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Individual Stories

How do the people in your life interpret your arthritis experiences?

By Annette Beach

Last week, I watched an interview with a husband and wife who had been severely burned in a fiery crash. As they shared the details of the accident, long recovery, children’s acceptance of their scarred mother, holding on to a marriage that was once solid, grieving the life they’d lost and overcoming the obstacles caused by this tragedy, I felt a deep compassion. My heart ached for their losses, yet at the same time, rejoiced for the courage and strengths they found to overcome.

During the interview, they spoke of a painful distance that developed between them as a result of the accident then explained how they prevailed to save their marriage. Every night for an entire year, they gave a detailed account of their own version of the events that took place immediately following the accident. After doing this repeatedly, they realized, when it comes to retelling an occurrence, everyone has a personal recollection of the same event and each version depends on the direct impact to that person, creating individual stories.

The key was to communicate. In order to restore their marriage, they had to acknowledge what each experienced, their thought patterns, intensions and personal injuries at the time of the crash. Viewing the situation from various angles helped to clarify, providing a better understanding during a time of chaos and confusion.

For several days, I’ve replayed the accounts set above and can’t help but wonder about the countless marriages and relationships that struggle or fail due to misunderstood or untold, individual stories.

Having a life altering injury or illness can wreak havoc between loved ones and friends. Being able to communicate is crucial, but far from simple! Inserting ones self into the shoes of another, so to speak, is not an easy task. Although a person’s intensions may be good, it’s not always enough. It takes patience to listen, time to process, then repeat and repeat again.

I’m reminded of numerous occasions when my arthritis resembled the aftermath of a crash, leaving me scarred, recovering, holding on and grieving, all the while searching for courage, strength and some sort of understanding to overcome a chaotic and confusing time.

Thankfully my husband and I learned early on to communicate. Over the last 25 years, we’ve had marathon conversations related to the toll my illness has taken on our marriage, at times being brutally honest in order to truly understand our individual stories. Painful? Sometimes. But overall – worth it!  Unfortunately, I can’t say the same for all of my relationships. Lack of communication or misunderstandings are to blame for a number of lost friends and family.

How do the people in your life interpret your arthritis experiences? Has your illness been the cause of a broken relationship? How do you voice your individual story? Do you make an effort to understand the versions of those around you? Please share your thoughts in the comment section below.

Dray
28 May 2011, 15:19
This post is so timely. I have had JA since I was eight-years-old, so in many ways I have been "lucky" in that the friends I have made have never known me any other way. However, my assumption that they simply "get it" can cause some misunderstanding and hurt feelings. I had this happen recently. Being on disability, I don't have to get out of bed if I am flaring. Double-edged sword of sorts. Winter is always hard for me and I kind of went under the radar for about two months, not answering the phone, only sporadically checking e-mail, eating a lot of delivered pizza and spending the days in bed with my cat. And I figured that my loved ones would just "get it." Because I always wear a smile and don't generally say, "Hi, I'm in a "mild" amount of pain 24 hours a day and now that it's hanging out at a 6 or 7 on that silly pain scale, I am taking a break." A very good friend began to feel resentful and hurt, feeling that I was just ignoring him/them. And I guess I was. And I also realized it's not fair for me to just "check out" when others may need me or need to talk, what have you. Because our relationships are built on reciprocity. I did not explain why I needed to go off the grid, and I should have. But I have also realized that going off the grid can be very dangerous and one can easily slip into a fell blown depression. So after all these years, I learned again, that I need to communicate and that it's not "all about me" even when all I can do is lie in bed and cuddle with my cat.

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