ADVERTISEMENT
Close
In This Issue, Subscribe, Free Issue, Contact Us
ADVERTISEMENT
 
Conditions > Fibromyalgia > All about Fibromyalgia > Finding a Doctor for Fibromyalgia
Text Size Plus Minus | Print Email

Finding a Doctor for Fibromyalgia

What kind of doctor should I see for fibromyalgia?

The best fibromyalgia doctor is a rheumatologist, a physician who specializes in treating people with fibromyalgia and related diseases. If possible, you’ll want to find a rheumatologist with a special interest in the condition.

Before selecting a doctor or fibromyalgia clinic from the phone book or a list from your insurance company, ask friends with the condition if they can recommend their fibromyalgia doctors. Ask your primary care physician to recommend a specialist, or check with your local office of the Arthritis Foundation.  If you get the names of several fibromyalgia doctors, you may want to interview a few to determine their knowledge of, interest in and attitude toward fibromyalgia.

GeeGee
08 Sep 2011, 22:47
I have had Fibro for over 30 years but no one knew it. I've seen so many doctors and for the most part they just think I'm fat, old, depressed and looking for an easy life. Most of the past 30 years I worked 12 to 18 hours a day.

When a doctor askes me if I'm depressed I ask them if they would be depressed if they had severe pain 24/7. I'm a widow, 74 years old and I still have things I'd like to do and places I'd like to visit but they pain and the fog just don't allow it. If anyone has any ideas of how to work around the pain please let me and all the others know. I'm begining to think not wanting to give me pain pills because they don't want me addicted to drugs is just dumb. It would be better than pain and no life.
Bobbie
18 Jul 2011, 14:55
I was diagnosed with Fibromyalgia back in the late 70's. I am 70 yrs. old. It was brought on by Lymes disease. I have been on pain medication for the past 16 years before that I have been through acupuncture, bio-feedback, nutrition, and have tried almost everything. I am at my wits end. It seems like nothing works. Yes, I have tried neurotion, & Lyric had reaction to both. Just had a morphine pump taken out that helped for 5 1/2 years. I have recently lost 50 lbs. I also was told it was in my mind so I saw a psychritist for about 5 yrs. for pain and depression. Still have the pain/depression/chronic, fatigue/headaches. What should I do I need help.
Nikki
18 Jun 2011, 13:24
I'm 21 years old. If been having a lot of health problems. In december of 2010 they found a rhematoid nodule in my foot. So they started doing tests for RA after my surgery. All my blood work came back normal. My RA doctor is currently treating me for RA, but nothing is working. My symptoms are pain all over my body (in certain places it is worse), major fatigue, ibs, burning itching sensations in my wrists, arms and feet, can't sleep well, and depression anxiety also horrible migranes. Some days I feel like I'm dying. I can't take this pain any longer. I pretty positive that I have Fibromyalgia, I'm going to see my Ra doctor this week, hopefully we can figure this out. I'm getting so tired of dr.s thinking that nothing is wrong they say I'm fine or that it is just stress, but i know my body and something is wrong. Please if anyone has advice to give that'll be great.
Thank you
Kayla Gerber
25 Apr 2011, 09:30
Hi everyone

I am currently 20 years old and I have suffered for 11 years of my life so far. I was diagnosed at the age of 9.

I suffer from IBS, migranes, bone pain, muscle pain, loss of feeling in arms and legs, stomach problems, depression and you could name it I have/still have it and all from my fibro. I need a solution.

Canada or Ontario doesnt seem to have the answer for me. Wwe need doctors who actually care.

NO ONE UNDERSTANDS unless they have it. That is the huge problem. This is not something people can just say doesnt exsist and is based uon lazy people. No I have danced my whole life except the last 2 years and that was because it was getting so hard to stay active.

Anyone know of doctors in the states, someone who wants to learn and test on fibro patients.

THIS IS SOMETHING THAT NEEDS RESOLVING
Jeanetta
21 Mar 2011, 16:47
Hello.
I've been recently diagnosed with Fibromyalgia. I also have rheumatoid arthritis in my shoulders and elbows and psoriatic arthritis that effect most other joints - mainly my hands and feet. The rheumatologist that I was referred to by my primary doctor, confirmed the Fibro and arthritis, but it seems he only is interested in treating the arthritis. My primary physician has placed me on short term disabilty and Lyrica. Lyrica is not working and the primary's diagnosis is not sufficient enough for the STD insurance company and the rheumatologist refuses to get involved with the STD process. The job I have is very stressful and the perception of others is that I do not want to work. The stress aggravates the Fibro to a point of great pain, agitation, and a sense of losing one's mind. I need a doctor who is knowledgeable and interested in my condition that will help me. Does anyone in Houston know of such a doctor?
Carrie
14 Jan 2011, 14:23
Ketamine therapy helped me. They do them at the Shepherd Center in Atlanta, GA. I am not sure if it was the break in my pain cycle or if it assisted my other medicines to work. I began sleeping at night, no burning, and for a while even my feet stopped hurting. It really was amazing.
Bonnie
18 Dec 2010, 07:42
I can trace my fibromyalgia back over 50 years when I had my first muscle spasm it took my head and laid it on my shoulder I was 3 months pregnant and 14 years old the research I have done tells me that Fibro strikes from stress and will certainly grab a young girl that has been raped forced to marry and live with a monster.
I have done water aerobics, I do stretches everyday or I wouldn't be able to walk I am so sensitive to drugs I can tolerate only a few I am doing holistic meds it works the best for me. I have a heart stent put in my left side this past summer I had an allergic reaction to the dye used this put me into a fibro-fog and believe me if you've never been there you don't know what you are missing you think you are losing your mind your memory fails you I mix numbers up. Since I have gotten older it send me into a anxiety attach where ther give me drugs that knock me right out 1 gm of ativan will put me right to sleep for 2 1/2 hours! My children all sons 57-49 and 43 signed a warrant for my arrest and had me mentally evaulated I passed the test was sent home only to be once again handcuffed taken in the police care to a Physcriatrist that knew nothing about fibromyalgia and put me in a mental hospital for 8 days where they drugged me some more until I refused the drugs now I am fighing in court spending my last amount of funds to try and escape taking the drugs that the Dr. that knows nothing of my medical history and doesn't seem to care put me on I refuse to take them and face court again next week where they are threating to put me back in the hospital I will go to jail before I take these horrible drugs. If it wsn't for my strong faith in Jesus Christ I would be in the mental wing on a permanent basis!
Eleanor
08 Nov 2010, 07:34
fibro:
i have had it for 30+ years..seen most everyone...takes a lot of "managing" after reading some of these comments...need to say...those of you with the joint problems (not common to fibro) may be Lyme disease undiagnosed...please go to specialist for Lyme and get tested..some labs dont pick up Lyme with their testing. specialists know which labs to use..also the one with seizures should go and get tested for Lyme..
although, Lyme is not my underlying cause, my husband has fibromyalgia now after a bout with Lyme. Fortunately for him, he had the "bulls eye rash" so he was diagnosed. blessings
Kellie
04 Nov 2010, 17:58
I suffer with fibromayalgia and am bi-polor not a good mixture, but now am on meds. for the bi-polor, still need help with the fibro. Finally got my Social Security after almost 9 years of fighting.( I think I got it only because of the bi-polor diagnioses ) I miss working but the pain keeps me from a full life.

HELP
Kellie Gagnon
04 Nov 2010, 17:52
I have suffered with fibromayalgia for many years and now I'm to the point of defeat. My doctors have me on pain meds. and they do help some but I'm worried about long term. I've been on pain meds. for about 12 years and am looking for alternative. I've tried natural pain meds. and Lyrica,cymbalta all the fibro. meds out there nothing works. Am I to suffer endlessly or needlessly? Plus I think my doctor feels I'm just seeking the pain pills! If there is another alternative please let me know I will try almost anything and have!!!
Joyce
04 Oct 2010, 06:19
I'm wanting help also, sort of get a, well not so sure diagnosis from my family doctor of which I've been with for about 16 yrs. Most importantly just want to cofirm dx, so I don't think I'm going crazy! Any advice helpful.... live in FL.

With appreciation,

Joyce
Veronica
17 Aug 2010, 12:44
Has anyone successfully recieved thier disability. I can't use my thums to write or even open a water bottle I am so depressed I don't want to go anywhere or do anything I can't sleep over 4 hrs I forget everything a calendar doesn't even work.
cher
10 Aug 2010, 20:55
fibro fog! Can't believe i just wrote that.
cheryl
10 Aug 2010, 20:53
Does anyone have severe depression with there fibro. I hurt so bad it and it makes so depressed. I also have osteoarthritis in knees and hips. When I seek my doctor for flares that linger longer than I can stand all she wants to talk about is my depression. yes, I agree that I am depressed but if I wasn't in so much pain. I life would be much easier.
alicia dunham
10 Aug 2010, 18:50
im 35 and had a stroke in march 2010 i recovered my speech and some memery but i have constant headaches and pain in my hands. i have some numbness left and wondered if i had fibromayalgia and who i should see about it
Lu
09 Aug 2010, 13:40
Hi, I do as well have fibromyalgia, I had seizures first for 5 years and now I feel as you all say, the diagnoses was done about two months ago but I am loosing so much weight and have these strange bruces that my family doesnt really believe in Mexican doctors. Please let me know who your doctor is, and if his treatment is working to you. Where should I go or what should I do in order to know if it really is fibromyalgia or if it is and there's any other way to help me. Thank you so much!!! Hope you all feel better today!!!
Lu
Bruce A. Wilson
02 Jul 2010, 12:45
My daughter has fibromylga.when she was pregnent,the symtoms deminished quite a lot.is there some meds she could take to replicate these same feelings she had through her pragnency.her pain came back real bad after the birth.please let me know if there is something she can do.
Lisa
19 Nov 2009, 09:22
I'm very interested in hearing more about you. So if you can send me more info I would greatly appreciate it.
Thank You.
Linda
14 Oct 2009, 07:42
I have fibromyalgia and the pain is so bad I don,t think I can go another day, I had shoulder surgery 4 weeks ago and the pain is even worse, I can,t sleep, can,t set still and I,m tired all the time. Does anybody know of a doctor that can help and not just put me on pain medicine?
nancy
23 Sep 2009, 12:37

In August 09 I was diagnosed with fibromyaglia, which I had heard of once.
I had a car accident five years ago, and suffered a lot of body pain after all then my one foot became so sore I couldnt walk. I have double arthritis and am 68. Now what?
The pain meds for FM I cant tolerate: Neurotin is one. I tried magnesium last night and it worked in getting me to sleep.
But this FM seems to go back, go deep, and I want to find the right doc who understands.

-denver
kiki
02 Sep 2009, 17:39
To: Inez, The second knee is much easier because you know what to expect. I had my knees done 5 years apart and the newer technology is amazing. I was able to work my 2nd knee much easier. So I have full use of the right knee and I can even kneel on it alittle to look under the bed. Go for it it will change your life. I had Osteo diagnosed 23 and Fibro about 25 years ago. But looking back I have probably had Fibro since high school. Lots of pain everyday.
Right now I'm looking for a new Doctor now for the Fibro. I have had both knees replaced, and 2 back surgeries because of the arthritis. I am now thinking of having my stomack tied for loss weight. I now weigh 240 not the highest I have ever been but with diet and exercise I don't lose much. I'm hoping it helps. What do yhou think?
Yvon
18 Aug 2009, 09:42
I have fibro, osteoarthritis, osteoporosis since I was a 38(confirned by a bone biopsy that I took a certain type of antibiotics for a certain # of days prior to the biopsy) last week I am told that a bone density done in a new office (I had never had one there before}that I don't have osteoporosis now, I have osteopenia. (Is this possible?) My fuzzy memory and my pains are getting worst. My knees don't want to work its not so much pain, it's just that they seem to not have any strength. My back hurts so much. I feel that I am at least 90, but I am only 58. Please give me advice.
INEZ
22 Jul 2009, 14:09










I can sympathy with all of you with your FMS.
I was diagnosed April 1, 2000. I had it for years and told I was imagined it, etc. It was a sad day, but a good one too when I found out what was wrong with me. I just wish there was more to do to help us.
I now also have arthritis. Most of my joints. I had partial knee replacement last Dec. It hurts worst. So will not do the left.
Good Luck and God Bless










Toni Frazer
01 Jul 2009, 16:09
I was diagnosed with fibromayalgia yesterday. After reading the info the docor gave me, I was convinced that this is what has been bothering me for years. I still don't understand much about it, most of all, WHY ME??? But at least I have a diagnoses after all this time. I just quit my job last week because I couldn't keep up and ended up in the E.R. several times a month. Does anyone else have problems with not being able to work?
Dorothy Blanding
02 Jun 2009, 20:00
I HAVE SUFFERED WITH SERVERE PAIN FOR YEARS AND WAS TOLD BY SO MANY, IT'S ALL IN MY MIND.SOME DAYS I FEEL OK!BUT NEVER WITHOUT PAIN.I HAVE DIABETES,HEART DISEASE AND HAVE SUFFERED WITH IRRITABLE BOWEL SYMDROME.
MOST DRS. THANK BECAUSE IT'S NOT ONE OF THE EASIEST TOO DIANOISES, THEY PER JUDGE THE CONDITION.
Julie Mayr
11 May 2009, 08:41
I used to have daily headaches for years! As soon as my anemia was resolved my headaches went away. I used to blame my headaches on hormone fluctuations, low blood sugar tension etc...but I really believe it was a result of my iron deficiency it is worth checking it out
Alicia
27 Apr 2009, 22:58
I suffer with severe Migraines almost every day and I have fibromyalgia and ossteoarthritis. The reason I'm writting to you is to get more literature on you and more info. All I have as insurance right now is medicare. You make it sound to good to be true. That I can be pain free but for how long? I'm very interested in hearing more about you. So if you can send me more info I would greatly appreciate it.
Thank You. Alicia

Leave a Comment

The comment function provides the opportunity to comment on the content above.

General comments or questions to Arthritis Today editors and medical experts can be submitted here. Past medical questions and answers are available here.

Promotion of products and services and other inappropriate comments are prohibited and will be removed. If you spot one of these before we do, please send an alert.

All fields are required but only your name and comment will be displayed. Your e-mail address will not be used for any other purpose.

Name:
Email:
Text:

ADVERTISEMENT