On October 28, 2010, Arthritis Today posted an informative article on the web titled, “Injectable Methotrexate Recalled.” Within a few short hours, I received a ‘Breaking News’ e-mail alert from the Arthritis Foundation informing me of the recall and referencing the article. In turn, I sent the information on to groups and others whom I thought would benefit from this knowledge. Within no time at all, my inbox began to receive forwards of the same.
Although I’m not directly affected by the recall, I was impressed by the speed of spreading the word and applaud the reliable sources who took the initiative. The article explained the seriousness of the recall without inducing panic, gave dates, websites and suggestions of who to contact if a patient has questions or concerns. It also recommended the alternative of oral methotrexate during the interim while exchanging the bad vials for good, to lessen the interruption of treatment.
Having had a personal history with methotrexate and knowing firsthand how the drug works (and in my case, didn’t work), I’ve followed the recall closely and continue to read the comments posted by those with concerns. For me, methotrexate was not a good experience! After six years of trying oral, injectable, cocktails and other combinations of the drug, my medical team finally chose a different route. However, I’ve known people who have had positive results and can’t imagine their life without it.
To some, that find didn’t come easy! Finding the right combination of meds and getting the body to tolerate them can be months – even years – of trial and error. And now some of you are faced with the frustrations of more side effects, including additional injection site bruising, feeling ill (more than usual) and the possibility of further damage. Not to mention, the aggravation of having to deal with yet another obstacle. And to the parents who make decisions about your child’s medical treatments, my heart goes out to you!!
In some cases, interruptions to medical treatment plans are minimal, but not always. For those in possession of the tainted vials, I can only imagine the thoughts and fears that fill your mind, especially if you experienced negative reactions. Liability issues are minimal compared to finding alternate treatments that will keep you moving now, the mental debate of future reactions to other drugs and combinations, the emotional issues that accompany the concerns of taking high-risk medications, and so much more!
In my blog, “Changing Medications” (11/3/10), Judi commented, “it is always something.” I’d say those four words sum up what it’s like to live with a chronic illness. Would you agree?
It’s seems we’re always under attack – even when we do everything right!
Have you experienced drug recalls? How did it affect your health? Did your frustrations or anger add to your symptoms? Do you have suggestions or tips that would benefit those affected by a recall?
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