nuts" but luckily I've never bought into a conventional lifestyle.
Anyway. I'm trying to ameliorate my Fibro again. I don't want to say "fight it".That sounds too painfaul and exhausting.
I'm lucky. After 14 years of unbelievable stress, unhappiness, happiness, joy, pain and unacceptance of my situation, I'm in the glad position to be with my 87 year old Mother who has more energy and far less pain than I but she is 87. No work. No kids. No Older ex-hippy husband who never understood my pain and believes that a brain tumor could be fixed by excercise. Idiot savant that he is.
I'm taking the time to get acupuncture and gentle, gentle massage (I used to love massage but it became a nightmare of post massage pain).
I've been trying to walk but it is difficult to maintain a regular schedule - - so far. I struggle to go 1/2 mile. Unbelievable.
I was severly Vitamin D deficient as was my sister and she swears that if I can get my D levels into the 50s and rest my tendons (it takes months she said) that I will find relieve from my latest Fibro related problem which started last summer. I never had systemic, chronic tendonitis before then. The original Fibro was a different kind of pain and discomfort.
I'm going to try IV Infusion of the necessary vitamins and minerals if this exists. I'm going to try the Fibro and Pain Mgmt Center.
I'll keep you posted on my progress.
FibromyalgiaDiet.net
http://www.FibromyalgiaDiet.net
and a patch called fentanyl which is a narcotic that my doc gave in and finally gave in and gave me is what keeps me going.I take 50mcg and leave it on for 3 days it keep me functioning however my depression and sleep probs are the worst now that i have my pain under some control. I have been admitted to psyc hospital, on several anti depressants take ambien and still have no energy to function. I am on disability and it interferes with my marriage and children.
I have a wonderful supportive husband but it takes a toll on him. I know excercise is a key but i just can't do it. I have been suffering for so long I have basicly given up. I read and read constantly looking for new info and hope to find something out there that can fix us.
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