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Conditions > Fibromyalgia > All about Fibromyalgia > What is Fibromyalgia?
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What is Fibromyalgia?

Fibromyalgia (or fibromyalgia syndrome) is an arthritis-related condition characterized widespread muscle pain and the presence of tender points, or areas of the body that are particularly sensitive to pressure. Other symptoms may include sleep disturbances, severe fatigue, depression and anxiety, cognitive difficulties, headaches, bladder irritability and spasms, irritable bowel syndrome, jaw problems and painful menstruation.

Fibromyalgia affects 3 percent to 6 percent of Americans, mostly women. Its exact cause is not known.

Who gets fibromyalgia?

Fibromyalgia affects more than 3.7 million Americans, the majority of whom are women between the ages of 40 and 75, but it also affects men, young women and children as well. People with other rheumatic diseases, such as rheumatoid arthritis or lupus, are at greater risk for fibromyalgia. For example, about 20 to 30 percent of people with rheumatoid arthritis also develop fibromyalgia, although no one knows why.

Fibromyalgia sometimes occurs in more than one member of the same family, but doctors have not verified a hereditary link or common genetic type. Several studies have, however, found a possible link between genetic markers called human leukocyte antigens, or HLAs, and fibromyalgia. This suggests that a gene that predisposes a person to develop fibromyalgia may exist.

Why don’t some people take fibromyalgia seriously?

Unlike diabetes, which can be diagnosed with a simple blood test, fibromyalgia does not show up on lab tests. Unlike rheumatoid arthritis, which can cause joints to become swollen and deformed, fibromyalgia’s effects on the body are invisible. Most people with fibromyalgia don’t look sick. In most cases, the only clue there’s a problem is the person’s complaints of hurting all over or constantly feeling tired. Thus, many people –doctors included – have incorrectly assumed the condition is all in one’s head.

Increasingly, however, that attitude is changing. The more researchers learn about this condition, the more doctors are taking it seriously.

Zahra (Sara)
26 Feb 2010, 22:17
Thanks Olivia! I can never find anyone that was as young as me that went through all the pain too and I'm happy that at least I know you got it in eighth grade so that helps a lot. I mean I'm not happy that you're sick, I'm just happy I know that there's someone else. It's always people who are at least forty and older. Yeah my name is pronounced Sara but my mom spelled it that way b/c she thought it was pretty:) I know exactly what you mean, almost every second I hear a teen complain oh i hurt my foot in gym, it's so bad it hurts blah blah blah! I feel like saying at least you can do gym I haven't been able to do gym in over a year! Yeah i have spinal arthritis too but no one notices it b/c i have my back always covered b/c i dont want anyone to see it and i just went to the doctor last week and he told me I have another health problem and it's going to take a while to figure out. Some days I want to die b/c everyone is always saying you teenagers are at the prime of your health and I always feel like saying I'm not I was healthy til I was 10 and after that I got FMS, arthritis, knees curved, scoliosis, etc etc. Ugh it's really frustrating, but between all the physical therapy, doctors, etc etc I wonder, I wouldn't be me if I didn't have all this and I wouldn't be this strong and humble. I am proud of myself for making it this far and I do community service and I never complain, I only complain to my twin sister who is perfectly healthy and my dad. My twin is always doing these sports and tells me to do them and it's really frustrating b/c when I do do some like I was on my school's track team I was dying, it was SO SO SO much pain and my sister doesn't understand that, I look fine but I'm breaking inside and I never tell anyone at school my problems only my gym teacher knows about it bc she saw the doctors but I feel like I have to compete with my twin bc she says im just lazy etc and I try to prove her wrong even though I end up getting worse. I WILL be strong though and hopefully one day my word will get out, thank you Olivia for your comment, it really helps to know(:
Olivia
23 Feb 2010, 23:37
sorry i spelled you're name wrong Zahra!lol
Olivia
23 Feb 2010, 23:35
hi sara, i went through exactly what you're going through now. I was in 8th grade when it all started and now im a freshman in college. Anyways I was really annoyed too by the way all the kids at school made such a huge deal over the dumbest things i uesed to ba really outgoing and conceited but when i got sick i basically stopped talking to anyone who is conceited and worried about things like brand name jeans,as you may know there arent very many people like that.luckily i had a friend who understood and helped me a lot she sometimes got annoyed when i didn't feel like hanging out which was hardly ever i slept through most of highschool and missed a lot school i mean at least two or three days a week,my knee was so swollen it looked like there was a sofball sticking out of it no matter how many times they drained it i didnt want a wheel chair either so i used crutches for awhile but eventually i guess form the repeated strain in my wrists i fractured my wrist and didnt even know it. i thought it was just the arthritis but well whatever anyways i just wanted to say that you can't give up and let this beat you try not to dwell on the fact that you're sick because the more you do the worse the pain is try and focus on something else,try painting,singing anything to lift your moods kay.
Goodluck i wish you the best
Zahra (Sara)
18 Feb 2010, 15:55
I meant I went to doctors for 4 years because I'm in ninth grade now, and the symptoms started in the beginning of sixth grade and I will be fifteen in a month. I really thought i was going crazy! And you guys already know that there's a lot more to FMS than just pain (hair loss, short term memory loss, weight gain, etc etc). School is really really hard! And all the kids at school complain every second for a very little thing and it bugs me SO much since they don't know real fatigue and pain! Thanks for these comments, I know someone understands!
Zahra (Sara)
18 Feb 2010, 15:49
I'm am 14 years old and I am diagnosed with FMS, Scoliosis, and numerous other problems like my knees curve inward so im incapable to run, it's very very painful and walking is very painful too but I don't want a wheelchair because everyone will stare at me at school. My symptoms for FMS started when i was 11 years old. Yes I was 11 years old. No one believed me for 3 years. Three years! I thought i was going crazy because everyone said I was exaggerating and that it was all in my head even my mom and siblings! They sent me to a physiologist except i never told them about my pain b/c i was afraid of them thinking i was insane too. I have severe pain in all my joints and muscles. My whole body hurts including my butt! My nose and cheeks! Also i have the oh so fun extra symptoms that come with FMS. I know you guys understand I went to doctors for 3 years and no one believed me. Finally I went to a rheumotolgist and he diagnosed me 2 months ago. I'm too young for any medication so he just gave me a sleeping pill to take at night and my parents don't have money to take me for xrays for my scoliosis(it's been over a year since my last back xray) or take me to other doctors to help me cope with FMS. And no one understands, they say i look so normal it probably is all in my head:'( I have a lot of family problems too, etc. I just want it to go away and understanding. Thanks guys for writing comments, at least i can see this and not feel so alone.
Albirta Poole
16 Feb 2010, 17:21
I was diagnosed with fibromyalgia when I told the doctor my arthritis was so bad I could no longer function. I thought everybody in there 40s and 50s hurt like me. NOPE. Some arthritis but my dotor said fibro. I was lucky, this was when they did not know what it was, and many doctors put it down to "it's all in your head". He gave me different things, but nothing really helped and my migraines got so bad I was having 3,4, and5 day headaches continually. I finally applied for disability--was turned down--had a hearing scheduled--and to make a long story short my doctor sent me to a psychologist for depression and suicidal problems. She put me on cymbalta. I soon started sleeping better and then the migraines started lessening and the other pains started going away. I got my life back. I cancelled my disability hearing. I am not pain free and I still ahve headaches, but I can manage them! With Cymbalta there can be side effects, some dangerous. I hope I never develope them! Just thinking about becoming like I was scares me! I hope you all find the right solutions for your pain. It took me years and a doctor that listens is the most important thing. Something I found out was and still is THERE ARE THINGS WE KNOW WILL CAUSE US PROBLEMS. DO NOT BE AFRAID TO LET OTHER PEOPLE HELP YOU. IT IS SO HARD TO ADMIT YOU CAN NOT TAKE CARE OF YOURSELF,BUT THERE ARE TIMES IT IS TRUE. I hope you all have people in your lives who listen and underwstand.
linz
14 Feb 2010, 00:25
Donna, both Fibromyalgia Network and Fibromyalgia Alert or good for assistance on making application for disability.
If you are in the Charleston Area go to the Dream Center which is a volunteer run clinic of local docs and nurses from SeaCoast Church. They can help folks get in to see specialist. Most Fibro patients do have back problems, however, your situation may be quite exceptional. Try different combinations of drugs, meds for neuropathic pain may help more for the arms, hands and feet. The approach to muscle spasms must be to prevent. I was having up to 20/day. I now take Muscle relaxers at bedtime and have reduced spasms to 1 or 2 a week. When I begin the fasciculations in muscle groups I take two pills, take hot tub bathes, once or twice a day with mild stretching of those muscles and use heat pads as needed. Even if you do have insurance the self care measures are many time the most helpful. I do take over 50 pills a day but none are narcotic, Poor sleep and stress contribute greatly to CFIDS so both area's must be corrected if you expect to improve. I have greatly improved because of good MD care and my constant research concerning both Fibro and CFS, which are essentially the same, few differences but not much. CFIDS is the catch all term for both, Chronic Fatigue and Immunodeficiency syndromes. This is a Central Nervous system and immunodeficiency problem. Just taking pain pills will not correct the problem.
A newsletter that keeps me up to date is: About.com then Fibromyalgia
"Adrienne Dellwo - About.com Fibromyalgia & Chronic Fatigue Syndrome Guide" <chronicfatigue.guide@about.com>
Donna
12 Feb 2010, 15:54
In 2005, 3 months before my wedding, I began having severe ain in my neck, back of arms. I ended up in the ER and the dr said he feels I have Fibromyalgia and need an mri for slipped disks. I have since had mri's and tests and have 5 disks in my neck that are herniated/bulged/slipped with a 25% flattening of my spinal cord & numerous pinched nerves, migraines which are physically debilitating, left shoulder has a cyst in the joint, right shoulder has a torn tendon, bone spurs from shoulder to shoulder & up/down my c-spine, my arms hurt so bad, the muscle spasms are so bad that if I'm lying on the left side they throw me onto my back! I have problems with my middle back & an area that is completely numb/dead, lower spine/back pain, hips burn & ache horribly, and I had 5 operations on my left knee and recently found out that I have a vertical tear in my acl in the left knee with a planters cyst behind the knee that is 7cm by 3.1 cm big! I have NO health insurance & am lucky that my pain management dr only charges me $50 to see them every 3 months and in between I go pick up my pain medication prescriptions. I am on morphine ER 30mg 2x daily, morphineIR 15mg every 6 hours, flexeril 3x's day, Lyrica 2xs day, bp meds too. I have high bp, asthma/beginning stages of COPD & chronic bronchitis. I am also tired constantly. People look at me & think that I look fine but I hurt so bad! I barely sleep at night because of the pain. I've applied for Social Security but have been denied!!! I am now getting an attorney to help me fight for my SS. I should be considered disabled! I can't do the things I usually do. I owned a cleaning service & had to give it up, hell...even my own house isn't as clean as it used to be! I can't walk, I do work from home part time but need to use a laptop because sitting at a desk is impossible. I have also heard that I may have yet another condition on top of everything else. What really stinks about my situation, is that my mother was adopted & even though she found her biological mother, she refuses to give my mom any information. My mom had a sister that was in a wheelchair in her early 40's & died at the age of 50. My own mom has had 9 heart attacks and my biological father died years ago. Is have OA & RA too. I have days where I can't do anything but get out of bed to go potty. I lay in bed & cry. My husband understands because he has disks in his lower back that are bulged/slipped. He's on MorphineER 30's 3x day and perk 10s 3 tims a day. He just started the Morphine & finally understands that it doesn't take the pain away but takes the edge off the pain so it's a little more manageable. Any information on how to feel better is appreciated & this site has given me much to try. Best Wishes of Good Health to everyone.
Linz
11 Feb 2010, 16:29
Wow! I have been looking for Fibromyalgia bloggers in the Charleston area and this is the most I have found. You know we all need to meet. So many hopeful things are happening in the field and really, ignorance in the healthcare community is quite profound. I am an RN who has had FMS for 20 years. I had been in and out of remission with frequent flare-ups and rare relapses that I have self managed over the years. 5 months ago I went into a relapse that I had been unable to reverse. I went back to my original MD who showed me the same video tape he showed me 20 years ago when it was called Myositis. I am a pretty good researcher and had done my homework. I saw three doctors here in town and had to argue with them to get my needs met and finally gave up. I went to the Hunter Hopkins Clinic in Charlotte and am finally on the right track and feel so much better. If you want to set a meeting time for some evening or Saturday in the next two weeks, write back and I will set it up. I am on medical leave right now but hope to return to work soon. Truthfully there is so much new information out there and we need to get on the bandwagon and help each other out. Let me know.
Judie Wolfe
25 Jan 2010, 09:15
Oh, you poor dears! My sis-in-love just sent me this encouraging website, and, after reading of the horrendous agony some of you are experiencing, I feel I'm blessed to be only suffering with some of the pain you are having, but I also have OA, IBS and GERD. I'm 70 yrs old and had a caring osteopath give me the diagnosis of fibromyalgia 30 yr ago. He trigger shot a couple spots on my back with air or water saying that just interrupting the pain cycle and knot would help. He also prescribed an Elavil generic (Amitriptyline) that I've taken at various strengths since then. Unfortunately, he retired and I've been on the hunt for another like him since. My husband snored loudly and had sleep apnea at the time, so I began wearing wax-based earplugs to block the noise at night. This way I got a few hours of good sleep, but some nights I still had to get up a couple times just to move around. I've carried on like this for years. A change in my husband's drinking habits totally removed the snoring! Sometimes he sleeps so soundly now, I have to touch him to see if he's still alive! Now, he wears earplugs for MY snoring. I still wear them, too, against other sounds. As I'm aging, I find the fibro is having more affect on me. Lack of energy to clean, to think, to do creative writing and email. And the stiffness is so bothersome.but I've found that stretching is essential. There is a video (maybe a DVD now?) showing specific stretching exercises for Fibro. It's produced by the Oregon Fibromyalgia Foundation. I can't remember what I paid for it, but not that much. Google it for more info. There is more info on this video,too, explaining that there is a time factor in breaking the cycle of pain -- you hold the stretch for so many seconds, etc. Something else is so helpful for me is my Christian faith. For encouragement, I can only tell you that the assurance/promise/guarantee I have from the Lord Jesus of eternal life -- without pain is so comforting. Meanwhile, pressing into His comfort and mercy, and helping others when I'm able keeps my mind off my discomfort and pain. Sometimes I think, the more I do, the better I feel, and the better I rest. But, I understand that getting started can be incredibly difficult. Breaking the pain cycle is a big factor in this syndrome. Anxiety over the dread of pain only causes the muscles to tense up and knot tighter. Stretch and breathe -- Jesus said, this world is not all there is. With sympathy,empathy, compassion and love to you all.
Janet Clayton
19 Jan 2010, 16:55
I have sleep apnea, fibromyalgia, high blood pressure. I hurt,I try not to let this issue win. My house used to be spotless, now I can't say that anymore. I do walk the dogs. I am so stiff, I can't stand myself. I wish I could find a doctor who would give me something for pain, other than neuroutin. Please text me back a doctor in Columbia, S.C. or Charleston, S.C. who would prescribe me something other than Darvon, and Flexerill. I could do so much more if I didn't hurt all the time. Please help me.
Susan
15 Jan 2010, 19:16
I've had Fibro for about 21 years. Some doctors don't believe in it so you have to find one that does. I recently moved to N.C. and have found that the doctors think you are going to sell the Vicodin instead of taking it. I would never sell any as I NEED it myself. lol Idiots. I also have Ortho Arthritis and the two are so restricting. I keep up at least walking although my knees need to be replaced. I recently stopped my 2 sleep medications and have since lost over 30 lbs. I stay up for 2-3 days and then sleep. Since I don't work anymore I figure it won't hurt to have this schedule. The hardest thing to do is to be gentle with myself. Forgive myself for not doing house work and other such things.
Bonita
13 Jan 2010, 02:01
I was diagnosed in 1996 with fibromyalgia, but I think it was many years before. Since my diagnosis, I have trouble with my esophagus and acid reflux. I have IBS, and had my gallbladder taken out, by the luck of a day, it had already turned into gangrene when it was taken out. I have a pain on my right side ever since I had the gallbladder taken out, that’s how they found my cancer. In 2006 I was diagnosis with kidney cancer. I had my right kidney taken out; I now live with only one kidney and pray I don't get it in the other one. So now I can't take ibuprofen or Motrin because it filters through the kidney. I had a hysterectomy around the time of my diagnosed I need to be on estrogen but the doctor says it causes breast cancer, wow so now I’m heat surge LOL. I go to pain management and get pressure point injections when I can, and take vicodine for the pain as needed, I have been on ambein for almost 6 years, and the doctor is complaining I'm addicted. Well if I don't have the sleeping pill I don’t sleep. If I do sleep it's very light and I wake up to everything. I’m also the mother of a child with cerebral palsy who is also in college, and is going to be 21 on the 16th I can’t believe my baby is going to be 21 .This has been the longest struggle that I have ever done trying to get people to understand because I look so healthy, that I have a problem. I went back to college 2 years ago and am working on sociology degree, but I feel when I graduate who is going to hire me? The first time, I call in sick, and can't get out of bed, I will be gone. I wish they would find out what causes this and call it a disease. God Bless you all who suffer, keep your chin up and never give up. I don’t want people to feel sorry for me; I just want understanding, like most people who have this disorder.
renee
11 Jan 2010, 00:39
in '87 i was in an auto accident which left me with chronic pain. the only relief found was aggressive physical therapy. painful at times but some relief after. the duration varied from treatment to treatment, very frustrating. during this time i was being sent to many md's. i was to see one neurologist,but i saw another in the group. it turned out to be the right one for me. "thank God". he read my records, asked questions, felt my back . shoulders, arms, and legs. looks at me and said those magical words "i believe you have fibromyalgia" i felt as if a weight had been lifted. no longer could people and dr's. say it was all in my head.

over the past 23 yrs i've been told i was getting addicted to the drugs that helped with the pain and then proceded to ween me off and started otc meds that did not help. being a good patient and the things in my life i was able to move away. again i say " thank God" i found another dr. who had other ideas on how to treat fibro.some help. again i moved met a pain specialist "THANK GOD" he helped me adjust my pain meds as did my orthopedic dr.pain md left and his replacement is wonderful. i will list my meds but know this, what works for 1 does'nt work for all. my current cocktail is --morphine long acting 2 x d, neurotin 3 x d, baclophen 3 x d, norco 2 x d, cymbalta 2 x d and i still live in pain but you see as long as i can function and have a semi life i can handle it. most people can not handle it my way but this is my life,
Sonia R
03 Jan 2010, 02:13
hi,
my problems were same,n my doc always smile at me that if i'm joking when i say i'm in pain.n i was really in pain n was suffering from cluster headaches too,first they were like migraine n then i read symptoms on internet,then i self diagnosed that i'm suffering from fibro n cluster headaches.
Don't know what to do here coz this is really sad when doc dont understand n fail in diagnosis.Anyway,i belong from Pakistan n here unfortunately nobody knows abt Fibromyalgia.sometimes i think maybe i'm wrong,i started to workout n tried to control my weight n concentrate on my food intake. I feel like i'm doing good n feeling better,but these headaches still hurt me, killing me n make me tired.......
Donna
19 Nov 2009, 12:57
I have been diagnosed for two years now, but I am certain that I have had Fibromyalgia since childhood. At the age of two I started ballet training. I continued until the age of 22. When I was a pre-teen I started having the worst pain in my legs. My doctor told me that it was "growing pains". The pain was absolutely unbearable. Two years ago I was told that I had to have back surgery. The neurosurgeon stated that I might have something more. Indeed, I had Fibromyalgia.
I had been having "mystery pain". I missed a lot of work. My bosses always thought that I was just being lazy. We really need to raise awareness that this is a real illness.
Diane H.
12 Nov 2009, 17:40
I have had pain as far back as 25 years ago. Mostly headaches and jaw pain back then. I went to doctors who would tell me "reduce my stress," being a young mother of 3 small children back then it was of course impossible. I have had doctors ignore my pain and not listen to my pain,tests on my thyroid and blood were numerous it's been very frustrating. Thankfully last year the Good Lord (and my husband),sent me to a doctor who actually believed I had pain!I had been reading about fibromyalgia and the doctor agreed that's what I have, it's been frustrating because she has been trying different meds on me and I am very sensitive to the meds. I have been blessed to have a patient and loving husband, I'm scared because recently the fibromyalgia has hit my hands, arms, and chest. I also have frequent peeing miles! I'm trying not to be fearful of the future and continue to do as much as I can. To all of you stay strong and try not to lose hope. Rely on your love ones and those who help you and receive it. Make the most of good days and may the bad days be few. God Bless....
Katarina
04 Nov 2009, 18:43
After being ignored for years about my complaints of extreme body pain and debilitating fatigue by my PCP,I was finally listened to by a doctor at a walk in clinic. He ordered labs that showed an elevated ANA, SED rate and many others that were abnormal, which indicates an autoimmune disease. The labs were sent to my new PCP who referred me to a small town rheumatologist who diagnosed Lupus and put me on Prednisone and Plaquinil and kept telling me to wait and see how it goes. Frustrated with being ignored again,I made an appointment with a rheumatologist at a city teaching hospital who diagnosed fibromyalgia and immediately took me off the Plaquinil and weaned me off the Prednisone and told me he only treats Lupus, referring me back to my PCP who doesn't want to treat the fibromyalgia. I then went to a big city specialist who told me "FIBROMYALGIA IS NOT A DISABILITY"!!!! How can this woman treat people in crisis with no empathy or understanding of the disease! I wonder when was the last time she had debilitating fatigue and couldn't get out of bed!
I am now at risk of losing my job as a nurse because I cannot keep up the physical pace of my job.
Why doesn't the medical world think fibromyalgia is debilitating, devastating, life changing, heart breaking,unbearable, incapacitating and overwhelming,
causing anxiety, depression, chest pain, brain fog, blurred vision........excessive medical bills.....who is going to listen???
Tina P.
03 Nov 2009, 11:35
I was in a car wreck in June 06 on my way to my Office Manager position at a realty co. which I loved...when out of no where comes this older lady crashing into the side of my car. From that moment on...my life changed forever!! Long story made short..it took me about 8 mths and 5 different drs to finally find out I had this terrible, horrific, debilitating chronic pain disease called: FIBROMYALGIA! Oh and CFS too and chronic myofascial pain on the right side which the wreck affected the rt side the worse. I hurt so badly 24/7 from head to toe! I wish the pain was all I had to deal with. I take very strong pain meds just to get out of my bed to make it to the restroom in the morning. I am sooo stiff and achy from sleeping or attempting to sleep..I get chronic migraines, my skin hurts and burns at times, I have IBS, IC (constant bladder pressure) I had that before, worse now. My esophagus has decided in the last 2 years that it would not push the food, pills, drinks, into my stomach anymore because the fibro affects all my muscles and bones! About to have surgery again probably on my esophagus. They think the fibro caused Achalasia of my esophagus. It is scary. Can't even eat right anymore. This disease has stolen my very life from me. My job, my family as i knew it, my sanity, cause I have severe fibro fog! I can't remember anything. I leave my keys in bathrooms of restaurants (stupid!)had already lost my extra key the week before...my life consists of Dr appts, drug stores, arguing with my ins.,begging for my disability over 2 1/2 years since I had to resign from my job I loved. And for those who don't believe???? I pray YOU NEVER GET this DISEASE: FIBRO. God Bless All of you who deal w/this daily. Lean on HIM! I would have checked out of this world, this pain a long time ago without the Lord! Keep fighting that depression! I do daily. We can't give in to this fibro or the idiots who don't understand because they haven't had the privilege of getting it or experiencing the excruciating PAIN. God Bless!
Tonia
01 Nov 2009, 11:24
To eve,
Please be tested for MS. I have Fibro, but also had sever pain in legs and hips. Doctors did lots of tests as I was applying for disability. They determined my left leg was shorter, which hadnt been in the past as I see Chiro. I was diagonsed with MS. Lots of times drs diagnose fibro, but there is still underlying medical conditions people have that is just overshadowed by the firbo.
glenda
25 Oct 2009, 19:36
I have had fibromyalgia for 20 years. It has been a long journy, but I am here. I have been blessed because I have not been bed ridden with this at all, Altho I feel like going to bed at times because my legs hurt and are week. I have alot of pain all over my body. My doctor does reconize Fibromyalgia and has given me meds for it. I know there will be side effects taking the meds so I suffer with pain as much as possible. I take ibropropen 2 to 4 a day, which helps some. I have been in almost constant pain with my lower back for months and months. Happy I found this web page.
Gloria
26 Sep 2009, 16:36
After reading the many inputs..i dont feel so alone..with all the symthoms mention i beleive has covered mine..I was diag 4 yrs back and having a hard time adjusting..the main thing is others understanding becuase of nothing to see with the eye..i was used to an active life which came to a halt..and yes..a little puppy helped!...your whole lifestyle changes..when the worst of days are there i stay away from others...i try to work in the yard as much as possibe to work against the pain help keep my mind off of it..like others may pain meds..swich from time to time..have found that ice packs helps for me...my sleep habits are ..well....not much....i go to my sons pool which has so much relief from the burning and the weightless exercise!..i have found a tropical gel(persription)thas has really helped with those target spots..headaches are still a pill...i also have degenertive scolilsis and oseo..i jus pray that soon a cure for this pain that no one sees...Bless all of you..it helps to vent
Patricia Schoenrock
03 Sep 2009, 19:31
This section was very helpful. At this time, my neurologist is trying to determine if I have OA,fibromylagia, or CFS.Reading these stories @ fibro patients gives me a lot to think about. Thanks for the input.
Renee
19 Aug 2009, 22:43
I am a fibro patient now for 12 years. I was not able to continue teaching, which was a part of who I am, and so am officially declared "disabled" as of this November/09. The fibro fog, along with constant pain and fatigue kept me from giving the children everything I had...........it really makes me sad. I am on several meds, along with Vitamins B-12, C, D, E, magnesium, calcium, folic acid, fish oil, cyclobenzaprine, clonazapam, Lunesta for sleeping, and Nexium for GERD.........yep, a LOT of stuff, but with trigger point injections every 2-3 months, along with an entire body pain injection, I manage to keep going with good results. My most difficult thing is exercise. HOWEVER...the physical therapists I go to 3 times a week DO exercise me, as well as work my muscles through massage, and a trip to the aqua bed. AHHHHH! I have decided that I have Fibromyalgia, BUT IT DOESN'T HAVE ME!!!!!! I just keep on , keeping on!
red
11 Aug 2009, 05:37
i was told i have fibromyalgia this year and i was told i have RA aswell.. i have suffered with pain stiffness etc for about ten years.. i have not been able to work for over a year now i was a carer.. the pain is bad and some days i cannot do anything my friends and famiy find it hard to understand the pain as the only thing they see is the swelling i try not to show how much pain i in but it dont always work this illness has changed my life even thro i tried not to let it i take strong painkillers every day and meds for RA and to help me sleep.maybe one day people who dont have this illness will have more of an understanding of how it affects people who do and the pain we have 24 hours a day and the problems we have doing normal things in every day life
Joyce Readus
22 Jul 2009, 17:52
I been sufering from fibro since sept of 2008 and the hospitals didnt exactly know what was going on so i went to this one clinic and he told me what it was and i was so relieved to finaaly put a name on what i was suffering from but now it seems like i have not found the right medications for flare ups someone please let me know?
Susiie
16 Jun 2009, 14:03
I was diagnosed with Fibromyalgia about 20 yrs. ago. At that time I thought that my doctor had made up with word because she was tired listening complaining about so much pain in my hole body. When I first started having this pain it wasn't easy to explain exactly how was it.
Nevertheless, over the years looking into it with open mind and learning along with this great Arthritis web page and getting books at the public library, I became familiar with the name in the first place, and then with my symptoms and finally do some of the recommendations for this illness.
I do not take medication everyday, only when is needed, I walk with propper shoes, I go to the gym and I feel renewed when I go in the swiming pool and exercise in the water. I wish I would swim well but that is OK just been in the water moving my legs and arms is great.
I just want to share my experience. Yes. I have days with depression, my hole body akes that I do not want to move. I push myself, getting my support spiritualyl
Good luck.
Terri
16 Jun 2009, 12:14
I have been treated for the past 5 years by a very wonderful caring team about 2 hours away from my home.I was so thankful when they finally put a name to it.For people who think this is all in one's head,GOD help you I hope you never find out what it actually is like!I WOULDN'T WISH THIS ON MY WORSE ENEMY! We are always adapting and learning how to live with this terrible disease. i will say it is very difficult to get your diagnosis.I have a very caring family,otherwise i don't know what i would do.I guess I would say if doubters would just pretend it was their wife or mother it would be easier to see the possibilities. Love and prayers.
eve
05 Jun 2009, 06:27
10 years ago the specialist told me i have Fibromyalgia but he also told me that i do not have arthritis meaning that fibromyalgia is not arthristis now i am not here to get anyone confuse but that is what the doctor told me. now as far as my condition i have so much pain that it leaves me bed ridden for days or weeks cannot walk much cannot clean for the pain will flare up i get shooting pains in my eyes which the doctor said that has nothing to do with fibro, so i do get confuse about this fibro, the pain at times is so unreal so terrible that i be in bed just crying so the doc said that i have other problems which i don't even know about i need to go for other opionin and also my right leg is shinking it is smaller then the other leg this is not fibro, need help can anyone give me an opinion. eve
Ruben
03 Jun 2009, 13:00
My story goes that I have been seeing a doctor for five to six years. I have been on many meds that I don't not want to write done. I was dignosed with RA from my other doctor but she wasn't to sure because it was not showing up in my blood. However she was didn't stop giving me meds. I got scared because all the meds. After finally listing to my family and co workers I discided to see another doctor. I have been with this new doctor for two months and I think it is to early to say anything. He has been taking me off the meds and putting me on new ones. I have already started and stop some drugs. Yesterday I was given a new drug called savella. I have will be starting the new drug today because I wanted to look up the side effects. It was hard talking to my doctor yesterday because there was so many things going on. I also received two injections on my back. My new treatment is to treat fibromyalgia.
paula
17 May 2009, 08:23
I was diagnosed FM 9 years ago having suffered it for about 15 years. I've spent most of my adult life trying to understand the origin of my inexplicable health problems. A number of events that now look more like synchronicities were slowly pushing me out of the main stream explanations -or I should say non-explanations since Western medicine can't explain what FM and many other "new" health issues are. Five years studying Anthropology at the University of Buenos Aires opened a big door to different cultures, different perceptions of our everyday reality. I feel it's time to share this information.

It would take quite a few pages to explain the following in detail, to the purpose of this message I'll be brief: the western approach to understand fibromyalgia is completely wrong, FM is a process that your body is going through, this process is happening at an atomic level, it's a shift in the energy field that can be measured (in case you feel the need of scientific proof), the electrons that orbit around the atomic nucleus are trying to vibrate at a higher rate, that is, they are trying to increase the speed, this has obvious consequences at every level of your existence. To your body this feels like being on the fast lane of a high way on a bike, that is: you'll never make it. Because we don't understand what's happening to us, most of the things we do to get better are actually only slowing down the process. All you need to know is on the Internet, look for it.
Dee Harper
21 Apr 2009, 18:06
Is muscle weakness/spasms a symptom of Fibromyalgia also? I have inflammation, at times, in the area of my collar bone and wonder why. I take Pamelor and Skelaxin every day. thanks
violet
12 Apr 2009, 02:26
my 19 year-old son was seen by the head of the rheumatology department at a teaching hospital for muscle and joint pain, flu-like symptoms, that had lasted longer than 6 months... first the doctor asked my son if he drank or used drugs (he doesn't)... then when we asked if he might have fibromyalgia, the doctor said fibromyalgia was a myth & didn't exist.. and then asked my son again... "when was your last beer?".... my son was later diagnosed with eosinophilic gastritis following a upper & lower GI with biopsy... he is also still suffering from symptoms of fibromyalgia, but has yet to be treated for it.
PAT
30 Mar 2009, 16:59
continued.

At that time I suggested to him that he get my long standing records copied and give to me. I was stunned and disappointed that he did not take my symptons seriouly, but alluding that I had some mental disfunction. I went through every test, i.e. Spinal tap heavy metal test, brain scan, etc. and nothing showed. So I guess he figured that I was a complaining hyocondriac. I eventually found an internist who listened to me and asked me questions and gave me a diaganosis on the spot of fibro. I was so relieved that at last someone took me seriously. His advice to me was better sleep habits (he put me on sleeping pills for one month) to break the cycle of pain versus sleep. Also, two hot baths a day and to inform my family and co workers that they could not any longer expect me to more than my share. I am an A personality and had always tried to be perfect in every way. I found that by following these measures were working to help me control the fibro. I compared it to a full bloomed flower and when I became stressed I would feel the wilting of Fibro begin. I learned to control its invasion. There has been times when trauma has interfered and the Fibro took control but when the trauma was over or contained and accepted I got back on the track. I hope that who reads this can take something from it. Oh, yes, a new puppy works VERY WELL!

Be well.
Pat
30 Mar 2009, 16:43
Re" Fibromyalgia. Over 20 years ago I was experiencing all over joint pain, burning as though hot oil was running through my veins. I went from doctor to doctor, including neurologists. I had been with a primary doctor for years and years and when I explained to him my symptoms, he suggested, after knowing me to be a very happy, healthy woman for many, many years to go to a University's mental health clinic. A

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