The two key symptoms of fibromyalgia are widespread body pain (meaning it affects both sides of the body and above and below the waist) and tender points, or areas of the body that are particularly sensitive to pressure. However, you may not realize you have tender points until your doctor presses on them in an exam.
A fibromyalgia symptoms checklist includes sleep disturbances, severe fatigue, depression and anxiety, cognitive difficulties, headaches, bladder irritability and spasms, irritable bowel syndrome, jaw problems and painful menstruation.
WENDY: The non-itchy rash I've had for a long time. Mine is on the arms, legs (lower), and have gotten a deeper red when it comes. Ask for a lipid panel for lime disease, rsd, RA, and anything else the panel can give. Doesn't mean it will come back with something, but it's a place to start. Otherwise, in some places I've read that those with severe FM can have rashes. Being told that I have a severe case of FM and RLS, I've come to the conclusion that the rashes are from that. I do believe that chronic stress does have something to do with eventually getting some of these issues. I've lived in more stress than normal for many years, and when the accident happened, I went down hill fast. And, the lack of knowledge from others, and the isolation and not having needs met that are necessary, causes the stress to go into Post Stress Syndrome, and then it deletes all the energy given from the adrenals. Then you have an aderenal problem that will take a long time to get "Filled up". It's like pouring out water out of a pitcher, but never putting any back in. Eventually, there is nothing left. That causes symptoms of many kinds. Chronis Pain sets in, and I finally have medications right with morphine, oxy, and other smaller types of meds to help. But pain is a companion. It's like living with someone tapping on your shoulder, saying your name, over and over and over. Concentration goes down, coping goes down, pain goes up, stress goes up, yet you aren't believed by some drs, (which I've found a great team), and by friends and family. That kind of grief of losing those you need, plays on the stress and pain. And I'm sure you are very familiar with the rumors, "can't be THAT sick", "just wanting attention" (I love that one!!), "lazy", "think positive, then you will be better" (which is true, but I wonder if they can be as positive as they want us, when we are isolated, pain not in control, yet wearing a mask to appease others.) Lately, I've learned to ignore those who stress me out by saying things they haven't a clue about. Some have problems that have limited their life, but if they are controlled by pain and what their body does, then they really don't understand. The family lose and grieving, isn't taken into consideration, as you know, this just isn't about "us". I have and am still where many of you are at this time in your life. I wish I had the magic answer...but please have a sleep study, and get a team of drs. who are on your side. Firing doctors who aren't doing their job, is our place. We "hired" them to help us, but if we are compliant, and nothing is working, or if they don't believe us, then it's time to move on. If the staff isn't compassionate, that is a stressor - so move on. After 11 years, I've finally gotten a team who helps me have 1/4 of my life back that used to be "me". That's a great improvement....and I feel there is more to come.
One last thing...I had doctors tell me "If I didn't take time to recover, then the chances of problems later, would be greater. They knew of our situation, and of the lack of support or care. They did what they could, but insurance doesn't pay. Now on disabiity, I have better days as time passes. But, having a support system, and recovery time, without stress, is very, very important. And that goes for no accident or not. The beginnin stages of FM is when good care and nutrition MIGHT help.
Best Wishes, Painfully Yours.
, but yeah, ugly for sure. There is a surgery for it (you have to see a hand surgeon), but they fuse the joints, meaning you can't bend at the distal joint. I've decided to just live with it. I also have FM. My docs have said it is sometimes hard to determine where the FM and osteo begin and end. Also been dx with CFS, but I think that was because the FM and CFS symptoms are so close that they just dx me with both.
I try to stay active since I feel if I stop moving it will be hard to start again. Some days it is so hard to move and other days I just have to stay in bed.
I am on Lyrica, Celexa, arthritis meds, thyroid meds, and some days these just aren't enough. My pain and depression seem to just get worse. My vocal chords wear out and my face and head hurt from talking.
Does any one have any suggestions as to how to deal with the symptoms and what to do about work?
My little girl 11yrs, has been dx with Ehlers Danlos. Family history of auto immune disese and my mum has Fibromyalgia. My daughters rheumatologist thinks my child may also have Fibro. She has unexplained numbness in her limbs, sometimes down her side, all the tender spots, bursitis in both hips,IBS reflux, mild scoliosis (& i think thats all). the only meds she is on is Naproxin and paracetamol.. she also has depression (gee i wonder why!?) but isnt on meds. Last night she had a rash about the size of the palm of her hand on her back. SOOO painful i couldnt touch it and she couldnt tolerate clothing.then suddenly after an hour it disappeared! but the skin on her back was and still is extremely painful to touch. could this be related to fibro?? also when in hospital she had an IV line and her arm was very very painful above the insertion site. oh and she has had 8 urinary tract infections this year alone! 3 requiring IV antibiotics. my poor baby it breaks my heart for her to be like this :(
Two years later I started having High Blood Pressure. I have all my life had excellent blood pressure, so why the High pressure? After reading the articles in Arthritis Today, about Fibromyalgia, I became aware for the first time it could be related to the Fibromyalgia.
I am no longer able to function well enough to do my daily activities. I can only stand still in an upright position for three minutes. I cannot walk more than five or six feet without such severe pain and fatigue that I am forced to sit down or fall down. My Rheumatologist prescribed heavy doses of pain medications for the Osteoarthritis. He also prescribed a well-known medication for the symptoms of Fibromyalgia. The pain medication helps, but on my good days I am still in moderate pain. I also started suffering with severe depression, which eventually I ended up in the hospital and was given four types of medication,
I just found out I have the Fibro-fog, but did not realize this until I read the article about the symptoms of Fibromyalgia. I have every symptom mentioned about the Fog. Confusion and memory loss are only two of the mental symptoms I suffer from because of Fibromyalgia. I have been trying to explain this to my PCP, but upon performing a Mini-Mental Status exam a month ago, he found me to be normal. The article in Arthritis Today explains the Fibromyalgia Fog to be unpredictable. It is inconsistent because the symptoms may vary on an hourly basis as well as the severity of the symptoms. I am greatly relieved to know why I have these “Fog” symptoms and now I can put a name to my mental problems.
Thank you for all your help and for those testimonies that help me cope too.
(corrected copy)
I have had RA and Fibro for years but was diagnosed in 2009. All my thoughts are with you.I am so sick of taking medicines already but at the same time they seem to be helping some. I don't think it will ever stop hurting ever.So glad I found this sight. I was told exercise is best I just can't seem to get there any sugestions.
Thanks.
Wendy- Have you had your thryoid checked? I know it sounds crazy, but the thyroid controls your hormones. When it's out of whack it can cause crazy problems. I can't say I know what all of your symptoms can be from, but I can tell you that I had those same non-itchy hives. Mostly on my arms, but also on my stomach and legs. I saw my allergist and he didn't have a clue, & my dermatologist was just as stumped. My primary blew it off to allergies. It turned out it was because my thyroid was out of whack. Your hormones help to regulate everything. When they're not operating correctly things go haywire.
i will seek further help from my doc. Thank you all for your input and your stories.
worrisome. Has your dr worked you p for Mono, lukemia and lymphoma? If not and you need to be the one to ask for it after 8 months, you need another consult.
To all who are suffering pain that is 5 out of 10 on the pain scale untreated causing you to lose sleep and time for work and school you need to advocate for yourselves. You don't have to wait for months of waiting for several tests to be ruled out before pain medication. There is a condition called widespread chronic pain which you can ask the dr about whilehe or she is fishing around for other dx. Dr are (rightly so)concerned about prescribing even mild opiates to "drug seekers". ALL people truly in pain are going to drug seek.Have a conversation with your doc, especially if he knows you well. Even if he isn't, there are physiological signs dr and nurses can tell along with reported information.In nursing school we are taught that pain is pain whenever the patient says it is and wherever he says it is(quote from famous nurse pain specialist whose name I cannot recall at the moment).
I am 45 yrs old now and take heart in knowing that I am not suffering alone. I was diagnosed with degenerative disk disease when I was 20, after undergoing surgery for a ruptured disk in lumbar area. I have had a second surgery on the same area in 2002, but this one failed, and I now deal with the sciatica, stiffness, chronic pain, and nerve damage. As a result, I also deal with depression, fatigue, sleeplessness, etc. Oh yeah, my foot feels like it is stuck in a light socket 24/7. I have not been officially diagnosed with fibromyalgia, but I know I have it anyway. When I first noticed fibro fog, I initially thought it was because of the meds I was taking,or that I was starting to go senile. I must say I am glad I found this site. I was put on Lyrica @ a year ago, and it has taken the place of gabapentin and keppra with fairly good success, at least for the foot in the light socket syndrome. It also does help some with the generalized pain (sensitivity to the upper arms, overall achiness, etc). My symptoms flare up when the weather changes to cold or rain, and when I overdo it. I have had doctors tell me it was all in my head, and another that said he could write me a truckload of scripts for pain meds, but he didn't! I have also found that smoking a little marijuanna in the evening does help me fall asleep, and stay asleep at least for a few hours. It cuts back on the viscious cycle of staying awake for 36+ hours and then sleeping for 10. I actually prefer this to taking another pill.
My husband used to and still does get mad because I don't really perform the wifely duties anymore. He starts in with "its all in your head" crap. The way I see it, that is his problem, not mine, and it's now all in his head.
For those of you filing for SSDI, find an attorney that will accept payment when it is finalized. You have to hold out though, it will take at least 3 yrs to get benefits. I was denied 3 times, before we got to see a judge. I was told that they handle the cases starting with the oldest(in age) first, not by date of application. If your state has medicaid, use it in the mean time, at least it will pay for most of your medical costs. Take care everyone and GBU.
I just turned 20 in August and am a full-time student. I've been experiencing pain for as long as I can remember. I've already been diagnosed with Patella Femoral which affects the knees. I kept telling my Dr. that though the physical therapy I received for the knees helped, it wasn't just my knees; it was everything. My toes, my fingers, my wrists, every joint I can think of has on and off pain. It's almost like they alternate - One day it'll be my left foot and right shoulder, the next it will be the opposite, and then the next it will be all of the above. I'm so tired to the point where my doctor told me I may need to take some time off of work and school. Also, I have asthma, but until recently I thought I had it under control. I keep feeling strange pressures that I've never felt before and the feeling of being "closed in." It helps to find out that that can be a symptom of Fibro as well as other autoimmunes. I recently had blood work done because of the joint pain. Arthritis runs in my family and she finally decided it was worth checking. It came back that there is a chance I have some kind of arthritis or other autoimmune disorder and I'm scheduled to see a Rheumatologist. They can't even get me in until after December and they basically told me that I just have to deal with the pain for now. I'm sick of feeling like I'm 80 years old when I should be out having fun with my friends and family. I know that probably sounds juvenile, but it's hard seeing everyone enjoy themselves when I struggle to get out of bed every morning. It gives me hope to hear everyone else's struggles and the common consensus of "it's good to know I'm not going crazy." That's how it's always felt for me, no one understanding and being able to relate, especially at my age.
Thank you for posting your stories and helping me to formulate some questions to ask whenever I can get to a Rheumatologist.
1999 and I thank God the doctor was able to give a correct diagnosis and be very honest with me about treatment. He said to simply think of it as another word for "pain"..and that there were several different medications to help with that, but no cure. At that time, the only meds for this condition were Celebrex and Vioxx or prescription Tylenol. This was right around the time that people were beginning to have serious health issues with these 2 medications, and I opted not to risk heart attack, stoke, kidney or liver damage on top of everything else. The doctor also recommended a pain management clinic where I learned of other options..namely massage therapy and yoga. I can't begin to tell you how much both have helped control the pain for long periods of time..At first, I was getting a massage once a week and took a beginner's yoga class twice a week - this became part of my schedule for 3 years..now,I get a massage every 2-3 weeks and practice yoga every morning for 30 minutes. I occasionally have bad days, but nothing like it was in the beginning. I have also found that two 1200 milligram capsules of fish oil per day
also relieve some of the arthritis-like symptoms (not to mention helps build the "good cholesterol" levels in the blood). I know that everybody that suffers from this has different levels of pain every day, and that what I'm saying may sound rather simplistic, but some alternates will work for you..I've been thinking about taking Tai Chi, which prompted me to read the article and the comments left by everybody. Just wanted to share...
A.
My scariest symtoms (just wrote cymbals) include saying the wrong words, word retrieveal, and foggy memory. This is without meds. I'm on unemployment and think I'm blowing interviews with the whole "uh,uh,uh,uh,uh response to questions.
Does anyone else have this problem, not as a side-effect of some drug? Does it get worse?
Have had fibromyalgia for 40 years after my pelvis dislocated from sacrum. Several ruptured discs that happened all at the same time. It has definitely progressed over the years, and had to quit work in 1986 and have not been able to work since. Until the mid 1990's had only gotten all in my head diagnoses so had no help from medical community. Obviously could never get disablility because all in your head is not an acceptable diagnosis for anything.
In mid 60s found an article from Rheumatology telling all doctors NOT to diagnose fibromyalgia because of the reamifications to the disability rolls and the potential for law suits from surgery and to industry so I knew it was all over for me and the only help would be what I could come up with. The article said fibromyalgia is caused by neurological inflamation. They have known for decades what causes fibromyalgia.
Have used ice, heat, accupressure and sometimes acupunture also chronic pain massage therapy. Understanding my limitations has been critical. Suffer the usual: Just get up off your @ss and go to work, your antisocial etc. Sure understand why so many end up committing suicide. There is no end to it. To abuse someone with a disabling illness is probably the most vile aspect of health care in America today. I have always hoped that somehow they could figure out a way to diagnose it and provide treatment even if they also found a way to deny disability claims only so that those suffering so much could get even a little bit of compassionate care.
I am sixty-one now and have no problems getting diagnosed..not much treatment but at least I don't get slapped in the face in the doctor's office any more.
In public articles the NIH hems and haws and NEVER calls fibromyalgia disabling. In technical journals and news the NIH says: "Fibromyalgia is a debilitating conditions...." and also: "research suggests it is related to a problem with the central nervous system's processing of pain..." Right back where we were in the mid 80's.
In mid 60s found an article from Rheumatology telling all doctors NOT to diagnose fibromyalgia because of the reamifications to the disability rolls and the potential for law suits from surgery and to industry so I knew it was all over for me and the only help would be what I could come up with. The article said fibromyalgia is caused by neurological inflamation. They have known for decades what causes fibromyalgia.
Have used ice, heat, accupressure and sometimes acupunture also chronic pain massage therapy. Understanding my limitations has been critical. Suffer the usual: Just get up off your @ss and go to work, your antisocial etc. Sure understand why so many end up committing suicide. There is no end to it. To abuse someone with a disabling illness is probably the most vile aspect of health care in America today. I have always hoped that somehow they could figure out a way to diagnose it and provide treatment even if they also found a way to deny disability claims only so that those suffering so much could get even a little bit of compassionate care.
I am sixty-one now and have no problems getting diagnosed..not much treatment but at least I don't get slapped in the face in the doctor's office any more.
In public articles the NIH hems and haws and NEVER calls fibromyalgia disabling. In technical journals and news the NIH says: "Fibromyalgia is a debilitating conditions...." and also: "research suggests it is related to a problem with the central nervous system's processing of pain..." Right back where we were in the mid 80's.
I will admit the braces really help. Also, my dentist made me a mouth guard that wear during night time and that really helps my headaches and jaw aches.
One word of info. My sister has had Fibro for years, and her Dr. put her on one of the medicines, cannot remember the name, and one of the side effects is it effects your kidneys. Her kidneys failed and she ended up in the hospital, they had both quit working. Luckily it was caught in time and gave her massive IV push and got them working again. This worries me, I would suggest before taking any new medicines ask for the side effects. I believe we all have a process to go through that will be a long time.
Mary
About 9 months ago I began experiencing pain in my body in areas that made me feel as if I was an older woman. Just about everytime I would try to go from a sitting position to stand, pain would shoot down to my tailbone, and would make me feel as if I were trying to pick up weights from the chair, and I had difficulty getting up. Once in a standing position the pain would ease away. I also started experiencing numbness, stiffness, tingling, and pain in the joints of both my hands but only when I would wake in the morning. to make a much longer story short, I eventually began seeing a neurologist. After months of seeing him and each time describing to him what was going on and after an EMG, and several blood tests, he said I am a perfectly normal healthy young woman, and my problem was due to stress. He also diagnosed me with Fibro, but also explained to me how he doesn't believe in Fibro. He had me start on Lyrica, which the only difference I have noticed is all the side effects that come with it, otherwise I still have all the same problems. Only I now have been experiencing problems with my knees, feeling as if they are swollen while walking, sometimes there is heat, and then pain, stiffness as well. If I don't wear braces on my hands at night I will wake with stabing pain in my joints. When I do wear them, my joints begin to lock on me as soon as I take them off. After 2 months of being on Lyrica, I went back to the neuro and now he wants to say its stress again because all the blood tests show nothing wrong with me. He wants to prescribe me with some anxiety meds, I dont feel I need! I left very irritated at him, I just didn't feel like he listened to me. I don't want to take this new med. He also prescibed me a smaller dosage of Lyrica - for which I don't think is changing anything one bit. I honestly don't know what to do. After EMG he said I do have a little carpol tunnel and reffered me to a chronic pain place and I will be having injections in my hands. I have pain in my back most of the time. I wake with pain in my back. I have decided to go to a chiropractor to see if he can help. when using my arms to do things like stirring a pan of mac n chees or to pick up things sometimes they just become so fatigued it feels like I've just done some major exercise. Many days I wake and have whole days I deal with being very dizzy.
Whats really wrong with me is what I want to know? Does anyone else experience this kind of stuff? I am not a person who stresses out easily, so I just don't understand why he wants to put me on meds for stress. HELP! Have I been wrongly diagnosed? Do I need to find a different doc to get a second opinion? I don't know what to do? After the last appt. I don't feel I can trust the doc.
I recently developed a new symptom. My whole leg went into agonizing pain and within a matter of five minutes the pain left and my leg felt as if it were on fire.
It is my hope that someone on this blog can furnish me with some answers as to weather or not I may have FM. I thank you all a head of time for any help you can give me concerning this issue.
I have just read throughout all the comments everyone has posted; I am sorry for the pain each of you experiences. I am 52 and I have had Fibromyalgia and Rheumatoid Arthritis for about 10 yrs. I was diagnosed at a young age and back then Fibro wasn't easy to diagnose because many doctors didn't believe in the disease. The various symptoms I experienced made me feel like I was going crazy; and yes I get looked at strangely by others when I mention that I am on disability. It took me a long time to let the looks and comments slide off my back. I know what I experienced and had to live with on a daily basis. I was in denial for a long time too, I refused to fill out the paperwork to go on disability after my Dr. recommended I leave my job. I had to learn to put up boundaries with family members, cause they couldn't understand how I couldn't or didn't want to go anywhere; or always cancelling planned outings. That was hard. I guess my advice to you all that this is so new; educate yourselves about the disease and learn to take care of you. Yes, it's hard, but you will have to learn a new way of living and you do get used to it. It's just a matter of making changes. I took my family with me to a doctors appt. so he could explain what I was experiencing was very real, it helped me and them to deal with daily life. I currently take Humira injections, methotrexate, metaxalone, paxil,and naproxsen; amongst other meds for diabetes, high blood pressure. My rheumatologist will give me injections of steroids for times that I need to deal with a special occasion or a trip. Such as when my daughter got married. It helped me get through the day.
I was diagnosed with Spondolyosis recently and I know that I should be trying to get physical exercise daily, but this is something I am really struggling with. I hurt so bad cause I have a difficult time walking. My feet hurt, they feel as if they're on fire and feel as if there are sharp little bones in my heels and underneath my toes. Any suggestions?
My best to you all with God's blessings.
What I have begun to learn about fibro is that stress is an important trigger, and it sounds like that is a big part of what you're going through--multiple stressors. We all deserve compassion, and I didn't have much else to offer except to say that you are worth being surrounded by caring people--and it's important to be our own best friend and teach people how to treat us (fibro or no fibro). It sounds like you carry the weight of the world on your shoulders, and that simply is not good for you, given what we are told about this condition. It's always easier said than done when folks tell us to "reduce" or "avoid" stress--especially with all that is going on around us (and in most jobs). I hope folks around you will stop (perhaps) taking for granted their good health and in doing so, see the tremendous effort and contribution you are making to their lives. good luck!
Can anyone tell me do the experience the chest pains as well?
I have not been diagnosed with fibromyalgia but recently have been waking during the night with pain at different sights. I do have pressure point pain and have for quiet awhile; it feels as bruises all over. Fatigue and depression have been a part of my life for many years. From what I hear about no cure and medications not helping would it really be worth seeking a professional diagnosis; or can it even be diagnosed exactly?
I'm sorry everyone is feeling so badly. I can understand, I have many of the same issues. I had psoriasis for about 20 years. The Psoraisis turned into Psoriatic Arthiritis or Rheumatoid Arthritis-Doctors are not sure. The arthritis is causing my fybromalgia. It's like a downward spiral. One thing causes another. I take ibupropen, methotraxate, Humira injections, folic acid, prednisone, alluprinol,gabapentin,and a sleeping pill every night. I also have central sleep apnea and I have had gout. I think I will be having hip replacment surgery, soon. I wonder a little about what good it does to have good hips if you have bad ankles and knees. I also have an opthamologist appointment next week. I think I will be diagnosed with glaucoma or ivitis. I'm getting blurry eye sight. I thought it was caused by the medication. I stopped taking my medication and my eye sight did not get better, so I started my medication again. I hate taking all this medicine, but it does help a little. I have issues like many of you about trying to explain how I feel, so people in my life will understand that I cannot do things I used to do. I think they think it's just a matter of will and toughness. I have reduced my hours at work slowly from 40 hours to 8 hours, now. I'm fortunate to have a job I can do a few hours from home. Well-LOL- to everyone.
But for the last 4 or 5 months, my fibro has been unbearable. I still have a job; but daily I am having to face the fact that I am not able to work any longer. I have no quality of life because it takes all I can give to just get thru 4 days of work each week. By about 1pm each day, I am in so much pain and fibro fog that I can't remember what I've done or what I need to do.
I've noticed that many of you are on disability. How do you know when it's time? And what do you do if your family (of 6) depends on your income to pay the bills?
I am humbled by my current level of pain and fatigue. I don't know how much more I can take - and my boss and husband are both pretty demanding of me.
It's as if they want me to "snap out of it" and go back to my productive former self. I try and try; but I can't seem to get on top of my pain and fatigue like I used to.
Any thought?
Thanks for listening to me. It feels good to be able to be honest and say "I feel like crap and I don't know what to do!"
Sherri
I've been reading through some of these posts and wondering if anyone can explain to me if I am just crazy, or if I may have something similar.
Most recently I was given a MRI for a head injury at work. Come to find out, my doctor told me that I have arthritis in my neck and upper back, and possibly my lower back too. He told me that it was probably more than I should have for 35 years old.
I have been suffering from all kinds of pains, especially after the head injury. I currently am being treated by a doctor my the injury and in the office, see a massage therepist. The therapist does trigger point on me and in some areas of my body I am tender to the point that I almost jump off the table. Also, I have constant pain in my mid-back area, head, neck and spine. Oh yeah and I have been having major nerve issues and have twice now had an anxiety attack, thinking I was having a heart attack. I also always feel like I always need a massage. Over the past year I have seemed to become more tired than usual every day and have gained some weight.
I am not taking any medications, other than basic stuff like tylenol or advil (to ease the pain).
I have no idea what is going on with me. I just really need some advice on what the next step is. I have never had to deal with anything like this and have always been active playing sports and such....so this is all foreign to me.
Any advice?
Lupus and Arthritis in lower back and hips. I too get looks when I mention I'm on disability because there is no outward sign of sickness except the pain look on your face. I have been on all kinds of medications and nothing helps. I'm trying to look into natural remedies. If anyone has a suggestion, please let me know. Thanks
I was diagnosed with fibromyalgia about 13 years ago...I was only 30 years old. As a doctor myself, I was able to find another doctor that knew what it was All about even back then and believed it was a true illness.
Over the years, I have found the sleep quality has been the key to my ablility to function the best. Stay away from sleep aids that are benzodiazepines if you can....they help you fall asleep, but inhibit the deep stage 4 sleep that is so importants. As adults, stage 4 sleep is the only time we produce Growth Hormone...a vital endocrine hormone in fibromyalgia.
I have found the using a low dose of cyclobenzaprine (a muscle relaxant) helps me get the best quality of sleep without being groggy the next day. But everyone responds to medications differently...so ask your doctor first of course. Also, some mild exercise is so important..find a balance between too little and too much. I also sing in a barbershop group....it helpsme breath deeply an completely and fully and for me, at the same time, is my a passion.
Good luck! Beth
My symptoms have been reduced since I started taking vitamin supplements. I am able to get out of bed and do some house work and even cook dinner without a problem. I am not totally pain free, but doing allot better.
I would love to "converse" but I have not been diagnosed....would love to hear how yours was pinned down.I'm changing jobs soon and don't want any dx on my "record." I described my "fog" to a linquist who said it was aphasia which scared me (actually, I think it specifically "anomia"). I'm tired of recounting all my pains to my husband when he asks how I feel- I feel like I'm complaining. He wants to buy me a whirlpool but I have no idea if it is even good for my pain....it is very lonely!
If you want to converse let me know and I'll post my gmail. best- Kimberly
Thats what sometimes I say also if they would feel it for a day.And what makes it worse is that sone day your in bed in horrible pain and then the next day you could be like if nothing happened,and it makes it hardfor people to understand it.
Question to Emmana:
Where can I find info on the alkaline diet. My grandmother was talking to me about it,but she was saying I should eat potatoes and you say not to? Im confused
I often feel that I'm just getting old and I'm sick & tired of a body that is hard to get to move like it used to and endless pain!
You are so right - no one seems to understand the disease and often not believed.
Has anyone found any meds that really work?
I have not been prepared adequately to deal with this pain and other conditions related to it, like RA, and Osteo. I wonder if special Ops traing in the Military would be enough. Sorry for the downer- just would like to leave the pain in some triple titanium sealed vault with a non breakable code as the lock and thrown in the bottom of the sea of Antartica.
gg
Thanks
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