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Community > Expert Q & A > Fibromyalgia > Does Fibromyalgia Cause Weight Gain?
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Does Fibromyalgia Cause Weight Gain?

Q. I have a question about fibromyalgia and weight gain. Since I started taking the drug Pamelor for symptoms of fibromyalgia, weight gain has been a persistent problem. My doctor prescribed it to ease pain and sleep disturbances, but although I exercise regularly and eat sensibly I have gained 25 pounds. Is there a link between my medication for fibromyalgia and weight gain? If so, is there another drug I could take instead? 

Pamelor (nortriptyline) very well could be responsible for the higher number you're seeing on your bathroom scale. A member of the tricyclic class of antidepressants, Pamelor is frequently used to treat fibromyalgia symptoms.

While tricyclics are often effective in promoting sleep for people with fibromyalgia, weight gain sometimes results. The cause for this isn't clear, but tricyclics appear to increase appetite, especially for carbohydrates.

Fortunately, there are alternatives to taking Pamelor and the other tricyclics. Serotonin-selective reuptake inhibitors (SSRIs), a newer group of antidepressants that includes drugs such as fluoxetine (Prozac), sertraline (Zoloft) and paroxetine (Paxil), cause little weight gain and may even contribute to weight loss.

I recommend you speak to your doctor who might consider changing your medications.

Don Miller, PharmD, Pharmacist

Peg D
02 Feb 2012, 20:28
Regarding Fibromyalgia, I was told about 10 years ago that I had it. I was with another arthritis doctor and every time I had an appointment he would greet me: Hi, and how are you, Me-Fine and how are you, he would look at my hands, ask how they felt and I said fine for the umteenth time. When my general practitioner mentioned the other doctor as he knew I started with different doctor he said that my former arthritis doctor told him he just told me that I had Fibromyalgia. Now I ask you, would you stay with someone like that? I'm sorry to hear about all of your problems. I wish you well and keep on trucking.
sherry
03 Jan 2012, 15:51
I too have fibro and can relate to so many of you on this site as I've had it over 10 years. I take Robaxin, Tylenol 3 and Savella during the day. I also took Lyrica at one time and gained over 20 pounds. When I stopped taking it I became sucidial (didn't know this was a withdrawal symptom) I started taking the Savella and have not had the side affects or weight gain as with the Lyrica. At night I take Soma and Trazadone to help me sleep. I'm afraid of what the Tylenol 3 may be doing to my kidneys and other organs, would love to quit taking it. Going to try a more holistic approach and some vitamins as others have suggested. People stay away from SALT, it will give you more pain. Hot soaks with cup of salt and cup of baking soda helps some, do at night before bed is relaxing. Also if you can't afford your Lycira or Savella, they both have a patient asssitance program and I get mine free with an RX straight from the manufacturer. God Bless you all!
margaret
26 Dec 2011, 23:00
having degenetive disk diease and fibromyalgia, several back surg. a couple neek surg. left thyroid removed right knee replaced.. the pain with fibro...has tryed to take over my life I'm trying to stay active but it so hard when your in constant pain my doctor has me on some medicine, but i make it threw working but when i get home I hurt so bsd all i want to do is shower take so more medicine then and go go bed. and i'm gaining weight i'm curtly close to 50 pounds over weight and that cant be good for my joints .. i need help .suggestion!!!
Rachelle
20 Dec 2011, 22:54
To everyone who is suffering from Fibro,degenerative disc disease, sclerosis,CFS,etc? I have gone through it all for the last 25 years! For 10 of that I gained 60 pounds on the meds! On morphine,Oxycontin,antidepressants,muscle relaxed,you get the picture! After 10 years of not getting better,only worse and my family not understanding I dumped all the meds in the trash! Within 1 year I went from170 to 117! It is the meds! Stayed thin for a year but a herniated disc became too much and started on Tramadol and Flexeril and within 3 months back up to 134! Dont let doctors tell you it's not the meds, it is! I still suffer everyday and pray someday doctors will ave sympathy and there will be a cure for this mysterious disease!
Bubbs
05 Nov 2011, 17:11
I have all the symptoms of FB including pain throughout my body, unable to sleep, weight gain etc etc but my Doctors do not seem at all interested. I take 100mg of Amitriptyline
every night but these do not seem to have much effect as I am in so much pain at night.

I have had this for more than 6 years so why does no one want to help me??
Carol
05 Nov 2011, 17:06
I have all the symptoms of FB including pain throughout my body, unable to sleep, weight loss etc etc but my Doctors do not seem at all interested. I take 100mg of Amitriptyline
every night but these do not seem to have much effect as I am in so much pain at night.

PLEASE SOMEONE HELP ME!!
Glowsthoughts
17 Sep 2011, 15:55
Hi to newbies of FMS. I was diagnosed 3 months after I was rear ended by someone 'day dreaming' so they said. I gained weight, had fibro fogs, pain galore and went from normal to fat in one year. I did not do medicines but chose natural alternatives as I found them. It took me 4 to 5 years before I was able to 'get ahead of the FMS', meaning, learn to ride the waves and stay afloat and not sink into depression and wanting to give up on life as I now knew it to be.
Have FMS or any other pain-filled disease is debilitating both emotionally and physically. What I've heard several times here is moderation and knowing your own limits. This is GREAT ADVICE - heed it. No pain, no gain worked before FMS but it doesn't work now.
I use B-12 sublingual for the fibro-fog and it seems to really help. And vitamin C and E for nerve healing and to stop the leg cramps.
I use Flaxseed oils and grains for the osteo since I am allergic to fish, both shell and fresh water fish. I open a can of chicken and make it like tuna to get my fix when I need it. I love lobster and cod and haddock and shrimp and scallops but!
I use Zyflamend for the inflammation and pain. It helps me a lot but eating the wrong foods hurts it.
I use D3 to help me stay healthy and lessen the bronchitis and pneumonia - it helped up until 2 years ago after my first knee replacement.
I was given guifaneix for bronchitis in 2006 and found it helped so much with the pain of FMS, that I’ve been on it ever since and life started to get almost normal again.
And going to a therapy pool - it's about 10 degrees warmer then normal pools at 90 to 93, has done wonders. The stretching exercise and the walking in water are great stress reducers for me.
I was athletic running 3 miles a day depending on weather, later walking when it hurt to much to run. I played sports through my 30ies and walked through my 40ies and into my 50ies. Now I am thankful each time I can make it to the pool and move around, or climb on my tread mill for 10 minutes. Yes, I pay the price as someone else mentioned, and YES it is worth it. I have to plan for 'major events' like weddings or parties or shopping sprees. Take sleep aides that week and plan on doing nothing for 2 days later.
Yes, my children get angry at me and finally after 10 years I don't care what they think. I handed in my retirement papers this month. I can't afford to retire and I can't afford to abuse my body any more by forcing it to withstand the stress of my job and the physical needs to be there every day.
Mostly what has helped me is learning to love myself for who I am, not what others want me to be for them, and my faith. My faith knowing that I am not alone but my God is with me in this. When I cry because it is too much, He is there holding me and rocking me and comforting me. When I scream in anguish and swear and want to beat the hell out of someone, it is to Him cause I know He is big enough to take it and just love me back. He doesn't insult me or put me down or accuse me or make me feel guilty. He just listens and when I stop making my fists and swinging my arms at Him, He just holds me and rocks me and comforts me. I may be alone but I am not alone. This is how I cope each day, being thankful for having the day and being able to get out of bed on my own two legs. Life is good and I am thankful in between the attacks, the pains, the fears, the overwhelming sense of helplessness and hopelessness that wants to consume me. As I ride the wave of doubting His love and I reach the crescent and once again see His love for me, I say thank you.
My heart goes out to everyone suffering from chronic pain. My blessings come your way, even if it's only by way of a beautiful rainbow brightening the sky above you. God's Blessings to all.
Mily
15 Sep 2011, 14:38
Three cheers for Julz who was able to take control of her fibro with her strong will, and refused to let fibro run her life.
I guess the rest of us lack strong will, or we really like the brain fog, pain, and depression. I've had ten years of it.
Every one of us with fibro already feel guilty that we can't overcome this baffling disease. We worry that some how it's our fault, and we lack character for not kicking it. Friends and family may even perpetuate that notion. Suggesting that a strong will can fix it sounds too much like those who say we are lazy, or malingering. I used to have a strong will, and I have a lot of acheivements in my life to show for it. But now I have fibro. Now I have to settle for doing what I can, when I can. It bothers me that right now there is a newby reading these blogs who is feeling even worse because she doesn't have a strong will. Fibro symptoms are not character flaws. Fibro is a disease that is not easily managed, and all the strong will in the world will not make it go away.
I believe those of us with fibro must take a pro active approach to managing our fibro. We are not off the hook for our own treatment. But don't go to the other extreme and make yourself feel worse. Fibro isn't a choice, and no matter what you do about it, sometimes it wins.
Cindi
20 Jul 2011, 19:15
I have had FMS, CFS, MFPS, degen. of the spine, scoliosis, gastroferesus, vertigo, ringin in my ears so loud sometimes I think I'm gonna lose my mind, carpals tunnel,refuse surgery on my wrists, reflux, IB, bursitis in several places, other forms of arthritis, rotator cuffs are bad but refuse to be cut on more, plantaar facititis in one foot with heel spurs, I have a titanium plate in my neck, had a breast reduction, dr. thought it would fix everything, two surgeries on knee so now have oseto arthritis with bone spurs in both knees, had to have a total hysterctomy cause of endometreosis, nerve damage, asthma, migraines, restless legs.... I think ya get the picture. I have been thru many dr.'s and have yet to find one who cares and if I find one that cares they haven't got the knowledge to treat me. I have gained over fifty pounds and I take lyrica. I'm not blamin the Lyrica, it helps sooo much! i have trouble with water weight too.
I had a dr. one time that i felt comfortable enough to ask this question "why do dr.'s treat people so crappy?" His answer was "cause people let them and they don't want to see people like you that they can't "fix". You hurt their pride. Dr's are like gloves and if one doesn't fit, find another" but you run out of dr.'s before long!
I have researched and tried alot of things but bio freeze, a rub on gel,walking in a heated pool( go to the deep end with a floatin device and just let your body dangle like a limp noodle then gently move your legs back and forth like walking under the water,, and my bio feedback machine, Dynatron STS and if you can get in a class for sr.'s where they do stretching exercises and I don't care how young just try it if ya can, or old have helped the most.
Don't beat yourself up or rack your brain tryin to pin down one thing that coulda gave this ailment to ya or think you're payin for past wrongs and who's to say what "normal" is? It's different for everybody! When ya tell yourself "I can't do this!" Always follow it up with "But I can do ______." Find something you enjoy doin. The most things i have read tell you to take your mind off of it when you're able volunteer at a retirement center, plenty of people who have nobody who visits them, go rock babies at the hospital just somethin to do with takin care of others. Limit the time you allow yourself to throw a pity party. We are NOT defeated! We are "challenged".
I leave you with this " I set down to whine and complain ,other people see us that way so don't talk about your pains to starngers,as I was hurtin and goin over the "why me, Lord's" I looked up and there was a man who had no feet. It could be worse.
Stay determined!!!!!
In my town the medical care is horrible and the dr.'s see around 200 patients a day and they allow fifteen minutes a visit. It's almost impossible to find one if you're already on meds like I am. You learn what you can do and what you can't and then the price for the things ya really wanna do and weigh out how bad ya wanna do something and get everything around the house caught up before you over do. You are gonna hurt anyway so do things ya wanna, know your limits tho, but be ready for the repercussion.
Janan
18 Jun 2011, 20:13
I tell ya, I used to model, I've had Fibromyalgia for over a decade, I deeply feel, from depths of my being that the symptoms began as a young child, I remember having body aches, headaches as a child, everyone dismissed it as "growing pains" by the time I was 18, my hair fell out in chunks, I lost 20 pounds in a few months, Paxil actually put me back in order, stabilized me, then doc took me off properly, in fact, I may try it again, I gained 22 lbs AFTER I had a baby, I've BEEN telling doctors It's my hormones being messed up, I've found a doc who somewhat listens & tried a low dose of synthroid due to the symptoms I have, it began to take the pain away I was able to skip pain meds, so we r trying to devise a combo that could work on all areas
tery
25 May 2011, 03:56
I tried to keep my head in a good place the last 10 yrs with fibro..but its not easy..have fought with docs and managed a few good ones until they move or retire. Currently i take tylenol with codeine and low dose alderal as my tireds went to suddenly dropping off, more like narcolepsy.I can't take antidepressants or i get panic attacks.( got stomach bleeding over motrin/asprin products for pain) extreme feelings to cold, high blood preasure,( meds for that) had leg swelling and was related to potassium levels from my IBS. Husband left ( after 18 yrs), lost home and did not have a car but went back to school, got on SSI and just graduated w/honors from college..It was rough but kept me going. My son is here and helps but i went from very active to very slow.. have had back problems for much longer so long term use of pain meds, no increase in dose..I could not have a life without meds. I paint, do sculpture but am alone most of the time..not sure anyone could deal with all of this.I too have dogs that love me, 2 big parrots...have good and bad days but too hard headed to give up..gained about 35 pds and that is very depressing as i feel fat and not very attractive like this, does not help pain but only one meal of chicken or fish, veggies and healthy stuff, maybe a cookie once in awhile but..I know i am not burning up as many calories tired and in pain. I pull on stretch jeans , elastic waist , lose top I stay comphy as i can .hope to go to graduate school if i can keep going as i am now 59 ..afraid to stop as i might not ever do anything else..plus it keeps my mind on other things besides all of this..my heart goes out to all who posted here & pray there will be help for us ..how can so many people lose quality of life like this and not be noticed? the program Grace in Calif is fighting for better pain treatment of women..We all deserve better care, to be treated with dignity ..i have seen docs with signs up that say no pain management here..its a battle to find help and keep it..last doc locked records in his garage of many yrs and would not give them to any patients when he left..? hard to live with all of this and harder to get proper care..if no cure for gods sake let there be docs who care..we all deserve that..we should not have to fight to get what we need..I have heard many fibro stories , many can't take the battle for care & the pain. Join Grace , write letters to state and federal government so we can all find the help we need & maybe the cure..God bless, your notes help me to know i am not alone in this..People with fibro , chronic fatigue etc need to support each other as well.if we don't understand, who will?..keep your focus on one day at a time, don't over do..don't feel badly if you need and take things for pain..just don't over do..now at 2:53 i will try to sleep again <smile> big hugs to all who are trying to cope with the many areas of this.. in what ever way you can, xoxo
Todayisagift
01 Apr 2011, 20:23
Physical dependence and psychological dependence on a substance are two different things. Most people with chronic pain do not become addicted to pain medications and normally will take medications as prescribed. There is research on that. There are always exceptions but people with chronic pain are interested in the pain going away, not getting high as in someone that abuses drugs. That is the difference.
ja
30 Mar 2011, 14:46
i was diagnosed with fibro six months ago apparently developing it because my body couldnt cope with a bilateral knee replacement,i know take amytriptaline 75mg daily, these help me sleep as i didnt sleep 1 night in 18mnths and was at the end of my tether, to be honest the only thing that keeps me going is my 8yr old hes the only reason i get out of bed in the morning, fibro has cost me my job and my partner as the pain gets so bad i cant have anyone around me, unless you are a sufferer you couldnt possibly understand how us fibros feel, all i ever do is moan i feel so alone in this.
Julz
23 Mar 2011, 12:05
Hi everyone. I've had FM for the past 10 years, and in the beginning it was a nightmare - experiencing everything you all describe, and more!.
But once I got to think through the brain fog I was determined to have my life back. So I still ride motorbikes, I teach art,make art for exhibition, walk, do the garden, and generally love my life. I must confess I've always been strong willed and refuse to be dictated to in anyway, because for me, freedom is the most important aspect of life.
I still have times when I sleep for a few days, hurt like heck all over, and sometimes feel pathetic, and also have gained some weight, but I just think to myself that 'I may have it, but it hasn't got me'!!
We have one life - so take charge, get it back, and live it!
Go for it!
Love to all.
raechael
20 Mar 2011, 02:52

I was on gabapentin, and then my Dr. switched me to lyrica, I have gained 15 lbs in a very short period of time :( but a friend suggested i go on a Gluten-Free diet for 30 dys and see how i feel?? she almost guaranteed my pain to be very minimal after changing my diet.....Im willing to try anything.....research Gluten it's pretty interesting....just FYI for you people out there trying to live somewhat of a normal life with FMS
ashley
26 Feb 2011, 07:04
Hi, I'm a 24 old women and was diagnosed w/ FM 1yr ago. Lately I've been thinking about my future w/ this condition. I read ur stories and they truly scare me. One day will I have to quit my career, have trouble keeping up with my children, and when I finally get pregnant will I be able to deal with that pain -on top of the other pain...as I can't deal with it now. I've gained about 20 lbs in the past two yrs; however, I can't say its because of medication. I'm currently taking Trazodone and Diclofenac sodium for pain. It works well when I take it, I become so busy I often forget. However, when its to late and I have a attack and I can't walk or write for 2-3 days because the swelling and pain is unbearable- I remember to quickly take them. Stress is the biggest factor in my life I'm trying to maintain it. When I stress I don't sleep, when I don't sleep I have attacks. I'm trying God knws I'm trying. God bless u all with FM, and have fun on ur better days.
Beth
20 Feb 2011, 11:45
NEVER TAKE PAXIL FOR ANY REASON AT ALL! you will for sure gain lots of weight, you won't care about anything, but more importantly if you ever try to get off the medicine you will have extreme difficulty. Paxil almost killed me and left my children without a mother. You miss one day of Paxil you could easily have extreme suicidal thoughts and extreme bouts of vertico. You miss 2 pills you will surely plan your lives end and not care who finds you. PLEASE IF ANYONE READS THIS DO NOT TAKE PAXIL FOR ANY REASON. There are many other drugs out there that are safe and will work. I call Paxil the "whatever" drug while you are on it. Because you care about nothing and the "suicide" drug if you are not on it. I was finally able to get off the poison from a new doctor not the doctor that prescribed it to me who slowly weaned me off if. He saved my life.
God Bless to you all as you struggle through you pain.
RK
21 Jan 2011, 00:24
Just diagnosed this week with FM & OA..FINALLY! I'm still in the foggy stage, just started reading about it/looking online. Took between 10 and 20 years to get this far. Have many other health problems: Diabetes, Intercystal Cystitus, major back troubles (degenerative bone/joints, curve in spine, disk fusion... - epidural injections of any kind don't work), migraines, asthma, ulcers...the list goes on. AND, I just turned 45 yrs old. Was on Gabapentin for nerves, but my new Rheumatologist is taking me off of it & starting me on Lyrica. Which of the two is worse for weight gain? I don't think I can mentally handle a large weight gain plus I don't want to aggrivate the other conditions by the added weight. Any advice for a newbee? Natural medicines?
renee
21 Nov 2010, 08:48
lyrica i took for 2 days, totally dysfunctional and never took again. on cymbalta for 3 yrs, and ultram. still severe p-ain iam 61 had since i was 48 yrs old, thyroid med also, some of you may want to consult dr about thyroid test. it can cause weight gain without proper dossage. a must check for all women. i suffer with severe degenerative disc desease, ru0tur3ed and bulging discs, in pain 24-7, p0hysical therapy 12 years, nothing helps, meds knock me out, so suffer the consequences, a pool helps, but on soc. sec, asnd ssi, unable to afford one. good luck to all hope it helpsth
holly bellerose
19 Nov 2010, 16:48
oh yeah i can truly relate to the lyrica thing with weight gain. I know from years of psycological meds prior to finding out I had fibro that if a med says may gain weight I definitly will, so I always tell my docs that if it says that i wont take it, I too gained 40 lbs in a extremly short time on the lyrica and developed a water weight problem with it also, I stopped the lyrica but still have to take meds to manage the water weight. I am also on cymbalta but I really dont know if it has caused weight gain. I was started on it for major depression, not the fibro but it dosent seem to help with the pain at all. The only other med I'm on for the fibro is tizanadine for muscle spasms but it dosen't last all night so I toss and turn and wake up exhaused, sometimes having to take a tizanidine in the middle of the night because of the pain. The only other thing I take is a aspercream like cream but you cant bath in it lol and patchs of basically the same thing that you can wear for 12 hours at a time but again its only for one area,not systemic so you cant wrap like a mummy. Hell yes we all have a reason to feel frustrated as I too have been treated as a drug abuser and not taken seriously and even that my drs have given up because they don't know what else to do so they do nothing and send you to no one else, they just seem to stop trying to care.
FRANCES MARTINEZ
16 Nov 2010, 21:07
have been reading all ur comments..all of us have r just soo alike.but what i noticed no men respond ,r only women affected by fm?i use to sleep during my lunch hr at work,it seemed i could not get enough sleep.i wasnt sleeping at noc, i hurt so bad..could hardly eat,i thought i was just getting old..the pain which radiates thru ur body is horrible...i cried in secret so my kids wouldnt see me...i feel for all of u...
Jan
16 Nov 2010, 13:49
I've had Fibro for about 20 years, but was diagnosed about 10 years ago when I had so much pain, and had a problem with balance. I had to give up a job I had had for 32 years, lost my house, and moved into a much smaller home. I had never downsized because there was no need. Now I have a storage room for a house, often cannot get up, and here 8years later it is still the same. I got so depressed even with all the meds I was taking, that I just hoped I wouldn't wake up each day. I've had to change docs several times, many are moving out of CA. None seemed to care. I went through a pain management program, and that helped, but it is even a chore to take all the meds I have to take now, and started Lyrica, and as many have said I gain weight. I cannot stand up for longer than 5-7 min., and have had a back procedure done on my spine, but it did not take any of the pain away. Just left me owing $500 more after medicare. I had both knees replaced and it seemed because of my job of caring for children for the 32 years. I have come to the place that I try not to have any stress..meaning I stay home alone. I am now 65 and my husband has just retired. The new doc wanted me to take Zymbalta, but a friend died after starting it, and I am afraid to take it. Anyone have any suggestions? God Bless all of you, I know there are not very many caring doctors out there.
Kim
16 Nov 2010, 13:24
I was diagnosed with fibro, rhuematoid, osteo, type 2 diabetes, hypothyrodism, 10 years ago. I am also fighting cirrhosis and chronic kidney disease. I'm taking gabapentin, lyrica, metformin, wellbutrin, morphine, actemra infusions, plaqueniel,I have gained over 70 pounds since I was diagnosed. I knew that cymbalta caused weight gain as my GI doc told me that and had me ask my PA to change it to wellbutrin. I wasnt aware until reading some of the comments that lyrica and gabapentin cause weight gain. I just started taking Xenical (prescription strength Alli) because I have to lose the 70 pounds and it's been frustrating as I eat a very healthy diet and I started a walking program about two months ago and have only lost 11 pounds. I fight constantly with my weight plateauing and it takes weeks to even lose another pound. I jsut saw my PA last week and she is well aware that I take all of these meds and yet never said a word about weight gain. I will be calling her office to get another appt to see what can be done to take me off of some of these drugs especially gabapenten as it is not as effective as Lyrica and why double up on drugs that are contributing to the problem.
Karen
16 Nov 2010, 10:37
I developed Fibro over 10 yrs ago (I am 60 yrs old). The weight gain is harder to handle than the pain, when it comes to the emotional side of it. It's so embarrassing. I was 96 lbs when I got married and never went above 117. Now I am 247 lbs. Talk about wanting to die when I run into old friends.

My husband and parents just keep telling me I need to cut down on food and exercise more. I had a knee replacement 2 yrs ago and now, carlidge has grown and it has stiffened till it's hard and painful to move at all, the Dr. wants to do it over. Osteo is in both knees and my back. Most days, it's all I can do to turn over in bed, get up and fix his breakfast. They just don't understand and their remarks don't help.

Lyrica helped the pain, but I put on 40 lbs. in less than a month.

I also have had Hypothyrodism since I was 19 yrs old. and several other health problems and am on 10 meds a day. Why can't people understand that no matter how bad we want to live normal lives, we can't. It's so frustrating and hurts. I cry so many days from the pain and depression and helplessness.
Brenda
06 Nov 2010, 22:44
Taking Wellebutrin now because I was gaining so much wait on gabapenten and celexa. Wellebutrin can cause weight loss.
Beth
05 Nov 2010, 21:24
I have struggled with my weight and body image issues my whole life... I just recently was diagnosed with Fibo. I haven't began any medications, but am scared of all the weight gain. I LOVE to work out, but haven't been able to because of my pain. Does anyone know of a medication I could suggest to my doctor that does make a person gain a lot of weight?
Chris
25 Jun 2010, 14:11
My mom was diagnosed with FMS in '99-00 and while I've never asked her officially, my guess is the weight gain is far higher than anything I've seen listed here. She used to be about ~130 and while I dont know the number, I know I've had to purchse XXXL clothes for her. She's embarrassed. I feel bad for her. It feels like there is nothing we can do. Lately over the last several months it has seemed even worse. To be honest, she really doesnt even look like the same person anymore.

Anyway, I'm just stunned that the whole focus of these comments is on pills and exercise and not more on how FMS itself is as much responsible for weight gain as any of the meds you describe. Thats what makes this all the more frustrating. Its the hormonal imbalance and the severe slowing of the metabolism that makes the biggest issue in my opinion. It all leads to fatigue and lack of sleep, which ultimately leads to weight gain.

My dad passed away 1.5 years ago and I'm an only child and live 5 hours away. I've started to receive comments from her friends asking me basically if I'm going to do anything to help her with the weight gain because they see her basically unable to perform every day functions with any real regularity. Its awful... I cant imagine how she does it, knowing that every day people look at her like a oreo cookie hound. When in reality she eats a great diet -- always has even well before FMS. Anyway, she's having a harder and harder time doing every day tasks and its mainly because beyond the pain, she is so big these days that moving itself is a struggle.

I just wish there was a way to even help the weight SUBSIDE at this point. Not only does the weight she is at not seem healthy in and of itself but at points she seems like she might explode.

Dana
03 Jun 2010, 01:01
I was diagnosed with fibro and other stuff in 2000 and its really been rough. I knew sonething was wrong but couldn't even imagine anything like this!!! I am on cymbalta and I take vitamins, c, d, tenormin because my bp goes up and down and I have MVP, Allegra for severe allergies, acidophilus, ditropan for IC, Aciphex for acid reflux disease with hiatal hernia. I also work full time and raised my daughter alone. I am 44 now and feel like I am 94. I have gained about 30 lbs!!! Please help!!!!
FAB
28 May 2010, 09:29
I lost alot of weight when I first got sick-fibro., rheumatiod and severe osteo-arthritis', Sjogrens Syndrome, peripheral neuropathy, 2 herniated discs in my neck that control my hand and arm movements and a permanently damaged knee from a bad fall. On top of this, I am transitioning from peri- to post-menopause, so needless to say, I gained 40 lbs. after going on gabapentin (Neurontin). I needed to lose at least 30 lbs. I was miserable! I finally tried Alli; I okayed it with my doctor since I take alot of meds. and he said yes, if I can tolerate it. I have lost 20 lbs. now in about 6 mths. Alli can can cause diarhhea, however, my meds. severely constipate me, so I don't suffer the normal side effects of Alli. I have also cut out alot of snack foods and snacking. 20 lbs. w/o exercising is pretty good; I'm still working on it and trying to start walking in our local park. Trying... 3 times in 2 weeks- I think I pushed too hard. As to the comments concerning narcotic medications, there is a difference between physical tolerance and physical addiction. Addiction involves requiring more and more of a substance just to stay "balanced". I have been taking methadone for over 5 years now, at a lower amount than when I first started on it. I can take 20 mg. per day or even 30 mg if needed. But there are many days that I don't need it; therefore I don't take it. Is that addiction? My doctor is very good about prescribing what I need, and I don't abuse the trust we've developed in the 12 yrs. I've been seeing him, plus he saw me before and after FM and sees the difference. I am blessed to have him. Now, if I could just educate him on bio-identical hormones! I have come to realize that I am my own health provider. I read alot about FM and rheum. arthritis and make suggestions to him and he listens or reads the articles I bring to him. Although I am basically non-functional most of the time, I am not the crying, wanting to die person that I was before I found help with all my medications. I also take alot of supplements-I have recently read alot about d-Ribose, a form of sugar! has actually helped me so much, esp. with my foot pain. That is my worst pain-my feet. The way I see it, the more meds. and supplements and naturopathic therapies that work for you will make you feel better and then become more active. And if you really want the inside scoop on pain meds. and addiction and the zealots who are trying to keep it from even terminal cancer patients because of possible addiction, please log-on to www.painfoundation.org., its a great on-line only now newsletter which I find to be very insightful, Sue!.
Betty
24 May 2010, 07:32
I have been diagnosed with Fibro & RA since 2000. I have been and are on the top end of narcotic and steroids. The steroids cause weight gain that can not be lost with exercise. Not that I could do exercise. My body doesn't permit it. The only exercise I have been able to do is swimming in a heated pool. Luckily here in Colorado there are Recreation Centers here that have year round indoor heated pools. The biggest help to my extreme pain has been medical Marijuana! It is awesome for the pain. Thank God that CO has made it legal. The only bad part of it is u crave food....As long as I can make myself eat carrots ad such when munchies hit I will be ok. Came off Neurontin and lost 10 lbs. Changed to Cymbalta. Now want to quit prednisone but have had hard time getting off the last little bit! Causes migraines when stopped....Will pray for u all that your pain is at a minimum! Hope u all get really good doctors who understand Pain Management! God Bless!
Leona
13 May 2010, 16:57
Have had issues for many years. Got tired of weight gain and "dragged out" feeling from prescription Rx. Took supplements from vitanatural.org for fibro, decreased my prescription med's, increased my exercise and watched my diet.(lots of water too!) Feeling much better, fewer episodes and weight going back to normal. Just an fyi. hope you can be better too.
Judy
11 May 2010, 14:09
In reading the various comments, the main difficulty seems to be in finding the right caring doctor. I have a rheumatologist and she is very good. I think that they are very reluctant to prescribe pain drugs because they
know how long the disease can last and they have really cracked down on docs and pain meds. However, I am doing well and take vitamin D and cymbalta plus a lot of other drugs for various conditions.
Good luck and God Bless.
Judy
angie
25 Apr 2010, 17:01
i have had fibro...sense 93 and it hurts very bad i am 41, i have 2 boys, i have raised them my self it is very hard,i dont hardly get no sleep, cause i cant sleep,i am so tired...........i have gained 25 lbs, but i lost it, cause at times i cant eat, when i do eat i get sick, the pain is so severe it makes me sick....no meds helps...........good luck and god bless
Sue
04 Apr 2010, 03:23
Vicky wrote: "I have done enough research about addiction and fibromyalgia that people with fibromyalgia DO Not get addicted from pain killers, our body obsorbs the medication to the pain we have therefore does not make us feel like a drug user!!"

wow, i'd like to see that research you did. as i can tell you one thing for sure - regardless of what illness a person has, if they take a (narcotic) pain killer for long enough, there is a 100% chance that they WILL become addicted....

that's not to say that they're seeking the drug for pleasure (although some do)...but, as the body becomes used to the drug, it develops a tolerance...meaning, eventually, the person requires *more* of the drug to feel relief from their pain - and, requires a minimum amount in their system at all times to keep from going through physical withdrawals.
Nancy
16 Mar 2010, 02:56
I have FM, since early 20's, but diagnosed in 2006 (now 45). Had a great Dr., but lost him (opiophobes forced him to close his practice). Trying a new clinic now at EVMS, but staff treats the patients like dirt. The most I could get from the new Dr is Lyrica. he won't prescribe anything else until my Vita D levels and iron levels come back up (he thinks my pain may be from the low vita d). I know what you mean about being treated like a drug seeker. People really need more education on how drugs work in FM patients. Lyrica has helped some at max dose, plus has helped my RLS some, but its like sending a boy to do a man's work. It isn't taking care of the problem. I walk 2 to 4 miles per day, and I'm gaining 2 lbs per month so far. I'm trying to watch what I eat. It's pretty discouraging to exercise my butt off and still gain the weight. I hope I can change from lyrica to something else soon. Finances are limited. pfizer pap helps for now.
nancy
Marcia
06 Mar 2010, 00:34
Yep...it's a killer. I also have osteo arthritis...pain pills for that helps
but Lyrica and Savella helped the fibro pain....but the side effects were terrible!!!

So, back to square 1 exercise ha! take
Ionic race minerals...lots of water...
New Emu cream off internet....and just
wait for another (attack).

Pray and rest and resist stress.
lost my job after 35 yrs...let go!
Terryl
23 Feb 2010, 18:00
I am a 46 year old mother with fibro. I have had it for probably 10+ years. I was reading these stories because I am so depressed about my weight gain. I read my story word for word when I read when I read Kickerboxer's story. I have a daughter she is 15 and she is so tired of seeing me ill and unable to do things, and tired all the time,that even she decided to leave. She went to live with gramma. This crap just takes everything away from you. I used to work,I was pretty,active, and married. Now I am none of those. My 3 dogs love me though....
kickerboxer
23 Feb 2010, 11:07
i have had fibro for 3 years with widespread pain.it hurts so bad sometimes.i have a child that i need to keep up with. so diffucult.i have tried many meds and have gained 25 pounds in the last year.it is so frustrating to want to work out, take a walk etc and not get too far because of the pain.i watch what i eat but with the lak of excersise here comes the weight.it is so painful at times that i sit and cry.it seems that everyone has a life but me.i try to be positive and fall on my faith in god but sometimes it gets to be too much.i used to be independant working and had lots of friends and once in a while they will call now,if that.i feel so alone in this.
Christina Newman
29 Dec 2009, 17:51
I recently was diagnosed with FM after going through months of unanswered pain, and frustration because I didn't know what was wrong with me. I used to be a hot 125-130 pound 40 something woman that young men thought I was in my early 30's. Now, I've gained tons of weight, and sadly I look much older than I really am now. I have only been on my FM meds for a month, all my uncontrollable weight gain has happened over the last two years, no dieting or excersice would stop it. Now I fear with the FM meds new to me, I will have more weight gain problems. I also have Hypothyroid, major cause of weight gain. Is there anywhere or anything that can help us with this at all? I want to get back into my hot jeans again!!!
Donna
19 Nov 2009, 13:35
Wow. I thought that it was just me! I have gained 40lbs. I am trying very hard to loose it, but nothing seems to work.
I am with Teri. Is there an online support group for us?
Kim
16 Oct 2009, 04:22
I know that with all the drugs I have to take for Fibro, etc. I've had a lot of weight gain and I know according to the side effects of alot of them is "Weight Gain", so even though I'm careful of what I eat and I try so hard to get enough exercise and it's hard with all that I suffer through, how do I lose weight? Is there some diet supplement that would help. I'm on anti-depressants as well, I know that right there stops some of them. HELP!
Vickie
06 Oct 2009, 12:10
Hi everyone, I feel your pain. I have had fibro for about 20 years now. I too am sick and tired of doctors not giving us the right medications that we need for the pain. They think we are all drug seekers, they think they have all the answers, I believe I know my own body well enough to tell them all about fibromyalgia. The new doctor I have, only because I moved, is trying to take me off of 3 medications that I have been on for years and are still working for me. She believes I will get addicted!! I have done enough research about addiction and fibromyalgia that people with fibromyalgia DO Not get addicted from pain killers, our body obsorbs the medication to the pain we have therefore does not make us feel like a drug user!! I believe that there should be some sort of law that doctors need have some sort of certification in fibromyalgia. What a waste of time and money going from doctor to doctor trying to find some help and being told it is all in your head because the doctor doesnt know anything about our disease!! I believe that the only way that Fibromyalgia is going to be recognized by the whole country and the and real research will be done is when a CELEBRITY gets this disease. Just had to vent, but I stand by what I believe. Thanks for listening.
Linda G
23 Jul 2009, 10:44
I have just recently been diagnosed with fibromyalgia although I am sure that I have had it for literally years and years!! I have been to every Dr you can imagine only to end up at the chiropractor. She is the one that sent me to the rheumatologist for confirmation of what she suspected. What a Godsend that Cymbalta has been for me in such a short amount of time! I have been going to the chiropractor for acupuncture and adjustments for years on a weekly if not several times a week basis. If this continues to work as well as it appears, it will not only save me alot of pain but alot of money on trips to the chiropractor. Maybe now I can go once a month to the chiropractor! I was also prescribed 10,000 units of Vitamin D for 3 months. I had a blood draw and I now take 5,000 units a day. That has also helped tremendously.
southern song
13 Jul 2009, 23:22
I have to get shots either in my neck/shoulders or lower back once a month. The result?!?!?! weight gain!! How do I lose weight while still getting these very necessary shots? I tried going off them for a while and the pain was so much worse. So that's not an option.
Carla Williams
11 Jun 2009, 10:03
I have had Fibromyalgia since 1999, probably longer. There have been many ups and downs in my journey with this disease. I always come back to the basics, when trying to find what works. Sleep is most important to me, get good sleep however you can. I have apnea and sleep with a C pap machine, helps so much. Diet, though I find this one the hardest to follow, should be full of healthy fruits and vegtables, lean meat and lots of pure water. When in pain I crave comfort food!Thirdly,we have got to move at least a little. Gentle stretching,walking or water exercise work best for me. I also visit my chiropractor regularly.Good luck to all my fellow sufferers.I pray for you all.
Heather
24 May 2009, 10:13
I was dx with fibro 5 years ago. I take lyrica and tramdol for pain. i have gain 20 pounds also. I also had a hystorectomy last year. now my hormones are so out of wack. i really don't feel my doctor understands. he just gives me all these exercises to do but I am always in pain and tired. I am 33 and I feel 93. anyone have any ideas of better meds? I was going to try massage therapy to help with pain before starting exercise again.
K
18 May 2009, 10:30
I have FM and have gained significant weight since. I think it is a combo of many factors including the medications we are on. Not only that, but without meds, I still gain weight and am unable to lose weight. I found out that many of our hormonal levels are completely thrown off- these are the same hormones that affect sleep and metabolism. Without these working properly it is almost impossible to lose weight or even maintain. My doc also believes I have thyroid issues (which would be a result of the imbalances), however I continue to have normal tests. I may try to find a doctor willing to do more tests or try thyroid treatment to help me out.
ann
11 May 2009, 12:06
I thought I was gaining weight, when I've had an acute attack of fibro. Since I've been in physical therapy, low amount of drugs, the swelling in my stomach, thights, legs, etc. have decreased. The muscles swell and does not necessarily indicate you have gained weight.
Wendy
25 Apr 2009, 20:03
I gained around 25 pounds when my doctor prescribed Amitryptiline to improve my sleep quallity (it caused me to crave sweet, fatty things, such as doughnuts, and I was hungry all the time). She said that I definitely didn't need weight gain on top of everything else, and switched me to Trazodone, which doesn't appear to affect my appetite adversely(I've been taking it for over 10 years). When my daughter was underweight, her doctor prescribed Amitryptiline to increase her appetite.
Belle
16 Apr 2009, 11:11
Yes there is a great online support group for Fibromyalgia. it is www.fibromalgiatreatment.com I have found it very helpful.I have had this since childhood good luck.
Teri
14 Apr 2009, 14:36
I was just dx with fibromyalgia,dont know what to expect but hurt very badly. Is there online support group or other people to talk to about this?



Thanks so much

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