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Community > Expert Q & A > Fibromyalgia > Chronic Fatigue Syndrome and Fibromyalgia
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Chronic Fatigue Syndrome and Fibromyalgia

Q. What is the difference between chronic fatigue syndrome and fibromyalgia?

A: .There are wide differences of opinions on the two conditions, even among medical experts. Most would agree that fibromyalgia and chronic fatigue syndrome (CFS) are similar, and probably related, disorders. One faction in the fibromyalgia/CFS debate believes these are simply two names for the same thing, while others say they are completely different and still others (though their numbers are small and diminishing) contend that neither condition exists at all.

My opinion is that the conditions are similar and probably related. Pain, fatigue and a host of other problems are seen in fibromyalgia. CFS displays similar symptoms. However, a practical way to differentiate the disorders is that pain is the predominant problem in people with fibromyalgia, whereas fatigue is the major complaint in people with CFS.

The pain of fibromyalgia is typically chronic and widespread, and is often associated with stiffness. On examination, many patients have specific sites (called tender points) that are extremely tender to touch. The detection of these tender points is helpful in making a diagnosis of fibromyalgia.

The fatigue seen in people with CFS is generally profound, and can be completely incapacitating. Criteria for CFS established by the Centers for Disease Control and Prevention (CDC) are fatigue that has been present for more than six months and is accompanied by the following:

  • a sore throat;
  • enlarged or tender lymph nodes;
  • muscle or joint pain;
  • other signs of systemic illness.

Signs and symptoms that are commonly present in botfh fibromyalgia and CFS include the following:

  • sleep disturbances;
  • headaches;
  • impaired memory or concentration;
  • dizziness;
  • bowel complaints (such as bloating, diarrhea and/or constipation);
  • anxiety or depression.

Despite the differences between fibromyalgia and CFS, the approaches to treatment of the two disorders are, in fact, quite similar. Most patients benefit from education about the conditions, participation in local and national support groups such as the Arthritis Foundation Self-Help Course, the use of low-dose antidepressant drugs at bedtime to improve sleep, as well as low-impact aerobic exercises.

For more information on fibromyalgia, contact your local Arthritis Foundation office and ask about fibromyalgia resources.

John Klippel, MD, Rheumatologist

Tonia
01 Nov 2009, 11:38
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Kimberly Martin....Contact the makers of the medication you need, they have patient assistance programs that if you qualify, the will give your meds to you for a year, then you requalify. It is called patient assistance program and can be found on google search. Good luck to all.
Caroline
01 Sep 2009, 13:19
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I have Fm along with several other autoimmine disorders and agree the fatigue can be overwhelming. An herbalist recommended "Corvalen" for the fatigue and it really helps. Its quite expensive, about $56 for 56 doses and is taken 3x/d for the 1st 2-3 wks. then 2x/d thereafter. It's worth the money to me to have some relief from the fatigue.
gail
19 Aug 2009, 12:04
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HI!
Doesn't anybody out there have Chronic Fatigue... I have both, but Lyrica has nearly eliminated the pain and flu-like symptoms.
Now I am nearly non-functional with FATIGUE.
Any ideas/suggestions?
I cannot find a support group in Maryland.
shelley lee
25 Jun 2009, 11:29
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I've been diagnosed with FMS since 4/06. I also have IBS, OA in my hands,feet and lower back w/bulging disks on lower-right side , as well as Depression, Hypothyroidism and High Cholesterol. I have good days/bad days but mostly bad especially when I'm out of pain medication-whoa! Without pain medication I'm unable to function doing everyday things most of us take for granted anymore! This illness is invisible on the outside to others therefore, most of us end-up suffering more than others. So' KEEP YOUR HEAD UP FOLKS because FMS is becoming more understood now-finally!
Terri
16 Jun 2009, 13:05
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I have already left a comment,but I do want to add I have psoriatic arthritis also.So like so many other people some days you are fighting both.Where I live the closest support group that I saw on the web was a couple hours away,but I find reading the comments here it helps to know there are people out there who are just like me.I have had to quit working about 6 months ago,and I loved my job I had some customers I had been seeing for 18 years or more,I miss them so much,but if i can get better I will try to catch up with them.I DID NOT MEAN TO RAMBLE ON.My love and best wishes to all.Oh yeah I AM about to be a grandma I CAN'T WAIT!
Kimberly Martin
21 May 2009, 21:01
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I was diagosed with Fibro, Rheumatoid Arthritis and Ankylosing Spondolitis over 10 years ago. Well the fibro was about 8 years ago. This has been the most painful time in my life. I was on Lyrica 5 a day and Remicaide which seemed to help. I lost my job in January and have not found one with insurance yet. I cannot tolerate pain medication and the lidocain patches only help a little. I wish there was more help for uninsured people with this disease. Everyday is a struggle and having two children ages 14 and 9 is a challenge most days. I cannot take sleep meds because my son is Type 1 diabetic and I do not want anything to happen to him while I am sleeping. I agree this disease affects everyone in your family and anyone close to you. If you would like to talk my email is kikoo94@hotmail.com.
Sharon Grimes
19 May 2009, 09:51
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I can relate to each and every one of you. I've had fibro for several years and fortunately have a compassionate doctor. I was forced to quit my job last August due to the debilitating effects of fibro. I applied for social security disability and after several months it was approved. I know that I am one in a million of the fortunate who get soc. security for this condition. I was 60 when I applied.

Since my condition was deteriorating rapidly I was advised by my doctor that I should not live alone any longer. My daughter and her family moved into my house and we built a small mother in law's cottage in the backyard. It is so great having my daughter so close and yet still maintain my own home and privacy.

One day while lying in my bed thinking of my future I decided my future was really in my own hands. I forced myself out of the bed and decided that I would put quality of life back into my life regardless of the pain. I read everything I could find on fibromyalgia and learned that the best thing is to keep moving. I bought a treadmill and started walking on it -- very slowly at first and not for very long. Then I got an eliptical. I bought a few more pieces of used equipment and set up a circuit training area with them. I used each piece of equipment for just a few minutes and then went on to the next. A year later and I walk outside - 2 miles per day. I have joined a group of bicycle riders and have completed the 16 mile course in a neighboring city. Yes, my pain continues but is more bearable through getting plenty of exercise. On bad days - I just relax and enjoy my beautiful backyard which is another thing I forced myself to do. I just could not see myself confined to a bed for the rest of my life. I'm very stubborn and when I set my mind to something - I do it. Yes, I suffer greatly from some of the things I do and overdo. But - I have a life again.

I would be happy to talk with anyone about this horrid condition and how I live with it. Email me at sharongrimes1736@gmail.com
Tiffany
10 May 2009, 02:35
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VICKY----

PLEASE FEEL FREE TO EMAIL ME IF YOU NEED SOMEONE TO CHAT WITH. MY NAME IS TIFFANY :)

EMAIL: epiphany888@yahoo.com
VICKIE
06 May 2009, 22:58
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I HAVE FIBRO. I WAS TOLD I HAD IT IN DECEMBER OF 07. I HATE MY LIFE! I HURT EVERY MINUTE OF EVERY DAY. I HAVE A DAUGHTER THAT DOESN'T UNDERSTAND. SHE COMPARES ME TO A CO-WORKER SHE HAS WHO SAYS SHE HAS IT. I JUST KNOW I HAD TO STOP WORKING. I HAVE MORE BAD DAYS THAN GOOD. I HAVE THOUGHTS OF NOT WANTING TO LIVE. BUT I HAVE A GRANDDAUGHTER WHO I LOVE SO VERY MUCH AND A WONDERFUL HUSBAND SO THE THOUGHT GOES AWAY. I AM SO SICK OF BEING IN PAIN. THERE IS NO SUPPORT GROUPS IN YUKON, OKLA. AND I REALLY NEED ONE. IM ON AMBIEN TO HELP ME SLEEP BUT TURN OVER AT LEAST EVERY 15 MINUTES DUE TO THE PAIN IN MY ARMS AND SHOULDERS. I TAKE PAIN PILLS LIKE CANDY. I WANT TO BE NORMAL AGAIN. PLEASE GIVE MY EMAIL ADDRESS TO ANYONE WHO WILL CORSPOND WITH ME. I REALLY NEED HELP.
OLGA ROMAN
05 May 2009, 19:00
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My rheumotologist gave me a name for my debilitating complaints. So I now know that I have two of the most painful conditions, which are arthritis and fibro (myofacial pain). I have had to go part time since 3/09 because I can no longer work 5 days per wk. On most nights I can not sleep for more than 3 hrs at a time. If only the neurologist I went to see 6 yrs ago had listened to my complaints. If only my family doctor would have listened to my complaints much sooner I would have had the opportunity to do more about this condition alot sooner.
Frances
05 May 2009, 14:48
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I was diagnosed in 1993 and told I would probably end up in the bed. My asnwer was, "I WILL NOT". It has been a long hard struggle but as more doctors are getting on board it has been easier to get help. I am lucky, my doctor is one you keeps up-to-date on the latest information. Pain has been the worst. Some days, I want to just scream as loud as I can. I can understand suicidal thoughts. When you hurt that bad, you would do anything to stop the pain. Today, I found out I am at high risk of getting ovarian cancer. I have a cyst on my ovary and at my age the doctor said they usually develop into a tumor. We have a family history of colon cancer so I guess we add this to our list of things to get checked for each year. I am blessed. If it develops into cancer, we have caught it in the very, very early stages.

I just started Lyrica, Flexeril, and am using Voltaren Gel. These new meds seem to be helping but I am so dizzy I cannot drive. I guess it will go away in time.

Love to all, stay strong,
Frances
Julie
04 May 2009, 16:52
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My Fibromyalgia began six months after a whiplash (car accident). Shortly after that I was diagnosed with Osteoarthritis, Hypothyroidism (now Hashimoto's), Herniated Disc, and Season Affective Disorder. I also have Fuch's Dystophy. I might be adding Cyclic Neutropenia to the mix as well...

Anyway, life is one day at a time & very difficult to make any plans. Each day I am different. I still have hope and know that I have a future though it has changed greatly.

My family and friends give me the most support they can. But it is my life to be lived which is challenging. I try not to whine nor complain...no easy order with chronic pain, chronic fatigue, and chronic diseases/disorders. Yet, my life has taught me great compassion and a listening ear.
Marcia
02 May 2009, 01:35
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After all the comments, what can I say? I have found that my own personal research has
been most helpful in my depression, since you
can't see it (fibromyalgia), many do not believe it is real. It's newness to the community offer some kind words with the Lyrica commerials. I fought hard to get my
insurance company to aprove Lyrica and -- it
did not work. Thank God for Cymbalta. With
depression since 1984, I thought it might help. My primary care said no! I've learned that where there is a NO! There's a YES around the corner. Fight for your medical
rights and needs. Don't give up. Have FAITH!
Catherine in Fl
19 Apr 2009, 22:11
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Yes,it is real! Been living with this fibro for close to 20 years, I have found that taking the least meds possible, and exercising helps keep you going. It hurts to move EVERY MORNING, but keep moving. I have been blessed to have a heated swimming pool and exercising in this has given me back enough strength to continuse to be active and helps with pain. Many don't believe this, but pool exercise is WONDERFUL and so BENEFICIAL.
sjackson
19 Apr 2009, 19:17
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YES, YES, YES!!! Fibromyalgia is REAL!!! IT HURTS LIKE THE DICKENS!!!! I be hurting and find myself having to take LYRICA which relieves the pain for a while but causes me to go to sleep! I feel so exhausted and tired most of the time. I THANK GOD FOR MY RHEUMATOLOGIST!!! He diagnosed my arthritis on time and knew that my stiffness was due to fibromyalgia. I know that I'll have to see him the rest of my days and take my medications, but it's for my good. I can only do so much now. My time is limited to my grandchildren, which is what I enJOY the MOST anyway. Hope this helps someone.
Catherine
19 Apr 2009, 10:02
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I've had fibromyalgia since 1981. I've watched doctors grow in their knowledge and found much better treatment as the years go by. FM is painful but I keep going. It won't kill me but I do have to take better care of myself. It runs in my family.
Barbara Gifford
18 Apr 2009, 15:13
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I have had both fibro and CFS since 1996. Fortunately I have a doctor who is always on the computer looking for the latest medical info. I have found that when my fatigue is at its worse, that is when my pain level goes off the chart. Lidocaine pain patches help a lot for pain areas, neurontin and oxycontin help the most. I also take ambien for the sleep apnea that also goes along with it. If you aren't satisfied with your doctor, find someone else who is aware of what fibro and CFS really is all about. Also find a support group in your area you will find lots of help being with others.
Rose Lavin
18 Apr 2009, 00:41
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POOL EXERCISE AND JOINING CURVES HAS HELP ME,MY DOCTOR RECOMMENED IT AND SHE ALSO GAVE ME ULTRACET FOR PAIN, WHICH HELPS . PEOPLE DO NOT UNDERSTAND FIBRO.,ONLY US SUFFERS KNOW HOW DEBILATATING THIS DISEASE IS. I WISH THEY COULD FIND A CURE FOR IT SOON. LATELY I AM SUFFERING FROM FIBRO FOG,I ALSO HAVE TROUBLE CONCENTRATING AND LOSS MY THOUGHT IN A MIDDLE OF A CONVERSATION.
Bobbi de Córdova-Hanks
16 Apr 2009, 20:31
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After surviving three different primary cancers, two of which were metastatic, I was diagnosed with fibromyalgia. What amazed me was the various doctors who said fibromyalgia was probably a depression following the battles with cancer. Most of them acted like it was "all in my head." After several surgeries, chemotherapy, radiation, I131 Iblation, I certainly know what pain is. How uncompassionate doctors can be when you suffer from something they don't have a concrete answer for. They can treat my tumors and all the side effects from treatment, but when it comes to fibromyalgia, you feel like you're on your own. If I didn't let cancer get me down, I certainly won't bow down to fibromyalgia, yet in many ways it's more difficult to cope with due to the attitudes of most of the medical community. Thank God there are some intelligent rheumatologists in practice. Let's keep on working on awareness. Fibromyalgia is real. The pain associated with it is real!! Thank you Arthritis Foundation for all your good work.
arlene j. mosakowski
16 Apr 2009, 09:40
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I HAVE ALL THE ABOVE OF THE FIBROMYALGIA PROBLEMS ...... I NEED HELP. I HAD HIP SURGERY ON THE LEFT HIP A YR. AND A HALF AND NOW I'M IN PAIN EVERYWHERE. ARMS, LEGS, IN THE HIP ALSO.
'

ARLENE J. MOSAKOWSKI
Theresa
01 Apr 2009, 21:17
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Amazing how long we suffer with this dread disease;emotional suffering at the hands of people who don't understand what it's like as well as the physical and mental suffering from the disease itself. I'm off work the past couple of days with a flare, hoping to get back soon...my husband is totally disabled with a neuromuscular dystrophy. So needing to keep my job and all its stress is adding to the mix....some days are just so darn hard. Recently my son who lives 1/2 way across the country from us, age 27 was diagnosed with fibro as well...so sad.
Kimberly
01 Apr 2009, 13:54
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I have had fibro since 2000. The pain makes you change and yes it also effects your family life. I have 3 kids, the oldest are graduating from High School this year and a 20 yr old. I wish I could have watched them do sports more then I could. I feel so guilty not being able to be there, and feel at times the kids don't understand.
Juanita
31 Mar 2009, 04:52
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hmmm fascinating, for the past year I've had either a gland or lymph node on the left side of my neck constantly swollen or up and down. I just thought this was me as I also have Hashimoto's thyroiditis, perhaps it is something more to do with chronic fatigue than i thought. I do have fibro and my doc thinks I've either had adrenal fatigue or chronic fatigue without realising - definitely makes sense now.
Sally
04 Mar 2009, 22:36
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Having been diagnosed some years ago, this information definitely hits the "Point." I pray there will soon be a test for Fibromyalgia and medicine that can treat it. No medication has been prescribed for me, and I take over the counter medicine when I'm hurting, but it doesn't really do any good. Fybromyalgia is very painful, and it definitely interfers with your lifestyle. Not only am I affected, but it also affects those near you. They want to help you but don't know what to do, and it also puts limitations on activities that you can do with them too. It takes the fun out of many days, and you can't do things that are fun and that you enjoy doing.

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