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Community > Expert Q & A > Fibromyalgia > Can Fibromyalgia be the Cause of Foot and Hand Pain?
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Can Fibromyalgia be the Cause of Foot and Hand Pain?

Q: Do fibromyalgia symptoms include foot and hand pain? I have such persistent pain in my thumb that it's difficult for me to write, and both my feet hurt when I put any weight on them. My hands and feet used to be the only parts of my body without persistent pain. Now this. Can you explain this?

A: Fibromyalgia is a condition characterized by persistent pain throughout the body. The pain is usually felt in the muscles and soft tissues. The joints themselves do not show signs of arthritis such as pain and swelling. Fibromyalgia can occur together with another form of arthritis such as rheumatoid arthritis or osteoarthritis.

The prominence of your foot and hand pain suggests that arthritis, rather than fibromyalgia, may be – but is not necessarily – the cause of your pain. Foot pain can be caused by a condition called plantar fasciitis, which is the irritation of a band of soft connective tissue that spans the sole of the foot. Planter fasciitis can be associated with fibromyalgia. It is important that you get a full medical evaluation to determine the precise cause of your pain and to begin treatment, because treatment for other arthritis- related diseases is different from that for fibromyalgia.

David Pisetsky, MD, PhD, Rheumatologist

Charlene
08 Feb 2012, 22:37
I guess I am part of the crowed. I do have these symptoms too. I also have fibromyalgia. But, the fibromyalgia is just one of the SYMPTOMS of an Autoimmune Disorder. I recommend that each and everyone of you NOT put yourselves in a box labeled fibromyalgia! Expand your search to include Autoimmune Disorders. There are many, many ADs that have these symptoms of yours including fibromyalgia. It is very difficult to diagnose an AD, because most do not have a diffinative test. They only give you a probability, and Doctors can not diagnose by test results, only by active disease progression. What I am saying is, they can guess what you have, and treat the symptoms, but until you go fully into the disorder you are labeled with only the symptoms.
For example: I have positive tests for an AD called schogrens and scleraderma, but, the Rheumatologist labels it as a "Connective Tissue Disorder", because I do not actively have the disease, only the symptoms, one of which is fibromyalgia.
Nick McClintock-mensioned he had concrete muscles in his back. My first thought was scleraderma. That is what scleraderma is, the hardening of tissue, most prevelent on the skin that you see, but also can attack internal organ tissue and shut your entire body down in a matter of days. There are many forms of active scleraderma, and of course no cure (which includes all AD as well). Someone also mentioned weakness and spasms? This, could possibly be related to MS, another AD. You would be suprized at how many Autoimmune Disorders there truely are, and how many of them you know but don't connect with AD. Like diabetis, arthritis, RA...yes they too are ADs.
I have worked in Physical Therapy for almost 20 years, and know the stigma that is put on Fibromyalgia. Basically, it, along with RSD, are catch all diagnosis for symptoms they can't pin point with a known disorder. That's why alot of Doctors don't believe it is a true diagnosis. Sometimes even Rhuematologist can't figuare it out.
I believe that Rachel has found the answer to help with the symptoms, as well as a healing progression. She mentions Cellfoid by Lymina (liquide oxygen). I haven't heard of it, but, there is also another treatment simmilar to this, Hydrogen Peroxcide. You will have to do research on this, because it is not the Peroxcide that you buy at a store, and you have to follow a regimen to the "T". It makes sense to me because oxygen is the key to healing. When introduced to the body at the cellular level it has the opportunity to relieve pain and heal internal problems. Basically, ADs are your bodies immune system attacking itself. Like,if you scrape your skin, you develope a blood clot to stop the bleeding and with the help of Oxygen develope a scab so it will heal. Why do you think a perimedic automatically puts oxygen on the patient? Because it increases the oxy in your blood which helps boost the healing process. Your body is a miraculas thing, if you listen to it's needs. PLEASE, research more into ADs, I think you will find new paths into your disabilities, and sloth the stigma of fibromyalgia.
To let you all know, I have Fybromyalgia,Chronic Fatige syndrom, Chronic insomnia,chronic sinusitis, allergies, contact dermatitus, intermittent joint pain and weakness, dry eyes and mouth and night time swelling of hands and feet that eventually goes away after Iwork out the pain and stiffness by moving around. I do not have arthritis,RA,or ostiperosis via bone scans,x rays, Cat scan and bone density test. I have scaring in each elbow joint from all of the blood work, am sensative to sun/heat and cold (but it feels so good), and am post menapausal (went through menapause at the age of 41), have night sweets even though I take hormone pills...you know the rest!
GOOD LUCK AND GOD BLESS in your quest to find relief. SMILE...IT'S CONTAGIOUS!
Rachel
05 Feb 2012, 10:07
Since writing my last post, I have found something that has really helped! Cellfoid by lymina... Liquid oxygen. It has made a world of difference! I now sleep 5-7 hours a night instead of 2 if I'm lucky... My pain levels have lessened significantly. Normally, on cold days my hands hurt so badly I often am unable to use them, but afterjust 7 days of taking oxygen, I was able to go until about 7pm before my hands even began to ache! I am not an expert, but wanted to share my recent find!
Rachel
25 Jan 2012, 10:20
Ive read many, but not all of these posts and relate to all those pains so no need to reiterate. I have been dealing with this for a lil over 3 years and highly encourage each of you who can to see a nutritionist. I can't afford one, but was fortunate enough to have found one who owns a homeopathic shop who felt bad enough for me she gave me invaluable info. My pain was hirrid and awful and very quickly furns so if I miss even one dise, but magnesium has made a HUGE difference for me. Be careful and research before starting, check with your doc if you're on meds... I am not on any meds so here's my regimen: a good liquid multivitamin, magnesium, iron, serraflazyme, cod liver oil, protandim, and a high dose of vitamin d and
calcium. I sometimes add vitamin c and also other herbs fir mood and energy. As someone mentioned, this us no cure, but it helps me live. Helps me think of the future... I really want another baby, I have 2 girls now- 6 and 2. Before, I never thought it possible. Settling in, taking time to find out what helps you specifically instead of fighting the thought of having this is essential and you will find relief here and there that will make life likeable again. Stretching, yoga, relaxation techniques, hot baths, an electric blanket, taking it easy on cold days... Its a new way of thinking and a new way of life I sometimes buck against, but I am beginning to accept it and it has helped my outlook and helped me look for ways to help the pain... Hope that helps encourage you! Press on!
Em
23 Jan 2012, 21:50
I have fibromyalgia and have had hand and foot pain fairly consistently for quite a while. It can range from an aching and stiffness in my toes and fingers, palms and the bottom of my foot...to sharp pains. The pains are not joint pain. They feel muscular and at times I can feel the nerves twitching and my muscles tightening. After days of this my feet and hands get stiff and achy. The pain is often worse when I awake in the morning...before I get out of bed. After I get up and start moving my muscles loosen up and the pain subsides unless I am in a flare. Then the pain is worse and likely includes the back of my hands and tops of my feet. There does not appear to be any inflammation. It may be like plantars fasciitis but I actually think it is a different thing. It seems pretty common among folks with fibromyalgia.
Kazz
17 Jan 2012, 09:41
I was diagnosed with fibromyalgia over a year ago after spending 10 years on pain killers and anti antiflammatory drugs. After ruling many other conditions out I was finally seen by an understanding rheumatoligist who did the pressure point test and understood exactly what I was feeling. I do have very bad foot pain which worsens in heat and cold and I also have terrible trouble with swelling in my hands and numbness in my arms which feels like a "dead " arm.Often this happens when I am stressed, the base of my thumb connecting to my palm swells twice the size of my other one and throbs.
So I would definately say they are connected as I have no arthritis in this area.
sharon brown
15 Jan 2012, 11:51
i have read almost all of these comments. after doing so,i realized no one mentioned RSD (REFLEX SYMPATHETIC DYSTROPHY. i have it. its horrible pain, burning and other symptoms. very hard to diagnose. damage to a nerve can develope into RSD. the nerve does not heal correctly and causes the brain to make pain neurons that shouldnt be there. have that ruled out as a possible cause.
Dee
13 Jan 2012, 16:15
Wow, I relate to all of you . I have r/a, fibromyalgia , bursitis ,vertigo. ibs, pancreatitis, and sod.
I had a stroke, they found a hole in my heart and a open flap. A pfo and asd. They put a wire mesh occluder on my heart. So no MRI's or anything over 3 teslas for me. Then I hurt four disc in my back and three in my neck. I choose to have a implant in my spine and charger in my hip to control pain since all the meds gave me a hemangioma on my liver. But it shocked and burned me, after 8 surgeries it's out. I am allergic to everything , peanuts, shellfish , I carry a epi pen.
Methotrexate blew out my liver, enbrel is awful, I'm so sick I get anything and everything anyone has, make me studder and struggle for words .. I can't sleep since stroke, I'm so tired. Did a sleep lab, had two surgeries on my sinus after sleep lab, nope that wasn't it. I don't drink caffeine or eat chocolate..
I took myself off all meds.. Except aspirin and a Xanax for stress and sleep.. I am now on a gluten free diet and no dairy or cows milk . It's Better, but I struggle with constant pain . I had carpal tunnel surgery on both hands at once after surgery . Tarsal tunnel and planter fascia on my foot and have rsd after surgery and foot was on fire for five years now it's frozen all the time. I have tried everything the drs have thrown at me, being on as many as 14 pills a day. No more! I grow my own food, I cook from scratch and have my own chickens, ( eating the whites only protein )..
So when we feel sorry for ourselfs, remember someone else always has it worse.. My glass is half full not half empty how about yours???
jay
12 Jan 2012, 20:59
I have been experiencing pain in my feet for some time now. Some nights when I get home from work it takes me a couple of hours to get to sleep because my feet hurt so bad. Now I am ecperiencing hand pain as well, especially in my thimb area, so I decided I cannot take this anymore! It is effecting how I do my job, my sleep patterns, my mental state even! I am always in pain these days it seems and I am only 48 years old. I have been reading all of your posts and so many of you sound so much like what I am also going through. I am afraid. I do not have health insurance so I have not seen a doctor, but am going to have to do something soon. I work in a restaurant and today my hands hurt so bad I almost dropped several dishes. My feet hurt so bad I could barely walk to the bus to come home. I am searching the net and keep coming back to fybromyalgia.
Nick McClintock
18 Dec 2011, 06:08
I will list my experence with what I call the flow on effect and hopefully others can relate and maybe add to it if they have the same sort of issues as for me it is yet unexplained.

When I was 12 (34 now) I smashed a 12mm piece of bone from my right shoulder socket, I only found this out when I was 20 and broke 2 bones in right forearm and dislocated my right shoulder 3 times in the same day and ended up under an xray machine.

Anyway, got my rotor cuff op at 21. No issues till 24 from 24 - 29 I had the a constant sore back between my shoulder blades and NO ONE could tell me what it was.

By 29 the right side of my back was like concrete and I woke up one day to shoulder pain, that stayed for 2 years and went one night like some one has just turned off a light gone.

Now in the last 3 years I have had the following and in this order, Pain in right arm, Right lower back, Right Hip, Right shoulder now drops with in 4 hours of getting out of bed in the morning, Left Knee, and now have a strange lump on outside edge of Knee cap.

In the last 6 months My ears have started ringing, My vision is getting to the point I need glasses, I get a slight twitching in my right thumb that if relaxed will shake my whole arm and on top of all of this I now go from walking fine in the morning to on the outside edge of my feet by 7pm and this in turn makes my knees and feet sore as hell.

Now I am a health guy, there is no history of any illness in my family, Im active, not over weight (85KG, static for last 5 years)

I have been everywhere, tried everything, seen everyone what I have not had is an ECG or MRI but here is the kicker..... Try and put all the above into an internet search engine!

And I am now onto trying things with my feet and posture.

It is as if one thing triggers another and so on and so forth.

Any (realistic) Ideas?

Anyone?
siju
20 Nov 2011, 06:44
Doctor,

I have been experiencing pain in hand muscles and legs,when it comes i lose strength,and i loose weight in my body it continues for one - 2 weeks,after that i become normal,i lose weight due to this diseases,i went to doctors and they says you are doing typing job and sitting in same position may be that's why.Iam afraid of this ,please advise me why i lose weight when i get pain in hands and body.

Siju
Belinda
18 Nov 2011, 17:00
After reading all the comments l don't feel any better knowing l to have Fibromyalgia l don't think alot of people out their including family realise our pain and having to deal with it on a day to day basis. Yes at times l feel l to would be happy to end my life as normal day living is impossible now l am only 48year old female. There is no cure and taking all these drugs l am sure is not helping my immune system, as l am now on morphine patches that releases morphine every hour and pandine forte when the pain is just unbearable and valium to sleep when needed. I have also been diagnosed with a tear in my rotator cuff, tendonitist, bustistis and a cyst in my right shoulder which have taken almost 2 years to diagnose.
Tony Romeyn
17 Nov 2011, 00:01
Oops one more thing for those who have painful feet for whatever reason. A great shoe I buy in the USA, on the website of http://gravitydefyer.com/.
YES, they really help me.
Tony
Tony Romeyn
16 Nov 2011, 23:51
I see by your names that many or most of you are female. And it is my understanding that Fibromyalgia is experienced more by females then males. Yup I am a male and have had Fibromyalgia for probable 15 years. When my pain started my Doctor sent me to a Neurologist when my feet where extremely sore, then he told me to take a aspirin and left it at that, true story.
Following is a little explanation of how I feel and my meds and then how THERAPAIN helps me.
I then began my own search on the Internet and eventually made an appointment with Johns Hopkins Hospital in Baltimore. They are one of the few hospitals besides the Mayo Clinic who do research on Fibromyalgia. It was there that I was diagnosed. Even then I was told that there are mimican deseases and they have to be eliminated first. My Doctor - I live far from Baltimore, in fact in BC, Canada - was good to have put me through all the required test the Doctors at Johns Hopkins Hospital had suggested.
After going through all those tests it was confirmed that I did have Fibromyalgia. Many Doctors still believe its all in your head.
I have read much of what many of you said and probably have many of the same symptoms.
Much of my pain is close to the surface, meaning a lot of burning sensations. I take about 20 meds a day, amongst them, Gabapentin, maximum dosage allowed, 12 a day. 3 Tramacet or Tramadol, 3 or more Tylenol, 1 Adivan to help calm me at bedtime. Occasionally an Asperin. Got to watch those as before I was diagnosed I took everything over the counter, many aspirin, or other acetoacetic acid stuff , which almost killed me when I developed and ulcer and lost 6 units of blood.
But that's enough about my what I feel like. Besides my medicine, what really helps me when I have an awful burning skin sensation which is frequent, I use a spray THERAPAIN, which can be bought at most Pharmacies. YES, when I spray it on my skin, although initially it may feel really cold on the skin, that will go away and the burning mostly stops. I also use it on my feet, letting it dry and do two or three coatings, depending on my level of pain, primarily toes which are very painful due to Peripheral neuropathy - a nerve damage disease.
Therapain may also be used for other pain. In my city we have a sports therapy clinic who swear in a good about the use of Therapain. They sell it also and now pay about $11.00 Can. per bottle, a lot cheaper when I first paid $20.00 at Naturopathic stores.
No my pain is not gone and some days I just want to quit life, but I do get my relief using Therapain. No not a cure all. Well I hope and pray that this will help some of you.
Don't give up, keep going and focus on other things, life is to precious.
Tony Romeyn
I am Missing
www.iammissing.ca
tony@iammissing.ca
Highway of Tears
www.highwayoftears.ca
tony@highwayoftears.ca
kathy
13 Nov 2011, 07:54
research coconut oil for pain relief
Susan
03 Nov 2011, 02:58
The original comment is what I am actually responding too. I know this thread is old but if you found answers please let me know. I have fibro too and when I quit smoking I started getting thumb pain and finger pain. I blamed it on that but it's now been 3 years almost since I quit. I was told I actually have ME. My hands never bothered me unless I did something that made them hurt. Now my large toes are hurting. I have seen a nuerologist who did a brain MRI cause I was getting like a ghosting in my vision and was sent there. I have an xray ruling out arthritis and an EMG. I do not understand what is happenning. I have a Rhumatoid test done about a year ago and it was negative for RA. However I have been exposed to E Chaffenises and Myoplasma Nuemonia and Parvovirus B-19 I think it's called. I have no children but my niece had the chapped cheeks when I was around her so that is probably where I got that. I have no idea what is going on and it's getting worse so if you got any answers please let me know1
lexi
30 Oct 2011, 15:35
my moms 39 and has always had hand and foot pain and always makes me rub her hands and feet and i think she needs to go to a docter. what she we do?
neha
25 Oct 2011, 06:53
hi............my cousin suffers from severe pain in her hips.It all began aftr she had a huge bout of fever.Is she suffering from arthritis????? she is at a tender age of 14 but is bed-ridden since the last one week....if she is suffering from arthrit is it curable?????
PLEASE DO REPLY,
NEHA
petra skerritt
25 Oct 2011, 03:47
I forgot to mention. I am 126pd's, healthy eater, non smoker, never had a car accident or surgery. So just for those who are told to loose weight I think it's a little more serious then that.
petra skerritt
25 Oct 2011, 03:45
You are all in my hearts. Here it is 4;30 am and once again Im up with severe non stop burning aching in my wrist and top feet. I've been diagnosed with fibro for a year now and also refuse to give up. All test come back fine and it seems my doctors think of me as over dramatic. I've had it up to here. There are times were I actually think I am going crazy. But when the pain comes back I know it's true and I have to find something to do about it. My miracle drug WAS lyrica. First we tried other ones cymbalta and ext which almost gave me a heart attack and I am only 31!. So we switched over to lyrica and it worked! but then I found out with no ins it will be $300/m for me. I seriously just collapsed emotionally in my pharmacy. This roll coaster has been spinning me around forever and spit me out into nothing but depression. Luckily my pharmacist told me about a company called phyzer, when you are on a low income they negotiate with the drug company's to get you a lower amount or sometimes get it for free. I got mine for free. So I was back in business. Even though the throbbing feelings in my knees, wrist and feet still came back now and then, I was just happy I could sleep all night again. And all the suddon it just stopped! I increased my dosage and nothing. Back to hell again and I don't know how long i can last in it this time. I pray these doctors will have enough heart left to really try and find the real deal for this. It seems to me that I can pay a doctor $120 a visit but he never really gives a shit. I hate my self now and I am trying so hard to get through this. I don't have any kids and my husband and I wanted to start in the next year.I know secretly there is no way in hell I will with this. I refuse to put them through this with me. Not to mention how will I cope while I am pregnant?? I can't take any medz and if the pain gets bad I think I will go crazy being pregnant with it.Dear god there has got to be something, another way out. Pleeeease.
joy
23 Oct 2011, 09:06
do any of you suffer with lightedness when bending down my husband is going to see a doctor this coming friday he has most of the symptoms you all mention
Elle
28 Sep 2011, 17:52
Hello to all of my Fibro brothers and sisters. I say this because we must have the SAME blood because we are sure"NUFF" SUFFERING the Same which my heart is SORRY 4 each of U. My PAIN and FATIGUE R So All Debilitating and Consuming that I wonder daily WHAT AM I STILL DOING HERE??? No I am not suicidal just now the winner of the GROUCH award... I used to be so friendly caregiving supportive social and had to be busy day and night. I loved meeting new people and working with the kids who needed me SO badly. Now who am I and my limitations mean my limitations unless I want the world to hear me SCREAMINGGGGGGGGGGGGGGGGGGG!!! U sure find out who your friends aren"t when u get sick.I dont know how long I have had this MONSTER sharing this body but they NEED to LEAVE and give me back me and some room for the GOOD Stuff again. Wouldn"t that B Nice? We all share so much and I Literally Feel your Pain and your Grief and the Frustration of all that Fibro takes from us... I know my mother had this and she was treated SO CRUELY... Life can B just too DEMANDING on us and 4 us... Of course as a child I didnt and couldnt understand. I just remember her saying all of the time how she HURT ALL Over... She had NO life and 5 kids she did NOT want and we Payed Heavily. Also a Controlling husband my minister dad who just insisted she "GET OUT OF THAT BED". She couldnt and now I cant on MANY days... I Force myself like we all do to try and Make the Best of NO Quality of LIfe. I laugh and I smile and I try SO hard not to take my Pain out on anyone but I should B the President of COMPLAINERS Club.To all of U who R searching 4 compassion, understanding, and answers. U R NOT alone Some-B O D Y does Care and Understand. A Toast to our Health with the BURNED Bread... Elle
Donna Stevens
26 Sep 2011, 10:04
Boy can I relate to all of these complaints. I suspect I have had Fibro for many years prior to my diagnosis which I was in denial about so I went to a Rehumatologist which confirmed it. Ive had 4 back surgeries which my Doc tells me is suspected in causing it even tho no one really knows much about it. I am on Lyrica, and Tylox ( which I hate ) for severe pain. Since my diagnoses a year ago my goodness my pain has increased 10 fold. My hands feel so tight and painful. I went to a Ortho and got shots in my thumb which he said was trigger finger but its back again along with my other thumb and pinky. I have a difficult time openeing things and grasping..I dread going to bed at night beacause of my feet. They seem to get so much worse at night when Im laying down. I do alot of walking around during the night which seems to help a bit, but comes back over and over. My husband is amazed that I even still do yard work, knowing the pain involved and afterwards Im in bed or on the couch in exhaserbating pain. I just refuse to allow this to take me down..I know in time it probably will but for now I keep hanging tuff. This is a horrific desease and my thoughts and prayers are with all those who are unfortionate enuff to have it.
Blessings
Catherine Bridges
09 Sep 2011, 15:28
I was diagnosed with Fibromyalgia in 2004. I did not believe my doctor so I got a second opinion, then a third from internist and then a rheumatologist. All stated that yes I did infact have Fibromyalgia. This what I call made up disease that they combine folks into when they can not figure out what is really wrong with them. I started feeling badly after the birth of my son. I had two childern before this girls-not that that matters. But something about that birth started this all. I am almost certain of this. I had him in the Labor Room (we never made it to the Delivery Room) and I was exhausted after that birth and could not seem to get enough sleep no matter what I did. I remember falling asleep with beans on the stove one afternoon and almost burning down my house. A year later (1994) I was diagnosed with thyroid cancer. Yeah I thought. This must be why I feel so badly and now they will fix it and I will be back to my old self. I blamed my being tired and all my body woes on this new disease. I thought all I have to do is have my thyroid removed, take the radiation and medication and FINALLY I will be myself again. I was probably the most excited cancer patient my oncologist had ever seen. After the surgury, I had a lung collapse. But other than that I thought I was on the way back to myself. No such luck though. So it must be that my medication dosage are off right-they can fix that I mean surely it is the meds that are to blame-maybe my levelis just too low and if they changed it that would make the pain go away. The problem was they kept saying my TSH (thyroid levels test)are great-How could that be when I am in this much pain?? in 2004 I was diagnosed with fibromylagia and found out that my thyroid cancer had spread and I was scheduled for radical neck disection.
I am in sales and have worked through all of this and raised my 3 childern. Who were in everything from band, cheerleading, dance, football, basketball, art, choir, etc. My point is that I was able to work thru the pain. I come from a family of workaholics of which I am one. I have always . In fact sometimes I worked 2 jobs at a time. I owned my own business once as do several of my family members. And I was a do-it-all mother. I think outside of the pain that the slow dow at the time was the hardess thing for me to come to terms with. I still work full time and have won several awards but I have no home life to speak of anymore. I had to choose because I do not have the strength to do both and I am fighting going on disability. I can not take most of the medications perscribed for Fibromyalgia because my job requires me to drive 75% of the time. This year though has been a game changer for me. The pain that I have has gotten over 200% worse. My feet now are in constant pain along with my hands-expecially my thumbs. They are stiff, painful and pop when bent, My eye twitches and are painful to move. My kneecaps pop and hurt extremely bad and stairs are a real problem. My spine right above my bra and my shoulders also-to the point that I refuse hugs because of the pain assoiciated with them. I am for the first time since my diagnosis finding it hard to work. I am so scared and angry about this!!! It has been close to 15 years since my diagnosis and we are no closer to knowing anymore about this disease then we did before. The thought of not supporting myself in todays economy makes me want to just ask the Good Lord to take care of my family and me home. I am Catholic this is a hard thing for me to admit. But unless you have been in my shoes you will never know and I hope you never do. My newest symptom is squeezing in my chest and my lower left rib area that goes up my arm. It was so intense yesterday that I called my doctor who sent my straight to the hospital but after all the test and expense they tell me that all my test came back fine for my heart. My goodness gracious! The medical bills alone are depressing. I have paid off some doozies only to have days like these and be right back where I started. I want my life back. My hope is that someone will have the time to find a way to take all of our symptoms and what was going on in our lives at the time where we felt it changed and come up with some commonalities amongst us to help doctors. I have so many people depending on me and really need my job. Please someone find a cure.
Linda M
12 Aug 2011, 08:23
Jan - (and everyone) I am so sad to hear all of your stories. Mine is pretty much one of "we have no idea what is causing all of your pain". At any rate, I am writing in re Jan's experience specifically. for your most recent burning in your feet and hands -Severe burning pain especially after activity - look into a condition called erythromelalgia. What you are experiencing sounds remarkably like that. poorly known about and understood, most of your dr's wouldn't have any idea when you presented with those syptoms.

Good luck to everyone and I hope for a pain free future for you all (and me :| )
Linda
jan curtis
06 Aug 2011, 22:00
hi,, reading this webiste has made me feel better,, noone seems to understand this pain,, i was an athlete , big time athlete, long story short, had a torn acl,, had a cadaver ligament used,, tore a yr later to the point of needing a knee replacemtn at the age of 35,, also a flight attendant.. after multiple knee surgerys. they did not want to do a knee replacemnt at 35,, so 14 surgerys later i had a total knee, dr did not put in a gender knee, did not heal right saw another dr 8 months later and they had to do a revision of the knee replacement,, patella button replaced and shaved down, no better really, still trying to work as a flight attendant during all of this, self supportting,, on and off work constannly, knee swelling, bone scan shows prosthetic loose, 15 months after my revision,,, new dr puts in a gender knee,, i had to have my femur realigned and had an impingement from the oversized knee,, also, have now a leg lenght problem, hip problems bad, i had not standing tolerance, mri shows trochanteric bursitis in both hips so now am getting cortisone shots,, okay,, so my knee is finally better and now i am having terrible burning and my thumbs hurt and my hands feel like they are asleep, so, my primary at the time sends me to a pain clinic,, very professional and he wants me to see a rhematologist,, i can't psycholically sorry about the spelling,, i can't take another diagnosis,, and i have a lump in the arch of my foot,, remind you still trying to fly,, and long haul,, get to the hotel , cry, ice everywhere and take pain meds,,, the burning in my feet got so bad i could not tolerate a sheet touching them, sucked it up,, one dr said i had mortons neuroma and one dr said i was wearing the wrong size shoes,, i changed shoes, wearing no shoes feels the best,, the burning got better but my hands started to burn,, so i continue to go to the pain clinic and leave it at that,, okay, somewhat tolerable,, when i fly and get to my hotel though i feel like i have been dragged by a truck,, it takes me days to feel better,, what i am getting to is, i let this go and go,, i have dupytrens contracture,, it is hereditary in my family,, i also have lederhosen disease in the feet,, i have a larger fibroma on my plantar fascia,, my mom, her sister, my sister and myself have it,, my mom and my aunt have not had any pain,, i saw a hand specialist and he told me he had not heard of anyone having aching and throbbing and burning, so the new podiatrist told me i had plantat fascitis and tarsal tunnel syndrome,, my standing tolerance is awful,, when i would get to my hotel room after flying i wanted to amputate my feet and hands from the pain,,, i had an mri done and emg,, negative for tarsal tunnel,, the foot dr told me it does not always show up, it showed chronic plantar fascitis and achilles tendiopathy and of course the fibroma,, so, i have an appt with a rhematologist,, my feet are better, i did not fly for 3 months,, now i am back, they hurt and burn but not as bad,, my hands are awful,, i can hardly open anything, they hurt to bend , ache, throb,, worse if i try and play golf,, i am also having some popping in my right shoulder area,, my hand burning is bad one day and not so bad the next,, i am looking for any suggestions,, i just want really one day without pain,, sleeping is no treat, i am happy i found this webiste,, i have been trying to self diagnosis,, is this pain from the dupytrens contracture or a complex regional pain syndrome or rhematoid, or do i have fibromyalgia,, i am flying the bare minimums,, and flying red-eyes because physically it is the best, i don't have to do much manual labor except to stay awake,, flying seems to make this worse,, i don't know if i can qualify for disablility but i don't know how much longer i can work,, i am 49 but feel 109,, i am open to any new suggestions,, due to my flying schedule i can't see a rhematologist for another 4 weeks, thanks,,
Big Mamma
06 Aug 2011, 10:07
My heart just aches for you dear people suffering so terribley. I know the hell of fibromyalgia and it has nothing to do with weight and it is not all in your head and don't ever start to believe any of those educated and uneducated Einstiens who think they can think through it logically and have all the answeres. BULL! I am not a drug pusher but recently learned about a medication called low dose naltrexone (ldn). I told a fried about it and her husband contacted a compounding pharmacy to find out what doctors are prescribing it. They found one in Chubbuck, Idaho and he took her there.
Two weeks later I saw her at church and she looked different. She appeared to be walking better. She came over to me and all she said was "I feel so good". It does have to be compounded as it does not come ready made. I wish only the best for all of you and pray that your burdens may be made lighter. Big Mamma
Raquel
30 Jul 2011, 19:36
Im glad, im not the only one suffering of terrible pain all over and the doctors saying they dont understand or even worse saying one is crazy and just wants meds. I suffer of fibro pain since age 20, im 36 now and disable since last year.. I have two children, ages 6 and 8 and without my moms help I would no be able to take care of them. I spend most days in bed or couch in pain. Almost every day I feel im going to pass out of so much pain and die. I cannot enjoy life anymore. The only meds that have helped so far are neurontin, lyrica and clonazepam. My fingers and hands especially thumbs hurt the most. I can not do the things I used to do with my children anymore. It is very painful and I have isolated from spending time with friends because Im tired of people saying you look great when I feel im dying in pain. People who dont go through this can not understand and can misjudge you. I pray my symptoms will improve or that my time is near so I can go home and rest from this nightmare. I know I might sound fatalistic but I sure dont want to live like this for maybe 36 more years
Kelly
28 Jul 2011, 10:13
Hello, I still fight with being told I have Fibro, I just feel like I want it to be something that someone can FIX! I know I have to accept the diagnosis but it's so depressing to go roung and round knowing that nothing can be done. I am 42 and wonder how I will even live by the time I am in my 60's and question if I EVEN WANT TO live that long. Pretty sad that my mind even goes there but I am sure many of you can understand. Now granted I am not saying I am suicidal but I really do get frustrated with all of this pain. I want to lose weight and be thin, happy, and healthy but can't seem to be that person. I am also sick and tired of doctors making it sound like all I have to do is diet and excercise and lose about 50 lbs and I will magically feel better. That is NOT the case, sure it would help but I know in my heart that my weight is not the main issue. I am 205 5'6" but I know people heavier then me who do not deal with this much pain. It's hard to diet and excercise when you hurt all the time and want to just lay down and do nothing. I don't even eat very much but the pain causes me not to burn fat even at eating a tiny bit. The one thing that did help for awhile was taking Neurotin but I thikn I am getting immune to it because the pain is coming back and now it's hitting my hands and feet. Most of the time it was headaches, neck pain, shoulders, and stomach issues but now my hands and feet are starting with daily pain. So far my legs are still pain free but are jumpy. I just wish there was a cure for all of us who suffer and I wish people would stop thinking we are crazy and just like to "whine".
Debbie A.
18 Jul 2011, 11:14
Ive read all the comments and i pray all will be thankful to have one good day,ive been diagnosed with fibromylgia 22 years ago,but i think it started sooner,one day i was in the garden planting potatoes,and all of a sudden couldnt move,i had to wait 2 hours for my husband to come home to take me to hospital,i had 3 slipped disc,i ws in a wheelchair for 3 months,dr. told me i would never walk without surgery,but i proved him wrong,the pain i have now i have had for 21 years,i think the back getting hurt started it,I had a child in 1990 and boy after i had her the pain has got worse ever since,i have hurt in every possible way,every muscle,joint,nerve has hurt,i have been diagnosed with osteroarthritis,osterprosis,hernia,disgerative disc disease,plantar facia,HBP,ive been to numerous Drs. been on every meds u can think of,to no avail,nothing takes pain away,im 55 tomorrow,ive worked and cryed all my life,ive been unable to work for 3 years,because pain is so severe,im setting here now and have to wait awhile before i type hurts so bad, my neck feels like its on fire,my feet feels the same,hands hurt,back,i have spurs on my knees,spine,feet,i have plantar facia,ive been on meds for so long i dont beleive anything will help,ive got so bad in the last 3 weeks i cant hardly stand to live,ive been on trazodone,for serotonia uptake,u have to have that,it has helped for years but,not now i guess your body gets use to it,i have a dr. that tells me im so bad now nothing will help.I also take vicrodin 2 times daily,cant take ibuprofin,hurts my stomach,i have acid reflux diease also,have to watch what i eat,my dr. says it all comes from fibro,i also take klondopin which without it i would literaly die,i dont know how much longer i will last but im praying god will heal me in some way to at least make it easier to live daily,cant walk anymore,my feet hurt so bad,i have done everything everyone says help them on here,i have brain fog so bad its horrible,ive had to think how to spell words and look some up to write this im so upset,ive tried all different meds,different herbal meds,vitimines,u name it,sorry if some of my words are not spelled right,ive lost 60 lbs since january,cant hardly eat anything,i thought oh boy ive lost weight but i beleive ive got worst since,i am now at a normal weight after being obese for years,i hav 4 grandkids i love dearly,but i cant handle the activity that comes with them,im so sorry for the ones who has this dreaded disease,i am so glad there is other people out there that can relate to this,ive gone from being active to nothing,i try but i just hurt myself in the long run,im out of wondering what im going to do next,i have a husband and daughter that lives with me and they are wonderful,i feel if not for them understanding me id be dead,i know i sound horrible but,its the facts,I hope everyone the best.
maili
04 Jul 2011, 10:11
I have for the past twenty years had these symptoms. It
came on after the birth of my first child. I suspect that
there is a connection with the symptoms and a painful
event prior. Last year I cut my ring finger very badly, and
ended up in the emergency room for stitches etc. The
finger is find but the cut was close to a nerve, and the
pain was unbelievable for days. Since that injury; my
overall pain so much worse. Anybody have the experience
where the pain increases substantially after a painful
event?
I am trying to put two and two together.
Mimi
Gloria
12 Jun 2011, 14:17
Hi

I have recently visited a rhuematologist and he said I have the symptoms of Fibromialgia as I have been experiencing severe pain in my feet/hands and elbows and find it so difficult to walk and do general tasks. I have had arthritis in my neck and knees for a while now and suffered with severe back problems for quite a few years. I learnt to cope with these problems but then my feet started to get rather painful towards the end of last year in which I ended up on the sick and then I started experiencing severe pain in my elbows and hands and this causes me problems when having to pick things up or grip things as I get pain from my hands to my elbows and it feels like someone has just hit me with a hammer, this last anything from seconds to minutes. I also have days where I generally feel quite unwell and just feel like I want to lie on the sofa until I start feeling better (This is most days). My knuckles feel quite painful/stiff and hard to bend. I can't sleep at night because of the pain I experience each day and night. I feel like the doctors think I am a hypochondria and that the problems I am experiencing are all in my mind, I also don't think my husband realizes how much pain I am experiencing because I have good days and bad and because of this it can look like I am fine one day and the next I can be in hell of a lot of pain. I can also fell not too bad at certain times of the day, I can never say when the pain is at it't worse as it can vary and can be not too bad one part of the day and then I can feel absolutely terrible within hours. I do get down with it at times but I always try to be positive and tell myself that there are people who are worse of than myself but this does not help to get rid of my pain. I love spending time with my grand children but it causes me so much more pain when I do things with them. I know what most of you mean when you say you feel like you are 90 as I am 49years of age but I really feel like an old woman before my time. I dread standing from either sitting down or when I have to get out of bed at anytime night or morning, I use cushions etc to try and support my arms/legs etc to try and find a comfortable position when I am in bed at night and try and listen to relaxing music to try to go to sleep. I don't sleep very well at night because I am unable to get comfortable. I am really glad to find that there are other people experiencing the same as I am as you think you are the only one when you are felling terrible day in and day out.

Thank you for listening to me going on and God bless you all and I hope you get some pain free time or at least some easy time.
MIRANDA
12 May 2011, 22:36
I am a 26 year old mother of five. I have not yet been diagnosed with fibromyalgia, but i believe it is what i have.It first started out as pain in my upper back that I had for years, the pain came and went,also i would wake up with my hands feeling swollen especially if i had done any house cleaning. but then suddenly I got very sick with pneumoia, I was sick for two months before going to the doctor, i had no temp, so i figured it was a virus.While I was sick I began to have horrible pains in my arms elbows and hands, and in my back again.I was treated, but my pain never went away, i was also having tingling in my hands, and migranes.i gained 30 pounds in one month from not being able to do anything because of the pain.I then went to the docter and she took xrays of my hands, back, and elbows, and told me it was not arthritis, although the pain does feel like it is in my bones and joints, and muscles.She then told me that it was my muscles, but nothing more than that.and prescribed me amitriptaline.It does seem to work, but the pain usually comes back at 3 pm or before the next day.I now am beggining to have horrible pain in my legs, and feet to where it feels like i cannot walk,and my legs cant carry me, and with exersize it begins to hurt worse.on mothers day i woke up and had no symptoms, so i tried not taking my meds and i felt fine for two days, but then back with avengence there was then pain.i cannot even go to the store and walk around for very long and it will begin to hurt and i will have to go home and lay down on the couch, if i do fall asleep , when i wake up my hands and feet will feel swollen and my hands and elbows hurt.this really gets me down because i am not the type of person that likes to take medicine for pain, and now have have this pain in which i have to alleviate on a daily basis.I have not went back to the doctor for two months, and have missed two appoinments, because i do not know if my doctor believes me, or if she is ever going to tell me what is wrong.I now catch anything my children have, and it seems as though my immune system is gone.it is very depressing, i dont feel the strength alot of times to even go outside and play with my children.i feel as though i am a 90 year old woman, but i still try to get up and do something, i try to let it not bother me, even though i know it is going to hurt even more the next day.
roseanne
10 May 2011, 01:49
I have been diagnosed with fibromyalgia, myalgia encephalimyelitis, diabetes, raynauds, sjogren's atrial fib and two other heart problems, one of which was a very slow heart rate and now have a pacemaker; I have scleroderma, multiple sclerosis, suspected 5th cranial nerve disease; I have problems with my hands and feet that keep me nearly cripled...my hands hurt whether I use them or not, but when I do use them, the pain is increased teribly...my fingers get cycts that come and go; I have lichen sclerosis; I have had cancer twice. I have a total of 13 diseases and 15 medications that I take daily. I am on insulin fort the diabetes. I got ill overnight with fibro and have been diagnosed with a new illness each year. I live in chronic pain and it is so bad that I some days actualy feel the pain will kill me. I do believe pain can do that....or perhaps drive a person insane. I believe all of my diseases are related...I use to do a lot of research and I see a connection. my M.E. (myalgia encephalimyelitis) has caused the death of many people in my support group; either by the heart stopping in the middle of the night OR by suicide.

I see here that most of you have more than ONE illness once you have fibro. I believe they are connected. I have so many illnesses that I cannot remember them - I need to start from my feet and work my way up the body to remember the names...all I CAN say is that every single inch of my body is inpain. I have had "sub" illnesses (shinglees, etc) that are from the major illness. WhenI visit a dentist, doctor, or am touched in any way, I can end up in bed for weeks....exercise the the WORST thing you can do for fibro, by the way. and for M.E. - well it can end up causing your life to shorten.
there is a site Hummingbird...it is for M.E. and it is EXHAUSTIVE in the information. I find that a lot of people who think it is fibro and chronic fatigue actually do have M.E. be careful with M.E. if you overdo it...and listen to the doctors who tell you to exercise, you can do more damage than you can imagine. If you google M.E. you will find places to go within places to go.
I could write a book on these things...but instead, i wish you to Google these things and your mouths will drop to the floor when you realize just how deep these things can go. My best to each and every one of you.
KELLY
19 Apr 2011, 07:19
My pains started last year and i did not take much notice until it got worse and more regular i went to see the doctor. It was confirmed i had fibrmyalgia this broke me down as i love running cycling and dancing. I now do yoga which helps and try not to eat processed food and most of all to stay positive and strong. I try not to take no medication. My hands and feet feel numb and painfull but it is important to carry on doing exercises.
Kim T
11 Apr 2011, 12:12
Is fibromyalgia pain continuous, or just pain that occurs in various parts of the body throughout the day? I have pain every day, but it comes and goes throughout the day. I also have many body parts that are extremely sensitive to touch--even just pressing down slightly causes a bruise-like pain that sometimes last several minutes. Does this sound like fibromyalgia?
Sue
03 Apr 2011, 21:55
I was diagnosed with fibromyalgia seven years ago, after spending over a year suffering the symptoms and thinking I was crazy. Once I was placed on a regimen of medication, I was able to get into the gym and start working out again. After a month of working out, I was able to stop taking the meds. An accident reduced me back to the previous poor condition and I have not been able to fully recuperate from that. The new thing, though, is that it really hurts to walk. The bottom of my feet are killing me and it doesn't matter if I'm sitting, lying down, or standing. NOthing helps. No medical insurance right now and can't do anything about it.
Chris
14 Mar 2011, 14:08
I have had all sorts of tests as I have a very slow heart rate and they thought it could be the cause, they now say Fibro is likely but the pain is everywhere, mainly my neck and the tops of my feet, the backs of my hands/wrists and up my shins and calfs. I have all over pain but these are the worst parts, I can't take Ibuprofen as I have low kidney function and Tramadol although they eased the pain a bit made me very depressed, I am laying now with a heat pad on the top of my feet but its no longer helping and the backs of my hands while typing this are agony. I really don't know what to do, it wont let me sleep and seems worse every day, the feet pain started four years ago and has got worse and worse while the hands pain has only been the last four or five months. my legs from the knees down feel like cold water is in the veins and like someone is banging the tops of my feet and shins with a cricket bat. I catch anything thats going and have recurrent sinus infections as well, my groins hurt like a groin strain and pull really easily if I do anything, even the back of my head hurts to touch and its all worse when I am relaxed..I'm 52 and a physical wreck.
Michelle
27 Feb 2011, 00:56
Was up with insomnia and sore feet-again, and found this site. I'm finally coming to terms with the fact that I probably have fibro. I was a dancer up through my twenties, and I messed up my feet badly. I had bunion surgery along with a procedure to cut and release tendons in my feet because of the huge amount of scar tissue. I feel like I'm 90 and I'm only 40. I hate to exercise because my feet, back, neck and hips hurt so badly all the time. But I need to lose some weight, which I know will help my feet a bit - but I can't even go shopping without getting foot-blow-out! Shockingly, I am also a massage therapist. I wanted to tell everyone - FIND A NATIONALLY CERTIFIED MASSAGE THERAPIST AND GET REGULAR WORK DONE! I'm totally serious. If insurance doesn't cover it, try going to a massage school lab and see if you can get a discount by having a student work on you. Go on the web and read up on massage and fibro/arthritis. It works for all symptoms from pain, circulation, swelling - and even depression. Please give it a try, and don't stop until you find a therapist you like. They are NOT all the same...
sharon mcgrath
18 Feb 2011, 09:02
thankyou to all of you who took the time to share your stories . i am now pretty sure that the pain in my hands and feet is fibromyalgia i will be makimg an appointment to see my doctor soon.
caroline
16 Feb 2011, 17:30
I have been suffering for about 18 years and no one ever could tell me what was wrong with me. The pain got worse that I would come home from work and sit in a recliner dreading my 11 hour day on my feet!!!! i did my house chores but swimming in the pool was very thearaputic. I finally had enough and quit my job and went for many work ups and evaluations and testing. If a Dr. doesnt believe in fibromyalgia he wont even discuss it and that happened to me when I went to Shands. So now I have been diagnosed with Lupus and Fibromyalgia and I think I must suffer every symptom there is and finally looked it up on the computer as differnt drs gave me differnt answers no one agreed with anyone. So now I jsut see one dr. Im allergic now to so many things but i take pain meds but am starting to have an allergy to them also. I workout everyday and try to do stuff to keep my muscles from atrophy. some days its jsut so hard to walk and its hard to sleep also. I have terrible mental fogginess and confusion. I applied for SSA and was told in would take 2 years maybe longer and appeals and lawyers. I got it after 5 months. healthy eating avoiding stress is the best bet if you can.
Cinda
12 Feb 2011, 13:25
I started having all-over joint pain about 10 years ago when I would do strengant work all day. It gradually increased. My Dr. said I had lupus. It has really increased in my feet. They feel like they were ran over by the time evening comes. I feel best in the mornings and as the day goes on-it gets worse. It's hard to sleep at nights because they hurt so bad. My feet burn on the top and I can hardly walk with the joint pain. My toes are starting to curl under all the time. I also have pain in my hands and wrists and lower back. Last week, my back was really bad. I am 60 and very active. The Dr. has me on 30 Mil Methotrexate. It really helped at first at a much lower dose. Now it doesn't seem to help at all. I tried celebrex but it didn't seem to help. Any ideas?
Sage
06 Feb 2011, 17:48
Hi everyone,

I was just diagnosed with fibromyalgia and Im. looking forward to getting some help.I have had chronicpain inner and back for approx 6 yrs and all of a sudden I started getting severe fatigue.I went to my pcp and he tested me for Epstein barr,which came back active. I began to get knee,paperback,hand and finger pain.I feel like my whole body aches all day. I take percocet for pain and that takes the edge off,buy doesn't take it away.ivehad periods of crying and feeling sorry for myself,buy I'm trying my best to remain positive.I found alternative medicine ms, that I'm seeing this week. She seems good,and willing to treat the whole person ,not just one symptom.Evenwhen I'm lying still ,I feel the pain.I work full time and its difficult.By the end of the day I'm exhausted and in pain.I've begone off the road while driving because Iwad sooo tired. Sleep I found ,is very important for us. I hope to get some treatment to alleviate some of the symptoms,because what I'm reading is that we can keep it at bay,but not cure it completely.if some pain is relieved,I will be happy.Stay positivethats what I'm trying to do. sage
Jill
02 Feb 2011, 12:59
Hi, does anyone suffer from the following symptoms? Severe pain in hands, feet and knees which is worst at night and first thing in the morning. Pains accompanied by hot flush which lasts about 5 mins. Have been suffering from hand pain for 12 years and has got more severe since I went through menopause two years ago. Have had tests for Rheumatoid Arthritis but RF factor always comes back negative. Have had hands and knees x-rayed which also come back negative. Doctors now want to do a nerve test on my hands. Have heard of Fibromialgia but thought it only affected back, neck and shoulders-can it affect hands and feet? Pain has been bad this winter especially when cold and damp. Also developing a pain which goes from hand to elbow when I pick up anything heavy like a full kettle. Would appreciate any comments.
Bonnie
30 Jan 2011, 16:36
Fitting in is one thing, but this is one club I definitely didn't sign up for. I was diagnosed with fibromyalgia over 20 years ago with neck pain so bad I was dizzy for 5 years. This pain lasted 11 years, and got so bad on some days my skin would sting. In spite of the pain, I went to college and graduated from the University of Utah with a degree in Anthropology. At the age of 47, I was feeling very good and went back to school to obtain a nursing degree. Now at the age of 57, I am waking up in so much pain and it is getting worse with no good diagnosis. Had surgery on a Morton's neuroma
which did eliminate the feeling of walking on a rock, but now have nerve pain. Developed bi-lateral plantar faciitis along with knee pain that is slowly taking away my ability to walk. I am losing strength in both hands (arthritis) and I now need both hands to pick up something that should only take one. Never mind the memory problems. Extreme morning stiffness that lasts for hours. Have also had a metal taste in my moutth for 5 years. There's more, but never mind. Have an appointment with a pain specialist this week, and would like better pain control but also would like a better diagnosis. Some abnormalities on ANA, but nothing real significant, and most blood tests come out good. I am not over weight, have always been very active and have a decent diet. I'm getting to the point where I don't want to go out much anymore, because its too much of an effort to do a minimum amount of walking. Well everyone, have a nice day and in spite of all the pain, the best thing you can do is whatever it is you are able to, and find joy and happiness wherever you can!
Kelly
14 Jan 2011, 06:56
Hi, Just stumbled across this site looking for the miricle that will take care of all this pain,, By reading all these comments I def. know I'm not alone with this. I have fibromyalgia and my body hurts so bad, I just turned 50 and love to work,, I don't know how much longer I can do it. I take paxil and tramadol, I soak in the tub when ever I can, seems to be the only temp. releif. I am so depressed and so young . I feel like such a belly acher but this is so real, Thanks for letting me vent.
Sophia J.
02 Jan 2011, 05:53
I have had pain in my hands and feet (nowhere else) for the past 9 years. Swelling, redness and burning sensation that drives me totally insane. I am only in pain when the pressure in the air drops and the weather goes bad. This past Feb- I developed numbness in my feet and the tips of my fingers. I had a EMG test and failed it terribly. I also had a nerve biopsy done and my large and medium anoxal nerves are totally gone while my small nerves were not damaged. I have an elevated SED rate of 53 and the Neurologist doesnt know why I have lost sensation in my hands n feet. The Rheumatologist also dont know whats wrong with me either...I have seen every specialist I could see and NONE have a clue of whats wrong with me..I wish there was someone who would take my case and investigate instead of passing me onto the next doctor...Im scared and hurting terribly
Angel
26 Dec 2010, 16:59
Hi! It's nice to find people who won't look at me like I have a bird growing out of my forehead. I have fibromyalgia, polycystic ovarian syndrome, and pernicious anemia. These are all autoimmune diseases that cause a wide variety of symptoms including crippling pain. My condition has been getting worse over the past decade. It has been two years since I was able to hold a regular job, and over a year that I've been fighting for SSD payments.
Just lately, ankles and wrists have started to ache severely, the pain radiating to the tips of my fingers/toes. I am on this page, hoping that paraffin dips may help ease it some.
Thanks for listening to me rant!
I started a 'memoir' in hopes that those of us who suffer, not only with pain but with the disbelief of friends and family, would be able to have our stories heard. You can find it here at <http://www.webook.com/project/surviving-fibromyalgia> . I encourage you all to stop by and share your stories.
Glori
25 Dec 2010, 01:35
Merry Christmas to all!
I have had OA since the age 28. The past few years it has gotten much worse. My neck, spine, hands and most recently my feet. A few months ago my hands and feet started to hurt constantly. It's not the classic arthritis ache that I have become used to over the years. Both hands and both feet tingle, burn and the pain is almost unbearable. I can't help but wonder if there's something else going on. I dont have health ins. So it will probably remain a mystery.
Marla
22 Dec 2010, 23:17
Hello to you all!
First let me say Merry christmas. I was told I have DJ Bone dieasea long time ago, now they say I have asteo arthritis, as well as fibro. Pain is with me always. Spasams are mostly in my back and rib area. A felling deep dull pain in the muscles of my chest, are bothersome when I need to stretch which I try to avoid at all cost. Now my left hand, little finger trys to cross over to my thumb joint and seems to lock. my left ankle hurts and swells up daily. my doctor did give me a med but it made me very depressed. I try to live with this constant pain, but it does tear one down. I know what you mean when you say you cant wear your shoes. Here the weather is getting very cold so I have to wear them outside so I avoid going outside to much. I'm 65 yrs old and sometimes I feel like I'm over a 100 yrs old. Neck,back, arms, legs, hips, knees, anlkes, wrist, fingers, head is there any other place left to have pain in? I feel like all of you no one understands the pain we are in. I promise myself I won't complain about pain today and then I do. I just needed to know someone understood what i've been going through. Thank you for listening. thank you all for being brave enough to let other know we are not crazy or alone.
God Bless you all. I pray for a cure, not just something that masks our pain but takes it away. I have thyroid under active and I thought maybe that trigered all of this. But no study I know of has been doe to prove or disprove this.
Judy
22 Dec 2010, 09:16
Hey everyone! I was diagnosed with Fibromyalgia alomost 6 years ago. It took the doctor 4 years to diagnose it (actually, I diagnosed it.) I am in pain 99% of the day on a normal day. I have found these following activites/pain managemaent methods lifesavers; I teach Aquatics Aerobics. The water is your friend! If you have to drag yourself to a pool, you will not be disapointed. Just walk, if that's all you can do. Walking in the pool for 1/2 hour is the same as walking on land for 2. I get in at least 6 of my 14 classes that I teach a week )could be overdoing it myself but the water feels sooo good!) Acupuncture works wonders! Find someone who really knows their stuff & you will see results in as few as 5 sessions. Some insurance covers this (I have Kaiser & they have their own acupuncurists) Finally, massages. Make sure the therapist knows what Fibro is, otherwise, they may be too rough. Some meds help. I take Elavil (low dose of antidepressant) & Flexeril to help me sleep. I still have very bad days, but not like it could be. I can't imagine how much more painful it would be if I didn't do these things.
Audrey
11 Dec 2010, 09:52
Can anyone offer me some advice? I am 27 years old, take incredible care of myself and am rewarded by pain everyday. It moves, back, neck, hips, legs, arms, shoulders and today, strangely, in the outter palm of my left hand (a new one). I max out on OTC pain meds daily, to the point of worry for my liver and kidneys. Somedays I wake up, crawl out of bed to the medicine and lay immobilized until they offer some relief (though it is never great). The catch is, I am a runner and religiously get on the treadmill everyday, somedays (more than not anymore) i cannot run, the pain is too intense so I walk. If I dont do this though I get very irratable and anxious. Could I do this at all with fibro? I am hesitant to visit my doctor, he is a DO not a MD and seldom offers any treatment. Last winter I could not walk without excruciating pain in my right hip and butt for nearly four months. He daignosed piraformis syndrome, sent me to PT three times a week, which never helped a bit. When I returned to him after 6 wks of PT and told him I had no improvement, he prescribed more PT (?!!?) He does not seem to believe the amount of pain I am in. Any advice on what to do or where to turn would be greatly appreciated, hurting every single day is making me miserable.
Lois
08 Nov 2010, 09:30
Hi to all. Yes the pain is really real in fibromyalgia. Was diagnosed about 22 years ago and it does not go away. I have tried many meds--now on neorontin for some time now, and it does help. Just this past week, my doc put me on Savella and hope it works. I have developed pain in my hands and feet and it is bad enough to make me cry. Sometimes it is just a burning and other times it feels like my muscles are curling around each other. No, others do not understand your pain, but I do. Dr. Comfort shoes help me as I have diabetes also. I have a script for compression stockings and going to get them also. With all the medical technology today, you would think someone could help us. Hang in there---I am.
Toni
20 Oct 2010, 00:45
Cindy,
Please hang in there. If you let the depression due to all the pain and fatique get to you it will definately make you feel worse. You need to find a doctor that gives you something to at least take the edge off of the pain. Something is better than nothing. And like most all of us, nothing really takes the pain away. A good day is just being able to function somewhat. I find that the longer I have had this disease, (and to me it is some kind of disease) the more it settles in my hips, legs and feet. I still think it has to do with something in our immune systems. Maybe if you get something for the pain you will feel alittle better. Keep writing and never feel bad about complaining to any of us on this website!!
Cindy
13 Oct 2010, 03:02
Hello, my name is Cindy, and i am so glad to have found this site. I have spasms in my shoulders, ribs, feet, hands, hips and pelvic bones, joints pains. Usually it effects the right side of my body. I had had this pain since i was 13-14. I am now 28. Most of the doctors in Singapore cannot diagnose the disease. Fibromyalgia is very new to them. I was told i have the possibility of CFS or fibro 6 years ago however they did not finalize the diagnosis. They had alot of tests done on me. I got pregnant and i felt much better afterwards. The pains are much less, much intense than before. However recently, the symtoms show up again. I cannot cope, i am depressed, i cannot sleep, i have pains in ridiculous places, ribs, shoulder spasms, very painful hands and feet yet outwardly everything seem fine no swelling or rash. I am seeing a specialist again this friday and hopefully he will cut it short and give me something that will help. Good luck to you all and i hope there is a cure soon. i also hope there is a doctor is Singapore who knows what Fibromyalgia is.
Toni
06 Oct 2010, 07:23
Teresa,
Thanks so much for responding. As years in the past as it gets closer to cold weather I hurt worse. One other thing that may sound crazy but, I have documented for 2 months on my calendar. When it is a full moon I hurt even worse. I know it sounds crazy but maybe it is just a fluke. I am only taking Vicodin and now taking Norco inbetween the Vicodin doses on the really bad days. I am so thankful for all of you on this website. It is frustrating for people to look at you as tho nothing is wrong. That's why I don't tell too many people about the Fibro.
Teresa
25 Sep 2010, 12:25
Toni I am new to this site and saw where you wanted to know if anyone has b een diagnosed with Epstein barr and I have. My dr said it is chronic mono. I have fibro also and with the epstein barr I feel so tired. I will feel okay for awhile and then it hits alot of times when my fibro flares. The dr said unless it is a severe case I am not contagious and I will know when it is severe which is true. Also I can not give blood with this. When you have both it is a double whammy. Hope this helps some.
Martha
08 Sep 2010, 08:21
It is VERY TRUE that fibro causes foot & hand pain, swelling, tinkling, numbness, etc. You name it we've got it. Due to pain in legs & feet I couldn't get to sleep until after midnight & I have been up since 2:30 AM. I take the meds. I have Rheu spec & family dr. The pain is horrific at times. Sometimes almost unbearable to live with, BUT I'm still here & take advantage of the good hours of each day. Stress also plays into equation. I now have bunions & calloused feet due to imbalance in gait. Sooo I soak, pumas, lotion, & don't wear tight shoes. One thing that truly seems to help is getting a good foot rub from my husband with fingers on top of each foot & thumbs underneath in instep. The massage must be deep & almost painful for it to work. I've learned to meditate, think about grandchild, our happy days, etc. I try to laugh alot & laugh hard. Keeping positive is so important. At least I know if there is pain I'm still alive. Thanks for this site. These comments are very helpful to me. God Bless, M
shannon
01 Sep 2010, 20:19
I am 35 yrs old for the last 6 months my feet and hands are in extreme pain.... where the toes are they tingle and hurt, the tops of my feet feel like they are on fire and when my husband or daugghter rubs them i cry cause the pain , it feels like they r trying to peel my skin.. my hands hurt bad at the joints.. oday was the first day i couldnt put shoes on my feet.. does anyone know whAT i should do or can do/
Debra Lowenstein
26 Aug 2010, 20:39
I had a stress test almost a year ago and I have NEVER been the same since. It's like my body has shut down. The pain in my back, hands, feet is overwhelming. I don't believe in Fibermyalsia, all it means is they haven't a clue as to what the problem is. And that is a kida way of saying this. I won;t repeat my Pain Doctor. Nothing helps and it is getting worse.
One Dr says I have instant RA but I NEVER had any symptoms prior to this stress test.Can someone just give me some valid advise on this..?
bill
25 Aug 2010, 07:58
I am beginning to look obsessive here. I am not, it’s a senior moment. Forget this time to mention the same ex partner referred to below, also suffered from psoriasis, a (mostly) severe skin disease with the side effects of connected arthritis. One only requires any degree small or large (lesion) to become susceptible to severe arthritic outcomes. Between us we battled this mystery disease to conclusion; now she is well and in no pain and is not dependent on drugs for relief. This is one good story anyway. Good luck.
bill
25 Aug 2010, 07:40
Sorry, forgot to mention, A blood test is available to test for past or present infection from "Ross River Fever"(australia).
bill
25 Aug 2010, 07:30
Judging by the responses, all sufferers must be female. I can assure all that it is not. Its a cross gender disease whatever it is. Tingling and incredably sore bottoms of feet are primary symptom at present, but its worsening quickly. I suspect a reaction to a virus. A past partner once suffered sever arthritic symptoms called sausage fingers caused from ross river fever.Very ill for six months but recovered after treatment with (to me)unknown cemothreapy drug which required blood tests every two weeks until therapy was completed. I acknowledge I may be confusing diseases here. However the bottom of feet pain is severest in the morning.
Kathleen
23 Aug 2010, 20:50
My rheumatologist says I had fibromyalgia as a small child (was misdiagnosed with rheumatic fever.) But no heart damage. I believe I had fibro and asthma. It went into remission, then returned full blown after some tragedies in our family. My feet are bad as are my hands, arms, neck, head. I go to the YMCA three times a week and do water aerobics. I have new muscles in my arms and some in the legs. I am 71 and still going strong. The water aerobics has also increased my stamina. I have been on Cymbalta for a couple of months. It helps some, but some days I feel quite manic. I'm also on a muscle relaxer along with generic
Darvoset. Somehow we managed to raise our 9 children. Life truly is worth living. Don't give up. Eat raw fruits & veggies, and eliminate meat and meat products.
kellie
11 Aug 2010, 01:26
When I was first diagnosed with FM 8 years ago I really did not believe it myself. It sounded kind of lame, probably cause most other people thought we complained about "daily" aches and pains. But now that we know we are not "insane", it doesnt hurt my feelings anymore when someone doesnt get "it". However, I just started this foot thing!! And every morning, it seems to be getting worse! Im 45 with 5 kiddos and I fear I wont be able to walk soon!! Is this what really happens next? Is anyone in a wheelchair from FM!!
LL
07 Aug 2010, 18:02
Over the past few years there has been an increase in pain in my shoulders, hips, hands, and feet. It seems to move around. It may affect one side or both. I know I have
osteoarthritis as it was picked up on xray in my spine and enlargement of joints of the fingers in one hand particulary. I had a sed rate done about 2 years ago, is that definitive that I don't have rheumatoid arthritis?
Moira
05 Aug 2010, 06:00
Hi Sylvia
I could be reading my own diary. Symptoms also stared on holiday, my left hand got very sore, within hours i could not bend my wrist. when i got hame my feet began to ache and both hands got worse, now so sore tht i cannot sleep during the night. just got an appointment with rheumatologist for next week, i am also pretty scared right now. I am desperately looking at all alternative treratments as these have helped before in other siuations, not that i have ever had this type of pain, biggest thing is that i dont understand the pain.
Hope we can both get some answers
Vancouver Orthotics
04 Aug 2010, 17:45
Thanks for sharing this information! The more useful and knowledgeable information out there the better. Please consider custom orthotics for treating foot pain in cases of flat feet or high arched individuals.

Dr. Michael Horowitz, Vancouver Orthotics
Kim
02 Aug 2010, 16:54
I to am happy to find this site. I often say I would like to know how it feels to be pain free. My feet have been in pain for two years now. my thumbs hurt constantly, my wrist, both knees. Certain parts of my body hurts when I touch it. Such as legs and arm. My neck and back hurts constantly which the result of a car accident I'm told. I can never sleep and when I want to I take tylenol pm and even then I'm waking up to pain. I woke up last night rubbing my leg and and yelling. Outch because it was burning. I have a Dr. Appointment tomorrow. I was going to only ask for RA testing. Is there other test I may need? And no one understands how I feel and it becomes depressing when I feel alone. Elbow hurting now so I must straighten out my arm now.







Debbie
27 Jul 2010, 18:19
I was diagnosed with Fibromyalgia about 8 years ago. I went a couple of years with chronic fatigue, aches, pains, problems with sleep (couldn't fall asleep, then once I did I didn't want to wake up). It seemed like one day the symptoms just went away. I noticed I would have a day or two here and there with symptoms, until eventually years have gone by without any. My son passed away 7 months ago. I'm finally making some changes in my life to try and move on and now those oh so familiar symptoms are creeping their way back into my life. Could it be the major stress and grief? If so, why is it coming back now that I'm mentally dealing with life better? I just don't get it. Does it ever go away completely?
Sylvia Schrecker
27 Jul 2010, 01:42
I am a 46 yr. old woman. Up until two weeks ago, I was healthy and strong. I happened to be vacationing when suddenly my right foot started hurting during the night. I woke up the next day and it hurt all day. I didn't say anything to my family as I have from time to time complained of pain in different parts of my body such as my neck, back of my head, shoulders, knees, etc. I attributed these pains to my frequent strenuous workouts. I have worked out for most of my life. Anyway, the pain in my foot got worse and as the evening rolled around, I could barely walk. I went back to the hotel room and iced it and my foot felt better the next day; however, my other foot then started to hurt. The morning after we arrived home, I got out of bed and found that I could barely walk. My hands were also hurting as well as my right shoulder to the point that it rendered me helpless for the rest of the day. After seven days of this continual pain, I finally went to see my doctor. I went for a series of blood tests and x-rays. I am supposed to see him tomorrow to get the diagnosis, although the nurse already told me over the phone that it's Rheumatoid Arthritis. I am feeling down and scared as I don't know what to expect. I've done some research but it's scary to read about the toxic side effects of some of the possible medications I could be put on. I wish this weren't happening but I hope that the Lord gives me the strength to deal with this illness.
Jo
24 Jul 2010, 10:46
My feet and hands started turning blue in March, but no pain....since then my hands and feet have been stiff and hurting, especially when I wake up in the morning....have been to several doctors that say nothing shows in my blood work, but that was before the pain started....Anyone have the color change in their hands and feet? They only are that color when I am still. I am 51. Very athletic and have never had problems beforepseudo-words. synapse
Paul
23 Jul 2010, 17:48
I have had arth. in my foot and ankle for 24 years I have been working and liveing in pain..was so bad couldnt hold a job anymore and had to move to desert. I have bone arth. and had gout arth, my joints are starting to hurt in summer when swamp coolers on and winter cant put shoes and socks on.. cant drive the car alot or else feet will hurt. summer I can walk and where shoes but winter I dont know what to do. havent been able to work for 3 years any sugestions on how to get my disability, and what is required for me to recieve it; My disability is worse in winter,,,
Linda
21 Jul 2010, 18:09
I sure can relate to all of the comments posted here!
I was diagnosed with Fibromyalgia, CFS, Lupus & Osteoporsis 10 years ago.
I do get pain in my feet, especially my right one, so muxh so that at times, I loose my balance. I have some pain in my hands, it has affected my hand writting.
Recently, I started deing this phtsical therapist, that is very gentle, and teached me stretching exercises. They really do help!
I have tried to learn to pace myself (not easy), For example, yesterday I shampoed the rug in one of the bedrooms, and did some laundry. That's all I did, and today, I'm in so much pain, I've just stayed in bed, watching movies. But that's OK, I have to learn to accept my limitations, and give myself permission to take a day off, without feeling guilty about it.
I have pain pills that I take when things are really bad. At leadt they take the edge off!
We're all in this together, so lets hope that they find a cure soon!!!
tamera
19 Jul 2010, 01:49
hi everyone. i just found this site. i've had foot pain for 2 years. and recently i started having hand pain as well. from other symptoms i also have i now believe i have fibromyaligia but haven't been diagnosed yet.
DebH
16 Jul 2010, 11:43
I've had fibromyalgia for about 40 years, no diagnosis until 2002.
I've had foot pain whenever I've worn shoes without arch supports. When Thom McCann stopped making "Balloons," I couldn't find anything else, and after a while I developed horrible foot pain at a time when even going to the doctor was too much. Finally I got there and found I had been walking on broken metatarsals for 3 months. Since then I've broken them again and again and had to wear orthopedic "boots" for months at a time. Now they're so bad I can't walk without a rollator and not very far. Anybody who has foot pain, especially on the front of the foot, should get to a podiatrist or orthopedist to be checked, and don't settle for the first kind of orthotics if they don't work.
Recently I developed severe osteoarthritis in the IP joints in my thumbs (rather unusual). An article on this site about inflammatory osteoarthritis led me to the information that thumb and foot arthritis can both be caused by the same thing. Who would have thought?
Fibromyalgia makes the pain worse, but it isn't always the source of the pain.
lisandrea
13 Jul 2010, 14:36
I too was diagnosed with fibromyalgia.it is so awful , my leg, calves and feet burn and ache like crazy.sometimes I just sit and cry to sleep, or to even think.The medications that i am getting aren't doing a thing.I am in so much pain, it is so much pain to walk and i don't have any appetite.my tummy, sides and back aches a lot.The only time that I find little comfort is when I am sleeping.I am so depressed.
Toni
09 Jul 2010, 07:28
Tambi,

Before my monthly cycles ended about 2 years ago I did have an increase in pain around that time. I am now 53 and was diagnosed in 1997. My feet are terrible now like everyone else says, getting up in the morning is the worst!! I have tried all the drugs approved for Fibro and none work on me. I have also done all of the natural ways. I also have chronic fatique and give myself B 12 shots every week.
I would like to know if any of you have also tested positive for epstein barr virus? I am so thrilled to be able to have found this site!
candy
06 Jul 2010, 21:08
Cyndi, I got diagnosed with fibro about two and a half years ago. The foot and hand pain just started about 8mos ago. I have pain in the arch of my feet as well as the balls of my feet the back of my heels and my toes. It's awful. It is worse when I get up in the morning or if I've been sitting a while and get up. I don't even want to walk sometimes it's so painful. Sometimes I wake in the middle of the night and when I move my feet and fingers I'm almost in tears. This illness is terrible, not only affects your whole body but hands and feet too. And it's something that never goes away. I wish they would find out exactly what this is and cure it.
Cyndi
06 Jul 2010, 13:56
I was diagnosed with Fibromyalgia about 4 years ago. I am 52 years old and had been having a lot of pain all over my body. I also have osteoarthritis in my hips and lower back. I have bad foot pain but mine is where the arch of the foot is. it hurts really bad to touch it and when i wake up and put my weight on it, it feels like it is broken...does anyone else get pain in the arch area of the feet>
Candy
22 Jun 2010, 19:51
Is there a Dr. out there that can tell us any other theories on why we all have this type of pain, besides the neurotrasmitters in our brains not functioning correctly. Isnt it true that having pain is our bodies way of telling us that something is wrong? Please help, this is so miserable!
Tambi
21 Jun 2010, 22:53
Glad to have stumbled across this site. I have been seeing my doctor for 8 months regarding pain in my shoulders, elbows,back of the thighs, knees and now feet.

Some of the pain feels like deep, achy muscle fatigue. My knees feel like they can't hold me up many days. Lately my feet feel as if the bones across the top of my feet are all broken - hurts to stand or walk.

The doctor put me on Cymbalta and told me to take Alleve. He just ordered a number of blood tests. He has yet to lable it Fibrmyalgia, but has me diagnosed as myalgia and myosis (sp?).

I seem to have good days and then it hits me like a ton of bricks. Sleep is almost impossible as it feels like every joint in my body is being attacked by the mattress.

It's nice to see that others feel many of the same symptoms.

Today at work a client actually told me I looked like I had had a really rough weekend - not what I want to hear.

However, I haven't noticed anyone stating their symptoms seem to become worse with their menstrual cycle. I am perimenopausal so my periods are coming closer together and so are the high pain levels.
Candy
18 Jun 2010, 18:37
I cant believe I came upon this site. When I was first diagnosed with fibro 3 years ago, even though the pain was unbearable, it was a relief to know that I wasnt alone. When my hands, wrists, fingers, toes and balls of my feet started hurting, again I didnt know what was up. I thought maybe arthritis, but my joints werent swollen, they just felt swollen, and it was more than that, more than just the joints. I looked for websites on fibro, thought maybe it was part of this illness. Finally I got desperate and just typed,"hand foot finger toe pain and fibromyalgia" and this is where it brought me. Im so glad I found this site, now I know that again Im not alone in this. Thanks you guys!
Loreen Carrabello
16 Jun 2010, 16:46
I cannot believe that so many people are experiencing my daily pain.
Now turning 65 this year, I think it is getting worse for me.
My feet are in so much pain and I have a toe and ball of my right foot that is swollen and I cannot move my big toe up and down. I am going to the doctor tomorrow hoping for some answer. I always think that maybe these symptoms are some other condition.
I have been diagnosed with arthritis in my knees; so maybe it is in my foot.
I get shooting pains that make me shoot outloud; my husband says even when I a sleeping. My feet hurt in the morning when first putting weight on them. I go for a walk and when I come back home they are really hurting. I just hate this condition and can only say we all are brave and must overcome this. I pray God heals me and you1

Antoinette
02 Jun 2010, 14:13
Hello everyone,

I was diagnosed with Fibromyalgia in October of 2009 but have had symptoms for 3-4 years prior to the diagnosis. Like most of you I have on-going pain in my hands and especially in my feet. I take Savella, one of the newer Fibro meds and it helps a lot, even taking the edge off of the hand and foot pain. However, the foot pain never ends. From what I have learned about fibromyalgia in general as well as howmy body reacts to activity I figure the foot pain will never go away. I say this because my pain and flare-up are worse in muscle groups that I use frequently. Because I walk here and there and everywhere.....the pain in my feet will continue to be an issue. It is the same with my hands. BUT....I am 35 years old and I refuse to let this awful condition keep me at home alone and unable to function. It can be quite depressing at times to think that at age 35 I am unable to socialize the way I would like or even do simple things like hold an infant or vacuum the carpet without suffering muscle spasms for days aftward. It doesn't seem fair but I am taking this as an opportunity to take better care of myself. I don't always succeed but I am doing the best that I can.
Beth
27 May 2010, 13:13
My hands and feet have been hurting for years, but I've never gotten a diagnosis. Pain meds don't help, but diet seems to affect them. About 5 years ago, my feet hurt so much that all I'd do was sit in a chair waiting for my next (unhelpful) pain pill. I got a lot of relief when I stopped eating wheat products; the doctor figures I have Celiac Disease. But over the years the pain is getting bad again. It seems when I eat sweet things, even grapes, they get really painful. Maybe I just have to live on salmon, rice, & vegs.
Gigi
24 May 2010, 18:58
My feet hurt so bad I cant walk and if I do walk I cant put any press on them with out hurting also my hands are starting to ache and droping things, My hand and freet are so dry I keep putting cream on the, If a get a cut it takes for every to heal. I want some one to believe me that it really hurts, the doctor does he want to test me for sugar, it possible but it be going on. My ex husband thinks it all in my head but I know it now. My right hand hurts and aches so bad, and my poor feet hurt it starts at the toe and the pain get worse and worse. Please help...gigi
gailforce
23 May 2010, 14:18
I have suffered fybromyalgia eleven years now nothing seems to help had to come out of work last year stress aggravated condition pain all day allso musclespasms around rib cage at moment very painfull feet and hands cannot sleep at night for pain and numbness in hands and feet wake in morning feeling like i have been hit with bus my meds that i take are citalopram ,diazepan ,codipar,just takes edge off slightly but allways there allso fatigue at doing very little .this sounds awfull but it is comforting to know that i am not on my own and it is not all in my head .please someone find a cure only 43 feel like an old woman.
Toni
23 May 2010, 07:03
Sharon,
You sound like me. I try to keep busy and ask god everyday just to give me at least one day free of pain. It just continues to spread. I was doing better until it spread into my feet and legs so bad that I can barely walk. I am pleased to find this website. How did you get your family and friends to believe the pain is real. Everyone still looks at me like I am ok. I have tried everything. Methotrexate did not work for me. I only take vicodin for pain and that hardly takes the edge off. Hope to hear a comment back. Thanks!
Sharon
12 May 2010, 00:58
I have suffered from Fibro, first called epstein barr then CFS, then Fibro for well over 26 years now, long before it was accepted. Now I am on Chemo therapy for polymiositis, I take methotrexate. It has actually helped with the fibro pain all winter, but now indications are that I need to up my dose and I refuse, as the side effects are horrid. Sometimes life doesn't seem worth living, thank god for my children! Keeping busy helps, but it is hard to be busy when you are doped up on so many meds or like now I cannot walk. The pain in my hands and feet is so severe, and I was told that Fibromyalgia doesn't get worse! Could it be the onset of diabetes?
Toni
21 Apr 2010, 14:04
It is so miserable. My feet now hurt so bad I can hardly stand or walk. I am also one that is hard to hold down but this has got me. The vicodin hardly phases me anymore. Thank goodness for the B-12 injections to help with the CFS.
Ziggy
21 Apr 2010, 13:24
I have severe myofascial pain and fibromyalgia, how it was described to me fibromyalgia spectrum,am quite a strong person but this does have me beat. At the moment hands, feet and shoulders are very sore and can't get any heat into them. Pain going through fingers and up arms, this is a new problem. It is so hard most days to have any energy, to other people you look ok. Most medications prescribed by rheumatologist make me sick. This is going on 5 years, very hard to cope with but trying!
Bo
08 Apr 2010, 17:47
I have plantar fasciitis and tarsal tunnel syndrome...my podiatrist says I need surgery but is treating me with lyica which is used to treat FMS.Also stretching exercises and ice are part of the solution. I have to say that I am willing to do anything, anything healthy that is to help my condition. At 51 I am too young to be old!
Toni
08 Apr 2010, 09:15
Just curious, my doctor says 97% of his Fibro patients have tested positive for Epstein Barr Virus, CMV, and my system does not hold B-12. What an awful disease, many days I ask myself, why me. They say it is hereditary, I pray to God that one of my adult children or my grandson ever has to go thru this. I commend each and every one of us because no one realizes the pain we have daily.
Angie
08 Apr 2010, 07:30
I have Fibromyalgia. The past two weeks, the pain has been so intense. My hands are so weak that it shoots pain through them when I lift things and I have been finding myself randomly dropping things. The pain in my shoulders has been so extreme that I can barely lift my arms above my head and it hurts so bad when I sleep. After sitting for even a short time, my hips and inner parts of my kness hurt so bad. My knees just burn with pain.

I'm beginning to try some natural remedies added with exercise and diet change (more towards vegetarian). I'm hoping I will soon see a positive change. Has anyone else tried exercise and diet change and had relief?
Toni
05 Apr 2010, 20:46
Lydia,
No disrespect but you cannot have Fibromyalgia as bad as most of us or you could not comment that lifting weights, diet has helped. I have been every where and tried everything. Yes it is in the feet, hands, breasts, ears, my and yes the skin. My doctor calls it the touch. It is miserable and there is no real relief for any significant time. I have no let up on my pain and somedays I drop things because I cannot even use my fingers or hands let alone walk on my feet. I do make myself do things. Everyone thinks you are crazy because you don't look like anything bothers you. I take B-12 shots 3 times a week for the CFS, and don't know what I would do without them. The pain is everywhere!
faye
02 Apr 2010, 08:57
I have Fibromyalgia and i have constant stabbing and shooting pains in my hands and feet.
My feet dont swell but now and again it will feel as if my foot is swelling but there is no visual swelling . xxx
Diane
28 Mar 2010, 18:06
This burning and swelling and pain of the feet has limited what shoes I can wear. I can't even tie my tennis shoes. I seem to freeze all day and then slowly the tops of my feet feel red hot, swollen and numb and tingly. I am unable to wear my normal shoes so I was wondering if Diabetic Shoes would help (Dr. Comfort). Has anyone tried these? Please never think you are alone - and never, never, never give up!
sheri
19 Mar 2010, 21:31
I too have this horrible pain.. I just wish someone would come up with something other then pain meds.. sure get tired of pain. some days I can hardly be on my feet.
nancy
13 Mar 2010, 08:48
Thank you for all your helpful comments. I've been diagnosed with fibromyalgia and take lyrica. However, the burning on the tops/backs of my hands and tops of my feet...that does not respond to the lyrica. I'm just grateful to read that others experience what I do. Right now my hands and feet are on fire the tops of my feet feeling almost like they could pop. So, thank you for helping me know I am not alone and that this really likely is an extension of my fibro. Take care all of you.
Cheryl
02 Mar 2010, 19:31
Hi There, I am 51 and I do believe I have fibro as the balls and tops of my feet have sharp pain also affecting my ankles. Walking slowly without flexing feet keeps the pain low plus very expensive shoes with cork and also the new rocker shoes that places more weight on instep and not heels or toes.Orthotics definately supports the instep relieving pressure. Pure Glucosamine with MSM and Pure Bozwaila (Maxi Boz)are very helpful but prolonged use over 3 years may upset stomach. Very good for headaches from tight shoulder muscles.Anti-imflammatory natural herb.
As a data inputter,my shoulders often give out but I learned to completely rest arms over lunch hours and it has improved my pain, less of it but still there. Ergonomical mouse tilting your wrist on an angle reduces wrist pain believe me.Don't use a flat mouse inputting, not a natural movement for wrist.Rehab has given me this huge tip and it saved me from pain.IN MY CASE I HAVE many cousins/aunts on same side of family that have same pain and officially diagnosed. Runs in our family and now we are all aware it could be in our genes.Good Luck!
Pam
23 Feb 2010, 18:18
I am so glad to find this discussion, about symptoms I have wanted to know about for weeks.
I have fibro and osteoarthritis, even though I have symptoms of rheumatoid; my newest dr. says it's not rheumatoid. Anyway, today is the worst all-over pain I have had in months, but the balls of my feet and ankles have been hurting for weeks. I have been trying to find out if the foot pain is fibro, and from your answers I find it may be arthritis. I am on a pain med, Ultracet, because I cannot take the anti-inflammatories. I take it for fibro, osteoarthritis and headache prevention from the arthritis in my neck. Today, though, the Ultracet is not working. A free chair massage only helped for about an hour.
Don't take this wrong, everyone, but I am glad that I am not the only one experiencing the ball of the foot pain that makes my ankles hurt. I'm hurting like mad as I write this, and can't wait to go home from work and get into a hot tub with epsom salts.
I am also going to crank up my electric mattress pad to high, to help with my pain for sleep.
Barb
19 Feb 2010, 10:14
Hello my name is Barb and I can relate to all of you. I have RA and Fibromyalgia. I am taking Cymbalta for the fibro and Enbrel for the RA...The meds are helping me because when I decided I didn't need the Cymbalta anymore because to co-pay was $50.00 I paid dearly..lol I am always in pain..Everyday and Every Night...it's awful. I am 49 going to be 50 in June and people always say you look great...so when I complain of all my aches and pains they tend to look at me as it I were crazy..the people that know me well can see it in my face. My hands have been killing me forever right now they are stiff and swollen. I have a great doctor and she is very good about trying to help me and really listens to what I say...But she also says to me that it's good that I realize that there is always going to be pain..I'm learning to deal with it because I don't have a choice...I cry too...believe me..Well I'm glad I found this site and not that I want anyone to suffer but it makes me feel a little better to know that I'm not the only one feeling like this...Good Luck to everyone. : ) try to smile and be happy!!!! It helps...sometimes..lol
Gwen Clien
26 Jan 2010, 16:16
I wakeup with my fingers bent down and numb. I shake my hands to get feeling into them. Last night my right hand the finger closer to my little finger felt it had a tight ring on squeesing my finger as though it were cutting off the blood. Does this happen to anyone else. I've been very stressed and the days have been leading up to me feeling really terrible.
julie
17 Jan 2010, 20:42
I also have had fibromyalgia for several years. At first I was diagnosed with RA and after 3 years of treatment with different drugs and no relief he Rheumatologist then changed it to fibro. I can't take ibuprofen since I am on Warfarin and Tylenol does nothing for me. I also have pain in my hands and the top of my feet. Pain in knees, shoulders, back etc. Does anyone have problems with balance and shin pain? I have those also. I have got to the point where I think I will have to get a cane for when I am away from home. My husband and grown sons don't understand the pain I am in because I look well. I feel embarresed using a cane at 62 yrs. old
Carol
09 Jan 2010, 15:51
I have Fybromyalgia, and like a lot of you it's worst in my hands arms and feet. This probably sounds strange, but I get some let up from the pain by using support bandages. The 'squeezing' seems to confuse the pain sensation and gives real relief. Hope this helps - (crep bandages work best for hands and tubi grips on arms) I've also tried medical thermal gloves meant for arthritis that work well too - the heat helps as well as the squeezing sensation.
Carol
19 Dec 2009, 10:36
I have experienced the same symptoms plus a 640 ANA and no answers from doctors. I think I traced my muscle and sleep problems back to the antibiotic Floxin. Magnesium, vitamin C, melatonin and apple cider vinegar have helped as has staying away from MSG and nutrasweet. My ANA is normal now and my hair quit falling out and I sleep better too. 250 mg of Magnesium 4-6 times per day and keeping calcium supplementation under 500 mg per day seems to help the muscle pain and muscle cramps. My blood pressure is normal too. Vitamin C and apples/apple cider vinegar seem to help the joint pains and foot pains. Melatonin and occasionally St. Johns Wort helps for sleep. Omega 3 or lots of fish and shrimp seem to help with mood and brain fog. All this helps but certainly is no cure.
sandi
08 Dec 2009, 10:50
I am so grateful that people on this site have opened up their hearts to share the awful pain of fibromyalgia. I raised two fine guys (23 and 18) and went back to school to get my Masters degree when I found I could no longer type. I quit last December and was hopeful the pain in my pinkie, ring finger, and thumb could be diagniosed. I did not want to accept I had fibromyalgia because it just hit me like a tornado. It seems to be spreading to my calf. I have cried enough to fill up the Dead Sea. I have found that yoga stretches, hot salf water baths and a 30 minute walk help for me. It is true you have to distract yourself from this syndrome and keep busy or you will find your self feeling stiff and uncomfortable when night comes. In the morning, my pinkie finger sticks and I feel terribe pain in my wrist and forearms. I sleep with hot water bottles and ice packs. I am now on Cymbalta and hope it works--some. pai Has Cymbalta helped anyone on this cite with the hand pain? You are all in my prayers--sandi
Ida Marie
02 Dec 2009, 20:51
I have fibromyalgia, arthritis, bunions and a hernia. The fibromyalgia makes everything worse. I came on this website to see if it effects the feet. I will soon be 70, but I don't consider myself an old 70. I clean houses 3 days a week, do all my own yard work, paint my own home etc. However, as everyone is amazed at what I do, I could sometimes just sit and cry if I would let myself, as everything I do hurts me more and more. I am going to a foot Dr. tomorrow, but I am afraid he "won't" find anything. I will return to this website to read more from others.
kathyh
21 Nov 2009, 09:52
dianne i also have the same problems with my feet it started out with platar flas? then the feet kept hurting i walked and climbed ladders for 23 years at work have had both hands operated on for carpal tunnel and trigger thumbs both one finger three times and i was only 20 now i'm 53 lost my job no insurance they tell me i have osteoarthritis had left knee sugery its bone on bone need replacement, i can't hardly get to bathroom from my bed thats only about 20 steps and the shooting pain i can't describe it now the depession is getting to me. does anyone else have this
Patty
10 Nov 2009, 10:53
I have read all these posts and I can't believe there are so many people that have the same pains that I have. My feet hurt so bad when I get up in the morning, I can hardly walk. I have pain in my hands and elbows, too. Actually, I hurt all over...it moves from day to day. I have an appointment with a rheumatologist next week but I am concerned that I won't be diagnosed with anything. I just want to know that it is not all in my head as some people seem to think. I am 55 and I have felt so good until the last 6 months, I feel like I have aged 20 years!
kwiklip
06 Nov 2009, 22:33
I thought I was the only one with these symptoms, but it looks like a lot of people have hand and foot pain associated with fibro. I am having a tough time getting a diagnosis -- the last rheumatologist I went to just went on a tirade about how fibromyalgia "isn't real" for my whole appointment. I have done extensive research on it for the past couple of years (beginning at the onset of symptoms) and I know this is the diagnosis. Soon after the symptoms started, my hands swelled up so much I thought I was having an allergic reaction to something. The swelling soon spread to my feet and is now the norm. I look like I have small, bright red sausages for fingers and my toes aren't that far behind. I have gone up a full shoe size and still can't really find anything that fits right. The intense pain is more recent, getting worse in the past month or so (onset of winter?). My heart goes out to those that described crying over the pain, and feeling uncomfortable sharing with loved ones exactly how bad it can get. I had a small breakdown in front of my 10-year old son earlier tonight. I felt foolish crying because of something that isn't really visible, but IT IS REAL. It hurts. Does anyone else have the redness and swelling I described?
annie
01 Nov 2009, 18:58
for the past 6 months, when I get up in the middle of the night to walk, my toes and feet hurt so much I can barely walk. When I wake up, my fingers and toes feel very sore. But once I am up, it seems to go away. If I sit for a movie or at work, and go to get up, its my toes, balls of my feel and fingers that are so sore. I tried Aleve, tylnol for arthritis, and advil, and there is no change. I had a bout of plantar facia in one foot years ago and treated it with the boot and it has not reoccured. this is very different from that.
any ideas?
Jama
15 Oct 2009, 23:16
For the past 7 years I have been experiencing pains in my hands starting from the top of my wrist to the tops of my hands and the same for my feet, starts at the tops of my ankles and radiates on top of my feet.Both hands and feet burn and sting, I have spasms and cramps, on occasion I have bone pain. I live in Alaska and the cold makes my muslces tense up and makes them hurt even more... When there is a low weather pressure coming, I could feel it in my hands and feet that bad weather is coming 2-3 days before it hits us....When I first wake up in the morning, the pain is barely there but when its bed time..OMG, I have cried myself to sleep on many occasions. Finding shoes that feel comfortable or even fit because of the swelling is quite a chore so I have resort to slip on shoes and slippers. My rheumatology panel shows slight elevations but not impressive for the doctors to treat me.I have seen different types of specialist and none of them know what it is, so they pass me on to the next doctor...I have been diagnosed with different things but none fit the symptoms I have.

At the moment I am on a Neurotin and lots of Ibuprofin... sigh!!!!
Mary
02 Oct 2009, 15:15
This is to Dianne,
Your symptoms sound like Plantar Facia, I have it as well very severe. It is exactly how you desribe it. You are not crazy.. You need to go to a foot Doctor, there is treatment. Although mine is so bad they have done everything there is and nothing helped me. I also have Fibro Myalgia. I am in constant pain.
Karen
29 Aug 2009, 00:35
I have had fibromyalgia for 13 years now, and I notice that the symptoms are always changing but the one constant is that when it flares up my hand and the tops of my feet are the worst. Does not feel like arthritis feels like when you have an ache that never wants to go away. My symptoms flare up in the spring and summer it gets really bad. I feel best in the winter, I guess I should move to Alaska. I do find that I feel the worst when I am at home an trying to relax, when I am working it keeps my mind occupied and off the discomfort. I also get tingling and numbness in my hands and it is very uncomfortable and in the summer I seem to retain water so I have to take a water pill to combat the swelling. It is not a very pleasant feeling and even though it is not life threatening, some days I feel like I just want to cry, but I won't let myself. The key as someone else said is to keep busy and light work out, for those that have the time.
Deb
12 Aug 2009, 10:33
My orthopedist sent me to an Arthritis Specialist office. I got 'Dougie Houser'. He took one look at me, decided I looked fine; and
the fact that I was a nurse, didn't help. Just
another one of those 'know it all, complaining
nurses'. He said he thought I didn't get enough exercise or take enough calcium. He refused to run a Lupus test. I'll be a great
looking corpse one day.
lydia
20 Jul 2009, 09:00
I have both fibro and arthritis. I was very fatigued and achey on most days. I got the book, "The fibromyalgia Handbook" and followed the regimen described. Very simple...exercise is the key..esp weightlifting. Start very easy...1 lb wts and 1set of 8 if possible...walk a little...if you are persistant, you will experience relief...exercise is very important but you don't have to do a lot...I also decided to eat more natural foods rather than prepackaged...your body needs the antioxidants to fight disease instead of all the additives in boxed food. Fruits and vegetables, soymilk, chicken, fish and some lean porkchops. If you strengthen your muscles, it will help you. I don't have too many fatigued days anymore and I sleep better at night. Also, get some sun for serotonin to help sleep. I hope this helps someone out there to feel better.
Dianne
11 Jul 2009, 02:49
Hi, I have pain in my feet, they hurt so bad when I get up, kind of lessen up, as I continue walking, but when I sit or lay down then get up again, pain.... it's really bothersome.... sometimes when I am relaxing, pain will shoot, it really drives me crazy.... sometimes I want to cry.... does anyone else feel this way????? sometimes I feel like if I complain too much, my boyfriend and my family will think I'm crazy....... I have pains in my elbows, both at times, but right now it's my left one, hurts when I touch it.... feels slightly swollen..... I really hate this....
Sue
21 Apr 2009, 04:18
I have Fibromyalgia have had it for nearly five years. I am a lot of medication but find that nothing seems to get rid of the pain. It feels like if someone just touched your muscles they would bruise. I also cannot write for any length of time without my hsnds hurting and my feet feel like they have pins in them. The fatigue is difficult to describe and I have to force myself to do things. Looks are deceiving the assumption that because you look alright does not mean that you are unless you havr this condition it is dilfficult to understand the level of pain and problems caused by it.
Jenny
10 Apr 2009, 17:55
I, like Mary, have severe pain in the hands and numbness/tingling in my feet. I was diagnosed with Fibromyalgia 25 years ago. I have also been diagnosed with Lupus and Sjogren's syndrome.
The pain in my hands is worse in my thumbs also. I can only write about 4 sentences before the pain is so severe I can't write anymore. Over the years my fibromyalgia has steadily gotten worse. I am on disability now for 6 years. It is to the point that the only place I feel comfortable is at home. I have become a hermit. I get so tired of people saying I look so good when I feel like I've been hit by a Mac truck... I have difficulty walking now and I am only 53 years old. I have used my father's cane around the house a few times because I've had such severe pain in my calves and outside of the knees. My feet are also a real problem in walking.
mary
30 Mar 2009, 17:40
I have Fibromyalgia and my hands are killing me.
I can't believe with all the pain med's I am on, they still hurt so much. My thumbs ach.
My Doctor says it's Arthritis.

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