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Community > Expert Q & A > Fibromyalgia > Just Dealing With Chronic Fibromyalgia Pain
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Just Dealing With Chronic Fibromyalgia Pain

Q: With both fibromyalgia and osteoarthritis, I have constant pain. Even with treatment, it never goes away completely. I’ve just been “dealing with it.” Is that OK?

A: Chronic pain is not a problem you should just put up with; in fact, you should make every effort to reduce it because an increasing number of studies are showing serious consequences of having chronic pain. It may cause damage to certain areas of the brain, just as chronic stress does. It also may lead to psychological problems, such as depression; social problems, such as isolation or decreased earnings potential; and functional problems, such as decreased activity or disability.

Overall, people do far better if they take an active role in aggressively managing their chronic pain-inducing condition(s). You should treat pain, as long as the treatments you use do not have side effects that exceed the benefits. Practicing relaxation techniques and sticking with a regular exercise plan may reduce pain in some of the same ways as pain medications. Massage and some supplements also may provide similar benefits, but these therapies have had less research documenting the benefits.

For moderate-to-severe knee osteoarthritis (OA), the supplement glucosamine may provide some relief, as may the right combination of analgesics or nonsteroidal anti-inflammatory drugs (NSAIDs). The analgesic tramadol (Ultram), four antidepressant medications – amitriptyline (Endep), cyclobenzaprine (Cycloflex), duloxetine (Cymbalta) and fluoxetine (Prozac) – and two anti-seizure medications – gabapentin (Neurontin) and pregabalin (Lyrica) – have been studied in people with fibromyalgia. 

In fact, Lyrica, developed to help ease pain, promote sleep and reduce fatigue, became the first drug approved by the FDA to treat fibromyalgia in 2007. Cymbalta and milnacipran HCl (Savella), both designed to help ease fibromyalgia pain, became the second and third drugs, respectively, approved by the FDA to treat the condition. Savella is also designed to help manage the fatigue associated with fibromyalgia.

Tell your doctor that the treatments you tried previously are not resolving your chronic pain, and then work with him to find the right combination of treatments for you. It may take some time, but the end result will be worth the effort.

 Daniel Clauw, MD, Rheumatologist

Kerry Forrest
02 Aug 2010, 21:52
I've seen and read lots of information on what can or can't work for a person, but does Frenches Yellow Mustard at 1 teaspoon or more in a day actually help??? I've been on every painkiller, every antidepressant. Only have not tried Lyrica yet. I'm currently on morphine/oxycodone/parafon forte/ibuprofen for pain. It works for a short while, then the pain/spasms and continual fatigue is back! Help!!!
Lisa
21 Jul 2010, 22:33
Nice that you dont want to weigh 300 pounds...I don't like it either but I am still a human being but thanks to comments like THAT one, I rarely feel like a human of value in a world where being thin means you matter. If you are FAT you are considered a worthless throw away person even by Dr's. I got FAT from being ill for years and not being able to do much. Meds made me binge eat and depression didnt help the mix so go ahead...line up with everyone else and shoot the fat woman...make fun...stare....giggle...name call. Why not?
I cannot wait to just die and be done.
snooze
03 Apr 2010, 20:28
Finally I have found exactly what I have been searching for, other people that feel exactly like I do. Some times I begin to doubt myself and think its really not that bad ,maybe its all in my head. Nuts, I know.I feel very guilty beeing like this every day of my life. I have been sick since 1998. My daughter had just started full day kindergarten. By the time first grade rolled around I was bed bound from serious depression and anxiety, I had a complete breakdown. I had been very sick before all of this had happened. One day I just felt like somebody had sucked the strength out of me. I had a viral infection that lasted almost three months. And during that time I was on a nebulizer, my cough was so bad somtimes I though it would kill me. I finally started to feel better but something wasen't right. I was very unhappy and I cried alot. I didn't know what was wrong. A giant void took over without my daughter with me. I've been sick ever since. I think the viral infection had something to do with causing the fibro. My body was not healing itself so my immune system started attacking itself. Thats my theory. I also have colitis which is an attack of the immune system.And I have serious acid reflux.I feel like my whole system is extremely off balance. I have read everything I could get my hands on for the last ten years. Searching and trying different vitamins, food, meds etc. My life sucks. My family is not supportive. I'm 55. I am on SSI and Welfare. I will have to move by December.I have to basically find a slum to live in all because I am sick. What the hell? You dont' deserve to live in a nice place because you are disabled. This world has no heart left. Its all about money.
Linda
15 Dec 2009, 23:00
Hi! I am 59 years old and have Fibromkyalgia, Polymyalgia and Osteo Arthritis. I am always in some kind of pain but through trial and error and lots of meds, pool excercises, and counseling about chronic pain and depression, I have more good days than bad and right now that is all I can expect for now. I don't take Lyrica. I think the reason the Doctors haven't mentioned it is because of all the other meds I take. I think I have had Fibro since I was 19 but in those days they didn't have a name for it. Now when someone asks me what is fibro like I say it is like having arthritis only instead of in the joinlts, it is in the muscles. When I heard that I thought "YES!" Someone understands that the pain is not all in my head. I have, however learned that while the pain is not in my head, I can lesson the pain by mindful meditation and lots of stretching. Some say a gentle yoga will help lesson the pain. and I agree that you can do things in the water that you could never do out of the water. I hope this helps. I am always available for support and someone to talk to if nothing else. Have a Very Merry Christmas.
Marsha Spickenagel
22 Oct 2009, 16:18
I have fibro and ra. Pain every day of my life for 20+ years. I have a wonderful rheumatolgist. I did not notice a marked difference between Lyrica and neurontin. The Lyrica was cost prohibitive. I have a tens unit and it works well but with all the wires it gets in the way. I wish they could come up with a wireless tens unit. When I am hooked up, I cannot use the restroom by myself and it is too difficult to wear. Water therapy classes work well too. You can do things in the water you wouldn't dream of doing on land. The best advice - have a great support system with family, church, friends...
Tracy
15 Oct 2009, 02:20
Has anyone had negative side effects with Lyrica? My Aunt swelled up horribly and had some other complications which makes me not want to try it yet. Thanks!
brooke gage
10 Oct 2009, 12:18
im 32 and i have have rheumatoid arthritis. ive been on many meds including,steroids,narcs,nards, muscle relaxers,methotrexate,still on humira ultram ,enbrel shot 1nce a week works great! my problem is i have debillatating R.A. & its getting worse.i got hooked on my pain meds, but need them because my R.A is so painful &is progressing by the day=( i also have a tens unit it does not help me as well. wish it did. i dont think anyone should have to put up with any kind of chronic pain!! dr's think because im 32 im to young to be put on any kind of meds. R.A.has no age limit. there is such a thing as J.R.A.i got this this unfortunante disease at 28. im not whining im simply saying that it your right as a patient in this god giving free country to be treated like a human being in a dr's office for a legitimate reason to be seen & heard . i have read in this mag. itself where a dr. states that every person has the right to proper medical att. & pain control. including pain meds, whether it being narcotics, or simple nslaids. im so sorry to go on, i just wanted every one 2 know they have options. whether it be homoeopathatic, to" simply deally with it", or taking meds . its really your personal choice. so find a good RA DOC OR ARTHRITIS DOC I HAVE AN RA DOC & A PAIN DOC THE PAIN DOC I DO NOT LIKE!!!!!! THIS IS Y IM WRITING THIS!!!well i hope goes well and lets all strive to stay pain free!=)
Deb
24 Sep 2009, 17:48
I use a TENS unit almost every day for my fibromyalgia and osteoarthritis pain. It's wonderful, though the effects are not as long-lasting as the electrical stim at the physical therapy office because it simply interrupts the pain signals while you are using it.
Besides the TENS, I use heat (cold therapy makes my muscles contract painfully), guided imagery CDs, stretching, a foot bike for aerobic exercise, pacing of activities, and a special wool mattress topper to reduce pain while sleeping.
I get a therapeutic massage weekly and would be much worse off without it.
I would love to be able to use pool therapy, but can't because of allergies, but I hear it is great.
I use Arthritis Strength Tylenol, magnesium maleate, and trazodone and sertraline for pain and sleep, and take a teaspoon of French's yellow mustard to prevent or stop muscle spasms. It works amazingly quickly.
In order to create this self-care strategy I have done a lot of reading of books and websites and talked to a lot of other people with fibromyalgia and arthritis. You might find a support group, either face-to-face or online, to be very helpful. We are all different, and different meds and strategies work differently for each of us. Best of luck!
Cathy
09 May 2009, 19:57
Has a Medtronic Pain pacemaker or a tens unit ever been used successfully for the chronic pain of fibromyalgia?
Diane Barham
05 May 2009, 11:29
I was thrilled to hear about LYRICA and got a perscription right away. As with ELIVIL it made me binge eat terribly and I had to quit taking it. This was heartbreaking as it was doing such a wonderful job making my fibro symtoms go away. I felt soo good, But didn't want to weigh 300 pounds. Maybe the next new pill will be the one for me.

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