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Community > 'The Tin Mom' Blog > Tin Mom Blog: Disabled Dream
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Disabled Dreams

Do you know anybody who wants to be disabled?

By Annette Beach

What did you want to be when you were growing up? It seems the most common dreams for young children are to become firefighters, police officers, doctors, nurses or ballerinas. The kids filled with extra energy say an athlete or a rock star.

For me, I wanted to be a commercial airline pilot. At the age of 6, I spent 11 hours flying the friendly skies, while traveling overseas and absolutely loved it!

The attendants put me to work passing out silverware before each meal and by filling simple passenger requests. In between jobs, I was permitted to sit in the cockpit while the pilots taught me how to read the gauges and explained the colored buttons. And yes, before exiting the plane, I was officially named as the flight’s honorary pilot and had my own [plastic] wings to prove it.

From that day forward, I set my sights on a flying career. Since there was an ocean separating my family, I had the opportunity to be a frequent flyer before the program was ever initiated. With each flight, I voiced my interest and was given the chance to learn from experienced pilots and have numerous conversations about the expectations.

Shortly after getting my driver’s license, I joined a youth flying club and became a regular tag along on private aircraft. By doing odd jobs at a small airport, such as waxing planes and painting hangers, I was rewarded with countless hours of flight time.

In high school, I applied and was accepted at a university, majoring in aviation technology. I thought my dream of becoming a pilot was within my reach, but instead, I was detoured.

The summer after graduating from high school, I lucked out and got a job working with the most advanced computer technology available. My boss and mentor, Hank, took me under his wing, so to speak, taught me about the up and coming future of computers, then led me down a path with greater opportunities. He also arranged for me to meet with a group of successful pilots to discuss the statistics of women pilots and the reality of making my dream come true.

While I was still determined to follow my dream, I was enlightened by the new information and my gut feeling was to reconsider. Knowing Hank had my best interests in mind and was willing to open doors for me in another direction, I decided to change my major to Computer Science and work toward obtaining my private pilots license. After all, I could always return for a degree in aviation technology at a later time, right?

Less than three years later, I was diagnosed with severe, crippling poly-articulate rheumatoid arthritis. When I learned of my diagnosis, the conversation was intense as the doctor explained how my disease is extremely aggressive. It wasn’t long before I was labeled as being disabled.

After a 25 year absence from flying, I attempted to return, but given my extreme limitations and the loss of performing simple tasks, I can no longer become a certified pilot. Although this disease has brought many positives to my life, I will always be disappointed knowing, I’ll never be able to fulfill a lifelong dream.

Regardless of how many times I review my childhood list of things to be, I’m still not finding where I said, “When I grow up, I want to be disabled.”

Has your diagnosis interfered with your dreams? Have you had to reroute your life plans because of an illness? What changes have you had to make? Looking back, was it a positive or negative?

connie muir
03 Feb 2010, 07:14
I waas diagnosed with rheumatoid at age three. The only thing I ever wanted, the only passion I ever had was to be a Veterinary Doctor. I'm forty years old now and I'm seeing my dream fade away. I didn't ask to be disabled. I wanted to chase my dream like everyone else did. I just started applying for disability and I feel like the rugs been pulled out underneath my feet. I am angry at me for the poor choices I made. I'm angry at God for proving I was right. Dreams are nothing more than carrots dangling in front of mules. I'm angry at my husband for pulling me down to reality. A reality that all I'm good for is to sit in the house or follow him on errands
Dray
17 Jan 2010, 12:51
Much like Kevin, I was diagnosed so young that my "when I grow up" dreams never included anything physical. Then again, I was a very creative girlie girl. I wanted to be a teacher, a writer, Whitney Houston, or more realistic, a social worker. I do remember being 7-years-old and going to my first community rec. basketball practice. The first organized sport I had tried. Two weeks later I was in the hospital receiving my JRA dx. My rheumatologist then told me I wouldn't be able to continue basketball. From that point on, sports were forgotten.

However, I was also a stubborn child who carried the secret knowledge that I had JUVENILE arthritis, which meant that once I turned 18, arthur would, Poof, disappear. Boy was I pissed when that bubbe burst. What I never wanted to be was a "poster child" for arthur. Though I was in a wheelchair for much of my adolescence, I did my best to be "normal" which, I believe, damaged my self-esteem more than if I had embraced my "disability" and been able to be proud of myself anyway.

What crippled me for so long was not the physical, but the emotional pain that comes along with arthur. The insecurities, low self-esteem and depression that comes with a painful and chronic illness. Negative thinking can cripple us more than any flare.

This is a lesson that I continue to learn and must work at. Though I no longer fear being a "Poster child" for arthur. The physical things I want to try, para-sailing, skydiving, can be done with adaptation. And soon, with my new hip, I will ride a horse for the first time in 25 years.

It may seem like semantics but really, I am a person with a disability. I am not disabled.

Kevin
15 Jan 2010, 01:28
Nice post Net,
I have dreams sometimes when I sleep of living a life without arthritis, I live in the limber body that was lost so long ago. Do I dream of doing somersaults on freshly mowed grass? Of course not. How about being able to dance like MC Hammer? Nope, that would be too normal. My recurring dream is that I can pick my nose with my left hand. I guess it is the simple things in life my mind misses.
I was lucky to be diagnosed with arthritis before I had a real dream for my life, the earliest memory I have of what I wanted to be when I grew up was a truck driver. Not something that arthritis would of stopped me from doing if I had continued to have the smarts of a eight year old boy.
I do not think you should ever give on your dream of flying, I am sure that the same fly by wire systems that are used by the unmanned drones with the light computer joystick type controls will find its way to high end private planes and then eventually into an affordable market.
I personally can not walk the 500 feet on the gravel runways that we have at the soaring club, so I ride a mountain bike over to my glider, strap myself in and then fly. I am not the only one with body issues, we have a very active para program at the club. A few miles down the road flies Jessica Cox, a local pilot who happens not to have arms. Check her out at rightfooted.com.
So I will be patience, and in time all my extracting dried nasal mucus dreams will come true!

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