ADVERTISEMENT
Advertisement
ADVERTISEMENT
 
Community > 'The Tin Mom' Blog > Tin Mom Blog: Topics of Mind
Text Size   Plus   Minus   |   Print   |   Email  

Topics of Mind

Tell us what you'd like to discuss.

By Annette Beach

If I had to describe what it’s been like since I began writing The Tin Mom Blog, I’d say from a personal standpoint, the experience has been bittersweet. Re-living some of the difficult times I’ve had since I was diagnosed and reading your posts about the trials you face is very hard. But at the same time, we problem solve, reach out to one and other, vent and celebrate successes together. Confirming none of us are alone in our journey is a reward in itself and makes the bitterness worthwhile!

This blog gives me the freedom to express my experiences about living with a chronic illness while at the same time challenges me by having to face real situations. At times it’s difficult to put my thoughts into words, but in the end, there are usually visible positives. It doesn’t mean I wear rose-colored glasses. It’s merely a state of mind that I choose in order to stay focused to fight the continuing battles.

Whether you agree or not, my thoughts do not discount the fact that various forms of arthritis can be extremely challenging, compromising a person’s life, as well as those around them. Not only does it attack physically, it can be devastating on emotional levels.

I’ve lost friends to this disease. A harsh reality that is often unspoken. For those of us within this arthritis family, we share a common denominator of understanding, experiences and education, in turn giving each of us strength and hope to forge ahead.

When you read my blog, you see the paragraphs I’ve selected to support a particular topic because the page is limited. But what you don’t see are the pages filled with the thoughts overflowing from my mind or the raw emotions that fill my heart knowing there are others dealing with similar experiences. There are times when the anger surfaces because I know how cruel this disease can be and how it attacks and blindsides a person at any age, leaving lives in turmoil. 

On the flip side, I have stated many times, “My illness is a blessing in disguise and I wouldn’t trade my life with anyone.” A complete contradiction of feelings and emotions, yet I truly believe with every ounce of my being, I am a better person having this disease than not. It has opened my eyes and given me an appreciation for life that I wouldn’t have seen otherwise.

In the past three weeks, I have addressed “Disabilities” in four separate blogs. While there are endless avenues yet to discuss on this topic, I do not want to focus on a subject that will be misconstrued as dwelling or make the wrong impression. That is why I need your feedback. Is this a subject of interest that we should continue? If not, what would you like to discuss?

We are all in this together. I am open to suggestions and appreciate your input.

Valerie
07 Feb 2010, 14:43
I totally agree with you that sometimes this disease plays with one's mind. I hate this disease and what it has done to me and my ability to function. Yet, because of this disease I have a window on this world I would never have had. I appreciate everything so much more and find the beauty in it all. So I struggle to find a peace or at least a truce. I work at being happy and finding joy. Sometimes I am successful, others not so much. It really seems to me that articles and often individuals are reluctant to speak about the downside as well as the up side. I see lots of articles about the up side and I find them helpful at times but not many voice the negative, the anger, the frustration. It is like a taboo subject, which is really to bad as we need the whole picture to help us through. Are we really bad people if we are angry? if we speak of the bad things? Must we pretend that the negative doesn't exist? Also I find that the hardest part of this disease is how it affects those I love around me. How my son feels when I just cannot make it to conferences or a recital. How he sometimes can't have friends over because I don't have the bandwidth. How my husband feels when he has to come home after a hard day and has to fix dinner and care for the kids. There are up sides to these things as well as the down but sometimes I,and others I imagine,want to read the whole picture not just the one through rose colored glasses. I find comfort and support knowing others have those feelings to and knowing how they work through them or with them would be helpful.

Leave a Comment

The comment function provides the opportunity to comment on the content above.

General comments or questions to Arthritis Today editors and medical experts can be submitted here. Past medical questions and answers are available here.

Promotion of products and services and other inappropriate comments are prohibited and will be removed. If you spot one of these before we do, please send an alert.

All fields are required but only your name and comment will be displayed. Your e-mail address will not be used for any other purpose.

Name:
Email:
Text:

ADVERTISEMENT
Advertisement