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What is Fibro Fog?

Fibro fog – also known as fibromyalgia fog and brain fog – is a term commonly used for the cognitive difficulties that can occur with fibromyalgia. These include confusion, lapses in memory, word mix-ups and difficulty concentrating. The reason for fibromyalgia fog has been the subject of several studies and much speculation. One of the most popular theories about fibro fog has been that these problems are caused by sleep deprivation and/or depression, but one study found that neither poor sleep nor depression seemed related to cognitive performance. Brain scan studies have shown that from time to time, people with fibromyalgia do not receive enough oxygen in different parts of their brain. One possible reason is that part of their nervous system is off-kilter, causing changes in the brain’s blood vessels.

New research – though not on fibromyalgia specifically – shows that chronic pain itself may affect the brain. A technology called functional MRI found that in people with chronic pain, a front region of the brain mostly associated with emotion is constantly active. The affected areas fail to “shut off” when they should, wearing out neurons and disturbing the balance of the brain as a whole.

Lynne

17 Feb 2010, 08:42

I am sorry so many are suffering, but very glad to hear that I am not alone. I thought that I was going mad, had dementia,losing the plot because I would say a totally different word to the one I meant to say or forget names. I am trying to do a maths gcse (at 52) but can't retain any of the information. The pain is so bad sometimes that if I didn't have caring family I would no longer want to carry on.
I have been on Lyica for 2 years but never actually been diagnosed with Fibromyalgia, though the more I read about the symptoms the more I am convinced it's what I have.

Jenny

13 Feb 2010, 10:23

Dear all,

Now I understand what has been happening to me. I was diagnosed with fibro about 2 years ago. At the begining I thougn that my loss of memory was due to the stressfull job I had and lack of good sleep. Then, I thought it was because of medications (Lyrica, antidepressing pills, you name it). And now I can put a name to it.. fibrofog....

About 3 months after my diagnosis I quit my job and spent many months taking pain killers and many more pills. But I didn't feel better and was very depressed,so I was treated by 6 different specialist, including a psychiatrist who helped me dealing with the disease. But, I felt intoxicated and broken by traditional medication. So, I decided to swift to homeopathy in combination with acupuncture. It has been a blessing, it has helped me to control pain, stress, think positive and so on.

I would really recomend you to try it, but please consult with your doctor first!

All the best,

Jenny

stacy

09 Feb 2010, 12:54

I have had Fibromyalgia for many years and I suffer about 50% of the time from either pain or fibrofog. I am still able to work most of the time, but I pay the price in that my weekends are spent resting because of overdoing it during the week. I think for me, I have just accepted that this is the way my life is. I know that many people don't understand the nature of this illness and can't relate. I have found short term relief with pain medication, but I only take that when I absolutely can't stand the pain anymore. Good luck to all of you. Please remember that there are support groups that can help those of you that have recently been diagnosed. They can help you deal with family and friends who don't really understand what you are going through.

jan s

22 Jan 2010, 23:38

I had been dealing with polymyositis and with any autoimmune one has a risk of cancer. I am cancer free and polymyositis free but I now have fibro and bad. I was blaming the brain fogs to chemo but now I guess they are not going to go away. I work 8 hours a day and sometimes a word will comeout that isn't the word I was planning to say. Thinking of names is brutal. And now I have to recheck everything I type. I spell the words correctly but use the wrong words.

Dana

09 Jan 2010, 16:00

All,

I was just diagnosed with fibro over the holidays and resigned from a very high-stress environment, which deprived me of sleeping well and created a ridiculously high level of anxiety,

I currently have fibro fog as well, but am fighting it hard. I find that writing long letters and e-mails helps keep the brain functioning. Since I am an editor, I suggest all of you to check your writing (also known in the book world as proofreading). It is helping me stay sane!

I would be interested since this is all very new to me anyone who funtions on a high level at work, despite fibro fog.

Please send me your tips on fibro fog!

Thanks and may we all find peace, hope, and faith in 2010!
Dana

Stephanie

21 Dec 2009, 14:37

I have stumbled [no pun intended] across this website, as I was searching for Savelle Side Effects and wow! I am not alone. This is the first time I have read about fibro fog. OMG! I have thought I was loosing my mind with no visible medical reason, too. This is the fourth week I have been on Savelle and I am still having extreme nasuea with vomitting. This occurs even though I am taking phen. for the nas/vom...Brenda, how long and what kind of side effects did you have? My doctor has me on it for two more weeks. UGH...

Pam, I too am a newlywed, and it truly breaks my heart for my husband. He had a hard time for a bit. Our solution was for him to go to the doctor with me and allow him to have a part in my treatment/therapy/healing process.

Kelly, I have IC and a laundry list it seems of other issues that kind-of-all go together.

No more time to comment to others, I hope and pray you all have a peace and joy filled Christmas.

Stephanie
Chatty, TN
stephanierhodges@gmail.com

MICHAEL COTA

16 Dec 2009, 16:45

My name is mike i have gone 9 years now with miss dignosis run and so many tests. to the point i am on disbilty now un able to walk long distenses i am wheel chair bound if i am out at the mall or store. i just got the fibo dignosis today i have severe case. the thought i had early onset dimentia turns out its the fog syndrom. so nice to have some answers now new meds have been added lyceria or something like that. its in my legs face arms ect i went from being a miltary man to basic cripple in a few short yrs. so i am one of the bigger cases i also have cerebryl atrophy also so they are many problems i have. nice to have answers as of today 12/16/09 started back in 2000 wish i had these meds for yrs i may not have gotten to this point of atrphyed but also nice to know im not alone

kelly

30 Nov 2009, 22:08

Hi, I have just recently been diagnosed with fibro. This is all so new to me. It has been a long road to finally get a diagnosis. Earlier this year I was also diagnosed with Interstitial Cystitis. I also get terrible migrains. I have been reading all of the comments and I just keep seeing myself in so many of you. The brain-fog, the sleep issues, the speach problems, and so on. I thought I was loosing my mind. I even had Dr.s tell me that it was all in my head. Right now I am just trying to absorb all of the information. I am not taking any meds at this time for the fibro. I need to speak to my dr again. The rheumatologist that I saw thought the dr. before him, would be able to treat the fibro. I have felt like a pinpong ball being bounced everywhere. I can't tell you how many tests I have had done that would always come back, everything looks good-lets send you to someone else. All the money that we have spent on medical bills would make anyone's head spin. It is comforting to know that I am not alone. That there are other people out there with the same sypmtoms and going through the same thing.

Dot Wescom

26 Nov 2009, 05:52

yes I too have fibro. have had it since i was a kid.I suffer from memory laspes,pain,
all the good stuff it is made up of. I take mirapex for the restless legs, which is a mind shattering condition, as it drives you nuts,( I beleive it could really drive you over the brink),the mirapex really helps keep the rl under control.just don't miss a dose....I fall a lot and drop things a lot, but I will make it.. if I can use mirapex.without it I couldn't make it a day.
I was noticing that all the letters are from women, don't men suffer from this too??????

Pam

18 Nov 2009, 09:33

I hate fibro fog...and it's so hard to explain to my in laws and husband about it. My husband gets so irritated with me when he tells me something to do on my way home from work and I forget it in the span of 10 minutes. Or when he explains something to me and I can't grasp what he's saying. It doesn't help that he isn't the most understanding person about fibro-I tell him I am tired or I hurt (we have been remodeling an old house since May) and he says "how do you think my mom feels-she's 50 something and has diabetes, don't you think she's tired" or "I hurt all over too-I loaded semi trucks all day at work" (I have a desk job).

I am also very sensitive to cold and loud noises. I feel bad because I am a newly wed and my poor husband can't even hug me without me saying OUCH.

Sometimes I want to give up.

Brenda

07 Nov 2009, 13:31

I am 59 yrs. old and have had Fibro. since I was 40 yrs. old. Pain, sleep problems and memory were becoming unbearable. My dr. tried me on several different treatments but I only got short term relief from them.

He started me on 'Savella' on Aug. 25, 2009.
The side effects were rough for the first few weeks but my pain was subsiding.

Now, I'm practically pain free. This drug has been like a miracle for me.

I would suggest at least trying it and try to be patient with the side effects because they gradually disappeared for me.

I now have a life again. Savella was the answer for me.

Donna

02 Nov 2009, 11:25

I am 59 years old and was diagnosed with SLE in 1996. I have been a RN for 39 years and just got on social security disability , because I could not stay at one job, since all nursing jobs are hard. You can only work 8 or 12 hours. I could not do that. New jobs in the last years required writing nursing notes via computers and everything else by computer. I could not remember how to do all this. It really worried me, until I told my doctor about this and he said I had fibro. fog. It is a relief to know what it is. I have terrible sleep problems and pain in my legs, feet, knees, back and arms and fingers. I will make it, though.

Beth Valley

16 Oct 2009, 14:12

I'm glad that i'm not by myself i also sufffer from 2 types of arthritis, osteo and fibro and i also have fibro fog all the time as well. And i can never get the words i want to say out right have the time i do good with balancing my check book i have no problem with that. But when i'm talking to someone i forget what i'm talking about or the words don't come out right, it comes out backwards than what i really want to say and it gets really aggervating.

joan

11 Oct 2009, 22:41

Thank you all! I thought I was going crazy or having dementia. Even a stroke. It started with forgetting words. Then I had shoulder surgery and it seemed to get worse. I have had fibro for several years as well as rhematoid arthritis,and osteoarthritis, but this is the first time that the fibro-fog has really gave me so much trouble. The doctor said that the surgery could have made it worse. Is that so?

Miss C

25 Sep 2009, 17:24

I'm 36, just diagnosed with fibro. I just thought I was getting old and achey, just thought I was a bad sleeper and just hoped no one noticed when my words came out the wrong way round!

I'm in the UK, i'm having acupuncture which really helps, pain relief for bad times and an antispasmodic/sedative to help at night.

I work a full time job in a hospital, have lots of animals and a lovely fiance and I ride my two horses every day on top of all my stable chores. I do hurt a lot, but have had it for such a long time I think i've come to terms with it really.

Fibro is not going to rule my life, I don't have time for it so with the support and help in place, I am just pushing on and continuing as normal.

I do just have to apologise to people that i'm not bored of hearing their conversation when I yawn 10 times in a row!!!

The key I think is, keep moving, mind over matter and try to stay positive. :-)

Mary G.

15 Sep 2009, 19:32

I have had fibro for ten years and I'm now feeling the best I ever have. The key for me is exercise and treatment for anxiety. A combination of bicycling, water aerobics or walking for at least 20 min. daily in addition to yoga and meditation has done the trick. I also use imaging and self talk to calm myself and relax. Yes, I still get the fibro fog but it doesn't seem like other people really notice it much, so I don't worry about it. I have taken meds in the past and they did help, but I no longer need them. You can get better, just keep moving!

Connie

13 Sep 2009, 06:49

Melissa

I would be interested in that information also. Have you ahhhh,.... can't think of the word, (hahaha, not funny really). Oh yeah, have you done any research on the Az's medication?

Sharon

14 Aug 2009, 21:57

I never had problems with the fog...but I take medicine for ADHD. Perhaps a stimulant is what people should try, to pull it all together. Currently, taking 5mg of Adderal.

Joyce A Owens

12 Aug 2009, 14:17

FINALLY! Something to explain what I am going through. In fact as I am sitting here this very minute I am in a fribro fog, feel like I live in it 24/7. I also hate to get out and go anywhere and the thought of having to get a job to be around others scares me to death!!!!!
I have been mixing up words, forgetting words, screwing up my checkbook and all of that for years. Makes me want to crawl in a hole someplace, or better yet just go fishing!! probly forget how to bait the hook, lol, just kidding.

bertie

05 Aug 2009, 00:41

I was diagnosised last year with fibro. I already have bilateral carpal tunnel, am a 1 1/2yr breast cancer survivor, have degenerative disc disease, bad athritis in both knees and back and have been on diasability for several yrs. I thought I was going nuts, everything would feel like the joints were beingg pulledd apart and I was having a whole body inflammatory responce. I have been in enomous pain due to all my health issues and with GERD medication choices were limited. I was put on Lyrica by my rheumatoidologist last year. it does sgive some relief, but I have been on Vicodin for many yrs also. my meds go on and on, but without them I cannot stand the pain. with them I can function. I did try savella last week but it seemed to make me sick. I have lost many things I enjoyed including long drives, but at least my son and daughter can drive me around. hang in there and enjoy what you can each day

Kimberly Ray

31 Jul 2009, 15:48

I'm a 30 year old mother of two children. My daughter is 13 and my son who just turned two. I went almost 6 years before I got my diganosis of fibro. It was a long and horrible wait. My last family doctor before the one I have now, basically told me that it was all in my head and nothing was wrong. I felt so alone and that no one understood what I was going thru. Thank god for my doctor now whom sent me to a rhuemtalogist and I got diganosed immediately. If took some stress off knowing I hasn't imaging the pain but yet I had to learn how to live life differently in which self care is one of the main things that helps you with your symptoms.

I found a support group last year where I found out that studies have been going on in pregnant women with fibro have shown to go into a remisssion from the fibro. I do think with all my mind that it is true. When I was pregnant with my son two years ago, my pain from fibro disappeared tremendously. But after he was born, which is the not so good thing, was the fibro came back and 100 times worse than it was before my pregnancy.

So to expecting moms if your told your fibro may go into remission during your pregnancy it very well may be possible. I never did any research on it myself but I what I do know is my fibro basically vanished altogether until after I delivered my son.

With me it did make my symptoms alot more difficult and my pain had become more widespread all over my body. I was diganosed with IBS, I now have carpal tunnel syndrome in both hands(waiting for surgery),the fibro fog(which I can hardly remember what I did the day before), with other issues that all are some result of having the fibro.

But for 8 years now, I've been on pain meds to control my pain so I can still try and function somewhat on a normal basis. It is stressful and hard to deal with at times, but you have to do alot of the work yourself with self care. I say this to myself everyday but still can't seem to get the motivation to set a consistent schedule from day to day. I lack alot of support at home from my husband that I despartely need but I keep praying that one day he'll come around.

Mary M.

29 Jul 2009, 08:44

I was sitting in church and saw a woman across the aisle.....she waved. I knew I knew her but I could not pull up her name if you offered me 1000 dollars cash. It is scary to say the least. Once again I prayed, God what is this? Then the thought came "fibro fog". Oh yes, I thought, that's it. So I stopped panicing and relaxed....and within a minute or so her name came to me. It doesn't always come that quickly but thank God I was able to relax and receive the answer from my brain. My friend says "It's in the roundhouse but the train hasn't come out." That's pretty old school for an illustration I know,but it works for me. God bless you all.

gladys

23 Jul 2009, 16:24

I would like to know if taking medications used for Altzheimer like Aricept, Namenda, Exelon, etc. can help with the fibro fog.

kalomi

16 Jul 2009, 21:20

Thank you everyone for sharing! Your sharing helps others to understand what we are going through and it reaffirms to me that this is a very real, life-altering illness. On the days I feel wonderful, I doubt that I have fibromyalgia. Of course, on my bad days there is no doubt in my mind.

My Fibro Fog Story:
I live in Florida and my brother from Minnesota came to visit. We grew up together in Minneapolis. As we were standing in front of the Gulf waters, I said, "Look! We have birds here that can swim underwater!" He looked at me in shock. Then, with his usual sheepish grin, he said, "I thought all ducks can do that!"

Suddenly I realized that for a moment I had forgotten all about the existence of ducks, and I grew up in the state of 10,000 lakes filled with ducks, loons, and geese! Fibro fog is amazing. It is also scary.

Perhaps we need a fibro-jokes Web site as an outlet for coping with the embarrassing symptoms of this ugly disease!

Patti

16 Jul 2009, 16:41

Hi, I started with fibro in 1996 and was lucky as I was working as the x-ray tech for a rheumatologist when my symptoms started, plus lupus runs in my family. I figured it was one or the other. I am 58. I take cymbalta to help sleep and have added melatonin and valerian. Also occasionally I take flexeril, a muscle relaxant. I also have osteoarthritis. I have come to learn to accept the fibro fog. I was always a quick study and had a good memory. Now it is all just a joke! I have found that acupuncture does help me with the burning muscles in my arms and legs. I try to walk 4 or 5 times a week, a quick walk to get more oxygen to the muscles. The best thing is to find balance between working and resting. Not always an easy thing to do. But a lot easier than eliminating stress from my life, haha. Keep a sense of humor and laugh. It makes it all a lot easier to deal with. Best wishes to all.

Marg

16 Jul 2009, 15:27

I have had fibro for about 52+ years. First it was arthritic type pain, then fibrositis, and now the same thing is called fibromyalgia. I am a strong person who hates not being able to do things. Yes, I have all the complications. Being the person I am I never missed a day of work for fibro and I have never said I couldn't do something. As my arthritis has gotten worse that I have eliminated items from my things to do list. However, everything is a literal pain. I have several pain meds and I know they are horrible, but I am still walking a little and doing things in the community. Gotta keep going.

MaryL

16 Jul 2009, 11:27

I grew up thinking everything in the world was wrong with me: IBS, non-refreshing sleep, reactive hypoglycemia, joint pains, etc. Then after fibromyalgia got a name, there I was. I am now 72, and with a combination of medications and life style changes feel better than I did 20 years ago.
I find that for me the inability to come up with common words is directly related to low blood sugar. I eat frequently during the day and avoid refined sugars. There are plenty of treats out there with sugar substitutes. If I treat myself with a "real" dessert, I do it after a meal with plenty of protein, and/or I follow it with a "throwaway day" to recover.

Pat

16 Jul 2009, 10:40

Finally, advances are being made in new medications for fibro. I have had fibro for about 30 years. It has stolen my identity. I was an honor graduate with a great memory. Now, I cannot come up with even the name of people I know very well or things that happened in the past. I have tried many meds hoping for relief from the pain. Recently, my doctor prescribed Lyrica which has been a miracle for me as far as the pain goes although the brain fog seems worse. My gait is wobbly and I veer off to the side at times. I began in an Arthritis Deep Water class three times weekly about the first of the year. It is wonderful and my body is stronger, now. I would urge all of you to read, read, read about fibro on the internet. Knowledge is power. My prayers go to all of you.

ALISSA

10 Jul 2009, 18:54

I HAVE HAD FIBRO NOW SINCE 1994, FIRST THE DOCTORS DON'T BELIEVE IN IT, I HAVE HAD NOTHING BUT THE RUN AROUND. THEN DOCTORS WHO JUST DEALT WITH THE PAIN, BUT NOT THE DISEASE. THEN MIRCLE MEDICATIONS LIKE TRAMADOL, WHICH HAVE MORE NEGATIVE EVEN DEADLY SIDE EFFECTS, AND IS A SUPPOSED NON NARCOTIC... !!! SO I SURE WOULD BE LEARY OF ALL THESE NEWLY COME OUT ONES, AND IF THE WOULD NOT HURT YOU EVEN MORE IN A DIFFERENT FORM. MY EYESIGHT HAS BEEN AFFECTED THAT I HAVE TO WRITE IN LARGE PRINT, AND NO EYE DOCTOR OR GLASSES WORK FOR ME, FOR WITH FIBRO IT AFFECTS YOUR EYE NERVES TOO... WHAT ABOUT THAT ONE, GOING BLIND..
LET STAND I USED TO KNIT, CROCHET, BE AN ARTIST AND ALL THAT IS TAKEN FROM ME NOW, WHAT ABOUT WHEN YOU DON'T HAVE THE MONEY TO SEE ALL THESE SPECIALIST, BECAUSE YOU HAVE SMALL CHILDREN AS WELL.. LET STAND IF YOU HAVE HEART CONDITIONS WHICH I DO, AND THE ANXIETY THAT TRAMDOL CAUSES, DO CHECK IT OUT, LET STAND WEIGHT GAIN WITH OTHER, AND WHEN YOU SEE THE ADS ON TV, SUCH WORDS AS STROKE HEART ATTACK, IS THAT NOT SOMETHING TO GIVE CONCERN ?? IT SURE DOES ME... WHAT ABOUT DOCTOR'S THEN GIVING YOUR A ANTI DEPRESSENT OR ANXIETY MEDICATION TO COUNTER ACT THE MEDICATIONS. SLEEP APNEA, DUE TO HAVING FIBRO, AND THE BEING ON A BI PAP OR C PAP MACHINE, LET STAND IF YOU HAVE COPD.. AND YOU ARE ON OXYGEN... THE BRAIN FOG THEY TALK ABOUT, WHICH EFFECTS THE MEMORY. FOR US WITH FIBRO DON'T SLEEP WELL TO BEGIN WITH DUE TO THE PAIN, AND THEN IT SAYS IN THE NEWS UP ABOVE THAT WE ALREADY LACK OXYGEN TO OUR BRAINS ALREADY.. THAT IS REALLY FUN..
WHAT I THINK IS THAT THE DOCTOR'S AND SPECIALISTS REALLY FIRST HAVE TO FIND THE CAUSE OF FIBRO, AND WHY SO MANY PEOPLE NOW HAVE IT, AND WHY ??? THEN START FINDING A TREATMENT THAT DOESN'T HAVE A TON OF POSSIBLE DEADLY SIDE EFFECTS... MAYBE THESE DOCTORS SPECIALISTS WHO STUDY THIS SHOULD BE GIVEN GREATER GRANT MONEY, BECAUSE AIG BANK IS ASKING FOR AN EXTRA $240 MILLION IN BONUSES.. YES, MY HANDS DON'T DO WHAT MY BRAIN TELLS THEM TO DO, OR THE OTHER WAY AROUND, LET STAND BEING VERY FORGETFUL, YES IN MANY WAYS YOU FEEL LIKE YOU ARE JUST LOOSING THAT PART THAT YOU FEEL LIKE A HUMAN BEING, RATHER THAN A LAB RAT, OR GINNEA PIG..
MY ENGLISH USED TO BE IN THE TOP 90 % OF THIS NATION, NOW OH WELL YOU CAN JUDGE YOURSELVES... I GET SO TIRED OF DRIVING LONG DISTANCES, THAT I FALL ASLEEP, AND CAN'T BARE HEAT LIKE I USED TO, AND SHEETS ON MY LEGS AND FEET HURT MY FEET, OR ANYTHING OTHER THAN FLIP FLOPS IN THE SUMMER. SO I DON'T DRIVE LONG DISTANCES ANYMORE.. YES I AM ON SOCIAL SECURITY, AND HAVE BEEN SINCE 2004.YES, I DO TAKE GOOD CARE OF MYSELF, EAT RIGHT, VITAMINS, MINERALS, SWIMMING WHEN I CAN.. I MIGHT NOT BE TERMINAL, BUT IS THIS LIVING, IT IS A LIFE SENTENCE... HOPEFULLY THE SCENTISTS WILL FIND SOMETHING BETTER, AND WHY WE HAVE FIBRO TO BEGIN WITH, AND EACH OF US, OUR BODIES WORK DIFFERENTLY, SO WHAT WORKS FOR ONE, MIGHT WORK THE OPPOSITE WITH ANOTHER PATIENT... BUT IT IS LIKE YOUR BODY AND MIND ARE WASTING AWAY... NO MATTER HOW HARD WE TRY TO FIGHT IT, AND I KNOW I SURE DO... ALISSA

Mary Armstrong

29 Jun 2009, 21:15

It is so good to read these comments. I was diagnosed with fibro. several years ago, but not given much information. I too have times of fog. Hate to go to church or other places where I have to converse with others. My daughter fills in words I can't think of, sometimes laughs at some of the words I inadvertently use. Thought I was doing a good job of keeping my checkbook straight until I got notice from the bank. Went back and looked at my ledger-OH!!!!! Try to keep upbeat and laugh at myself. Take care and love yourselves.

Faye

22 Jun 2009, 22:01

Hey Gals,

I went to the doctor this past week and shse put me on a new med for Fibro---Savelle--she told me that it will really help me for this terrible disease, so I told her I would give it a try, because, I cannot go on living my life in constant pain. Seems like my legs don't hurt quite so bad as of today, I've been on this med for 5 days now, I'll do or try anything to be pain free.
Ask your doctor about this and let us all know how it is helping you all.
I pray every day to be pain free, and to get back to my normal living, as you all do also.
Look forward to hearing from some of you on this subject, Savelle.
Faye

Melissa

13 Jun 2009, 19:18

I would like to know if anybody is doing research to see if all of these Altzheimer's medications might help us with our fibrofog.

Marcy

04 Jun 2009, 10:22

Glad to know others are experiencing the same symptome. I have RA and Sjogren's and recently was diagnosed with Fibro. I have starting having the brain fog. In the middle of a conversation I will lose my train of thought and I will have to ask what I was talking about. It is frustrating!

Cheryl

02 Jun 2009, 16:59

Everyone needs to try D-Ribose. It has changed my life. Better than any prescription medication and no side effects other than reduced pain, improved sleep and a boost to energy level.

Faye

01 Jun 2009, 16:51

I cannot begin to tell you how I'm in so much pain, my whole body hurts so bad from Fibro, it is terrible. I think I'm losing my mind. This has effected my memory, writing, I used to have beautiful hand writing, you should see it now, is this normal ??? I cannot remember names, it is not funny. This disease is really getting to me, and I don't know what to do or take. I'm on Coumadin for my heart, so I can't take alot of meds. I also have neuropathy in my feet, I feel like I have shoes on, high top ones all the time, do any of you have all this side affects ?
I need help, just reading all the letters, makes me feel like, maybe I'm not the only one losing their minds. I pray alot to GOD to help me make it thru every day.
Let me hear from you all, please.
Faye

Bonnie

26 May 2009, 12:55

This desease is extremely frsustrating. There will be times that I feel like I am playing charades trying to tell people just simple things, but my brain will not put the words in my mouth. Somethings it is frightening. I used to just be able to speak to a group with out any worries, however: I am fearful that I am going to stand up there and be grasping for words. I would like to know what others have found helpful. I have had fibro since 2001. If came on after a tough surgery. Sometimes the pain is unbearable. I try to just keep going.

Linda B

22 May 2009, 15:16

Hi I have seen six doctors in my town and noone was able to tell me what it is I have so I went to Cleveland Clinic and was Diagnose with Fibro, and I am glad to read eeveryones comment It has really helped me understand why I deal with this symptom and that symptom. thank you.

Kimberly

13 May 2009, 08:42

Ms. N -
This was ever so helpful - I have been wanting to try natural remedies but not sure where to start. i also have the constant ringing in my ears and basically all the pain (this week it is my neck) and IBS symptoms. The Fog is scary though. I have done the same thing on our elevator, plus tried to open our building door with my car opener. I cannot produce the words I want. Elevator comes out "refrigerator" - the other day I tried to form the word "hubcap" and could only get "ribcage" - usually what happens is I just don't finish my thought unless I'm just with my daughter and then I tell her what my mind was saying. I'm only 52 and do not want to go into total dementia by 60!

I will try Q10,more B6 (which I bought for the ear ringing) and ginseng.

Ms N

12 May 2009, 11:53

I have had fibromyalgia probably all my life. I am now 46. I have had allergies all my life, then IBS hit full blown by 21. I have lots of swelling all over and bloating, along with ringing in the ears, TMJ and now deal with back and neck alignment problems. The fibro pain hits my feet severely on the ball of my feet feeling like I am walkig on bruises. It can be very difficult to have to stand and walk and becomes mind over matter where I just have no choice and have to do it. The fogs I know well and wondered if I was getting adult A.D.D. at times.

My chiropractor suggested Q10 to help my body use the oxygen in it more efficiently. I believe it does help the fog. I also found that ginseng helped with trying to learn alot of new things and needed to retain what I learned.

Any new odd pains I go to him because when my back is not aligned then everything is worse and weaker. It will make my legs feel like they are going to give out. Neck issues made an arm and hand numb, and he said take plenty of B6 to help heal nerve damage and with several adjustments it cleared up after a couple months. For me it has been very important to have a good chiropractor to help strengthen me as much as possible.

Maybe Q10 can be of help or worth a try for those dealing the brain fog. I told him that twice on the elevator I had pushed 1 and nothing happened, thought the elevator isn't working, then realized I was on floor 1 and needed to have pushed 4. I have typed what I am talking about in the middle of something else. The Q10 has seemed to be of help and it made sense if not getting efficient use of oxygen in the brain that perhaps it could be of help.

Unlike what some have said, I find I can stay in the focus stronger and better when I am busy and have things firing one after another. I am a list person which is great help too.

Perhaps from allergies, not sure, I can zone out much easier when not busy then when I am mentally engaged. When messaging, typing or writing I also find I stay far more focused then in just listening or reading.

I try natural things before prescription when possible.

Take care!

Carrie H.

10 May 2009, 13:02

I was diagnosed with Fibromyalgia at the age of 40. My Dr. started me on medication and in the first month I gained 11 1/2 pounds (which I had never had a problem with), but the pain was still there. He would constantly change my meds., I would gain another 3-5 pounds, but again, the meds. did nothing for the pain. The Dr. finally told me that I would always have pain, so I just decided to "bite the bullet" and live with the pain. Why should I subject myself to all the side effects from the meds. and still have the pain? A few years ago, when they advertised that Lyrica had been approved by the FDA, my mother and I tried it. For the first 6 months we were actually pain free and were able to once again enjoy the things that we had given up due to the pain. Then, the pain returned, the Dr. played around with the doses, but still had pain. Once again, my mother and I "bite the bullet".

Kimberly

08 May 2009, 12:57

I have not been diagnosed with fibro. but have wondered if it is causing my symptoms for years. Pain that moves all over - come and goes - recently had major tests for GI problems and non-specific pain -all negative. The brain thing began a long time ago - after my daughter was born, so i thought it had to do with that. Words just come out wrong without me even hearing it. The first I remember was saying, "That's awf high upfull" instead of "That's awfully high up." Then, "He cut himself bleeding" instead of 'He cut himself shaving"...I continually say things in a dyslexic way though I have never been dyslexic. Recently, I get very stessed and "frozen" when I get a lot of information put in front of me or too many (more than one!) people try to talk to me at once. I have a very stressful and highly multi-taking job which I am trying to get out of. Would love to know if these symptoms make sense to any one here. AND...is there a positive test for firbomylagia???

June

07 May 2009, 13:37

It helps to try to stay calm and not to try to multi-task and concentrate on what you are doing some people in your life will try to trip you up esp. if they know you can get confused easily I just stop and leave the room for a while trying to explain you can only do one thing at a time was to no avail for me so have to just tune him out.

Liz Kullmann

05 May 2009, 14:48

The fibro-fog, I was diagnosed with fibromyalgia at the age of 48 and now am 70. I believed had to do with perimenopause. First of all I was on amitrypline That made me fat. Woke up my sweet tooth, then Neurontin and that's when to fibro fog was terrible. I was on it for 8 yrs and really made a difference but couldn't think. I now off it for 18mths and finally can think again.
Also I was diagnosed with sleep apnea. So those of you that think you may have it, have a sleep evaluation done. This also helped my sleep. At least I can dream again. For pain I am on Tramadol,but be careful this is very addicting and some dosage of endocet. Exercise is very important but again do it in moderation.
Think sunny and bright. Debbie Jensen, keep us posted.

Val

01 May 2009, 09:40

I have been having brain fog for some time now, 10 years. I thought it was a getting older got to deal with it type thing. I would sometimes forget what I am saying in the middle of a sentence and have a hard time remembering simple words. Most of my family knows what I am trying to say and finishes my sentences now. For a long time I had many of the symptoms... brain fog, tiredness, dizziness, so much pain and numbness. Also certian smells and lound noises aggravate me. I just found out that these are symptoms as well. Trying to work and take care of family is hard. I am going to try new meds soon.

Debbie Jensen

29 Apr 2009, 22:03

I have had fibromyalgia now for 32 years.. I know exactly when it started and I believe I know what caused it..one of the worst things about this illness is fibro fog..as the years go by it gets worse, for me anyway.. now even the smallest stress will cause confusion, and memery loss.. I too was very concerned thinking it was the start of dementia as I am 62 but after speaking to my dr. he agrees with everything you are all saying.. I had a strange bloodtest last week and suddenly I am seeing a specialist for a biopsy in the large vein in my head as it shows there is very high levels of something that I am not sure what he named. I go on the 1st of june and will come back to this site and tell you what I learn as my dr. seems to think that this elevated something could be the cause of my severe fibro..

sheila

27 Apr 2009, 09:06

Hi All
I too am suffering with CFS and it is getting me down... I had 2nd hip replacement last May and have not got back to my normal happy go lucky outgoing self. Am still suffering from excessive fatigue and poor sleep which has led to anxiety..
Any suggestions for best natural help PLEASE!!!

Best wishes to all
Sheila (UK)

gos

16 Apr 2009, 14:49

No, Dear Linda, you are not "loosing it". You have just joined the group of millions with fibromyalgia who also thought they were losing it. I read all of these comments and thank GOD that they are there. So relieving to know that I am not alone, even if reading a stranger's comment.
We all must keep striving to improve our lives daily and continue to share to educate the public and the doubtful that it is not all in our heads; and we too used to be happy, healthy individuals.

r.lincoln

14 Apr 2009, 15:40

The impact of our individual stressors on our nervous system and brain can't be over emphasized enough. I find that in my 15-20 yrs. with Fibro., that as my stress levels increase so does the intensity & frequency of Fibo-Fog symptoms. As the stress level builds, I find it increasingly difficult to think or to express thoughts.
In working through Fibo Fog, it may be helpful to depend more upon lists, rehearse names of individuals you may see prior to an event, or postpone major decisions until you have gathered your thoughts.

Linda Overstreet

08 Apr 2009, 19:21

I can't tell you how happi I am to read this. I thought I was loosing my mind. Have been afraid to talk to Dr. about it. If this is a well known condition by the doc's I would like to know. If so I definately will talk to him about it. I have suffered over 7 years with fibro, cronic fatigue, sleep problems....the whole ball of wax.The past few years I truley thought I was "loosing it"

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What is Fibro Fog?

What is Fibro Fog?

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